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spaghettificationandpretzels · 1 year

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Writing Resources: Chronic Pain and Illness

Sp's resources for Content Creators Materialist

Trigger warnings for discussion of chronic pain and illness. Other authors are more than welcome to add their own points and I will update the link in the masterlist as more is added. Alternatively, send me an anon ask or DM if you want to remain anonymous. I have more than one chronic issue myself, I will use the block unbutton if you're an ass about this.

Chronic pain and illness have little to no representation in fanfiction. If you wish to add these to your story and you don't experience the subject yourself, please do research using medically accurate sources.

Patient Care and Health Information - The Mayo Clinic. Look up the condition in the search bar.

The NHS website Look up the condition in the search bar.

Another good resource is forums and subreddits.

2. Even people with the same condition have different experiences, be careful not to make blanket statements.

3. Women, POC and members of the lgbtqia+ community are less likely to get treatment, more likely to be treated like drug seekers and are more likely to be misdiagnosed or have to wait much longer for an accurate diagnosis. Similarly, their issues are more likely to be blamed on mental health issues and hypochondria.

4. Someone living with a chronic condition may not have a 'normal', or what they consider normal may be disordered. Some people with chronic conditions may not know what not being in pain or being well-rested is like. When I was younger and before my current treatment, I was never hungry or out of pain, this shocked people when I told them, it was as normal as breathing to me.

5. Doctors can suck, some people are outright terrified to get treatment due to past experiences. I was treated like a drug seeker once and now get the shakes before seeing a new doctor for fear of being called an addict.

6. The things people experiences do not care what you have going on. They can steal happy moments in a flash and render someone unable to leave their home, it's common for someone with a chronic condition to need to plan everything down to the second (or feel like they need to), cancel at the last minute or worry that they won't be able to enjoy something they have looked forward to.

7. We are not looking to be babied, I know my own limits and will express them. There is a line between a character being caring and infantilising. Having said that, there are times when I haven't expressed my needs for fear they will be ignored. If you are writing a caretaker scene or character be careful to ensure the other person still maintains their autonomy.

8. Empathy, not sympathy. Sympathy is looking down at someone in a hole and telling them they can climb out, empathy is getting in there are helping them out. Sometimes the best thing someone can hear is "I have no idea what you're going through."

9. Chronic conditions are systematic, it's not just pain, it's also brain fog, being unable to sleep or stay awake, having problems controlling emotions, and changes in appetite and sex drive.

10. There is never a magic cure, chronic conditions are a part of someone. Making them disappear doesn't mean a happy ending because, in real life, they don't disappear. It doesn't make someone less than others if they don't get better.

Part Two: Chronic migraines

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theslimestar · 3 months

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Im so sorry for all my mutuals that followed me for another interests and then got hit with my rc9gn brainrot....

#i still love saiki k and at and etc #but #the brainrot is real #the brainrot is terminal #im gonna die #give me content pls #recomend artist/writters in the rc9gn that arent inactive #ESPECIALLY writters #i have only see ONE rc9gn writter that is active #i am going to start sobbing and throwing up #im going to kms #/j #save me rc9gn save me #rc9gn

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neteyamloverr · 12 days

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⭐︎𝐌𝐚𝐬𝐭𝐞𝐫𝐥𝐢𝐬𝐭⭐︎

𝐅𝐨𝐫 𝐧𝐨𝐰, 𝐭𝐡𝐞𝐫𝐞 𝐰𝐢𝐥𝐥 𝐛𝐞 𝐚 𝐥𝐨𝐭 𝐨𝐟 𝐮𝐩𝐜𝐨𝐦𝐢𝐧𝐠 𝐭𝐡𝐢𝐧𝐠𝐬. 𝐈𝐟 𝐲𝐨𝐮 𝐦𝐚𝐤𝐞 𝐚𝐧𝐲 𝐫𝐞𝐪𝐮𝐞𝐬𝐭𝐬, 𝐈’𝐥𝐥 𝐩𝐮𝐭 𝐭𝐡𝐞𝐦 𝐡𝐞𝐫𝐞 𝐚𝐬 𝐖𝐈𝐏𝐬!!

