#chronically chill

[chronicallycouchbound]

I’m allowed to be lazy. Disabled or not. Laziness isn’t an inherently bad thing y’all just too caught up in hyper capitalist hustle culture to care. I don’t owe you productivity. I’m allowed to rest.

My rest is radical.

#chronically couchbound #disability #disabled #cripple punk #cripplepunk #disabled pride #disability pride #lazy #i'm lazy #im lazy #chronic fаtiguе ѕуndrоmе #chronic illness #chronically chill #chronic disability #chronically ill #chronic fatigue #cfs (chronic fatigue syndrome) #me cfs #cfs/me #spoonie #spoonie community #spoonies #low spoons #radical rest #tired #rest #this shit is exhausting #leftist #anti capitalism #abolitionist

[crippledpunks]

shoutout to every disabled person who has to spend a lot or most of their time in bed, on the couch, or laying down. here's to everyone with any kind of mental illnesses or neurodivergence that can cause depressive episodes, migraines and sleep disruption, here's to everyone with chronic fatigue syndrome/myalgic encephalomyelitis, here's to everyone with chronic pain, fibromyalgia, lupus, arthritis and multiple sclerosis, here's to everyone with bad backs, here's to everyone with chronic gastrointestinal issues, here's to everyone with chronic reproductive health problems. many of us have to spend most of our waking hours resting and we're not here by choice, but we're making the best of things. here's to us bedbound bitches

#cripple punk #crip punk #disability advocacy #disability rights #disabled rights #disabled #disability #disabled community #chronically chill #chronic pain #actually disabled #disability problems #disability culture #disabled culture #chronic pain culture #fibromyalgia

[fernthefanciful]

Being disabled/chronically ill is expensive. Now, I don't even mean medical bills (I'm from a country with universal healthcare), or mobility aids. I fell ill 2,5 years ago, to the day. This is what I've had to buy, just to function in my day to day life, because of it:

an ergonomic mouse and keyboard because of joint pain

an entire new wardrobe due to weightgain

on top of that warmer vests, socks, and blankets because I can't regulate my own temperature anymore

compression socks and gloves for my joints

an e-bike, which for me is a mobility aid by now, I can't get around without it

noise cancelling headphones against sensory overload

new shoes due to swelling

a new desk chair

an upright vacuum cleaner because the other one is now too heavy for me

we're looking into a crockpot because most days I cannot cook anymore due to fatigue

A lot of people don't realize that just to get through a day, we need a lot of stuff that isn't cheap. And with each symptom or flare up or worsening of our existing symptoms, there is new stuff we need to buy to accommodate. Being disabled or chronically ill is expensive, please keep that in mind.

#chronically ill #disabled #cripple punk #chronically chill #long covid #long hauler #post covid syndrome #disability

[fernthewhimsical]

I've been having some more spoons lately, and I've been using them to eat better, especially breakfast. And I am loving it. And it's given me more spoons, which I am using for witchcraft.

I still have relapses and downs, but I am feeling better <3

#chronically chill #long covid

[punksrespectpronouns]

#banquo rambles #pots syndrome #chronically chill #chronic illness memes #spoonie

[eddiescouch]

I hate how when I'm hurting, I viciously want to be alone so I can be terrible and disgusting on my own, but I also want to be comforted. I can't ever just pick one.

#chronic pain #chronic illness #chronically chill

[oatmilkappreciator]

prepare to get sick: disabled + poor edition

ok, so my boyfriend just texted from work to say that he feels warm and dizzy and has thrown up a few times already. we both suffer from health issues so it doesn't necessarily mean he's brought home a virus, but I want to be prepared. my health has been shit lately with my medical testing and migraines, so I wanna do what I can to prepare in case we both come down with something (covid). best case scenario, his stomach is acting up for other reasons and we have a bunch of food prepped anyway. worst case, I have what I need to get through, keep us fed, spend as little money as possible, and stay out of hospital.

Remember - don't over exert yourself preparing. it's better to save your energy to fight illness than have everything picture perfect.

- clean the bathroom. I'm using Lysol wipes, a multi surface spray, and toilet paper to keep it easy

- make sure you have clean, comfortable clothes available. this might mean doing or folding a load of laundry, or even just re-piling your lightly worn clothes so you can find them

- cook and prep ahead. I'm going to make soup with whatever I can find in the fridge, and possibly some kind of cookie with lots of nuts and oats and stuff. KEY REMINDER: cook stuff your sick self can handle, so no crunchy stuff if you're prone to sore throats or tough food if you're fatigued, use textures you like, and keep it plain but nutritious

- locate and take vitamins! I'm very lax about this stuff but I figure it doesn't hurt to get a multi vitamin blast now and then. you can take vitamins (I recommend D3, zinc, C, and omega fatty acids but I'm no expert), but I struggle with pills so I either use drops or fresh sources: cooking with ginger, garlic and onions if they agree with you, honey, hot peppers, lemongrass, and citrus

- prepare to rest. the most important thing you can do to decrease the impact of covid on your body is to rest. ideally, you'll rest the way you recover from a concussion: total radical rest of body and mind in the dark with no stimulus. but, I too would lose my marbles, so I recommend charging your electronics (I <3 e readers and low brightness screens), visit a library WITH A N95 OR BETTER MASK ON to pick up some books and movies or revisit some faves at home. torrenting ofc for any movies you may wanna watch

- drink fluids, definitely something more than water. I like gatorade zero and mio electrolyte drops, but watered-down ginger ale or juice can be great too. your body needs sodium and potassium to help process the liquid and your body needs all the fuel it can get when sick. a coke/Pepsi or green tea is really good for a gentle caffeine kick midday, which I find helps my pain and mental clarity when I really need to get out of bed.

anyways I hope this is helpful to even one person besides me - I feel kind of alone in preparing for battle with these viruses sometimes and being disabled is extremely isolating. so any feedback, tips and tricks, personal experiences, I welcome them 💚💚love u!!

