#actually hypermobile

[crippledpunks]

shoutout to every person who deals with incontinence. i dealt with bedwetting up until my early teens, and now deal with stress and urge incontinence and for years never wanted to talk about it because of the shame and stigma other people place on not being able to control your bladder or bowel movements.

incontinence is a disability. it's not gross or wrong to talk about incontinence. incontinent people are not dirty or disgusting. if we could control these parts of our body, we would. we're not an inconvenience for being this way, and we don't have to be treated like a burden or like we need to be "fixed".

whether or not you use incontinent products like briefs, pads, diapers, plastic bed sheets, or whatever else, you are loved, important, and deserved to be seen when there are conversations about disability awareness and acceptance. we don't deserve to hide in shame when all we need is to be accommodated and accepted.

#cripple punk #disability culture #cripplepunk #incontinence #disability #disabled #physically disabled #hypermobile ehlers danlos #actually hypermobile #hypermobile eds #arthritis #chronic illness #chronically ill #chronic pain #crip punk #our writing #chronic fatigue

[chronicmedisorder]

anyway, this disability pride month i would like to remind the abled people that just because i can do something doesn't mean i should.

just because i can walk three miles doesn't mean i should, because it will hurt like hell today, tomorrow, and for like four days after.

just because i can exercise doesn't mean i should, because maybe it would help but right now my arm feels like its about to pop out of it's socket and if i stand up i am going to pass out.

just because i can do schoolwork doesn't mean i should because my brain is currently fogged up with all the pain i am feeling right now.

just because i can doesn't mean i should.

#disability #cripple punk #::chronic brainrot:: #i am pissed off at my parents rn and this is what came of it #disabled #chronic pain #actually hypermobile #orthostatic intolerance

[permanently-sprained-ankle]

Dear (physically) abled people: the accessible bathroom stall is NOT for you.

And no, I don’t care if you’re neurodivergent.

Acceptable reasons to use the accessible bathroom stall:

You have mobility issues (visible or invisible) and need the support of handles/grab bars

You have disability aids, such as a cane or a service dog, that require extra space

You need space to catheterize, change a stoma bag, or perform another disability-related procedure

Your disability involves incontinence or inability to hold waste and therefore you need fast access

Unacceptable reasons to use the accessible bathroom stall:

You want privacy during a panic attack and therefore think that it’s ok to use up resources that aren’t for you (idc if you’re neurodivergent)

You want privacy during a meltdown and therefore think that it’s ok to use up resources that aren’t for you (idc if you’re neurodivergent)

You want to eat your lunch in the bathroom (idc if you’re self conscious about eating)

You don’t have actual digestive/gastrointestinal disabilities, but you just want to take a nice long shit

You want to take a break from socializing (idc if you’re autistic)

You want to have sex/make a phone call/get drunk/etc

Let me emphasize: your panic attack, eating habits, social anxiety, or whatever, is not a justification for using up a limited resource that isn’t for you.

I do not care if you’re neurodivergent or mentally ill or whatever. You’re occupying a space that isn’t meant for you. You’re appropriating a finite resource that some people have no choice to need.

Physically disabled people, such as myself, are not just annoyed, but materially harmed by neurodivergent people who think they have the right to occupy the accessible stall for their panic attacks or what have you. We can get UTIs, other infections, rashes, and pain from not having access to a useable bathroom… waiting 20 minutes for you to eat your fucking salad in the accessible stall while we are in wet underwear/diapers is not ok.

Don’t use the accessible toilet if it’s not for you. End of story.

Edit because y’all are putting words into my mouth: this isn’t about invisibly disabled people. This isn’t about me standing outside every accessible toilet trying to judge whether or not each individual is disabled enough. This is about a broader trend of abled neurodivergent people speaking over physically disabled people.