⏱️=𝐈𝐧 𝐏𝐫𝐨𝐠𝐫𝐞𝐬𝐬

✏️= 𝐬𝐭𝐢𝐥𝐥 𝐋𝐎𝐓𝐒 𝐨𝐟 𝐖𝐑𝐈𝐓𝐈𝐍𝐆 𝐭𝐨 𝐝𝐨

𝐌𝐢𝐠𝐮𝐞𝐥 𝐎’𝐡𝐚𝐫𝐚

𝐍𝐨𝐭 𝐒𝐚𝐟𝐞 𝐅𝐨𝐫 𝐰𝐨𝐫𝐤 - [𝐰𝐨𝐫𝐤𝐩𝐥𝐚𝐜𝐞 𝐫𝐨𝐦𝐚𝐧𝐜𝐞, 𝐬𝐦𝐮𝐭]

𝐒𝐭𝐞𝐯𝐞𝐧/𝐌𝐚𝐫𝐜/𝐉𝐚𝐤𝐞

𝐓𝐨𝐱𝐢𝐜 - [𝐌𝐚𝐫𝐜, 𝐮𝐧𝐡𝐞𝐥𝐚𝐭𝐡𝐲 𝐫𝐞𝐥𝐚𝐭𝐢𝐨𝐧𝐬𝐡𝐢𝐩, 𝐚𝐧𝐠𝐬𝐭] ⏱️

𝐂𝐨𝐦𝐞 𝐎𝐯𝐞𝐫 ? - [𝐒𝐭𝐞𝐯𝐞𝐧, 𝐛𝐫𝐞𝐚𝐤 𝐮𝐩𝐬, 𝐜𝐨𝐦𝐟𝐨𝐫𝐭, 𝐬𝐦𝐮𝐭] ⏱️

𝐅𝐢𝐫𝐬𝐭 𝐝𝐚𝐭𝐞 𝐰/𝐒𝐭𝐞𝐯𝐞𝐧? ⏱️✏️

𝐌𝐚𝐭𝐭𝐡𝐞𝐰 𝐌𝐮𝐫𝐝𝐨𝐜𝐤

𝐁𝐥𝐢𝐧𝐝 𝐥𝐨𝐯𝐞 (𝐨𝐫 𝐥𝐨𝐯𝐞 𝐢𝐬 𝐛𝐥𝐢𝐧𝐝)💀 - [𝐧𝐨𝐭 𝐞𝐱𝐚𝐜𝐭𝐥𝐲 𝐬𝐮𝐫𝐞 𝐰𝐡𝐚𝐭 𝐈 𝐰𝐚𝐧𝐭 𝐭𝐨 𝐟𝐨𝐫 𝐭𝐡𝐢𝐬 𝐨𝐧𝐞 𝐛𝐮𝐭 𝐡𝐞𝐥𝐩 𝐦𝐞 𝐰𝐢𝐭𝐡 𝐭𝐡𝐞 𝐧𝐚𝐦𝐞 𝐲𝐚𝐥𝐥 𝐜𝐮𝐳 𝐢𝐭’𝐬 𝐜𝐨𝐫𝐧𝐲 𝐀𝐒𝐇) ⏱️✏️

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hitwiththetmnt · 4 months

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Psst @desceros

I’ve gotta tell you, this comic is quickly becoming my new wip baby. I’ve got about 7ish panels out of 19 done so progress is strong

So, while I chip away at this comic I was wondering if you had a name for this villain rise Donnie universe - or if it’s up to workshop a title?

Alsssooo- *this will totally not lead to more comic work* but your little blurb mentions that our dear reader is draxum’s lab assistant, so that creates a perfect scenario for them to conveniently be caught in the destruction of his lab once again after the three other turtle brothers stumble upon it as they do in the show (OvO)

WITH THIS IS MIND (this ideas has dragged me to the depths of brain-rot) it becomes the perfect set up for 1) mutated lab assistant and all the angst of no longer being a human AND 2) injuries reflecting Donnie’s terrible past on his lovely and all the emotional turmoil surrounding an injured loved one (maybe a little revenge for #3?)

ANYWAY - just everything involving this villain Donnie universe has taken a hold of me. Everything from the cutesy relationship stuff to just the gut wrenching angst potential

#tag me if you make more for this universe! I must consume villain Donnie content!!#so many questions: sorry for the cluttered thoughts #we are full on making a comic now #I’ve kidnapped you #your my little blorbo writter now #I just accumulate more writter friends through Yorshie #tmnt rambles #random #hit #art 4 others

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koszmarnybudyn · 10 months

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I can't write fics (i can write poetry, long monolouges/rants and dialouges and that's basiclly it, my sister said i write in my native launguage like i google transtated it) but can someone please make a link-centric fic? Cause i'm really craving a fic like that and i dont think theres any, tho if there are im open to suggestions :)

