#tilt table test

[thatpinkkwitch]

i have my tilt table test today!! very nervous, very excited to finally get this diagnosis down on paper since my entire medical team is in agreement on what i’m obviously dealing with!!

#lexi talks #personal blog #stoner witch #southern witch #pagan witch #witchcraft #paganism #paganblr #queer pagans #pagan #tilt table test #potsie #pots syndrome #pots #postural orthostatic tachycardia syndrome #ehlers danlos syndrome #chronically ill #chronic illness

[theglassdragoncollective]

Succeeded our tilt table test! (Fainted)

#tilt table test #fainting #dysautonomia #funny

[headpainmigraine]

This was a pretty interesting article, not only about the difference between vasovagal syncope and POTS,

But ALSO about the poor practice of relying solely on a tilt table test to diagnose POTS.

The # of times I've heard from other ppl with POTS that the TTT is the definitive word, and the importance of heart rate, it made me doubt the very firm diagnosis from my neurocardiologist.

I know, too, that there are people here who have POTS, but who are hypertensive instead of hypotensive. I hope this info helps you and anyone else with less 'clear cut' POTS who might bee doubting their diagnosis.

#postural orthostatic tachycardia syndrome #orthostatic hypertension #pots #vasovagal syncope #tilt table test #fainting #medical diagnosis #diagnosis process

[chaos-and-ink]

I really feel like my doctors need an award for stalling EIGHT YEARS on my POTS diagnosis when I literally presented as a TEXTBOOK CASE. For 8 years I frequently and consistently reported symptoms and troubles like this:

dizziness, tinnitus, light headedness, shortness of breath, vision disturbances and fainting with position change. Specifically laying to sitting to standing. chronic fatigue, digestive issues, nausea, adrenaline rushes, chest pains, sleep issues. migraines, weakness, blood pooling, temperature intolerance, exercise intolerance, inability to regulate temperature.

Just this year I've had three TTTs done and they went like this First one: Resting 70. Standing 2mins 150. Standing 10mins 120. Second one: Resting 60. Standing 2mins 160. Standing 10mins 120. Third one: Resting 60. Standing 2mins 140. Standing 10mins 110.

Let's all appreciate the sheer ignorance that was needed to put me through 8 YEARS and 3 TTTs plus 5 different doctors and 2 specialists to come up with a POTS diagnosis. like buddy, any competent doctor could've handed this in like 6 months. I was a very clear obvious case. Maybe the 'I faint when I stand and my HR is very very fast' should've been a good first clue... and then ya know, the rest of the symptoms also lining up... in a very clear cut textbook way.

#chaos #im a lillllllll angry lol #pots #postural orthostatic tachycardia syndrome #potsie #pots syndrome #dysautonomia #chronically ill #disabled #medical issues #tilt table test #heart rate #tachycardia

[dapperenby13]

I have a tilt table test tomorrow and I’m not looking forward to it. My parents don’t even fully know what to expect so I had to look it up. Has anyone else had to do it and do you have any suggestions on how to prepare

#tilt table test #chronic illness #v says things #pots #tw medical

[tea-and-spoons]

What happens when... I get a tilt table test?

A tilt table test is used to diagnose some conditions with your heart, blood pressure, or overall autonomic nervous system (the part of your nervous system that controls automatic things like your heart rate, blood pressure, breathing, and more).  If you’re having episodes of fainting, or suspect any form of dysautonomia (including postural orthostatic tachycardia syndrome, aka POTS), this is how you get some answers.

I was just asked to wear shorts and a t-shirt, but you might be given a gown to change into if your clothes are in the way.  The technicians running the test will have you lie down right away on the padded table so your body can get used to that position.  And then you’ll be connected to all kinds of monitors while you wait!  During my test, I had a few EKG leads (heart monitor stickers with wires), a blood pressure monitor on my wrist and fingers, a cannula under my nose to measure breathing, a pulse ox monitor on my finger, and a funky hat thing that measured blood flow in my brain.  You might also have an IV or something similar placed.  It all depends on the facility, but you’ll have some sort of monitor for your heart rate and blood pressure at a minimum.  My arm with all the monitors was supported and velcro-ed to the table, and some of the monitors were gently taped to me too.  It helps get more accurate results when things aren’t sliding around.  

Once you’re all hooked up and at baseline, it’s time for the tilt part of the test, which is exactly what it sounds like.  The entire table and you get quickly tilted up to an almost standing position.  There’s a footplate at the bottom of the table, and thick velcro straps across your torso and legs, so you can’t fall out.  You’re also still leaning back slightly, so that helps too.  I expected to feel very trapped, but it wasn’t too bad.

