#hypermobile ehlers danlos

[stellaltumi]

stop villanizing disabled people. stop assuming we're just being lazy. stop assuming we could be trying harder. stop assuming that we'll "feel better" in a few weeks. stop assuming that we have the same energy levels as everyone else. thanks for coming to my ted talk.

#spoonie #chronic illness #invisible disability #disabled #chronic pain #actually disabled #chronically ill #pots #pots syndrome #ehlers danlos syndrome #heds #hypermobility #hypermobile ehlers danlos #joint pain #mobility aid #mobility aids #ableism #autism #actually autistic #mental health #mental illness #physically disabled #physical disability

[clownrecess]

Happy disabled pride month to disabled people with undiagnosed physical disabilities

Happy disabled pride month to disabled people with undiagnosed mental disabilities

Happy disabled pride month to mobility aid users

Happy disabled pride month to disabled people who are in constant pain

Happy disabled pride month to AAC users

Happy disabled pride month to disabled people with ableist family

Happy disabled pride month to fat disabled people

Happy disabled pride month to disabled people with scars

Happy disabled pride month to disabled addicts

Happy disabled pride month to disabled people who's disability is progressing

Happy disabled pride month to disabled people who love their disability

Happy disabled pride month to disabled people who hate their disability

Happy disabled pride month to disabled people with underrepresented and/or uncommonly known disabilities

Happy disabled pride month to all disabled people. I love you. /p

#multiply disabled #disabled pride #actually autistic #physically disabled #autipunk #cripplepunk #aac user #nonspeaking autistic #nonspeaking #disabled #autism #aac users #aac device #neurodivergent #chronic fatigue #hypermobile eds #hypermobile ehlers danlos #undiagnosed ehlers danlos #ehlers danlos syndrome

[crippledpunks]

shoutout to every person who deals with incontinence. i dealt with bedwetting up until my early teens, and now deal with stress and urge incontinence and for years never wanted to talk about it because of the shame and stigma other people place on not being able to control your bladder or bowel movements.

incontinence is a disability. it's not gross or wrong to talk about incontinence. incontinent people are not dirty or disgusting. if we could control these parts of our body, we would. we're not an inconvenience for being this way, and we don't have to be treated like a burden or like we need to be "fixed".

whether or not you use incontinent products like briefs, pads, diapers, plastic bed sheets, or whatever else, you are loved, important, and deserved to be seen when there are conversations about disability awareness and acceptance. we don't deserve to hide in shame when all we need is to be accommodated and accepted.

#cripple punk #disability culture #cripplepunk #incontinence #disability #disabled #physically disabled #hypermobile ehlers danlos #actually hypermobile #hypermobile eds #arthritis #chronic illness #chronically ill #chronic pain #crip punk #our writing #chronic fatigue

[chronically-evie]

my mom keeps trying to get me to go to the ER when im having a flare up and i have no idea what to tell her.

because ive BEEN to the ER before. you wanna know what they did? while i was sweating, shaking, and sobbing, curled in a ball of pain?

they asked me if i was on my period. when i told them no, they asked me if i was pregnant.

when i told them no, because i wasn't sexually active, they forcibly tested me anyways, and then when it came back negative said, "well maybe you should just take a few deep breaths", gave me liquid ibuprofen, and sent me home.

disabled people, in this particular situation disabled afabs, are never fucking listened to.

the ER staff literally LAUGHED at me multiple times. they pointed at me when i was having one of the worst episodes of my life and snickered.

so no, i do not want to go to the fucking ER. my heating pad, ice packs, and nausea meds are going to help me more than anything a hospital could do.

#postural orthostatic tachycardia syndrome #pots syndrome #disability #disabled #pots #potsie #spoonie #ehlers danlos zebra #chronic pain #hypermobile ehlers danlos #actually disabled #physically disabled #disabled community #disabled life #chronic disability #physical disability #disability advocacy #disability awareness #disability rights #disabilties #invisible disability

[1980s-slasher-film]

Accommodations are not special, they’re not a leg up, they’re not a benefit. They’re not putting anyone ahead in the race, nor are they taking anything away from others.