#dndads #dungeons and daddies #link li wilson #i also crave teens poly cule fics but that's another topic #its fine if like nobody does this im just sad theres none #i will do fanart for it if i have the energy and time tho #sorry if this sounds spoiled i deaply appreciate our fic writters #i just want my boy to have some content about him ya know

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mm30ww · 2 months

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That familiar feeling. ✶

this is an AU where my oc Sora left the Pm to go to the ADA and Dazai stayed(roles reversed AU basically.) ((in the like ‘cannon’ universe she stayed in the port mafia instead of leaving like in this one!:3)

this is my first time sharing my writing on the internet I’m nervous ngl😭

!DISCLAIMER! My oc Sora is not shipped with Dazai they are just old friends>.> (she’s shipped with Chuuya)

———————————🦢———————————

I stand in the same empty halls I remember, much to my own dismay I had repressed these memories. But now I’m back, I hope Atsushi isn’t too sad. I never wanted him to find out the violent woman I used to be, but now he will see that. I have turn back to the nature I pushed away so far. I feel a touch on my shoulder I look back at those lightless eyes of his, I didn’t miss the chill I always got from them, he was always so silent. I look back to my feet, ashamed almost. “Welcome back Sora, I’m glad Mori picked you. I missed those days where we were together, before we…drifted.” Dazai spoke so casually, it made me want to cry. It mad me feel so sick, he didn’t sound upset with me. I nod “I missed that too..” I say quietly, the words barely audible. I felt so vulnerable in his presence, I knew I’d feel worse the moment I saw Chuuya. He smiles opening his arms for a hug, I look back. Obviously confused at this i slowly walk forward and embrace him. I inhale his smell, the scent bringing back memories of my childhood. Though it brought back bad ones too. I look at him, still held tightly in his embrace “I-..I’m sorry I left, I just couldn’t take it.” I say with guilt in my voice he sighs “I don’t blame you, I don’t really forgive you for leaving like that but, I understand it.” He said, it felt nice to have someone understand my situation. I let go and take a step back “I’m gonna go to my office.” I say walking to my old office, the same as I left it just not any paper work. On my own I let the tears flow, this place was terrible to me and now I’m stuck here with no escape from it. The feeling felt so familiar, to feel stuck and hopeless like this it always came often to me.

#bsd #bungo stray dogs #bsd oc #oc writing #oc angst #oc au #bungou stray dogs oc #new writter #port mafia #armed detective agency #bungo stray dogs oc #oc content #idk how to tag this #idk what im doing

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oops-all-short-kings · 3 months

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Did I make this blog because I was sad about the lack of short kings content... yes.

#sometimes you gotta make the content you crave #so grateful for the ao3 writters tho they are keeping me fed with rizzy fics #oops all short kings (a podcast)

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cheese-water · 1 year

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Alright, here we go.

Under the cut is the message I sent to YouTube about how the company handles flagging deemed “age restricted content” and the lack of transparency and communication given to content creators. Specifically, how they’ve treated RTGame. I am in no ways a expert and would not liked to be posed as such. I am simply someone exercising their thoughts and opinions on the matter and very aware of the slim likelihood of YouTube reading my feedback, let alone causing change. All I’m doing is sharing my emotions after three and a half hours of writing. And 1600 words later, it was sent.

TW: slight mentions of themes described in YouTube’s Age Restricted Filter (ie Gore, Predatory Behavior, Minors in sexual situations, etc.); hopelessness; slight derealization

Please enjoy my reaction.

Based on what has happened with RTGame, Daniel, and many other YouTubers, the rules and guidelines listed here do not fully encompass what YouTube considers "age-restricted content." I know for a fact that, through my own and others' experiences watching Daniel’s videos, he and the content he produces all fit within the guidelines listed out: nothing harmful or meant for adults that minors could easily imitate; not presenting 18+ content in a way that appeals and could be confused as children’s content; no harmful, realistic pranks that might be construed as real; no invitations to perform inappropriate, sexual dancing, fondling, or groping; nothing that contains provocative clothing or poses to arouse viewers; no images or videos of detailed, violent gore, such as injuries sustained from a car accident, as the central theme in videos; no overuse of profanities and vulgar language found in video titles, thumbnails, and the content itself, and not a single video where the content is simply swears and other profanity out of context.