And then you wait for symptoms to show up.  As one of my friends explained it to me- “you’re there because you feel crappy when upright. So it’s kind of inevitable you will then feel crappy when upright.”  The whole point of the test is to provoke symptoms so your medical team can measure and understand what’s going on.  (I really hope someday they find a better way!)  I won’t lie, it was worse than I expected.  Normally you can sit back down or do something to counteract what you’re feeling, right?  But during the test you just have to let it happen.  I unfortunately can’t guarantee it, but if you’re feeling too awful or about to pass out, the technicians should tilt you right back down.  They want you to stay upright for at least ten minutes for best results, but I was too miserable and gave up at minute six.  They tilted me all the way back so my feet were a little higher than my head and let me rest there.  Being upside helps the blood get back to your brain, and I felt much better after a few minutes.  If you’re feeling terrible enough that you can’t even make it to ten minutes, odds are something big enough is happening that you’ll still get helpful results.  You don’t have to actually pass out, so don’t be scared to ask to quit early!

If you’re still feeling fine by minute 15 or even 45, you might be given a medication that speeds up your heart rate to try to provoke symptoms (including passing out).  It’s typically given through an IV.  If you do pass out, you get the same upside down treatment I did to help you recover quickly.

Once the test is done, you can stay lying down for as long as you need before sloooowly getting up.  Make sure you bring plenty of water to drink after.  I would also recommend another drink like Gatorade or juice, a salty snack, and any medications you take for nausea or your autonomic nervous system.  Especially if your heart rate skyrocketed during the test, you’re going to be exhausted.  The technician explained to me that it’s like a hard workout when your body responds poorly to the test, so take it easy the rest of the day.  I was shaky and tired after mine, but okay by the next morning.

I hope your test is maximum helpful and minimum miserable 💙

#teaandspoons #tilt table test #dysautonomia #autonomic dysfunction #postural orthostatic tachycardia syndrome #POTS #chronic illness advice #chronic illness #disability #disability advice #syncope

[creaturecryptid]

me during my tilt table test

#he just like me fr #chronic pain #spoonie #chronic pain memes #tilt table test #actually disabled #disability memes

[nindurmeleth]

Went in for a tilt table test, and came out traumatized.

They chose to abort the test against my will so l'm left with an inconclusive test, a possible blood clot, and a huge POTS flare.

It is so hard to advocate for myself as a physically disabled, autistic, trans person because medical professionals don't respect me as a human being or a valid source of information about my own body and experiences.

#pots #ehlers danlos syndrome #chronic pain #chronically ill #hypermobility #joint pain #trauma #medical trauma #medical neglect #medical abuse #medical ableism #abelism #syncopy #postural orthostatic tachycardia syndrome #tachycardiac #tilt table test #having a bad time #sick and tired #inconclusive testing #neurological disorder #cptsd #autism #actually disabled #actually traumatized #actually adhd #actually autistic #trans #neuroqueer

[writersarea]

totally passed out today during a tilt table test

jesus christ 0/10 but i’ve got some answers at least

#pots #mother fucker #tilt table test

[myalgicencephalomyelitiscfstom]

IME = In my experience

#tilt table test #chronic illness #long term illness #chroniccondition #hiddenillness

[faesystem]

Tilt table test today.

#pots #post orthostatic tachycardia syndrome #tilt table test #Not quite looking forward to being strapped to a table #However #I am looking forward to answers #-Tim #spoonie #cripple #cripplepunk #cpunk #disabled

[chamomile-coated-cat]

I literally have to wait a whole year just for a tilt table test???

Literally, today is October 20, I have to wait until October 16 of next year to have this appointment

What the fuck

#tilt table test #actually disabled #disabled community #disability problems #disabled problems #pots syndrome #pots

[cave-moss]

I have a tilt table test later today and I'm a wee nervous. I do not like IVs.

#tilt table test #nervous #ivs #no thanks

[crooked-smile-girl]

Here we go now

Hours before

His “worry”

His “concern”

Not for me of course

But the fact that I’ll have the car.

Tilt table test

So the doctors no longer have to guess

What the fuck is wrong with me.

#crookedsmilegirl #mental health #triggerwarning #dangerousthoughts #poetry #sadgirlpoetry #tilt table test

[affectionatepanda]

I have my tilt table test this week and I’m not exactly looking forward to it but I am looking forward to the answers it could give me sooooo… onwards? Here we go I guess

#disabled #chronic illness #diagnosis journey #posturaltachycardiasyndrome #pots syndrome #potsie #chronic fatigue #chronic pain #chronic migraine #disability #tilt table test #dysautomnia #dysautonomia

[buyingaradspaceship]

I had a tilt table test earlier and it fucking suckeddd

#p #ofc I feel physically bad. but also I keep periodically crying for no reason which is weird? maybe it makes sense but I’m unconvinced lol #immediately after the test - alongside being milliseconds away from passing out - I also felt a huge wave of grief wash over me. weird #results in a few weeks! probs pots but we’ll see ! #tilt table test