#medical trauma

[chronicsymptomsyndrome]

Can we please for the love of god stop telling teenagers they’re too young to have aches and pains. Can we please stop being dismissive about these things. Fakeclaiming is disgusting period, but it is exponentially harmful to youth. Just because you didn’t start hurting until your 20s or 30s or 40s doesn’t mean every teenager complaining of chronic pain must be lying. I learned the hard way that if kids are invalidated enough about this, they will just learn to accept constant pain as a fact of life. And then they will need surgery they can’t afford in ten years bc it turns out constant pain is NOT a fact of life. At any age.

p.s. same goes for mental health

#chronic pain #chronic illness #medical trauma #tw fakeclaiming #fake claiming #anti fakeclaiming #childhood trauma #complex trauma #physical disability #disability advocacy

[chronicallyillandcoping]

Im really tired of medical professionals not realising that their behaviour and their colleagues behaviour literally traumatises people.

#disabled #chronically ill #chronic fatigue #chronic pain #disability #actually disabled #chronic disability #disabled community #spoonie problems #disablity #chronic illness #medical trauma

[yrfemmehusband]

If your response to people discussing their medical trauma is "there are good Doctors though" I fucking hate you btw

#medical trauma #medical gaslighting #disability #chronic illness #cripple punk #chronically ill

[vaspider]

Hey y'all, a heads up.

Dr. Gallagher was recently the subject of a viral tweet thread because she almost killed one of my friends via neglect and gaslighting. A transphobic journalist is trying to capitalize on that to fearmonger. Please signal boost this, share it to other Discords, etc. No one deserves to be used by a transphobe for a hit piece.

Sorry if you're seeing this multiple places but I am piiiiiiiiiiiiiiiiiiiiiiissed.

#medical trauma #transphobia

[thebibliosphere]

Yesterday was my first time in the ER since my hEDS diagnosis was officially added to my file (instead of me having to tell them and hoping they’d believe me), and everyone in my emergency care team was on top of it. Like on the ball, fully engaged and interested in keeping the zebra in the hospital comfortable.

They also all knew what MCAS and POTS were and deferred to me when it came to medication and pain management. Which was also wild, because they were not shy at all about offering pain relief. They straight up offered me narcotics, when usually the most I get offered is Tylenol.

Even the CT tech knew what MCAS was and asked if we should pre-treat with Benadryl because he knew some patients could experience mast cell destabilization from the radiation even without the contrast dye.

He and the nurse even helped brace my neck when I was going into the CT machine because I mentioned having cranial instability, and the position I was in was making my neck click, so they stopped everything to find multiple pillows to brace my neck and shoulders while I was on the table.

Afterward, while being bussed through the corridors in my bed (because they had to dehydrate me to take the CT scan and my POTS was going haywire, and they made sure I had to be upright as little as possible), I commented to my nurse that I was startled that everyone I’d spoken to that day knew about EDS/MCAS/POTS and were so accommodating.

He paused before answering, then told me, “We probably don’t know as much about EDS as we should, but we’ve seen a lot of the other two over the last few years. Covid really messed people up. Did yours start with covid?” No, I told him. We think I was probably born with it and a dental infection turned it lethal. He expressed his sympathy and again reminded me I didn’t need to be a hero and I could press the pain med button whenever I needed to.

Back in my room, they started me on IV fluids to combat the dehydration from the POTS. And I was laying there, I became aware of the nurse bracing my elbow so it wouldn’t hyperextend while he futzed around with the IV and I remember thinking, “this is how it always should have been.”

The kindness and care shown to me were in such stark contrast to past experiences it made me quite tearful. There were no accusations of anxiety, no referrals to psyche, and no implications that I was over-exaggerating my pain. No denying of my experiences.

Just a quiet, vocal acceptance that I “knew my body best” and that they’d do whatever they could to help.

It was nice.

