#chronically ill

[justsomerandomgay]

something that isn’t talked about enough with chronic illness is knowing that going to your appointments and doing your exercises and all that will help but being in too much pain or too fatigued to go, so your just stuck in this constant cycle of knowing what you need to do to get better but not being able to do it because your sick

#chronic illness #chronically ill #chronic pain #cripple posting #cripple punk #cripplepunk #crip punk #cripple shit #functional neurological disorder #queer cripple #fibro problems #fibromyalgia #crippunk #cripple life #cripple problems

[fibro-memes]

#fibromyalgia #chronic illness #chronic pain #chronic fatigue #spoonie #fibro #chronically ill #invisible illness

[cripplemetal]

but seriously, i can't believe how far i've gone. and how i should be really proud of myself.

11 years of never-ending pain, of learning how to ignore and endure it, how to look and act "normal".

then my first shitty canes (they're pretty but completely unusable). first steps. first shame. how i was afraid to show up at work with it.

after that, i ordered a custom cane. and then another one. i decorated them. made them vibing. i started taking it to work, still afraid to use it around my colleagues.

then i got three house canes (first and second ones got chewed by my beloved dog lol) and started using it at home as well.

and now i use it everywhere i go. when i walk my dog, when i go to my lunch break on work, when i get around my apartment.

i got forearm crutches and learned how to use them. i decorated them too! they're yellow, covered in flowers stickers.

today i started saving up for my future rollator. i believe i'll be able to actually order it by june.

it all happened too fast, i still have impostor syndrome, i still feel self-conscious, like i'm not actually disabled and don't belong to cpunk communtiy and i'm a faker etc etc etc... but one thing happened: i improved my life. (even if i'm a faker lol) i got less pain every day, less fatigue, i stopped being ashamed at least of my canes.

my best friend was a big part of this journey, without her support i'd never get here. love her so much.

#chronic pain #mobility aid #cripple punk #disabled #cane user #physical disability #chronically ill #c punk #cpunk #using a cane #mobility aids #mobility aid user #rollator #forearm crutches #disabilties

[matchakuracat]

Being asked to rate your pain on a scale as someone who has had chronic pain for several years is so difficult. Like how am I supposed to rate the pain I am experiencing from 1-10 when I have no idea what it feels like to not be in pain. Like what is 0? what is 1?? what is even 10???? What am I comparing it to???? My 5 can be someone else's 10 and their 10 can be someone else's 2, and how is a doctor or anyone else for that matter supposed to tell the difference? Maybe it's because I'm autistic and I'm just overthinking it but it literally makes no sense to me.

#chronic pain #chronically ill #chronic illness #physical disability #cripplepunk #cripple punk #crip punk #queer cripple #chronic disability #disabilities #disabled #disability #actually disabled #physically disabled #chronic illnesses #undiagnosed chronic illness #chronic illness community #undiagnosed chronic pain #joint pain #pain scale #chronic joint pain #chronic headaches #chronic headache #actually autistic #autism #disabled rant #chronic illness rant

[ladysadie6969]

I don't even remember what a no pain day feels like anymore, I've gotten so used to the aching and throbbing pains, I can't even fathom having zero pain.....10+ years of this already and I finally have a doctor's appointment with someone whom I hope listens to me and is able to help me.

#chronically ill #trans #transfem #spoonie #chronic illness #disability #invisible illness #disabled #actually disabled

[wishful-seeker]

I have 0% tolerance for doctors anymore, if they treat me shitty once they will again, thus I'll either drop them or file a complaint.

Before my CRPS was diagnosed i was too scared to stand up to doctors. The pain made me SO DESPERATE i was willing to deal with anything. Now that i have this new undiagnosed illness i realized my body and mind PHYSICALLY cannot do that anymore.

The second to last time i didn't stand up for myself with a doctor i punched the medical bed as soon as she left the room, the last time i couldn't even hear what he said because i was busy restraining myself from punching HIM. i was seeing red, face twitching and everything. My body literally cannot take being quiet anymore. I do not care if i make things more difficult. I don't care if it takes longer to get diagnosed because im pushing for better treatment. I would rather stand up for myself and physically suffer more than let these doctors believe they are allowed to treat me like a dog. They don't treat me like a HUMAN, they don't see us as HUMAN. They see us as pests. A burden, a problem to solve. And if they can't solve you THEY FUCKING HATE YOU. but i think i hate them more.

Doctors are in a gross position of power over their patients, they decide if you live or die, your existence is in their hands, you beg them for help because they are your God and they spit in your face. Even if you literally cry and beg them to help they will give you NOTHING and i know this because thats what i did. I literally BEGGED these people sobbing to help my pain and they did nothing. They do not care about you. They never will. We are not people to them. Nurses are often the same way. I've had nurses and doctors lie straight to my face, make faces when i tell them my story, and do other horrible things.

