#postural orthostatic tachycardia syndrome

[pleastrop]

not to be weak on main but I kinda miss not being in excruciating pain 24/7

#chronic illness #chronic fatigue #chronic pain #chronically ill #disabled #actually disabled #disability #chronic disability #disabilities #disabilties #dysautonomia #postural orthostatic tachycardia syndrome #pots

[vtk13]

“slut era” i whisper to myself as i rot in my bed, sick like a frail victorian child

#chronic illness #chronically ill #chronic pain #actually chronically ill #pots #pots syndrome #dysautonomia #fibromyalgia #postural orthostatic tachycardia syndrome #supraventricular tachycardia

[potsiepumpkin]

When the chronic fatigue is chronic

#chronic illness #chronic pain #disability #pots syndrome #postural orthostatic tachycardia syndrome #chronic fatigue #invisible disability #fibromyalgia #spoonie #chronic life #hypermobile eds

[body-of-ouches]

One thing that MASSIVELY pisses me off is how fainting is shown in media. It’s always the person sways a little, collapses in one movement, and then is unconscious for like… fucking ages??? They wake up hours later tucked under a blanket and it’s acted like that’s normal. It’s NOT. A person that’s fainted should be back with you pretty quickly, actually:

(From NHS website)

I had an experience in my last work place where I fainted, but because it looks so different to how it’s shown in film and TV my managers had no idea what had happened. Here’s a comparison of usual media vs my actual fainting that they were all confused by-

Films, TV shows, plays etc:

1) Person goes “oh goodness” or something similar whilst holding hand to chest

2) eyes roll back, gracefully falls to the floor

3) nearby people see the poor fainted person, pick them up, put them on a bed or sofa

4) person comes to hours or even days later with no idea what happened and everyone else is just like “oh good you’ve woken up 🙂”

My usual fainting experience:

1) Everything starts spinning. Incapable of making words as my sole focus is on trying to get myself to the ground ASAP

2) Stumble to floor/chair/ anything I can lean against

3) Quick violent slump as actual faint occurs. There is no dainty falling- the whole body has hit shut down. Usually smack my head on the floor if I haven’t managed to get myself somewhere soft

4) Aware of surroundings almost immediately, but takes a few seconds to fully come back round

5) Carefully sit back up and explain to everyone going “what the fuck happened” that I fainted, and no, I do not need smelling salts actually.

#ehlers danlos syndrome #chronic pain #chronic illness #postural orthostatic tachycardia syndrome #disability

[chronicallydragons]

anyone else ever wish they could lie down harder? Like, I'm already horizonal, but I need more horizonal. I need to be absorbed by the floor. I think that would fix me

#My orthostatic tolerance is currently zero #POTS #postural orthostatic tachycardia syndrome #me/cfs #fibromyalgia #chronic illness #disability #migraine #gastroparesis #chronic pain #chronic fatigue #chronic fatigue syndrome #myalgic encephalomyelitis #spoonie #mast cell activation syndrome #MCAS #dysautonomia #chronic migraine #joint pain #hEDS #ehlers danlos syndrome #hypermobility #hypermobile ehlers danlos #interstitial cystitis

[gayaest]

[ID in alt-text]

Bora! She’s blasian (black and korean!) she has POTS (postural orthostatic tachycardia syndrome) and Chronic Pain! 🩷💜

She takes her rollator everywhere!

#my art #art #disabled artist #original characters #rollator user #pots #postural orthostatic tachycardia syndrome #chronic pain #babe with a mobility aid #disabled and cute #disabled oc

[thatchronicfeeling]

Reminder that it's less than a month before pharmacies will be closed for end-of-year holidays. Make sure that you will have enough medications to see you into the new year.

#chronic illness #ulcerative colitis #pots #postural orthostatic tachycardia syndrome #postural tachycardia syndrome #disability

[justsomerandomgay]

EVERYBODY STOP WHAT YOURE DOING I HAVE THE BEST NEWS! I GOT A WHEELCHAIR!!!!!!!! I CAN LEAVE THE HOUSE ALONE AGAIN, I CAN BE SAFE AND INDEPENDENT AND HAPPY AND SEE MY FRIENDS AND HAVE A LIFE AGAIN!!!!!!

#wheelchair #wheelchairs #zoommmm #♿️ #🦽 #cpunk #cripple punk #queer cripple #cripple posting #disabled #diability #functional neurological disorder #fnd #joy #disabled joy #chronic illness #chronically ill #chronic pain #fibromyalgia #postural orthostatic tachycardia syndrome #potsawareness #potsie #pots #spoonie #spoons #physically disabled #physical disability #cripplepunk #crip punk #actually disabled

[hellyeahsickaf]

brain fog is so stupid. Like what do you mean my body is in such rough shape I have nothing but my thoughts but also I can't think?