#chronic illness #chronically chill #disability #disability tips #covid #emetophobia TW #long post #... I don't usually share stuff like this but I'm trying to share more of my life and this is part of it!! 🥰

[faeriesaurus]

chronic illness is such a weird and exhausting way to exist. i spent the better part of the last week in and out of urgent care and appointments for an injury that's apparently already healed? it seems that i fractured my t12 vertebra at least three months ago and i don't even remember the inciting incident. the doctors told me the kind of fracture it is was likely caused by a fall, but i fall so often that that doesn't narrow it down at all. i fractured a vertebra and found out after it healed because i guess i just gained one more injury for my body to inflame when I'm flaring. i felt like i was only going to urgent care as a precaution, i went in literally thinking that "eh, I've had worse pain and symptoms than this, maybe this will all end up being unnecessary." i guess this really put some of my pain levels into perspective though.

i spent the week being patronized and having my gender identity and sex picked at and joked about. i had to answer so many questions about my wheelchair and my illnesses, and not all of these questions were even clinically necessary for them to be asking me. i got chastised for not exercising enough after literally telling the doctor that i often pass out when i try to and then prescribed a pt regimen that would literally leave me bedbound if i followed through with it. i don't usually have the spoons to leave the house more than like a couple times a week tops and i am absolutely paying the price for this week. in some ways my body is hurting more than it did when i went in.

i just spent a full time jobs worth of energy trying to take care of a body that can't even work a part time job, but at least i got a nice brace and new medical bills out of it. back to the grind with more pain and another appointment tomorrow. if you're wondering what your chronically ill and disabled people are doing with all of that time they have not working jobs? it's this, and it can often be much more than this depending on the person. and a lot of us actually have to commute for many appointments so we can have the specialists we need for our specific conditions too. i commute to a couple of my doctors just because they actually respect and listen to me about the body I live in.

we're tired.

#fae speaks #long post #chronically chill #chronic illness

[chronicallycouchbound]

The October slide is so real and I hate it

#chronically couchbound #disability #disabled #chronically ill #chronic illness #october slide #flare #spoonie community #spoonies #no spoons only knives #low spoons #no spoons #spoonie #spoon theory #chronic fatigue #cfs/me #me cfs #chronic fatigue syndrome #chronic pain #chronically chill #chronic disability #physically disabled #dysautonomia #ehlers danlos #ehlers danlos syndrome #eds problems #chronic illness problems

[crippledpunks]

i need people to understand that when a person with a chronic illness talks about the fatigue that comes with it, we're not talking about the tiredness that comes from a 10 hour shift at work, we're talking about the inherent exhausting heavy malaise that hangs on your entire body like a weighted blanket from the time you wake up in the morning and doesn't get any lighter as the day goes on.

fatigue doesn't come from exertion. it's just innate- and when it does come from exertion, it's been worse than the innate fatigue that was already there in the first place, and it adds on top of it, not replaces it.

#fatigue #chronic fatigue syndrome #cfs #myalgic encephalomyelitis #cfs/me #chronically chill #chronically ill #actually disabled #fibromyalgia #arthritis #multiple sclerosis #hypermobile spectrum disorder #hypermobile ehlers danlos #heds #eds

[paintedfaebles]

this is how i tracked my pain, mood, and fatigue symptoms in 2022

i printed them out and put them on my wall this morning, and started a new file for 2023. it feels relieving to see something beautiful come out of it all.

#chronically chill #disabled artist #chronic illness #digital art #art #my art #disability #chronic pain #fibromyalgia #cfs (chronic fatigue syndrome) #chronic fatigue #depression #mood disorder #tree rings #symptom tracking

[fernthefanciful]

"It doesn't have to be perfect, it just has to be done." I chant, through gritted teeth, trying to craft something I could do perfectly in my sleep before my disability

#chronically chill #chronic illness #chronic pain #spoonie

[fernthewhimsical]

Hey fellow spoonies, we're thinking of investing in a slowcooker for easier cooking. Does anyone have experience with it? Do you actually use if several times a week? Is it really as easy as the internet says it is? Or will it be a huge machine taking up precious counter space for nothing, lol

#spoonie #disability #disabled advice #chronically chill #chronic fatigue #chronically ill #cooking #slow cooker

[missy4201]

I fucking love durbans

#white durban #so tasty #weed #ganja #beautiful #medical marijuana #pot #stoner #chronically I’ll #chronically chill #mmj #pammj

[eddiescouch]

I really need to take my pills and go to sleep. But I'm stuck because right now the idea of putting anything in my mouth is the same as saying 'here eat this rock'. But I'm also stuck on the executive step of 'must take pills' so until I take my pills I can't go do anything else. So I'm just flipping through tabs because I can't take my pills and I can't go to sleep.

It's been an hour :')

#chronically chill #chronic illness

[disabilityhealth]

The best part of being home alone is that you can nap without fear of being woken up

#I’m so sleepy #spoonie #sleep #chronically chill #chronic illness #fatigue #funny #relatable