#hypermobile spectrum disorder

[smadeleine42]

God, most days I can take it. I can swallow the pain and grit my teeth through the nausea and smile through the aching. I can find ways to convince myself that this life of mine is good good good. But some days I wake up after a night of not sleeping and I cry into my hard boiled eggs. Some days the pain in my shoulder means the world is going to end and the stiffness in my back heralds a sinkhole that swallows me whole. Some days I can’t take the fact that I’m still sitting in this house while everyone else keeps moving moving moving.

Some days it all comes crashing down, and I wonder if I was ever able to withstand it at all.

#disability #chronic illness #hypermobile spectrum disorder #chronically ill #chronic fatigue #pots syndrome

[crippledpunks]

i need people to understand that when a person with a chronic illness talks about the fatigue that comes with it, we're not talking about the tiredness that comes from a 10 hour shift at work, we're talking about the inherent exhausting heavy malaise that hangs on your entire body like a weighted blanket from the time you wake up in the morning and doesn't get any lighter as the day goes on.

fatigue doesn't come from exertion. it's just innate- and when it does come from exertion, it's been worse than the innate fatigue that was already there in the first place, and it adds on top of it, not replaces it.

#fatigue #chronic fatigue syndrome #cfs #myalgic encephalomyelitis #cfs/me #chronically chill #chronically ill #actually disabled #fibromyalgia #arthritis #multiple sclerosis #hypermobile spectrum disorder #hypermobile ehlers danlos #heds #eds

[chaos-and-ink]

Nothing About Me Is Straight

I'm making stickers based on my chronic illnesses for my final project in my art class. This is the first one! If people like them I'm thinking about adding them to my shop in the summer when I have more time.

Funny enough I killed my wrist and fingers trying to draw this. ouchie i need to buy some splints soon

#lgbtq #lgbt pride #ehlers danlos syndrome #hypermobile ehlers danlos #hypermobile spectrum disorder #heds #hsd #joint hypermobility #hypermobile joints #sticker shop #sticker design #actually chronically ill #chronically ill #chronic illness #disabled #actually disabled #disability pride #cripple punk #cpunk #my work #queer

[defiantcripple]

Non-hypermobile people will never know the pure joy that is being able to scratch literally anywhere on your back when it itches.

#thats it #thats the whole post #i got confused as a kid #that other people couldnt itch their whole back #it must be so irritating #cripple punk #cripplepunk #cripple #queer cripple #angry cripple #cpunk #c punk #cpunk blog #c punk blog #cripple shit #cripple posting #hypermobile spectrum disorder #heds #probably heds #hypermobile ehlers danlos #ehlers danlos #ehlers danlos syndrome #hypermobility #hypermobile eds

[neilgayman69]

Casually daydreaming about the mobility aids I think would help me, ya know, like every able bodied person does.

#physically disabled #physical disability #chronically ill #chronic illness #chronic pain #chronic fatigue #hypermobile spectrum disorder #hypermobile joints #hypermobile #cane user #ambulatory mobility aid user #ambulatory cane user

[squarebracket-trickster]

This is a real long shot but... any writers who see this who have hypermobility or a hypermobility disorder, please feel free to share your tips! How do you make writing sessions comfortable for your body?

Sincerely, a person with g-HSD whose pinky knuckles have a personal vendetta against touch-typing.

Non-hypermobile people please feel free to share this around<3

#writeblr #writers on tumblr #hypermobility #hypermobile ehlers danlos #hypermobile spectrum disorder

[oh-heck-yeah-doritos]

Moves joints: ow

Doesn’t move joints: ow

#hypermobility #actually hypermobile #hypermobile joints #hypermobile spectrum disorder #hypermobile #gecko’s silly billy hypermobility #owwie #chronic pain

[cyber-therian]

im really struggling with feeling good about myself since developing these knee issues

i saw a video that was like “go on a walk; if you do youll be happier”

and like, yeah, i would, but i cant. it will wear my joints down more than they already are. im sorry im failing myself and you because i cant do it. im sorry and i wish it was different.

#disability #disabled #joint issues #joint problems #joint pain #chronic pain #chronic illness #hypermobility #hypermobile spectrum disorder #🪻⋮ off topic #vent

[clown-bitchh]

i <3 my shower chair

i <3 my braces

i <3 my crutches

i <3 my bed

i h8 you joints 👎

#mobility aid #disability #probably heds #actually disabled #aids #mobility aid user #hypermobility syndrome #hypermobile spectrum disorder

[justaminnow]

I think I misunderstood the song because my leg bone is NOT connected to my hip bone.

#hypermobile eds #hypermobile ehlers danlos #hypermobility #disabled #hypermobile spectrum disorder #chronic illness shitposting #funny #subluxation #dislocated joints

[neuroticboyfriend]

to my fellow hypermobile ppl, if you are turning while standing... do not simply rotate at the hips. it can fuck up your knees and hips.

instead... lift up the foot on the side you are turning towards. rotate that leg AND your torso towards the direction you want to go in. put foot down. bring your other foot in line with the first foot. make sure your feet point straight when you do this.

tada. you have turned more safely. if anyone knows a better way to turn please add on. may your joints not crumble.

