MEDICAL TRAUMA
I am not a complainer by nature.
When the surgeon asks, "How are you doing?"
and I say, "I would like to revise my other side.â
I know I look calm and poised.
I know I suggest it in a pleasant manner.
But that DOES NOT mean I want to have brain surgery for funsies.
Hell NO!
Brain surgery sucks. No offense meant.
But recovery wrecks my life for months.
I can't be the mom I long to be.
The wife I used to be.
Or the therapist I need to be.
I am choosing this Hell a forth time
because I am currently living in it anyway.
Every time the dishwasher runs.
Every time my 9 year old is himself -- a loud rambunctious little boy.
Each time my husband runs his table saw and constructs something magnificent. I can't walk steadily for the rest of the day.
What am I supposed to do? Ask them to stop? Earplugs only help so much.
Nah, bro.
I am asking for you to cut my head open
so I can give them THEIR lives back.
So they don't have to dance around me anymore.
It's such a chore to be the one everyone works around.
Can you imagine what itâs like for them?
It's not about me. It's not about your numbers.
I just want my world to stop swaying with every clangor.
I want my world to stand still for THEM.
Even the air conditioner sets me back. But you didn't ask me that.
I could see it in your face.
I know the look by now,
I've had plenty of medical trauma
before reaching your virtual office space.
You could hardly wait to shut the metaphorical door in my face.
Wondering when my soul sucking need for surgery is going to end.
Well let me tell you, my friend,
I am also waiting to see how this story ends.
Like on it our lives depend.
#medicaltrauma #superiorcanal #scds #chronicillness #chronicillnesswarrior #brainsurgery #brainsurgerysurvivor #brainsurgeryrecovery #mypoetry #mypoeticjourneytohealing #originalpoem #poem
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Recesses of Me With OCD
In my brain I scream, Oh please, set me free! But the jailer is always me.
I canât step aside, elusive is outside. Defeated, alone, resigned.
I stay in my vest, âcause youâll think Iâm a pest. Review, ruminate, second guess.
Trapped inside my mind, craving chats that bind. âYou offendâ fear lied. WaitâŚdid I?
You think I donât care. I stammer and stare. Really, I long to share.
Yearning for our fate, with open gates. Secretly sensing weâre best mates.
I canât bridge the gap. Can you make a map? Reassurance wonât let me fall flat.
Youâll do all the work. I worry and warp, convinced I am a twerp.
What is wrong with me? Is my inner plea. Is this how I am destined to be?
An affection hoarder? What keeps the border between you and me?
Oh yeahâŚI have Obsessive Compulsive Disorder and Social Anxiety.
_
A life of its own. Forever oâergrown. I have learned to let it be.
And live behind glass, while longing to ask: Let us bear our souls intimately.
Make me clean, God, please. Brush teeth âtil they bleed. Wash âtil my skin recedes.
Yes, I have those. Itâs starting to slow, âcept when sinister germs come close.
Waves of shame slay. Focus on the way. Must say novenas of the day.
Saints these and Saints those. Father, Son, Holy Ghost. For my soul, please repose. Â
Hours on research gate. Lost in a debate. Compulsive research of my fate.
Culling symptom lists, of me to make sense. God, am I a narcissist?
Down the rabbit hole. Lost touch with my goals. The psyched ward ate my wounded soul.
Gave me side eyed looks, labeled me a kook, my quirks the doctors all mistook.
What is wrong with me? Is my inner plea. Is this how I am destined to be?
Itâs Hell, this disorder, fortifying the border between you and me!
F*ck you, Obsessive Compulsive Disorder and Social Anxiety!
_
Iâve tried to break free with ERP. Torture excruciating.
Then came CBT. It never helped me. Pulling me farther out to sea.
Perhaps ACT impacts, with values on track. Head out of my *ss, Iâm back.
IFS reset. Now my parts at rest. Self-leadership provides a nest.
A True Presence be. Coupled with me, found my celestial nobility.
Itâs quite the hike. Iâve learned my might. Gained my inner sight.
Even with my crown, I still fall down. Tumble, suffocate, nearly drown.
Again, I rise, with eyes on the prize, to walk the earth humbly and wise.
What is right with me? Iâm starting to see. Who I am destined to be.
Lifeâs getting shorter. Action was in order desperately.
Social Anxiety and Obsessive Compulsive Disorder, you wonât beat me.
_
With wings pain once bore, today I soar. Balanced, centered in my core.
Joyfully, I sing. I am coming clean. My dark recesses disclosing.
A beacon of light, to provide sight, for others stuck in flight.
And you I see, too. What youâre going through. Iâm supporting your inner coup.
Depth to hold dear. Iâll draw you near. Your story I want to hear.
You canât offend. I will only tend to the places where you bend.
Let there be an us, pure and free of lust. It will be marvelous.
Friendsâ everlasting, no longer casting ourselves in roles and acting.
I have found me. Allowing eyes to see journey for destiny.
Down with the border. No longer a hoarder, Iâm giving of self completely.
Social Anxiety and Obsessive Compulsive Disorder, you are not me.
But with me youâll always beâseparately.
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Sigh After Denial
Today I am deeper than bone tired.
Recovering from my 3rd brain surgery has been different. I just don't have the "oomph" I had the first two rounds.
It's going well by all standards.
Symptoms have abated.
I walk around the block.
I cook dinner.
I even run errands.
But mostly I lay around.
It's going well. I am getting better.
I just can't put my finger on what's different. It's like something deep inside me has broken. I'm no longer fighting this disease and desperately holding on to the illusion that I will get my life back.
This IS my life. It's not the one I wanted. But it's mine.
It is a slow life. There is a lot of time to read. Time to ponder. Time to feel. Time to process. I like that. Is it strange?
I know it won't be like this forever. I know I can be symptom free. But my "old life" is long gone. There is no going back. Only forwards. Towards recovery and health, which will likely include some adjustment. I don't know what yet. But I am willing.
Maybe I am so tired because I have finally given up the struggle--the battle I was never going to win anyway. The one where, somehow, I would beat this beast of a disease back into a metaphorical cave and it'd be like it never came.
Instead, I am just going to let it be. And I'll be. And I'll manage it. And accept that I have a disability.
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