They exist to put us on a level playing ground to everyone else, and nothing more.

#ngl this is half directed at the autistics using acess passes at theme parks #specially the ones that don’t actually need it #obviously you can utilize them if you actually need them #but I mean the people that say skipping lines is a ‘benefit of autism’ or whatever #I’m seeing it pop up again #and it’s pissing me offff #disabled #actually disabled #chronic illness #actually chronically ill #autism #actually autistic #adhd #actually adhd #arthritis #pots #pots syndrome #heds #hypermobile ehlers danlos #ehlers danlos syndrome

[defiantcripple]

Using a mobility aid when you need one is an act of self love <3

#cripplepunk #angry cripple #cpunk #c punk #cripple punk #queer cripple #physically disabled #physical disability #mobility aid #wheelchair #rollator user #cane user #wheelchair user #hypermobile ehlers danlos #ehlers danlos syndrome #cripple posting #disability #cripple #heds #ehlers danlos #chronic pain

[aestheticofalifetime]

Me when my disability disables me

#heds #hsd #ehlers danlos #ehlers danlos syndrome #hypermobile eds #hypermobile ehlers danlos

[alrightiiaphrodite]

Did you grow up as a disabled person and think "man, I am shit at being a human being. How does everyone do it?" and then think you were just lazy or less motivated and start believeing everyones comments about how you have no motivation and are genuinely just lazy and then you still wonder why you're not good enough no matter how hard you try and then you get old enough to realize that not everyone experiences the same thing you do and you were just given a short straw or are you normal?

#ehlers danlos syndrome #actually disabled #pots syndrome #chronic pain #disabled #actually mentally ill #chronic fatigue #invisible disability #hypermobile ehlers danlos

[whoopsie-doodle]

This is your reminder to clean your emotional support water bottle.

Check the o rings for mold.

#dysautonomia #wegotdys #neurodivergent #ehlers danlos problems #ehlers danlos zebra #ehlers danlos syndrome #hypermobile ehlers danlos #orthostatic hypotension #pots #postural orthostatic tachycardia syndrome

[maxpawb]

carousel

#art #furry #furry art #zebra #zebra furry #furry oc #oc #carousel #circusworld #neon colors #eyestrain #hypermobile ehlers danlos #hypermobility #i drew this over 2 train rides

[spookysalem13]

I'm chronically ill. I'm disabled physically and mentally. I live a rough life from day to day. People always tell me how strong I am.

This may be with the best of intentions but in all honesty I'm not strong, I'm very weak from being broken down every single second of my life from my chronic illnesses.

I don't get to live my life, I'm surviving not thriving.

#mental health #chronically ill #chronic illness #physically disabled #physical disability #autoimmune disease #autoimmune diseases #surviving not thriving #rheumatoid arthritis #osteoarthritis #ehlers danlos syndrome #hypermobile ehlers danlos #sjogrens #celiac disease #multiple sclerosis #chronic migraine #chronic fatigue #fibromyalgia #fibropain #chronic pain #mobility aid

[transformedyt]

I wish more abled people understood the concept of A Good Day.

Like, sometimes, some disabled people aren’t in as much pain as they usually are.

Sometimes, i CAN walk without a limp. But i have to limp outside anyway or I’ll be accused of “faking it” if someone notices.

Like… it can fluctuate! Assuming it can’t is like being mad that it’s sunny one day and rainy the next and accusing the weather of being “attention seeking” or some shit! Fuck! Stop harassing disabled people for having a good day and wanting to make the most of it!