#chronic health tag #posting for bad days when I need to remember there are good healthcare providers #long post #medical trauma

[4spooniesupport]

#traumagenic osdd #trauma #just cptsd things #living with cptsd #cptsd recovery #cptsd problems #abuse survival #parental abuse #mental abuse #emotional abuse #verbal abuse #tw abuse #childhood trauma #medical trauma #spoonie #chronically ill #chronic illness #disabled life #disability #mental illness #disabled community #invisible disability #chronic disease #mental heath support #complex ptsd #ptsd #actually ptsd #ptsd recovery #living with ptsd #actually cptsd

[gentlemanbutch]

I am so tired of medical professionals. I am so tired of having to try to speak in code so they listen to me, because apparently just outright stating my symptoms is the incorrect way of doing things. I am so tired of trying to give them enough details so they understand, but not too many details, because then they might think I’m dramatic. I’m so tired of them not bothering to learn any of my history and just being told I just need to eat less, or drink more water, or get out and exercise. I’m so tired of having to pretend to not know what I’m talking about. I’m so tired of arrogant pricks who don’t know what’s going on being too proud to refer me fo someone else. I’m so tired of being brushed off if I did my own research or have theories about what’s happening in my own body. I’m so, so goddamn tired of not being believed about the experience of my own life.

For all these providers with enormous fucking power that you use to abuse, gaslight, and dismiss patients who have spent years in pain — I hope you rot.

#ableism #medical trauma #medical gaslighting #health care trauma #chronically ill #chronic illnesses #chronic illness #disabled #disability #disability justice #fibromyalgia #pcos #endometriosis #mecfs #me cfs #chronic fatigue syndrome #myalgic encephalomyelitis #ibs #long Covid #covid #chronic pain #chronic fatigue

[myalgicencephalomyelitiscfstom]

#medical trauma #chronic illness #undiagnosed chronic pain #undiagnosed something #chronicallyill

[thatchronicfeeling]

DISABLED PERSON: I was treated terribly by a medical professional today. OTHER PERSON: Oh. Doctors are under so much pressure, though. I feel sorry for them.

DISABLED PERSON (who has been traumatised multiple times by the medical system): ?!

#cw medical trauma #medical trauma #medical gaslighting #disability #chronic illness #ulcerative colitis #Inflammatory Bowel Disease #myalgic encephalomyelitis #chronic fatigue syndrome #me/cfs #pots #Postural Orthostatic Tachycardia Syndrome #Postural Tachycardia Syndrome

[neuroticboyfriend]

honestly you probably shouldn't go into the medical profession if you aren't prepared to treat patients with dignity and respect - even if your job exploits you, even if your bosses suck, even if you're exhausted.

yes, you are allowed to have feelings and be tired. but you have to be willing and able to either admit when you can't do something (and take the consequences), or put how you feel aside and do your job. for the sake of your patient.

you and your job may be harmed by the medical industrial complex's wrongness, but to your patients, you are part of the complex that is also gravely failing them. you have the power to be a force of goodwill and care, or an instrument of oppression.

that is what you're signing up for when you become a medical professional. don't like it? don't become a medical professional.

#softspoonie #medical industry #medical professionals #medical #medical system #medical ableism #medical abuse #medical trauma #disability advocacy #health #health advocacy #ableism #systemic ableism #systemic oppression #nurses #doctors #medical neglect #medblr #medical student #medical studies #medical malpractice

[phleb0tomist]

did you grow up with chronic pain? did you get called sensitive as a kid/teen with chronic pain? were you bombarded with wisecracks from adults who said you won’t know real pain till you get older? join my initiative to ban this vile practice from planet earth!

i had chronic pain as a kid. (still do now.) my physical ability was best in childhood, like, i could do cartwheels then, meanwhile i can’t walk now. but istg my pain was regularly at this very same level back in childhood. ok i have extra symptoms now which make things harder, but if we’re JUST focusing on the pain part, it’s often the same. this blows my mind. the level of pain that i have now, bedbound and with opioids and a million accommodations, is the same level i had when i was 10 when i was just walkin around all day, asking my teachers nicely if i could sit indoors during playtime. (they said no btw.) back then, every time i tried to tell people how much everything hurt, adults said i was “sensitive”.

was i sensitive? is that what i was?