I am fully aware that this does not fully encompass the policies you have set, but after thoroughly reading the guidelines found in the link, I’ve concluded that my point still stands by exemplifying his complicity with the themes displayed on the main page. This is unacceptable on your part. Why do I have to list out what a ludicrous decision it is to limit and age-restrict at least 12 of Daniel’s videos in the past 48 hours? Why, after repeated requests for contact and appeal, is Dan sent the exact same manual review response stating that a 3-hour video was in fact "not advertiser friendly" after receiving the request 10 minutes earlier? Why is this continuing to be a problem on YouTube? At this point, it’s just disappointing to see a site supposedly "built for creators" have their entire livelihoods ruined because of reasons they weren’t told about or weren't able to fix. In the last paragraph, "Check if your content is age-restricted," you state, "Our systems are constantly being updated, and if we find any discrepancies with your rating, there’s a chance it could change." Now why are YouTubers, who have managers in contact with them or even work at YouTube, only finding out about these changes after they have been stricken? Wouldn’t it make more sense for you, the company in charge, to communicate with creators about this fluctuating filter in order for them to avoid creating said "age-restricted content?" Most creators on the platform, including Daniel, do not want to advertise cannabis dispensaries or expose their viewers to gory imagery. I am able to say that with such conviction because of the amount of distress those YouTubers feel when they face an age restriction on a supposedly safe video. No one benefits, not the creators, the viewers, or even YouTube itself, when a video is flagged as 18+ without any warning, context, or possible reconsideration with your current way of operating.

Now, at this point, I could speculate that YouTube does indeed benefit from this due to the vague phrasing and information about the "constantly updated filter" in your systems, allowing you to excuse undeserved content being flagged under the guise of "newly added guidelines" and allowing you to keep all revenue generated from said video and not split it with the creator. However, that’s just baseless speculation from someone who has never experienced demonetization or age-restriction personally, and something I don’t believe. I am one for facts, not groundless conjecture, so instead, I’ll tell you two reasons why YouTube will not benefit from this lack of transparency with creators and how it’s on the road to failure.

As mentioned previously, I frequently watch and enjoy the content produced by Daniel, also known as RTGame, a full-time content creator. While for some reason he has been seemingly targeted with your way of age-restricting inappropriate content, including multiple past and oddly privatized videos on his channel, that is not why I bring up Dan once again. No, I would like to inform you of something he said merely a few months ago about YouTube. While this is purely verbatim, I have faith in YouTube’s team to find this quote in one of his videos on his channels if you don’t trust me, Daniel states his frustration and disappointment with Amazon, specifically Twitch’s handling of the payment split between Amazon and streamers and the change including the members of the Twitch Partner Program. I specifically recall Dan going as far as to say that if this was the direction Twitch would continue to head in, including streamers being forced to run advertisements in the middle of their streams, he was likely to leave the platform and join YouTube Gaming. He said that even after facing unwarranted 18+ flags on his content the year prior. To be more specific, exactly the year prior regarding the age restriction of "Best of 2021." How about that? I can’t speak for Daniel or anyone else who is facing this situation, but I can tell you objectively that when a direct competitor’s successful employee starts to grow tired and irritated at the competitor’s management and publicly states the likelihood of them moving to you, you better work your hardest to stay on their good side. Have you already fractured your chance with not only Daniel but many streamers on different platforms due to your public negligence and utter disregard for this man’s creations and, most importantly, livelihood? I don’t know. It all seems to depend on what you do next. You did this to yourself.

Now, why did I do this? Why have I gone and spent my time and effort illustrating my thoughts about restricted content while defending a man and a community to which I’m simply a stranger? Why have YouTube's actions, your actions, fueled me to type all this out, begging that there’s someone human on the other side of the computer breathing, reading out my thoughts instead of being sent to a spam filter, screaming out my lungs into this void, half of me knowing that this was a waste of time but the other half grasping on this false hope that by sending this, something, anything, will change? Why put myself through this? Because of the second reason:

Myself.

…or at least what I represent in the grand scheme of YouTube.

I, for all my life, wanted to be a YouTuber when I grew up. Nothing else—as much as I knew it was a slim possibility—was where I felt most comfortable (literally, I’m wearing YouTuber merch right now). I dreamed of the content I could create, the people I would meet, and, most importantly, my impact on others. That’s what drives me as a person—not money, fame, or even meeting my idols—the ability to change someone’s life for the better just through my passion. All of my life, I knew what I wanted to do; all I needed were the materials to create it. And after so long, I have them. Not just the material items, but the time, motivation, and mental health—everything I needed to hopefully be the force of creativity and positivity in others' lives that the content creators I watch are in mine. I was hoping to actually post in the next two weeks, with the beginning of 2023 and everything.

