matchakuracat

[matchakuracat]

桜

#nature #cherry blossom #landscape #fog #sakura #sakura tree #beautiful #♡

[matchakuracat]

thank you!! and it's completely ok to @ me :)

i really struggle with using words to describe what different kinds of pain feel like but the hardest part is that i don't know what any of them actually feel like, like idk how to connect the words to the actual sensation of the pain if that makes sense?? but then again maybe im just reading into it too much because im autistic. it's probably okay to describe things using descriptive words without knowing that it's 100% correct, because it still gives the person you're describing it to a good idea of how it feels. but thank you, i'll try to keep this in mind!

just for the sake of trying it out: the pain in my knees right now feels dull, deep, pulsing, or maybe closer to wavering since it's not in a steady rythm?? it's more inside the knees than on the outside. and it's quite low, below the knee "bump".

idk i still struggle with it but i think i did pretty well!

Ways to describe pain

Because when someone asks “what kind of pain”, sometimes idk how to answer.

Dull vs sharp or stabbing

Shooting, “like electricity”

Hot, burning, searing

Cold, frozen

Pins and needles

Vibrating

Pulsing

Sore

Bruised (you can use this even if you’re not actually bruised!)

Shallow vs deep

Persistent vs wavering (“comes in waves”)

Itchy or scratchy

Stinging

Examples:

A paper cut could be described as sharp and shallow

A bug bite could be decribed at hot, persistent, and potentially stinging

A sprained ankle might be described as dull, bruised, deep, and pulsing

[Image ID: White text in a Galaxy background reads If you: Derail my posts; are an “aspie”; run a sh/ed blog; are under 16; are a TERF; think cripplepunk is for mental disabilities; think that autism isn’t a disorder; are pro-transabled, trace, transage, etc; are pro-map or pro-zoo; are a transmed; want to completely demedicalize autism, I will probably block or mock you. End ID]

[matchakuracat]

this is really helpful, thank you!

i was actually thinking of asking both my parents to write down their own statements on how they experience my issues and what i go through, aswell as how it affects them. because i think doctors might take my struggles more seriously if it impacts others aswell as me and if they can also testify to the fact that it really disables me and how. idk exactly how to deal with it yet but this did really help, so i absolutely appreciate it! :D

(also yes i live outside of america and doctors are still not fun to deal with if you're chronically ill)

This ABSOLUTELY works.

I have used this for many years. Definitely b do it.

[matchakuracat]

listening to music and mentally preparing for the hell that is an everything shower during a flare up

#chronic illness #chronically ill #chronic pain #chronic fatigue #flare up #chronic illness flare up

[matchakuracat]

Thank you, this is really helpful!! I'll try to think of these things :)

The reason I was so disappointed by the xrays not showing anything is because I've recently gotten hard lumps on a few of my finger joints that feel like bone and I was really hoping that they would show something indicating something like arthritis (I have psoriatic arthritis in my family) but you're right in that it shouldn't discourage me from keeping on trying to get help! I was just really upset since I had just gotten the letter from the doctor.

The last doctor I saw also didn't want to take any blood tests to check for inflammation or anything else, just infection. He said it was too soon since I had gotten one a little less than a year ago, even though I had just started getting these new symptoms that I didn't have back then. So I'll try to get a doctor who's willing to take more tests, even though I'm not super confident that they'll show anything either.

But once again thank you for taking the time to write this all out!! I really appreciate it! :D

chronically ill/physically disabled people, how do you deal with doctors appointments? what do you say/do to advocate for yourself? im autistic and not diagnosed with a chronic illness yet and i really struggle to know what to say to get them to listen to me and understand so that i can get the help and care i need. even if i bring someone with me, they also need to know what to say and i don't know anyone who understands well enough to explain to the doctor for me, which means that i have to tell them what to say before going. but that's the problem since i just don't know.

