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#joint hypermobility
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me when the chronic pain is chronic and painful:
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How many braces and splints do i need to wear for them to count as an exoskeleton? Asking for a friend
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salt-baby · 2 years
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another non-exhaustive list of good disability experiences because i am going feral from blood sugar variations (first one is here):
- my roommate asking me if I was having a bad hand pain day because they beat me at Mariokart and had no clue how
- the way it feels to replace worn out gear with brand new stuff
- my partner turning to me and going "oh you lost a bit of muscle tone in your neck here" and when I asked how on earth they knew that they responded "you told me that muscle can act up sometimes so I keep an eye on it"
- my parent borrowing my car for a bit and returning it with medical-diet-friendly recipes tucked into the seat pocket
- dancing in the kitchen on a low pain day
- my pt signing paperwork for a permanent parking placard when I was hoping for a temporary one (it lasts until 2026! I never again have to convince a doctor to sign for it!)
- sitting on a speaker in the front while my partners band plays, because it's the most accessible seat in the room, but man what a view
- meeting a person my age with a super cool mobility aid at a party and swapping social media info
- my roommate handing me the shopping cart when we start grocery shopping because I use it as a walker, and inevitably asking me near the end if I'd like them to push when it gets heavy
- calling my car the cripple-mobile
- the secretary at my orthotics clinic calling my insurance at least once a day for two weeks to try and get the authorization through, which is so far above and beyond their job description
- my partner fascinated by the way the skin moves on my thigh, and turning to me to say "I know sometimes your body causes you pain but it really is just so cool"
- the young person who came into my workplace and asked about my ring splints, and then explained that because their friend might have EDS they've been educating themselves on it to support them
- it's not necessarily an easy process, but the satisfaction I get from the progress I've made in loving my body the way it is, scars and messed up joints and pain and all
- also the way my partner tsks at me when my knee is in a bad position while we're cuddling
as always if anyone wants the full story behind any of these my asks are open
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scretladyspider · 9 months
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Hey y’all. I need to request mutual aid. Due to my joint hypermobility (likely undiagnosed EDS, I’m diagnosed with joint hypermobility but tbh I match a lot of EDS criteria, but I mean it took them like 27 years to even diagnose me with the joint hypermobility even tho I constantly had ankle sprains growing up, anyway) I’m unable to do heavy lifting and need to hire movers. I need help to raise $1800 by July 21st.
Between needing to start new utilities, paying this and next months rent at the same time (a requirement by the leasing company), the pet deposit, and the last month of rent on my current place, plus everyday things that naturally come up like gas and groceries, I just do not have the funds to do this without help. My family already helped me with the security deposit, which I will be paying them back for, but because of this they do not have the funds to also help with movers. Im $50 of the way to the goal already after sharing this on Twitter, so I’m sharing it here too.
Anything helps. Thank you. 💜
Please reblog. 💜
venmo- secretladyspider
CashApp - secretladyspider
PayPal
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A paraphrased conversation between my mom and I
Me: “I couldn’t go to class today because my disability is causing my joints to be too unstable for what we are doing today plus my pots is really flairing”
My mom: “ you know I don’t see you as disabled, you should really stop thinking about disability and start thinking of ability or different ability”
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fibrospoons · 6 months
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Starting new medication:
Doctor: take these pills twice a day before meals
Me: OK easy enough
6 months later:
Me: I don't feel even slightly better, actually probably worse
Doctor: well you are taking the pills wrong. You need to take them 40 mins before food, with a whole glass of water. Also eat more calcium because the pills destroy your bones.
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im-secretly-a-frog · 2 months
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I have mobility issues, but I don't have a diagnosed condition. I can walk, and on the good days there's only a little pain, but on the bad days, I can barely walk around my own house without leaning heavily on anything I can. I don't have mobility aids. I don't even feel like I can ask for them.
I'm so tired. I feel helpless, and it's getting worse. I don't think anyone will believe me.
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punkclownfreak · 2 months
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headcanoning franky as having chronic pain is my self care. his joints ache and click, and he can easily dislocate them, but sometimes has trouble getting them back in. when he wakes up in the morning he needs to pop some of his joints back into place, like his fingers and shoulders. disabled king.
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qrow-life · 4 months
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Mobility Aids
Sadly I’m at the point where just walking around my house hurts (8/10 and sometimes an 9/10) and I’m kinda stuck on if I should get a wheelchair on my own or if I should just wait til I see one of my specialists bout it. It’s just so painful and I hate using Advil bc it makes me sleepy and I just knock out for a good couple of hours. So, I don’t know what to do. My body is just in constant pain.
Mind you I have forearm crutches just a little lost on what to do.
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witch-wagon · 5 months
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The universe made me a neurodivergent cripple bc she knew that I'd be too powerful without both causing me problems.
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xmcu-fietro · 1 year
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people with chronic fatigue—how do you manage the fatigue when you have a lot of things to do?
my doctor thinks I may have fibromyalgia but she’s been overall pretty unhelpful/dismissive, and I need a few tips for figuring out how to conserve/boost energy as I finish the semester and prepare for a busy summer. Caffeine doesn't help me because of my ADHD, and sleep rarely helps.
Specifically, is there anything that helps energy while standing up? I don’t have any issues with walking, but when my fatigue/muscle and joint pain/muscle tension flares a lot it makes standing up pretty exhausting, so outside of making myself go to classes when I can I pretty much stay in bed or on the couch as much as possible, but that’s not good for my grades or my mental health.
Any help is appreciated!
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adhd-orion · 27 days
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disability culture is people grabbing/physically touching you without your consent because they “want to help you”
get your fucking hands off me (unless I explicitly say I need help) goddamn it
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actual convo I had yesterday while wearing my knee braces
lady: why are you wearing knee braces?
me: I have joint problems
lady: you’re too young for joint problems
me: I have a joint disorder
lady: oh, I’m so sorry
me: …ok
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One unexpected side effect of physical therapy is that my arms are kind of shredded now?!
If you have hyper mobility issues then I am begging you on my hands and knees to start pt.
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stonebutchooze · 7 months
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chronic pain is like
INTERNAL SCREAMING
oh no they're gonna think I'm too young to use a walking stick. they'll think I'm faking. oh god
MORE INTERNAL SCREAMING
where did my walking stick velcro go?????
MORE INTERNAL SCREAMING
hmm overtime in a manual job will kill me
so on and so forth
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hamartia-grander · 5 months
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Me when there's nothing wrong with me: I'm gonna watch movies all day and play video games and be otherwise unproductive
Me when I dislocated my wrist and shoulder from doing homework for 9 hours straight in a bad position: I'm gonna write fanfiction all day
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