Then this happened.

Again and again and again and again and again and ag-

I could say that I’m not starting my channel out of protest, that it’s simply because you don’t deserve my creations until you respect others, and that it's purely to not lose potential monetary gains I would make based on what happened to others. I wish it were as simple as saying that this was the final straw, and I will never create videos for YouTube.

But while all are partially true, I am someone who values the facts. And truth be told, I’m scared.

Not only for what YouTube as a platform will become if mass, unjustified censorship of video becomes the norm, but also because I know what it feels like to have poured effort and passion into something and eventually getting the courage to allow the world to it, only for the rug to be pulled out from underneath you for reasons that are not unfamiliar yet go unexplained. I am scared that the minute I think I’m comfortable with being a YouTuber, I’ll get age-restricted, either wrongly or accidentally, and all I can do is sit and watch as my creations, born out of my want to inspire others like myself, are deemed unwatchable for little to no apparent reason, forever held hostage by the faceless god who gave me the tools I used to form them. So I’m not going to put myself in a position where I could get intensely hurt like others have. Not until that possibility is gone. There are hundreds, if not thousands, of people like me who want to build and hone their craft through YouTube, and the only obstacle in our way is the company itself. Why would we want to join a site that treats its most popular creators unfairly from an outside perspective?

Change, improve, or at least try to quell the disappointment festering in your user base.

Please?

If not for some stranger, at least for RTGame.

Please, YouTube?

Anyone?

I spent so long trying to reach you; YouTube really has made me who I am today. I don’t want to stand idly by while they sabotage their own creators through a lack of meaningful communication when I could have done something, anything.

Please.

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flower-zombie-rob · 11 months

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God i almost forgot why i hate tiktok so much

#there are people litterally calling the owl house writters groomers fot having more queer than straught characters in rhe cast #like kids being queer and more th like 2 people being queer is grooming #fucking assholes #i started cosplay content there #might genuinely stop #i fucking hate tiktok people

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spaghettificationandpretzels · 1 year

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Writing Resources: Chronic Migraines

Sp's resources for Content Creators Materialist

This is a long post!

Trigger warnings for discussion of chronic migraines. Other authors are more than welcome to add their own points and I will update the link in the masterlist as more is added. Alternatively, send me an anon ask or DM if you want to remain anonymous. I live with this condition every day and it has a serious impact on my life, don't be an ass.

This is a follow to this post I am over the moon at how many people are using/sharing it. Thank you so much!!

Basic facts

If you take anything away from this post, please make it this, migraines are not just really bad headaches. Migraines describe a wide range of neurological issues.

Remission happens, but it is a pipe dream for most people and many people who go into remission end up getting them again. This means that there is no cure, only treatment. Partial remission (less than ten migraines a month) is far more common and is what most people aim for.

Three out of four people who have migraines are AFAB, as the last post states being AFAB makes it much harder to access treatment.

Migraines are a registered disability and cost people/counties millions of dollars a year in treatment.

Miragines run in families but that doesn't mean they can't come from other sources.

There may be no clear cause.

Some people have spots on their brains that show up in MRIs others do not. Not having spots doesn't mean you are lying.

Some migraines mimic strokes.

For some people, nothing works, they have tried everything below and get no relief.

The Migraine

It starts with the prodrome this is the attack phase. Some people get an aura which might mean vision changes or smelling things that aren't there. Some people (myself included) don't get auras this does not mean we are lying.

The attack phase, this is when the pain starts. See symptoms for more information.

Postdrome, this is what happens after. Some people become very hungry, some people get huge bursts of energy, and some people are so tired they can't get out of bed.

Symptoms

Head pain, but not always, silent migraines and/or stomach migraines exist. The pain can be crushing/squeezing, pounding, sharp, burning, stabbing or a mix. Pain is often not isolated to the head and can affect the face, neck and shoulders as well.

Sensitivity to light (this is a huge one of me, I live in the Batcave) it can be so bad during an attack I can't even stand the light of my powerboard.

Sensitivity to sound, some people may find the spinning of a fan unbearable.

Sensitivity to smell. Anything from flowers to strong perfume and food smell can make a person feel very ill.

Sore skin, being touched can hurt.

Aggravation by movement/changing in position. Imagine being worried about getting up to use the bathroom because you know your pain will go from severe to "oh my god I want to die." When I am very bad, I have to spend around five minutes going from lying down, to sitting up to standing.

Tingling and numbness.

Facial drooping.