i have chronic joint pain that ive had for years but has only gotten worse over time. i also have hypermobile knees which are the worse they've ever been right now. i'm chronically fatigued and barely have the energy to eat and do basic hygiene. i have a few friends that i talk to fairly regularly and im very thankful for them but i still struggle so much with maintaining a social life when i cant even maintain my own physical wellbeing. i only go outside when i absolutely have to/when my pain is low enough and i have enough energy. on average i probably leave my house about once or twice a week, usually to go to medical appointments, to an internship i have once a week or to go grocery shopping. i usually try to do both at the same time if i can (like going grocery shopping after my internship) but most of the time i have to ask my parents to get me groceries since i dont have enough energy to. all i want is to be able to go outside just to take short walks and enjoy nature and the fresh air but i can't do so without the right treatment/a mobility aid. everything im doing right now is bordering the line of too much. im constantly tired and overwhelmed and everything feels like a struggle, even the smallest tasks most people do everyday without thinking twice about it.

i have almost only had bad experiences with doctors and other medical professionals like physiotherapists, which has given me a lot of extra anxiety on top of my already pretty bad social anxiety. i really struggle to make appointments and even more so to go to them, and when i bring myself to do so i really struggle to express myself and explain how i feel and how i want them to help me. i almost always get shut down and offered no actual help with any of my problems. i just don't know what to do anymore.

if anyone has any advice i'd really appreciate it. i know that i can't give up because my life right now without accommodations is too miserable, but i also don't know how to move forward.

sorry if this was hard to understand. i really tried my best to explain but im having a bit of a hard time expressing myself right now due to feeling worse than usual.

[matchakuracat]

chronically ill/physically disabled people, how do you deal with doctors appointments? what do you say/do to advocate for yourself? im autistic and not diagnosed with a chronic illness yet and i really struggle to know what to say to get them to listen to me and understand so that i can get the help and care i need. even if i bring someone with me, they also need to know what to say and i don't know anyone who understands well enough to explain to the doctor for me, which means that i have to tell them what to say before going. but that's the problem since i just don't know.

i have chronic joint pain that ive had for years but has only gotten worse over time. i also have hypermobile knees which are the worse they've ever been right now. i'm chronically fatigued and barely have the energy to eat and do basic hygiene. i have a few friends that i talk to fairly regularly and im very thankful for them but i still struggle so much with maintaining a social life when i cant even maintain my own physical wellbeing. i only go outside when i absolutely have to/when my pain is low enough and i have enough energy. on average i probably leave my house about once or twice a week, usually to go to medical appointments, to an internship i have once a week or to go grocery shopping. i usually try to do both at the same time if i can (like going grocery shopping after my internship) but most of the time i have to ask my parents to get me groceries since i dont have enough energy to. all i want is to be able to go outside just to take short walks and enjoy nature and the fresh air but i can't do so without the right treatment/a mobility aid. everything im doing right now is bordering the line of too much. im constantly tired and overwhelmed and everything feels like a struggle, even the smallest tasks most people do everyday without thinking twice about it.

i have almost only had bad experiences with doctors and other medical professionals like physiotherapists, which has given me a lot of extra anxiety on top of my already pretty bad social anxiety. i really struggle to make appointments and even more so to go to them, and when i bring myself to do so i really struggle to express myself and explain how i feel and how i want them to help me. i almost always get shut down and offered no actual help with any of my problems. i just don't know what to do anymore.

if anyone has any advice i'd really appreciate it. i know that i can't give up because my life right now without accommodations is too miserable, but i also don't know how to move forward.

sorry if this was hard to understand. i really tried my best to explain but im having a bit of a hard time expressing myself right now due to feeling worse than usual.

#chronically ill #chronic illness #autistic #actually autistic #physical disability #physically disabled #mentally and physically tired #chronic illnesses #chronic pain #chronic fatigue #undiagnosed chronic illness #undiagnosed chronic pain #cripplepunk #crip punk #cripple punk #chronic illness rant #disabled #actually disabled #disabled rant #mobility aid #mobility aids #medical gaslighting #doctors appointment

[matchakuracat]

Me: I'm not disabled I'm just faking it

Also me: *daydreams about forearm crutches and rollators*

#disabled #actually disabled #chronic pain #crip punk #cripplepunk #chronically ill #chronic illness

[matchakuracat]

mutuals and followers at large I'm glad you're alive and I hope it gets easier

[matchakuracat]

got the results back from the xrays on my hands and feet and they came back "completely normal" :(

i thought i could finally stop having to fight for doctors to listen to me, that i could finally have some physical proof instead of just my word.

idk where to go from here. im just so tired and my pain and mobility is worse than ever.