#disabled #disability #hypermobility spectrum disorder #actually hypermobile #chronic illness #hypermobility #hypermobile joints #chronic pain #chronically ill #mobility aid #cane user #mobility

[chronicbitchsyndrome]

it's really frustrating to see people buying into arbitrary and incorrect divisions between "mental" and "physical" disabilities to describe the very real ableist aggression and disparity in social privilege that is better described by the ability to conform to abled hegemony

like... yes, there is a very real phenomenon of the adhd tiktokker with perfect makeup reacting with disgust towards the wheelchair user in their space

this is because that adhd tiktokker is able to fit into normative abled hegemony. their symptoms do not, currently, present as a significant barrier to engaging in abled hegemony to the extent that they exist entirely outside of it and therefore have to question its very roots. they are still able to be seen as productive, attractive, and therefore socially valuable under abled hegemony, and so they find value and utility in that hegemony and are able to use it to punch down on other disabled people who cannot.

this is still true even if their adhd manifests as what many refer to as a "physical disability" (for example, it's not uncommon for adhd to manifest with invisible breathing and heart problems, which i'm not going to get into the methodology behind here because it'd be derailing). i've encountered scores of people with what would generally be classed as "physical disabilities" who exist in this space--asthma, joint hypermobility disorders, chronic pain, limb replacements, hearing disorders--i have seen people whose "physical" disorders do not disqualify them entirely from acceptance into abled hegemony, time and time again, enact violence on people who are incapable of conforming to abled hegemony. i see this in the "spoonie" and "zebra" communities, i see it in "chronic illness" spaces that accept capitalist class interests and breed liberalism.

equally, i've encountered scores of people labeled as solely "mentally ill" or "mentally disabled" who experience the kind of disenfranchisement that is associated with "physical disability" separatism right now--people with ID and autism who are nonverbal/use AAC or who experience severe mobility issues causing them to use mobility aids for purely "mental" reasons, for example. people who tic visibly/audibly in ways that subject them to social violence. schizophrenics who are subject to physical violence simply because of their body language, even if they don't interact with anyone at all. people who uncontrollably faint at certain stimuli due to panic disorders and face public access barriers as a result.

there's a pattern being picked up on, in that what we classify as "physical" symptoms tend to actually be visible symptoms, and what we classify as "mental" symptoms tend to be invisible symptoms. but that is a false and arbitrary dividing line; there isn't a hard and fast line between the brain and the body. as with the sex binary, classifying something into two dialectic categories extremely rarely works as anything other than a thought exercise.

broadly speaking, the more publicly visible your disabled traits are, the less you're able to fit into normative abled hegemony; broadly speaking, the disabled people who enact oppression on other disabled people via utilizing abled hegemonic ideals tend to have more invisible disabled traits. but that doesn't sort into a clean physical/mental divide, because that method of sorting bodymind traits is outdated and unscientific.

#cripplepunk #cripple punk #dyspunktional #actually disabled #mad pride #madpunk #actuallydisabled #actually hypermobile #ableism #disability pride

[bloodbot-brian]

As a disabled person, the ‘bedrotting “trend”’ is absolutely disgusting.

I don’t even know how to explain all my feelings about it, but seeing ableds talk about it like something they can choose to do, something they can do for fun, even, makes me feel absolutely awful.

Some days I am stuck in bed for long amounts of time because it hurts too much to move or I’m too dizzy to even sit up, and my chronic illness is not the worst example of even people who have the same chronic illness as me.

I can physically feel my muscle rotting on particularly bad days because of my lack of movement. They may not actually be rotting, but that doesn’t change how it feel to me. I feel like my body is dying constantly, and I can’t do anything but lie here and scroll through Instagram reels with a heat pillow between my back and the mattress.

My depression also affects my getting up, though I mainly want to focus on chronic illness and physical disability since I feel like it isn’t talked about enough.

That is not a hobby, a trend, or a past time. That is a seriously worrisome act that shows how much chronic illness (and other disorders) can disable those who have it.

I do not cry at night after a long day of laying in my bed because I was too sore and sick to do anything else for some able bodied person to say that it’s ‘perfect’ and try to make it aesthetic.

Fucking think about what your doing. Us disableds are left out of so many peoples minds, either unintentionally, or because people don’t want to or see the point in thinking of us. And it’s horrible.

I got very upset seeing some of the things people were saying while trying to claim it was a ‘trend’ and just needed to rant about it. Please think about us before you do shit like this.