#softspoonie #hypermobile #hypermobility #heds #hypermobile joints #hypermobile eds #hypermobile ehlers danlos #hypermobile problems #hypermobile spectrum disorder #disabled #disability #chronic pain #chronic pain tips #spoonie #spoonie tips #physical disability #chronic disability #disabilities

[crippledpunks]

maybe i like the way that my ehlers danlos syndrome makes my skin abnormally soft. maybe i like the way it makes my skin fold and hang in ways that i don't see on most other people. maybe i like that my body is unique and one of a kind. maybe i like that i have been told by previous partners that i'm a luxury to hold and that i feel great to touch and am great to look at.

my disabilities suck ass, yeah, no shit. i hurt myself and sublux my joints often. but i'm also allowed to like the parts of it that aren't all bad. i have an extremely unique skin texture, and i think that's pretty fuckin cool. maybe i'm allowed to like that part of it. maybe cripples are allowed to try to feel at home in our own bodies, as they are, without needing to feel like they'd only be happy if they were 'cured'.

#cripple punk #cripplepunk #hypermobile ehlers danlos #ehlers danlos #actually disabled #physical disability #disability rights #disability #disabled #crip punk #disability culture #chronic pain #physically disabled #hypermobile #hypermobile eds #hypermobile spectrum disorder #hypermobile joints #heds #actually hypermobile #ehlers danlos syndrome #our writing

[localpissenthusiast]

ok yeah i have a debilitating medical condition that causes chronic & generalized pain, mobility issues, autonomic nervous system dysfunction and frequent subluxations BUT. i can touch my thumb to my forearm so. a win is a win

#hypermobility #hypermobilty syndrome #hypermobile spectrum disorder #ehlers danlos syndrome #heds #probably heds #hypermobile eds #hypermobile joints #hypermobile ehlers danlos #ehlers danlos awareness #ehlers danlos life #ehlers danlos problems #disabled #disability #physical disability #actually disabled #mobility issues #tw chronic pain #tw chronic illness #chronic pain #chronically ill #chronic disease #i am tired #flexibility #but not really #im actually not flexible at all #but my joints sure are #currently having a flare-up lmfao #disability pride #my rizz is insane actually

[chaos-and-ink]

EDS/POTS/Scoliosis Stickers

All of these will become available on my shop in June. You can follow my page on Ko-Fi to get an email update when they're for sale so you don't miss it :)

Tomorrow is the last day of my class and this is my final project. Chronically ill stickers. I definitely plan to make more but this is what I have so far. I can't wait to sell these in the Summer and if anyone has suggestions for what kind of stickers I should make next, absolutely let me know! I love getting sticker ideas from others.

Reblog to share them around :) I'd really appreciate it.

Here is the link to my shop : Chaos And Ink

Image Descriptions are from left to right

[ID: A skeletal leg with the knee hyperextended and a rainbow behind it. The text reads 'Nothing about me is straight' / A crooked vertebrae column with a rainbow behind it. The text reads 'Nothing about me is straight' / A zebra pattern awareness ribbon with the initials 'EDS' on the right side / A skeletal arm with a hyperextended elbow and a rainbow behind it. The text reads 'Nothing about me is straight' / A blue awareness ribbon with the initials 'POTS' on the right side / A black leg with a hyperextended knee and a decorative vine tattoo on the thigh. The text reads 'Clinically too bendy' / A white wrist and hand with the thumb pressing against the forearm. The hand wears a ring and bracelet and has a tattoo that reads 'Enough'. The text reads 'clinically too bendy' / A latino arm with a hyperextended elbow and a bracelet and watch. The text reads 'clinically too bendy' End ID]

#my work #scoliosis #ehlers danlos syndrome #postural orthostatic tachycardia syndrome #pots #pots syndrome #spoonie #disabled #physically disabled #cripple punk #c punk #hypermobile eds #hypermobile joints #joint pain #chronic pain #ehlers danlos zebra #potsie #dysautonomia #actually disabled #disability pride #lgbtq #lgbtq pride #lgbt #lgbtqia #stickers #sticker shop #described #image described #hypermobile spectrum disorder #hsd

[mel10hi]

Hello people ! I have questions if you're willing to answer !! So, people with hypermobility, fibromyalgia, chronic pain conditions, etc, what are some signs someone could see or feel for themselves? Like anything that would be like a "Hey that's not normal" type deal. I've looked into some stuff a bit, and I would like to hear experiences and stuff from anyone who's willing and comfortable to share !

I'm just trying to narrow things down and try to figure out what's wrong with me so I can support myself the best I can and try to advocate for myself at the doctors the better ! Anything helps. Thank you !

#chronic pain #chronic pain? #mobility aid #disability #hypermobility #hypermobile ehlers danlos #hypermobile spectrum disorder #hypermobile eds #help #advice #fibromyalgia #chronic illness #chronically ill #chronic fatigue

[neilgayman69]

Having a cane can be fun cuz I just put googly eyes all over mine to match my Jonathan Sims cosplay I'm going to a convention as this weekend.

#cane user #physically disabled #physical disability #chronic illness #chronic pain #hypermobility #hypermobile spectrum disorder #mobility aid #ambulatory mobility aid user #jonathan simultaneous equations #jonathan sims #the magnus archives #the magnus institute #tma #elias bouchard #elias “brutal pipe murder” bouchard #martin blackwood #tim stoker #basira hussain #alice daisy tonner #the beholding