#out of spoons

[phireads]

Please reblog if you can so I can get a larger sample size

Feel free to put any clarifications in the tags (I’d be very grateful) <3

#mine #polls #not books #disability #disabled #chronic pain #chronic fatigue #physical disability #physically disabled #spoonie #spoon theory #cerebral palsy #mobility issues #physically impaired #christine miserandino #spoons #out of spoons

[chronicallyuniconic]

Painscrolling

When you're in too much pain to sleep and can't do anything else except lie there, so you scroll aimlessly, hoping it all goes away

#chronic fatigue #chronic illness #chronic migraine #chronic pain #chronically ill #fibro #fibromyalgia #mental health #myalgic encephalomyelitis #chronic life #out of spoons #cripple punk #chronic fatigue syndrome #no spoons #chronic pain syndrome #joint pain #painrelief #doomscrolling #pain flare #me/cfs #me cfs #Myalgic Encephalitis #fibrosucks #nerve pain #fibrowarrior #fibro problems #chronically tired #chronically disabled #chronically sick #chronically online

[delirium-mind]

For most people, getting medical tests results that say

"No abnormalities, everything is normal" is great

But when you constantly are in pain, can't eat can't lay down can't sleep or hardly do anything..its such a fuck you slap in the face. It's hard enough to get doctors to believe you in the first place to get any testing going on...then to get this result? It just feels like it ruins any and all chances you might have had and flushes them down the fucking drain.

Having a (invisible) chronic illness sucks but it's mostly because doctors don't seem to want to listen or believe you.

#spilled ink #writing #spilled thoughts #late night thoughts #journal entry #chronic illness #out of spoons #spoonie #chronically ill #invisible illness #disability #invisible disability #hyper IgE #jobs syndrome #pots syndrome #ehlers danlos syndrome

[optimisticfrogcollective]

to all the spoonies out there, do you ever just not remember the last few days because of brain fog/too much pain?

#chronically ill #endometriosis #fibromyalgia #spoonie #disability awareness #chronic fatigue #brain fog #out of spoons #disabled

[sunnysilvavo]

I hate nights like this where I don't even have enough spoons left to sit on my computer and play videogames, something I thoroughly enjoy. I feel unfulfilled, achey and tired... 😔

#disability #chronic illness #chronic pain #menstruation #period cramps #fibromyalgia #hypermobility #spoonie #out of spoons

[bean-cookies]

Credit to one of my irl friends (yes, I have those) for the caption, which inspired the drawing.

Drawing this little goblin felt a bit like drawing a self-portrait 🙃

#art #drawing #my art #dungeons and dragons #dnd art #dnd #fantasy art #goblin #cute goblin #wizard #spell slots #spoon theory #out of spoons

[diony-svs]

i have been suddenly hit by a wave of sadness. fear. loneliness. anger.

i try to be neutral at best about being disabled. i do not want to return to the life i held when i hated my body. and yet, it is hard, and i am struggling.

abled people tend to forget how much we lose when we become disabled. it’s more than me “struggling to walk” or “being fatigued”. i lose relationships with friends and family, i lose my hobbies that now physically and/or mentally exhaust me, i lose things and people that mean a lot. i grow lonely and less hopeful of the future.

i am angry that my body is taking away things that are part of me, important to who i am and who i have become.

this is a gentle reminder to all of my fellow disableds who traverse this universe, as well as myself:

it is okay to be angry, sad, frustrated, and hate your situation. it is okay to be angry about people not understanding what life is like as a disabled person in a world not accessible to us.

your body is here. you are here. every part of your body and the aids you may have as they are in the present- they are marks that you are surviving. you are still alive. your body has adapted however it needs in order to keep working, to allow you to survive whatever it has undergone.

and i am so fucking proud of you, despite being a stranger on the internet. you have made it this far. i am so fucking proud of you.

may your pains ease, and may the world become easier to traverse for you, both mentally and physically. i send you my support.

take care, my lovely, absolutely amazing disabled friends <3

#disabled #disability #actually disabled #physically disabled #mentally disabled #out of spoons #gentle reminder #i am proud of you #many hugs #it is okay to be angry at the ableds #pots syndrome #ehlers danlos syndrome #chronic illness #chronic pain

[xmcu-fietro]

people with chronic fatigue—how do you manage the fatigue when you have a lot of things to do?

my doctor thinks I may have fibromyalgia but she’s been overall pretty unhelpful/dismissive, and I need a few tips for figuring out how to conserve/boost energy as I finish the semester and prepare for a busy summer. Caffeine doesn't help me because of my ADHD, and sleep rarely helps.

Specifically, is there anything that helps energy while standing up? I don’t have any issues with walking, but when my fatigue/muscle and joint pain/muscle tension flares a lot it makes standing up pretty exhausting, so outside of making myself go to classes when I can I pretty much stay in bed or on the couch as much as possible, but that’s not good for my grades or my mental health.

Any help is appreciated!