#bear growls #bed rotting #actually disabled #actually hypermobile #heds #hypermobile eds #pots #actually chronically ill #chronically ill #chronic illness #chronic pain #chronic fatigue #cripple #cripple punk

[oh-heck-yeah-doritos]

Moves joints: ow

Doesn’t move joints: ow

#hypermobility #actually hypermobile #hypermobile joints #hypermobile spectrum disorder #hypermobile #gecko’s silly billy hypermobility #owwie #chronic pain

[sonny-ray-of-goth]

So I have a question for others with diagnosed hypermobile ehlers danlos syndrome

When I was diagnosed, the doctor said to me that there are no pain meds that can help with my pain that he is willing to give me because the only ones strong enough to work are highly addictive or can make you “high as a kite” in his words.

Has anyone else been told this? I mean it’s true low level pain meds don’t work on my joint pain but still, is there anything?

#chronic pain #joint pain #chronic fatigue #ehlers danlos syndrome #hashimotos disease #chronic illness #ehlers danlos problems #heds #hypermobile eds #disability #actually hypermobile #hypermobile problems #hypermobility #hypermobile ehlers danlos

[vsrobotjulie]

btw if i could sell 12 prints or charms from my shop id be able to afford the walker i need

#c punk #cripple punk #cripple #hypermobile ehlers danlos #actually disabled #disabled #actually hypermobile

[fruit-flavored-tree-creature]

i went to a new specialist doctor a few days ago for my shitty bones and. i got diagnosed with severe depression? i did not expect that….

anyway they prescribed me a pill that blocks nerve pain and is an antidepressant at the same time!!! and i picked up my prescription today!! i’ll take it for the first time tonight so… wish me luck!!! i hope i can start walking without excruciating pain soon, maybe i’ll even be able to play the piano again! i’m feeling optimistic for the first time in a long time ^^

also i’m getting aquatic physical therapy and that is satisfying the octopus in me :]

#actually disabled #actually hypermobile #actually dyspraxic #major depressive disorder #physical disability #nerve damage #nerve pain #antidepressants #therian #therianthropy #aquatic therian #aquatic otherkin #octopus therian #cripple punk #cpunk

[inclusion-matters]

I don’t post personal stuff very often but I’m hoping to find people with similar experiences. I’m 24 and I have hypermobile Ehlers-Danlos syndrome, and as I’ve gotten older it seems like my joint dislocations and subluxations have gotten even worse, to the point they’re just falling out of the socket at random. I’ve had to put one shoulder back in twice today as well as my other shoulder and both my hip once. I’m also am falling progressively more and more, seemingly from loss of balance. I’m curious to know if anyone else has some similar experiences as they’ve gotten older. When I was little my bones never broke, and I got weird injuries and sprains and bone bruises but things didn’t pop in and out nearly as much, although they did a little. I was also really active and did ballet so I think that helped stabilize my flexibility until my pain got too bad for me to be able to dance. Now you can’t even really feel cartilage in my joints. Hopefully someone with similar experiences sees this post so I feel less alone!

#heds #hypermobile ehlers danlos #hypermobile problems #hypermobility #hypermobile eds #hypermobile joints #actually hEDS #heds tag #ehlers danlos syndrome #ehlers danlos problems #ehlers danlos awareness #ehlers danlos zebra #ehlers danlos life #actually hypermobile #probably heds #chronic illness #chronic pain

[crippledpunks]

cane users don't have to use their cane for every single step in order to be valid in their need for a cane. cane users can suddenly stop using their cane while moving around and not invalidate their need for it next time they use it. some cane users may only use their canes during flare ups. some only need their cane every few steps for short bursts. everyone's needs are different.

every cane user deserves respect.

#chronic pain #cripple punk #cane user #disability culture #physically disabled #physical disability #disability activism #disability rights #disability #disability advocacy #cripple #crippled #fibroymalgia #fibro #actually hypermobile #hypermobile eds #hypermobilty syndrome #hypermobile joints #hypermobile #back pain #crip punk #cripplepunk #disabled #bad back #arthritis #our writing

[tiimelydeath]

anyone else kinda fucking pissed they have the vaguest diagnosis possible

yeah.. hypermobile spectrum disorder.. so specific..

