me: *sees new trailer for sim settlements* *sees my characters in the thumbnail*
me: *understands how hard my disabilities are to work around.* *STILL has a massive sad*
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I need to make a new pain scale for ppl who can't always tell what their body is doing due to years of survival dissociation/depersonalization
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Just ... Thinking about Murderbot getting chronic pain because its pain sensors get fucked in a way it can't fix.
And sometimes it's ok, the pain can be compartmentalized and shunted to the background behind all its active scripts and tasks and streaming media files. Some cycles it could even pretend that it doesn't have a problem at all -- if it weren't for the fact that ignoring it actually caused a dip in its central processing capabilities.
And sometimes it just wants a break and it can't help but withdraw from others and shy away from physical contact even more than it usually does. It seeks out softer, looser clothing that doesn't rub up against its organic bits which caused firey shocks to zip down its nerves. and sometimes its performance reliability will drop for seemingly no reason and it'll use preprogrammed responses from its buffer in a detached, automatic tone.
The pain makes it feel incredibly vulnerable and broken and it gets angry and defensive (or shuts down -- almost literally) when anyone tries to ask it what's wrong. It even threatens to leave the Perihelion if ART even so much as considers poking around its diagnostics to find answers.
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it took me a long time to learn this, but sometimes pushing yourself isn't the answer. sometimes it's good to tell yourself that it's not about whether you can do it or not, and that it's about whether this is what you want to do or what will benefit you right now and feel better later. we don't always have the choice to accommodate for ourselves, so when the option to is available, it is worth it. a lot.
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The summer heat makes everything about Fibromyalgia worse in a way I can't begin to explain. My skin feels like bugs are crawling underneath it while having a fever due to sunburn. Clothes hurt, showering hurts, sitting down hurts, sleeping hurts. I haven't found anything that helps yet. The most ridiculous is that we're just expected to keep functioning while any other abled person would already be in the ER.
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I've had some pretty bad days, feeling achy and sick(an understatement).
Fibromyalgia was really kicking my butt.
But I'm ready to get things done again in my home.
Lots of laundry, letting my mattress and duvet air out and just general tidying and spot leaning.
Wish me luck ♡
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Im still valid even if im underweight
Im still valid even when i smile
Im still valid even if i keep the pain inside
Im still valid without a physical representation of my illness
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Grieving Past Lives
Something to consider about chronic illness, mental illness, addiction, disabilities, whatever it is that you may be struggling with now, is that it's okay to grieve a past life. I don't mean this in a philosophical or existential sense (you are welcome to believe in whatever you believe in), but what I do mean is that everyone grows. Everyone has a different life that they once had. Think of who you were when you were in high school, or as a teenager. Is that the same person you are now, if you are an adult? If you're currently a teenager, think of your younger self - are you still that person? Every day people grow and change and learn. It doesn't matter if it's the most mundane day possible, you learned you can get through another day. You learned that weather can change. You learned that you can get out of bed instead of sleeping all day. You learned something, regardless of what it is.
So now, thinking back to chronic/mental illnesses, addiction, disabilities, etc.:
You weren't always this way. Or maybe you were. Maybe you have experienced a long-term diagnosis (or lack of diagnosis but experienced something that has significantly negatively impacted your life) that has impacted who you are and how you live. Regardless, it's okay. It's okay to wish you were once a way you used to be. If your illness or addiction has gotten worse, it's okay to grieve what life was like prior to getting worse. It's okay to grieve things that you used to be able to do. It's okay to want to go back to the times in which you felt you were truly happy, maybe without even realizing it. If you're in recovery from addiction, it's okay to grieve who you were when you were in the thralls of addiction. It's okay to think that during that time, maybe you were "better" in some way. It's okay to wish you still had that as a coping mechanism, because it may have helped you so much.
All of that is okay.
We can grieve. Grief is a process of life, and it's not just for death. Sure, you can think about grief for a past life as kind of a "death" of that past life, but that's also really hard to think about when your illness is just getting worse as the days go on, because if that's "death," then what's next?
But regardless, it's okay to grieve. It's okay to wish you could still do things you once used to be able to do. It's okay to wish for the days where you didn't have to take countless medications, just so that you can function.
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