#chronic illness #chronically ill #chronic pain #chronic fatigue #undiagnosed chronic pain #chronic joint pain #joint problems #crip punk #cripplepunk #cripple punk #mentally and physically tired #physical disability #physically disabled #chronic illnesses #undiagnosed chronic illness

[matchakuracat]

The Sophomore Collection - by Sentate & Serenity

@sentate and I both had so much fun working on last year's collaboration so we just knew there had to be a sequel!

The Sophomore Collection was inspired by casual, preppy fashion with a sporty edge that can be mixed and matched to create some effortlessly stylish looks. It's the perfect blend of It-Girl and Off-Duty fashion!

The set features a combined total of 31 items across a newly created 20 swatch colour palette along with additional colourblock, stripe and denim palettes.

Serenity's part of the collection: DOWNLOAD

Sentate's part of the collection: DOWNLOAD

Full Colour Palette under the cut

#reblog #ts4 #the sims 4 #sims 4 cc #the sims 4 cc

[matchakuracat]

Let's talk about the other symptoms of chronic pain disorders.

Let's talk about how during a flare up, my brain fog becomes so bad that I can't remember my own full name or date of birth.

Let's talk about how I often can't stand not just because my legs hurt, but because they're so weak and shaky they can't support my weight.

Let's talk about how debilitating fatigue can be, when I can't move a muscle because I'm so bone-weary tired. My pain is the main symptom of my chronic illness but there are others. There are so many others. And they all fucking suck to live with. So why am I not taken seriously when I talk about them?

#physically disabled #disabled #actually disabled #crip punk #cpunk blog #physical disability #cripplepunk #chronic pain #cripple punk #cpunk #chronic pain disorder #chronic illness #fatigue #brainfog #chronically ill #chronic illnesses #chronic fatigue

[matchakuracat]

when the flare up lasts so long that you start to realize that it's not a flare up anymore, this is just your new normal

#chronically ill #chronic illness #chronic pain #chronic fatigue #flare up #chronic illness flare up #spoonie #low spoons #no spoons #i feel so tired

[matchakuracat]

same

#ts4 #silly #the sims 4 #sillyposting #silly goofy mood #me when #the silly #(from being silly) #so real

[matchakuracat]

probably you already know about this trick, but i was thinking to keep the information fresh for our new simmers so i filmed this tutorial

#the sims 4 #sims 4 #sims 4 tips #sims 4 build #♡

[matchakuracat]

laying in bed at 4am thinking of the two things that annoy me the most right now

1. how many problems in the world could be solved if billionaires stopped hoarding their wealth and being selfish instead of spending it on people who actually need it

2. my joints aching and feeling like they're on fire which prevents me from sleeping

#>:( #capitalism #insomnia #rambles #disabled #chronic joint pain #joint problems #joint pain #chronic pain #chronic illness #chronically ill #ow my joints

[matchakuracat]

Hello! I’m a kawaii blog. I am also autistic and currently going through a difficult time in life. I ran away from my abusive parents before Covid. I was homeless for a few weeks and got taken advantage of by a man who took me into his apartment. Eventually, I got a job and left him. As of April 2024, I have been fired from 3 jobs and currently unemployed. It would mean so much to me if you could reblog my GoFundMe post. My blog is new and I have very few followers. If you can’t help, I understand. Thank you 🩷

i am very hesitant to share gofundmes since ive accidentally shared scams in the past :( but i believe that you are genuine and i really hope anyone who can donate does and that you get what you deserve and need!<3

#gofundme #pls help #crowdfunding #autistic #donate if you can #♡

[matchakuracat]

Please help me. My name is Shirley. I am autistic and disabled. I ran away from my abusive parents a few years ago. I’ve been moving from place to place. A man offered me shelter when I was homeless. He knew I had Asperger’s syndrome and took advantage of me. I basically slept with him for shelter. A couple of months ago I was able to find my own apartment. Things went downhill when I was fired from my third job. It has been very difficult for me to find employment due to mental health issues. I have been transferring money out of my credit card to my debit card in order to pay my rent. I also have to pay interest. My credit card is about to be maxed out and I could get evicted. I don’t think I could survive on the streets.

It would mean a lot to me if you could donate or share the link to my GoFundMe. Even $20 helps. Thank you so much

https://gofund.me/a6fcefdc

#reblog #crowdfunding #gofundme #go fund me #go fund her #disabled #disability #neurodivergent #neurodiversity #important #!!!!! <3