#cripple punk #disability #ehlers danlos syndrome #spoonie #disability pride #disabled #pots #pots syndrome #actually disabled #hypermobile spectrum disorder #hypermobile eds #hypermobile ehlers danlos #hypermobility #actually hypermobile

[l00ney-m00ny]

I dont make many hEDS posts now because I'm home-schooling and in a much better, non-toxic environment surrounded by my family and supporting friends, but I just wanted to let you know that I have been fretting for the past 2 months about possibly needing a cane in order to properly manage pain while walking because I get very bad back, hip, and knee pain mainly on my right.

Anyway, I was fretting and fretting and today I finally worked up the courage to ask them for one and my mum immediately goes online and starts asking which one I think would be best and my dad started looking up cool handles and grips for them and I couldn't be happier honestly.

I am so lucky to have them and I guess just wanted to let everyone know that everything is better and that it can get better, even just mental health wise ( though I find that if your stressed mentally than your physical state can get worse too), it can help a lot If you're just get better friends, or stop hanging around others who don't make you happy. I found that worked for me at least.

#heds #hypermobile eds #actually hypermobile #hypermobilty syndrome #ehlers danlos #hypermobile ehlers danlos #ehlers danlos syndrome #chronic disability #chronic illness #chronic pain #walking canes

[permanently-sprained-ankle]

“I don’t think I’m disabled enough to use this mobility aid”

Ok so what if that’s true?

If you have a health condition that impacts your ability to function in one or more life areas, you’re disabled. If you’re disabled, you need help to live your best life.

Let’s say you choose a cane as a mobility aid, because you need help. If the cane doesn’t end up helping, then you don’t need to use it!

And so what if the cane only helps a little bit? It still helps and you deserve that little bit of help.

And so what if it only helps on some days? Dynamic disabilities are real and you don’t have to use the cane on the days you don’t feel like you need it.

And so what if the cane isn’t really helping you right now, but it’s helping you prevent injury or degeneration or fatigue? Bestie, that’s still HELP. I’d much rather you be less disabled and not rely on your mobility aid, than you damage yourself until you feel like you’ve earned it.

And so what if you don’t feel like the cane is really helping your disability directly, but it’s still useful in signaling to others that you’re disabled? That’s helpful and you deserve that.

If you’re disabled, you don’t need to be “disabled enough” for a mobility aid. If you’re disabled, you don’t need to rely and depend on your mobility aid in order to use it. If it helps mitigate you disability, fucking use the mobility aid.

#disabled #disability #hypermobility spectrum disorder #actually hypermobile #chronic illness #hypermobility #hypermobile joints #hypermobile eds #hypermobilty syndrome #chronic pain #chronically ill #mobility aid #cane user

[milkcritter]

y’all i came across the most amazing art on facebook this morning

im in a bunch of EDS facebook groups and an artist posted a study of their hand in the Signature EDS Position™ and i’m obsessed

i remember taking a figure drawing class and doing drawings of our hands for homework. the assignment was to put your hand in an “interesting position” and draw for 6 hours. During critique, my professor had me put my hand in the position I drew it in to check my proportions, because it didn’t look like a possible position to her. she was shocked when i put my hand there with ease.

credit to aislin.sparrow on instagram

this study is not just incredibly technically well done, it shows abnormality in figure drawing, something we don’t get much of

it’s so nice to see your body in art. so much love to this artist and any disabled artist out there

our bodies are worth drawing

#living with ehlers danlos #hypermobile ehlers danlos #ehlers danlos zebra #zebra strong #eds zebra #heds #probably heds #actually hypermobile #hypermobile joints #hypermobilty syndrome #hypermobile eds #hypermobile problems #disability #disabilties #you’re only one accident away from being disabled yourself #disabled #bodies #art #figure drawing #credit #chronically ill vibes #chronic pain #show me ur hands #ehlers danlos awareness #ehlers danlos problems #ehlers danlos syndrome

[stuffishardandimtrying]

#I hope my experiences are relatable #heds #hypermobile eds #actually hypermobile #actually disabled #chronically ill #chronic pain #ehlers danlos syndrome