#chronic pain #chronic illness #disability #fibromyalgia #cfs #chronic fаtiguе ѕуndrоmе #actually disabled #spoonie #me/cfs #cfs/me #long covid #POTS #postural orthostatic tachycardia syndrome #brain fog

[thelupuslady]

#autoimmune #lupus #lupus warrior #spoonie #fibromyalgia #lupus advocate #lupus fighter #strong #chronically ill #pots syndrome #posturaltachycardiasyndrome #postural orthostatic tachycardia syndrome #ehlers danlos awareness #ehlers danlos life #systemic lupus erythematosus

[apologyacceptedcaptainneeda]

DONT take a persons medical device

I shouldn’t have to say that but here we are

One of the managers at work likes to take and hide peoples stuff as a joke. My manager took my pulse ox when I wasn’t looking. When I noticed it was gone I started to panic. A pulse ox is minimum $30 and I’ve had mine for over 7 years and have named it. So yeah I was panicking. I immediately paged my manager to my register and when he arrived I demanded it back. He did give it back.

I informed him that it was stupid and dangerous of him to take a medical device from someone especially like that.

So again

DONT TAKE A PERSONS MEDICAL DEVICE

#spoonie #actually disabled #disabled #disability #medical devices #pulse oximeter #actually spoonie #low oxygen #oxygen saturation #potsie #pots syndrome #postural orthostatic tachycardia syndrome #chronicallyawesome #chronically ill #actually chronically ill #chronic illness #chronicwarrior

[b0kunoanime]

On this beautiful disability pride month can we talk about how eating healthy is incredibly difficult when you’re disabled? If I can’t get out of bed to make food then I might not eat, or I might end up spending far more money than I want on takeout, and hurting my finances. And those meal delivery kits are cost prohibitive and rely on you having enough spoons to, y’know, actually make the food.

People don’t talk a lot about disabled people’s struggles with basic survival skills, but this one is huge and important and something we have to do 3 times a day for optimal health — and when your health is already suboptimal, it can be incredibly dehumanizing to hear people just say things like,

“Well, have you tried going vegan?”

#disability pride month #actually disabled #ehlers danlos syndrome #postural orthostatic tachycardia syndrome #AuDHD

[alpinechamomile]

TIP for any fellow disabled folks who have cats ❣️ if you got chronic fatigue or back pain or POTS where you cant bend down easily or even if you're able bodied and just feeling sick get one of these shits ↓↓↓

It's got one huge sifter so after your cat(s) use it you just grab it, shake it side to side a little, dump the poop into a bag, put the now clean litter in a fresh box (this one gives you two litter boxes for this reason) and pour the clean litter in the box on top of the pan. You can put the second box under it to keep it out of the way for when you switch over again.

This Arm and Hammer one was only 15 bucks on amazon and it's so much easier to clean. It is heavy to lift up the full pan and dump the cleaned litter into the second box so keep that in mind, but it's so much faster and less arduous than shoveling the caked up cat shit for 10 minutes and having your back screaming in pain, numb feet, and a head rush from bending over 😭 i didn't know these existed until now so that's why I'm talking about it anyway if you see this you should pet your cat for me maybe give em a kiss on their stupid little forehead 🤎🐈🐈‍⬛

#disabled #spoonie #cats #chronic fatigue #pots #postural orthostatic tachycardia syndrome #chronic pain #living while disabled #pet care

[potsiepumpkin]

Useful information

#chronic illness #chronic pain #disability #pots syndrome #postural orthostatic tachycardia syndrome #chronic fatigue #invisible disability #spoonie #fibromyalgia #potsie #tiktok

[salt-baby]

therapy isn't enough I need to fistfight a medical practitioner

#disability #chronic illness #ehlers danlos syndrome #postural orthostatic tachycardia syndrome #chronic pain #ableism #salt baby talks

[chronicallydragons]

I love how people with chronic pain can be at extreme levels of pain and just be like “My body is ouchie”

#it’s me my body is ouchie #chronic pain #chronic illness #disabled #fibromyalgia #me/cfs #gastroparesis #disability #migraine #postural orthostatic tachycardia syndrome #chronic fatigue #chronic fatigue syndrome #post exertional malaise #pwme #pots #spoonie