Comes out with my cane like an angry troll to wack the people who insist that the only time someone should use the term disabled is in *severe* cases
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Brazil promised to prioritize historically vulnerable groups for vaccination. It’s struggling to keep its word.
After a lifetime of feeling invisible, the family was told they’d suddenly become one of Brazil’s top priorities. As the country began rolling out coronavirus vaccines early this year, officials said communities like theirs, founded by Africans who escaped slavery, would be among the first to receive shots.
But then weeks passed, the vaccines never came and one day late last month, the phone rang. The voice was faint, but the words were clear: “He’s dead.”
“For the love of God,” Maria Lucia de Morais responded. “How could this have happened?”
Delays in the vaccination rollout had left her 70-year-old cousin defenseless against the virus that has devastated Brazil. Within four days of his hospital admission, he was dead.
Now de Morais views his death as the result of one more broken promise Brazil has made to the people of the historic Black villages known as quilombos.
“There is a gap between the commitment and the action,” de Morais said. “We feel like we don’t have rights to anything.”
Earlier this year, in recognition of the extraordinary and historic inequalities etched into Brazil, the federal government released a vaccination plan that prioritized people in what it called situations of “elevated social vulnerability.” Indigenous people, quilombo residents, the homeless and the incarcerated: In a reversal of the everyday social hierarchy, they would join health-care workers and the very elderly at the front of the vaccination line.
But months into Brazil’s beleaguered vaccination campaign, and amid record death numbers, the government is struggling to keep that commitment. About 44 million people have gotten at least one vaccine dose. Nearly 11 percent of Brazilians have received two. But research shows only 1 percent of quilombo residents have similarly been fully vaccinated. Rates are higher in Indigenous villages, where roughly half have been fully vaccinated, but are lower still among homeless and incarcerated people. Brazil’s overcrowded prisons are crammed with nearly 754,000 inmates. But only 1,000 vaccine doses have been administered to what the government calls a priority group.
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Minor rant: I had a really rough morning.
I went to the local mental health clinic (long story, not related) and was really happy to get the standard two questions by the office staff. I told her he was med and psych alert, as well as some psychiatric tasks. Then, I was asked for “my papers” for my service dog. I asked if she meant my doctor’s note, said all of that should be transferred over but I don’t carry it on me; she says “Okay, well, you said he was medical so that’s fine but you can’t have a service dog for things like anxiety, depression, or ptsd.”
I’m ready to go off at this point but I leave it at, “I have a psychiatric disability; I need him there for that alone, much less my medical condition.”
“Well, I’ve never heard of that.”
“Heard of what?”
“A psychiatric service dog.”
“You work at a mental health clinic... and you’re sure you’ve never heard of that?”
Long story short, I had to give out an ADA law card to someone in a mental health office - wearing a damn mental health awareness button.
And I’m still kinda blown away.
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back in my day. “respect your elders” meant respect and protect the elderly who are vulnerable and often have disabilities or are unable to work. and respect and protect vulnerable people like children by the same logic.
so respect your elders. but don’t be put in place by oppressive structures and hierarchies.
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"Every curb cut is a memorial to Ed Roberts," a pioneering leader of the disability rights movement.
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This might be an unpopular opinion but I think it's really weird that you have to have (a) doctor's note(s) for even the simplest of accommodations (like even shit like "is allowed to have a fidget toy" and "is allowed to stutter during a presentation" simple).
Like ignoring all of the fucked up and complicated shit in the medical system that prevents people from getting diagnosed, you still don't become disabled after the diagnosis. It was there before. You still needed help.
Also, not everything can be diagnosed. Some things aren't exactly disabilities, and some things haven't been discovered or named yet.
Sometimes it's just easier when things are a certain way, even if there's not a pre-approved Good Reason.
TL;DR just don't be fucking rude you absolute assholes
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CEDAW: Scotland and Wales to implement UN Convention on women's rights if SNP and Welsh Labour win the election
CEDAW: Scotland and Wales to implement UN Convention on women’s rights if SNP and Welsh Labour win the election
Nicola Sturgeon SNP L,eader Pic Credit BBC
Ground breaking moves to end all discrimination against women could become law in Scotland and Wales by next year if as predicted, the Scottish National Party and the Welsh Labour Party win Thursday’s devolved Parliamentary elections.
Manifestos for both parties commit them to introducing the CEDAR convention into Scottish and Welsh law and the…
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I just heard that the final verdict of my case to win disability payment has been postponed yet again. this is another setback, this process has been ongoing for over a year now and I really hoped I could close this very dreadful chapter before the summer. I just.. need a break. I can't start anything else because I do not have any energy left. I need a fucking break please.
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“Disability is not just a medical condition, but also a social, cultural, and political identity... This isn’t just an abstract theory, but an observable fact of everyday life for disabled people.”
📍Any time I read “Stop being so political!” or “Politics has nothing to do with this!”, I want to scream. (I usually do.) Being disabled is inherently political. And because one political group wants to ignore and / or kill us while the other dies try to help, I will forever keep politics engrained in this page.
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if anyone has the time to sign this petition that would be great!! it’s so disabled people can get married and keep their benefits!!
this article goes into more detail about how disabled people lose their benefits when they get married if you feel like reading about it!!
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*careens into the room* I'm disappointed Netflix's Daredevil (or just Daredevil in general) never really did anything involving disability rights law. I mean, the characters are lawyers, and if Matt's law firm was involved in disability rights, there would be SO MANY interesting plot opportunities for both legal shenanigans and deep interpersonal tortured "oh my god the world sucks I must go on a vigilante crusade". Like, surely THAT'S a more pressing motivation than "oh I must clean up the gangs in Hell's Kitchen because ... uh... reasons?"