I can't do it. I can't deal with it anymore. I will fight tooth and nail and be the biggest Karen in existence to these doctors the SECOND they treat me wrong.

I have found two. TWO doctors out of over 50 that i actually like. 2 that treat me appropriately and not like im a bug. 2 that treat me like a human being.

#tw medical trauma #tw medical gaslighting #cripplepunk #cripple punk #physical disability #chronically ill #doctors are scum

[frogsupportanarchy]

Just got diagnosed!! Keep fighting for your diagnosis someone will eventually give you an answer. Good luck to those who don't know what's wrong.

#actually disabled #chronic pain #chronically ill #cripplepunk #disabled #chronic illness #spoonies #cane user

[pleastrop]

I was talking to my mom about mobility aids and also said that I am going to buy compression socks/gloves and she got SO mad, she told me those things are for old people and that I'm not going to use any of those things, even if I pay for them myself, all because "you're only 19, you DON'T need them!!" I'm so tired

#chronic illness #chronic pain #chronic fatigue #chronically ill #disabled #actually disabled #disability #chronic disability #disabilities #mobility aid

[im-out-of-it]

#chronic pain #chronic illness #disabled #disability #chronic fatigue #chronically ill #disabilties

[reinbowzz]

Invisible illness is still an illness!!!

Chronic pain that you can push through 99% of the time is still chronic pain!!!

Chronic illness means that sometimes you have to rain check with your friends because you can't control when it gets bad.

Don't push yourself, its ok to not be ok.

#chronic illness #chronic pain #chronically ill #chronic fatigue #ehlers danlos syndrome #hypermobility #hypermobile ehlers danlos

[permanently-sprained-ankle]

Health update for those who care:

Had a hypomanic episode because I forgot to pick up my antispsychotics

Which led to me overdoing physical activity and therefore a BAD pain flare up that I’m still going through

I have received confirmation via MRI and ultrasound that my ankle has in fact been sprained for six years. My other ankle has considerable damage as well.

Several doctors have mentioned EDS (hypermobile and Classical) to me based on the type of ligament and tendon damage I have

I need to get injections in my ankles and then surgery on the bad one. At least there’s a solution!

Anyways hi I’m back!

#disability #disabled #chronic illness #chronic pain #chronically ill #cripple punk #cpunk #cripplepunk #flare up #ankle

[justsomerandomgay]

when you have chronic pain, nobody cares that your having a particularly bad day because your meant to be used to it. no one believes that i’m actually in such bad pain. i can be crying from the pain and they just don’t care

but i do care, if you are suffering from chronic pain, im sorry and i see you and you don’t deserve this. you deserve rest ❤️‍🩹

#chronic illness #chronically ill #chronic pain #cripple posting #cripple punk #cripplepunk #crip punk #cripple shit #functional neurological disorder #queer cripple #fibro problems #fibromyalgia

[fibro-memes]

#fibromyalgia #chronic illness #chronic pain #chronic fatigue #spoonie #fibro #chronically ill #invisible illness

[cripplemetal]

"you have such long beautiful legs" awww thank you! :3 they're useless

#cripple punk #c punk #chronically ill #cpunk #physical disability #disabled #mobility aid #chronic pain #cane user #using a cane #chronic illness #disabilties #physically disabled

[smadeleine42]

God, most days I can take it. I can swallow the pain and grit my teeth through the nausea and smile through the aching. I can find ways to convince myself that this life of mine is good good good. But some days I wake up after a night of not sleeping and I cry into my hard boiled eggs. Some days the pain in my shoulder means the world is going to end and the stiffness in my back heralds a sinkhole that swallows me whole. Some days I can’t take the fact that I’m still sitting in this house while everyone else keeps moving moving moving.

Some days it all comes crashing down, and I wonder if I was ever able to withstand it at all.

#disability #chronic illness #hypermobile spectrum disorder #chronically ill #chronic fatigue #pots syndrome

[ashthenerdtheythem]

For fucks sake

My geography teacher has this game that she likes to play when we finish the day's revision topic(we finished the course in Jan). It's would you rather. But you have to sit or stand up for your answer. This has resulted in several near fainting episodes and triggered a 2 week flare up. Today, 1 of the lads asked if we could just stick our hands up. In that moment I would have done anything for that fucker despite his previous shitiness. She told him to stop being so fucking lazy. JUST STOP CAUSING FLARE UPS PLEASE!!! I AM BEGGING YOU!!!

#chronically ill #chronic pain #chronic fatigue #chronic illness #chronic fainting