#rant #disabled #heds #physically disabled #chronic pain #actually disabled #hypermobile ehlers danlos #invisible disability #tw ableism #vent post

[stellaltumi]

having just one friend who is also chronically ill makes me feel better, even though we don't have the same illnesses she gets it

#spoonie #chronic illness #invisible disability #disabled #chronic pain #actually disabled #chronically ill #pots #pots syndrome #ehlers danlos syndrome #heds #hypermobility #hypermobile ehlers danlos

[crippledpunks]

this is your daily reminder to stop being abusive and mean toward people with bladder and bowel issues.

im tired of hearing people mock those who struggle with bladder/bowl control, for people who can't tell when they need to go until it's too late or at all, for people who have uncontrollable voidings and leaking, for people who need to wear incontinence products around the clock, for people who need them influctuating amounts and need different kinds of products, for those who bedwet, for those who can't afford incontinence products so their clothes get dirty- to everyone with bowel and bladder issues.

we are human. we are still people. we are not gross, we are disabled. we are struggling with a disability. if you make cutesy posts about canes and wheelchairs, you need to include people who wear diapers, people who need plastic pants, plastic bedsheets and absorbent bed pads. you need to include people who can't tell when they need to go. people who need/use catheters. people who have colostomy bags. people with stained and dirty clothing. people who have to change their incontinence products in public.

you need to include autistic and ADHD and ND and disabled people who feel unsafe without diapers. you need to include people with spinal injuries and ehlers danlos syndrome and muscular control disorders with need incontinence products and feel safe with them. you need to include people who like their diapers and not just tragic stories where it's never discussed or doesn't negatively impact their life and livelihood.

please include all disabilities in your disability positivity posts, and please be kind and treat all disabled people with respect and humility, including those of us with symptoms you may find "gross".

#disabled #actually disabled #disability #physical disability #physdis #phys dis #autistic #actually autistic #heds #eds #hypermobile ehlers danlos syndrome #hypermobile ehlers danlos #adhd #actually adhd #ehlers danlos #fibromyalgia #chronic pain #cripple punk #cripplepunk #crip punk #back pain #chronic illness #chronically ill #incontinence #incontinent #disability rights #disability advocacy #disability awareness #disability pride #disabilities

[cripp-tid]

if you can't have kids for medical reasons, i love you. a lot of people emphasize the joy of children, talk about how they changed their life, etc., and that's just not possible for some of us.

so. shoutout to:

• people who can "technically" have children but can't risk the financial stress due to being already disabled/chronically ill

• people who can't get off their medication long enough to conceive

• people with uteruses who have endometriosis or PCOS

• people who can get pregnant, but have a connective tissue disorder which makes them unable to handle the progesterone during pregnancy since it causes flares (hi, it's me)

• intersex conditions that makes you infertile

• anyone who has a terminal illness

• people who've had medically necessary surgeries which caused infertility

• people with genetic conditions they don't want to pass on (me again)

• those who require IVF that's just not in the cards for whatever reason

• and many, many others

• feel free to add on

you're not broken, you have a reason for being like this. i know it's hard. i love you. it's going to be ok. 💙

#phoenix.txt #crippled #cripplepunk #cripple punk #cpunk #c punk #disabled #disability #chronic illness #chronic pain #chronically ill #actually disabled #actually chronically ill #spoonie #spoonies #eds zebra #ehlers danlos syndrome #hypermobility #hypermobile ehlers danlos #heds #intersex #i am kissing you all on the mouth

[melodymorningdew]

Imposter syndrome is a bench

Image description: drawing of a nondescript person with a tired/unimpressed expression on their face right next to a drawing of someone vibrating with excitement

Caption:

Me: "I must be faking my illness. I went on a walk yesterday."

Also me: "MY WALKER AND SHOWER CHAIR ARE ON THEIR WAY"

#chronic illness memes #disabled memes #dysautonomia memes #chronically ill memes #imposter syndrome #disabled #chronic illness #chronically ill #chronic pain #chronic disability #melody morningdew #chronically fatigued #fibromyalgia #undiagnosed chronic pain #undiagnosed chronic illness #chronic migraines #chronic fatigue #hypermobile ehlers danlos #ehlers danlos awareness #postural orthostatic tachycardia syndrome #tachycardiac #tachycardia #pots #dysautonomia #undiagnosed something #undiagnosed disability #invisible disability #invisible illness #disabilties #mobility aid user