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Tbh I think people forget about ableism and disability activism because those most affected by it (and hence most involved) are likely to struggle most with getting the activism done.
Like, take gay pride and such. By no means has it ever been easy to protest for gay rights, and obviously in some places it's incredibly dangerous, but these are external factors. These are the things you're seeking to change.
But with disability activism, you also have the whole, you know, disability part. It's hard to get involved with campaigns and arrange protests when you're struggling to get out of bed, for example. You're no longer just working with external factors, but with limitations that you just have to manage.
The spectrum of disability also means that some things are easier to campaign for as a result. I notice in the autistic community it's mostly "high functioning" people - those who were diagnosed with asperger's when that was a diagnosis, for example - who get seen the most, and hence issues relating to "low functioning" autistics can fall by the wayside, as they can find it harder to navigate around the barriers they face.
This can also lead into problems with ableism within the community. If I hear one more mentally ill person say "you wouldn't say "just get up and walk" to a wheelchair user..." Newsflash! Take it from a mentally ill wheelchair user: THEY DO
Then you have high rates of abuse - you're 3 times as likely to face domestic abuse as a disabled person, for example. Then there's high rates of police brutality (overlapping with racism for many), controlling and abusive care homes, and even the government. If you can't work and rely on the government to give you benefits to survive, you have to be careful not to give them any reason to say "um actually we've changed our minds about whether you're disabled enough for this".
In a world that's been set up for abled people, where disabled people are facing violence and harrassment at alarming levels, with many worrying about suddenly having their benefits taken unfairly, and where those who are most affected by ableism are likely to be unable to take up for themselves in the same way as other activists can, it's no wonder we get forgotten about.
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Disabled Children and Their IEP
Now I am going to start this off saying I am not a parent, but I did go through school having an IEP and for the most part, watched my mother struggle with the school corporations to give me the success I needed.
When you have a child who has just recently been diagnosed with a disability such as autism, ADHD, depression or even physical disabilities such as cerebral palsy, epilepsy, narcolepsy, it’s going to shock you. It’s gonna make you think, oh why did this happen? Where did I go wrong? Where did this go wrong? The thing is you can’t be thinking about it that way. Your child that just got diagnosed with these disabilities or disorders is still your child. They are going to grow up with an amazing life if you give that to them. They are going to be capable of love and understanding and they have feelings too.
Now when it comes to schooling this is one thing that my buddy Alex and I want to make known is, who has the rights to the child in the IEP and the way that their schooling is going. Surely not the school, no it’s you as a parent. I can sympathize with this because I have a disability, I had an IEP and my mom struggled to get the teachers to treat me right. I have a learning disorder as well where I had to have someone else take notes for me because I couldn’t pay attention to the verbal lesson while also trying to rush and get the notes taken down. Some teachers, especially my American history teacher would say you know, we’re not gonna be providing those notes. My mom had a lot of battles getting me the schooling that I need. And I love her so much for that. But when it comes to the rights to get your child the programming that they need in school, that’s on you. The school should not be making decisions for your child. You are the one to control that.
You alone know how your child behaves or acts, you know how they cope in learning situations. You know your child better than anyone out there. Are you going to give a public school system that is not specialized in disabilities, control of your child?
You need to fight for their rights, and you need to fight for your rights as a parent. This is my child, this is how they are, if you can’t help my child in the best learning way possible, we’re going to have to move schools to someone who can. Your job ad a parent is to give your child the best life out there while also getting them to learn and understand different aspects of life that you and I understand as adults. Getting them to be functional humans. And this is where you need to put your foot down when the school corporation is not doing what is needed for your child’s success.
In the end, it is always your choice what happens with your child as long as you are making the best decisions for them and their safety. Don’t let the school corporation say no, we’re not gonna do this your way, put your foot down. We’ve all got to work to make the world a better place, and we can start by making it better for those with disabilities.
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I GOT INTO JIGSAW. IM GONNA GET THERAPY. AND ASSESSMENTS. AND MY MOTHER CLAIMED THAT I SELF DIAGNOSED AUTISM WHEN I WENT UP TO HER AND SAID “this could be a possibility maybe?” AND LIKE TOO MANY THINGS HAPPENED TODAY.
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I personaly don't consider myself disabled due to my autism and bipolar diagnosis but I will support disability awareness for these matters for the people to whom it matters and want/need to be recognised as disabled. Both relationships to your mental health state are valid.
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High-level Commitment in Brazil to Protect People with Disabilities
Prosecutors Mandated to Inspect Institutions, Promote Independent Living
Brazil’s National Council for Prosecutors, the government body overseeing the country’s prosecutors, took a major step yesterday by approving a resolution that could mean significant human rights improvements for the more than 10,000 adults with disabilities living in institutions in Brazil.
The new resolution requires prosecutors to conduct annual inspections of institutions for adults with disabilities and take legal action against institutions for abuses or failings in their management obligations. Unfortunately, the resolution does not cover Brazil’s health system, which also manages numerous long-term institutions for people with disabilities. The new resolution replaces a non-binding recommendation on inspections, which in practice meant little prosecutorial oversight.
Human Rights Watch has documented abuse and neglect in institutions in Brazil against people with disabilities, many of whom are placed there as children and remain for life, deprived of making choices about their lives. We found dire conditions in many of these institutions, including use of physical and chemical restraints, inadequate health services, and deprivation of the legal capacity of those institutionalized. Some people reported that just to leave the institution if they want to, they were required to obtain their family’s permission. Prosecutorial oversight is essential to prevent and remedy abuses. We have called for regular, thorough inspections to end abuses inside institutions, as well as accelerated efforts to move away from the use of institutions.
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Crip Camp at the Oscars.
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