Nausea and vomiting. I have often said that if it was just pain, I could cope (bullshit) feeling nausea is horrible.

Brain fog. This can be so bad that people can forget very basic things.

Emotional ups and downs, being in pain can be really rough.

Triggers

The heat/cold.

Getting not enough/too much/poor sleep.

Certain foods.

Alcohol

Strong smells, I cannot use public transport without serious planning because most people don't know how strong their perfumes are.

Too much/too little/any exercise or exertion.

Changes in the weather. I used to love the rain, but I had to stop taking a drug due to its side effects, the rain now ruins my day.

Treatment Information/Treatments

A neurologist is the main treatment doctor.

People have to keep headache diaries.

To be diagnosed with a migraine disorder a person has to have more than head pain and/or head pain a certain number of times a month.

For some treatments a person has had to have others fail.

Emgality

Emgality sends people into remission. However, its use is limited because the body devolves antibodies. Imagine finally being pain-free years after of trying, then having something that works fail a year down the line, that's what many Emgality deal with.

Emgality is an auto-injector that goes in just below the skin, the is less body fat you have to more it hurts. My pain ruins my appetite and I'm thin, had it worked for me (it didn't) using it would have been difficult as I found the injection very painful.

Emgality can be very expensive.

There are two initial injections then one, once a month. They need to be kept in the fridge.

Botox

Botox can be very effective, it consists of up to forty injections every 8-12 weeks in the jaw, forehead, scalp neck and shoulder. I don't find these painful. In the case of where I live, the co-pay is every 12 weeks.

It is nothing like the botox you get for wrinkles.

Protocols for getting botox can be very strict, like all other treatments, botox can become ineffective over time. In the case of where I live, you had to either have had 8 days a month with migraines and/or 15 days with head pain.

Cost without a co-pay can be in the thousands.

Continued treatment with a co-pay may mean botox has to be effective after two rounds, it can take up to four for things to really work.

I start feeling it wear off at 9 weeks, which means for three weeks I am back to 5 pain days a week. This is very common and is mentioned in a lot of botox information.

For me the injections feel like being grabbed by tiny little hands.

Many people (myself included) get a post-botox migraine, they are not fun.

For some people botox does nothing or makes them even worse.

Below is the most basic injection map, I and many people I know get more than what is listed. It varies from person to person and often takes multiple rounds to find out what extra sights are helpful.

Preventive Medications

Daily pills that can be anything from anti-depressants to epilepsy medication.

They may work wonders, but side effects can ruin them. These can include, damage to internal organs, serious changes in weight, brain fog so bad you can't function and some drugs cause fetal deformities.

Most people will try a lot of preventive before they find one that works, some people will never find anything.

Daily cannabis can also be a preventative, both CBD and THC.

The list below is the most common

Abortives

These are used in the prodrome or attack phase.

The drugs could be triptans in the form of pills, injections and nasal sprays, muscle relaxants, sleeping pills, antihistamines and opioids and other pain medications including cannabis (both CBD and THC).

Other options.

A dark, comfortable room.

Heat and or cold treatment.

Magnesium injections and fluids.

Hot showers.

Physical therapy.

Dental treatment.

Roll-ons, creams and pain sprays with or without THC and CBD.

Tips on writing

Suggesting things like drinking water, doing yoga, taking xyz out of your diet, getting some sun, going for a walk or seeing a therapist is a really shitty thing to do. If you're doing this in your writing, then try to show it for what it is, an invading experience that happens over and over and over again. It's really nice when someone I know calls a person out on this.

Miragine sufferers often force themselves to function, if your character has a migraine and they have stuff to do, show that it's hard for them. Show that they are angry and distressed and want nothing more than to go home and rest and be out of pain.

Show the desperation that can take place. There are times I would have done anything to get out of pain. I would do whatever I could even if I knew it wasn't going to help. When all you can think about is how much pain you're in you will do anything to make it go away.

Being in pain all the time can make your normal abnormal, I can function fine at pain levels that send some people to the ER. You have no choice but to cope and many people (myself included) grow to dismiss their pain. Putting into words "it doesn't matter that I can't even keep water down or that the light shining through my eyelids makes me want to die, there's shit to be done."

I have cried when people have told me they have believed me, Many people do not want to be looked after, they just want to be acknowledged.

Fiction around someone looking after someone else can be wonderful (it's a part of many of my fics) If you want to write a caretaker fic/screen have the caretaker ask what the person needs, have them do research and show them being an advocate.

Please DM me if you have any questions.

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