#tagging things I think may reach people who know more about this--apologies if this clogs any tags! #fibromyalgia #myalgic encephalomyelitis #chronic fatigue syndrome #me/cfs #chronic fatigue #adhd #actually adhd #chronic illness #joint hypermobility #hypermobility spectrum disorder #physical health #invisible disability #joint pain #muscle tension #fietro's personal posts #accommodations #disability aids #accessibility #out of spoons #spoon theory #spoonie #brain fog

[chronically-not-okay]

I’ve been sick for about ten years and there hasn’t been a day my chronic illness hasn’t gone out of it’s way to humble me

Like no I don’t have a ego I faint when I stand to fast and my worst enemy is water consumption

#gastroparesis #amps #amplified musculoskeletal pain syndrome #pots syndrome #posturaltachycardiasyndrome #fibromyalgia #chronic migraine #chronic migraine disorder #chronic illness #spoonie #out of spoons

[chronicallyuniconic]

I feel guilty because to them it's "only" chronic pain & fatigue.

It's not life threatening, even though it can get there.

It's not really treatable, just sit-withable.

It's not something like cancer, that can be cut or irradiated out of you.

It's not like I have to do anything other than sleep & try to cope with the pain levels.

I feel guilty because my illness isn't seen as valid as others.

I feel guilty because funding is so minimal and research so sparse, i am only able to lay in bed.

I feel guilty because my illness isn't seen as worth caring about and by extension, me.

I feel guilty about their positive outlook when I used to have that too, but they're getting treatment unlike me.

I feel guilty for having bad and worse-than-bad days, when I used to fully function like my friends and family.

I feel guilty because nobody gives a damn about M.E

#does this make sense

#chronic life #chronic pain #chronically ill #chronic illness #chronic fatigue #fibromyalgia #myalgic encephalomyelitis #chronic migraine #invisible disability #sorry for being depressing #no spoons #chronic pain syndrome #physical illness #life #m.e #me cfs #me/cfs #fibro #out of spoons #spoonie problems #spoonie life #disabled #disability #i feel so guilty #spoonie #chronic fatigue syndrome #just a thought #does this make any fucking sense

[dddemigirl]

My physical health problems lead to panic attacks which then affect my mental health too. All this shit a few weeks before I turn 28. I feel so uncertain and scared.

#alexa rambles #vent tag #venting #panic attack mention #disabled #mental illness #disability #chronic pain #spoonie #out of spoons #Alexa’s depression tag #🥄 #actually disabled #actually mentally ill #invisible illness #invisible disease

[can-it-be-nap-time-now]

A doctor explained fibromyalgia really well to me the other day so i thought I’d share:

Fibromyalgia is a condition affecting the nervous system, usually triggered by a trauma - this can be a medical trauma, physical or emotional trauma.

Following an adverse experience, your nervous system becomes over active as it tries to avoid another trauma, and so at the slightest sign of stress - exercise, tension, negative emotions, etc - it sends pain signals so you’ll stop.

The weird thing is, if you’re doing something and enjoying it, the nervous system is less likely to freak out because you’re happy and releasing endorphins. This is why some days we can do lots and others nothing at all!

#chronic illness #chronic pain #chronically ill #fibro flare #fibrofighter #fibrolife #fibromyalgia #fibrowarrior #spoonie #out of spoons #chronic fatigue

[optimisticfrogcollective]

✨To all the spoonies: I work an office job and so far my only accommodation is being able to always have my headset on.

I am trying to think of more things I need, but a lifetime of masking and ableism is making that difficult.

Please comment or reblog with some of your accommodations at work/school/at home/with friends, I feel like it could be helpful for so many people! ✨

#spoonie #chronically ill #endometriosis #fibromyalgia #disability awareness #autism #autsitic #chronic fatigue #out of spoons #actually autism #accommodations #fuck ableists #ableists dni #stop being ableist #ableist bullshit #disabled #disability #late diagnosed autistic #disabilties #spoons #spoonies #spoonie living #spoonie life #i hate being sick #i am sick #mental illness #mentally fucked #mentalheathawareness #disability advice #self advocacy

[spookietrex]

Excuse me while literally all of my art projects get delayed because I bought a new sticker book so I can make my own stickers. 😈

#my own worst enemy #my own stuff #out of spoons #low spoons #spoon theory #spookieart #spoonies #spoons #spoonie #🥄 #i don't have enough spoons for this #i don't have the energy for this #my attempt at art #my art #stickers #my spoons are running low #sticker art #chronicillness #actually chronically ill #chronically ill #chronically ill artist #disabled artist #c punk #cripplepunk #eds zebra #hypermobile eds #potsie #pots #fibromyalgia #cfs

[calmmyfears]

i'd really like to go out and breathe in the fresh winter air, and idk do something fun for a change. but i know that being this sleep deprived could lead me into tricky situations and that i could very well trip and fall cause of dizziness and exhaustion. so I just sit here and stare, not exactly sure how to get through this day.

#days i wished i had mobility aids #chronic exhaustion #chronic illness #disabled #out of spoons #fibromyalgia

[animeliz82]

#parenting #out of spoons #dank memes