I think i must have been insanely powerful as a 10 year old to be out and about with a level of pain that makes me nonfunctional as an adult. I wonder how many kids and teens are in that amount of pain right now and are being dismissed because of their age. i think the way adults treat children with long term pain is evil. “you don’t know real pain! it only gets worse as you get older! wait till you grow up!!”

okay i waited.

i’m closer to 30 now than i am to 10, and the more hindsight i gain, the more i realise what a horrific violation it is that my pain was ignored when i was the most vulnerable to the trauma of unmanaged pain and had the least frame of reference for what level of agony is normal to experience while climbing stairs

#ok to rb #HOT TIP. if it takes your child more than 20 minutes to recover from climbing stairs THEY ARE NOT SENSITIVE. they need MEDICAL HELP. #anyway. just thought y’all might relate #chronic pain #medical neglect #medical trauma #chronic illness #negative #disability #txt #I want to trigger tag this but idk what to put #rant #long post

[strawberrycat18]

When other people say they’re dizzy, they mean ‘phew! My equilibrium is a bit off! In a just a few moments I’ll be fine!’

When I say I’m dizzy, I mean something very different.

I mean that I can see black spots in my vision, and I can’t tell if this is going to be the time I pass out.

It means that the world is swimming underneath my feet, stretching and distorting like an obstacle course even when it’s just a straight, flat path.

It means there’s so much pressure in my head and not nearly enough.

It means that I can feel my heart speed up and beat harder, trying to adjust to the new gravity, just because I’ve shifted slightly.

It means I can feel the nausea rising in my stomach and the bile come up my throat.

It means that walking is a challenge. Getting a snack is a challenge, going to the bathroom is a challenge. Sitting up is a challenge.

So, when I say I’m dizzy, I’m trying to dumb it down so that you can understand a fraction of what I’m feeling. Not that I’m not feeling it. On good days, it’s a hindrance. On bad days it stops me doing anything. Stop telling me that ‘just being dizzy’ doesn’t make me ‘that disabled’. You barely know the half of it.

#potsie #chronic illness #chronic pain #chronically ill #pots #pots syndrome #disabled #autism #tw gaslighting #gaslighting #disability #I’m so done with my mum #medical trauma #medical gaslighting

[decora-kai]

Yk i wish medical professionals could actually act fucking professional and understand that being in constant pain is not something that 'everyone has' or 'just growing pains'. I want them to recognise that I'm not just a whining kid who wants attention, or an unhealthy kid who just needs to exercise. It fucking pisses me off. I'm also pissed because I feel like my level of pain doesn't warrant any help compared to others. I know some people with chronic pain are bed bound 24/7 and because of fucking medical gaslighting I feel like I'm not worthy of a diagnosis because I'm not also stuck to bed forever. Like Im with my chronically ill friends who have to deal with such bad pain that they probably will never be able to leave their house and I feel for them, but just because I'm not 'as bad' as them doesn't mean I'm just a pussy bitch.

#chronic pain #chronic illness #fibromyalgia #tw vent #rant post #spoonie #medical gaslighting #disabled #cripple punk #cpunk #Medipunk #pissed off #medical trauma #transmasc #queer

[powerrangersystem]

ID: Tweet from @chronicnotebook. Medical trauma is feeling sick and afraid at every medical appointment, because as you sit in the waiting room, all you can think about are the times you've been invalidated, disbelieved, mistreated or hospitalised and you're scared it will happen again. It's real and terrifying. End ID.

#medical trauma #disabled #actually disabled #disability #chronic illness #chronically ill #queer cripple #crip punk #cripple punk

[fairfowl]

Nimona is a kid’s movie, and in that context it’s already radical that a sympathetic character straight up cut the protagonist’s arm off 

but

what the movie didn’t show is how much trauma like that bleeds. That kind of injury often isn’t survivable, especially if the inured person is unable to receive immediate medical care. Being on the run makes it really hard to get immediate medical care.

so

my theory is that the glowy bit on Ambrosius’s sword

is light-sabery and cauterized the wound

which would still require urgent medical care like jeez Bal you’re gonna go into shock

but it might stop him from bleeding out in the collapsed arena basement before the movie actually starts

presumably he found some back alley clinic, or a medbot, or bacta tank offscreen 

whatever they have in this universe to help people survive these massive injuries without an entire healthcare team, blood transfusions, surgery and sutures, etc. 

anyway

#nimona #nimona 2023 #nimona movie #ballister boldheart #ballister blackheart #ambrosius goldenloin #trauma #medical trauma #commentary #original #i contributed #not a criticism just a headcanon

[4spooniesupport]

#traumagenic osdd #medical trauma #trauma #complex ptsd #ptsd recovery #actually ptsd #tw ptsd #ptsd #cptsd problems #just cptsd things #living with cptsd #cptsd recovery #actually cptsd #psychology