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#living with fibro
eclectic-ways · 1 year
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They should publish books in this format.
FYI: There are apps and plug-ins of this Bionic Reading for Google Play, Chrome, Microsoft Edge (Internet Explorer), Firefox, iOS (Apple) and on WEB
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sephirajo · 9 months
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me: *sees new trailer for sim settlements*  *sees my characters in the thumbnail*
me: *understands how hard my disabilities are to work around.*  *STILL has a massive sad*
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spookietrex · 1 month
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I am valid even when my small victory is that I took my meds that day.
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cannabisbutch · 11 months
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I need to make a new pain scale for ppl who can't always tell what their body is doing due to years of survival dissociation/depersonalization
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Just ... Thinking about Murderbot getting chronic pain because its pain sensors get fucked in a way it can't fix.
And sometimes it's ok, the pain can be compartmentalized and shunted to the background behind all its active scripts and tasks and streaming media files. Some cycles it could even pretend that it doesn't have a problem at all -- if it weren't for the fact that ignoring it actually caused a dip in its central processing capabilities.
And sometimes it just wants a break and it can't help but withdraw from others and shy away from physical contact even more than it usually does. It seeks out softer, looser clothing that doesn't rub up against its organic bits which caused firey shocks to zip down its nerves. and sometimes its performance reliability will drop for seemingly no reason and it'll use preprogrammed responses from its buffer in a detached, automatic tone.
The pain makes it feel incredibly vulnerable and broken and it gets angry and defensive (or shuts down -- almost literally) when anyone tries to ask it what's wrong. It even threatens to leave the Perihelion if ART even so much as considers poking around its diagnostics to find answers.
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ceoofcrimes · 2 years
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it took me a long time to learn this, but sometimes pushing yourself isn't the answer. sometimes it's good to tell yourself that it's not about whether you can do it or not, and that it's about whether this is what you want to do or what will benefit you right now and feel better later. we don't always have the choice to accommodate for ourselves, so when the option to is available, it is worth it. a lot.
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patchyourbrokenwings · 11 months
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The summer heat makes everything about Fibromyalgia worse in a way I can't begin to explain. My skin feels like bugs are crawling underneath it while having a fever due to sunburn. Clothes hurt, showering hurts, sitting down hurts, sleeping hurts. I haven't found anything that helps yet. The most ridiculous is that we're just expected to keep functioning while any other abled person would already be in the ER.
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vexic929 · 2 months
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FINALLY have a diagnosis!
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crps-chronicpain-ptsd · 8 months
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Chronic pain problems •
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melisssg99 · 7 months
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I've had some pretty bad days, feeling achy and sick(an understatement).
Fibromyalgia was really kicking my butt.
But I'm ready to get things done again in my home.
Lots of laundry, letting my mattress and duvet air out and just general tidying and spot leaning.
Wish me luck ♡
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Im still valid even if im underweight
Im still valid even when i smile
Im still valid even if i keep the pain inside
Im still valid without a physical representation of my illness
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eclectic-ways · 4 months
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Let’s see then… HOW…?
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[credit for the original image & meme is unknown - all the editing and alterations done by me]
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larjb3 · 10 months
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Grieving Past Lives
Something to consider about chronic illness, mental illness, addiction, disabilities, whatever it is that you may be struggling with now, is that it's okay to grieve a past life. I don't mean this in a philosophical or existential sense (you are welcome to believe in whatever you believe in), but what I do mean is that everyone grows. Everyone has a different life that they once had. Think of who you were when you were in high school, or as a teenager. Is that the same person you are now, if you are an adult? If you're currently a teenager, think of your younger self - are you still that person? Every day people grow and change and learn. It doesn't matter if it's the most mundane day possible, you learned you can get through another day. You learned that weather can change. You learned that you can get out of bed instead of sleeping all day. You learned something, regardless of what it is.
So now, thinking back to chronic/mental illnesses, addiction, disabilities, etc.:
You weren't always this way. Or maybe you were. Maybe you have experienced a long-term diagnosis (or lack of diagnosis but experienced something that has significantly negatively impacted your life) that has impacted who you are and how you live. Regardless, it's okay. It's okay to wish you were once a way you used to be. If your illness or addiction has gotten worse, it's okay to grieve what life was like prior to getting worse. It's okay to grieve things that you used to be able to do. It's okay to want to go back to the times in which you felt you were truly happy, maybe without even realizing it. If you're in recovery from addiction, it's okay to grieve who you were when you were in the thralls of addiction. It's okay to think that during that time, maybe you were "better" in some way. It's okay to wish you still had that as a coping mechanism, because it may have helped you so much.
All of that is okay.
We can grieve. Grief is a process of life, and it's not just for death. Sure, you can think about grief for a past life as kind of a "death" of that past life, but that's also really hard to think about when your illness is just getting worse as the days go on, because if that's "death," then what's next?
But regardless, it's okay to grieve. It's okay to wish you could still do things you once used to be able to do. It's okay to wish for the days where you didn't have to take countless medications, just so that you can function.
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spookietrex · 4 days
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rubiesintherough · 3 months
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#(( ooc. ))#venting tw#negativity tw#gonna try to do some writing today but motivation is real low.#i guess that's what happens when you get called stupid useless and lazy to your face by someone who then expects you#to bow and scrape and wait on them hand and foot#and also now im expected to pay the electric bill on top of doing all the housework. literally all of it. in a home of 3#fucking adults. and bow im also the one having to handle a lot of maintenance work around the place on top of keeping#it spotless bc no one else 'feels like doing it'#and the whole time i get to be insulted and told that im fat. stupid. lazy. while im cleajing up their messes. and fixing stuff for them.#and doing a bunch of cooking bc they get pissy if i dont also feed them on top of doing literally all the housework. and maintenance work.#and also now being expected to pay half the electric bill. again house of 3 people. and im not even allowed to take a hot shower when i need#to in order to get the pain spikes under control from yknow. flaring up my fibro from overworking myself CLEANING AND TAKING CARE OF THE#DAMN HOUSE FOR THEM#bc it takes too much electricity. the electricity i mostly paid for last month#sorry i needed to get that out#suicide tw#abuse tw#not me debating offing myself bc theres no end in sight and no way out and i cant keep going from one abusive situation to another#and just trying to survive. almost 30 yrs old and ive never once felt safe or at home anywhere ive ever lived. not once. in almost 30#years have i ever felt safe. or like im my own person. or that im valued. or wanted. or listened to. not once in almost 30 years#have i ever felt like im actually loved (wanted) beyond my usefullness.#shit sucks man. anyway sorry for the spam of negativity lately. im not trying to be a downer.#gonna go hang out in my inbox for a while and see if anything pops out that my muses wanna jump on 🤞
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daddywarbats · 7 months
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So, it's always fun when you hit a certain number of autoimmune and chronic pain conditions and doctors are like nah my guy we'd like a less complicated zebra please.
Oh well.
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