#neurological disorder

[starfishinthedistance]

Friendly reminder that if you support reproductive rights and bodily autonomy but say that disabled people shouldn't have children because they'll pass down their genes which is "cruel" or "abusive", you do not support reproductive rights and bodily autonomy. Reproductive rights do not only concern abortion for cis white abled women.

#in a world where people are not ableist and people can get accomodations disability is not pure suffering #so if you want disabled children to have good lives advocate for disabled people #do not support eug*nics #disabled problems #disabled #actually disabled #disability rights #disability #ableism #mental illness #neurodivergent #physical disability #chronically ill #chronic illness #neurological disorder #reproductive autonomy #reproductive rights #feminism

[crippledcryptidd]

Re decorated cane

ID: a black cane with various stickers, spikes in the middle, cat lights wrapped around it and a purple and black, witch cat squishamellow keychain with a black wrist strap around the top, it is leaned againsted a white door with part of a black halloween decoration in frame and standing on a grey brown hardwood floor. The lights are on but the picture is taken with flash so it is not dark. End ID

#disabled #cpunk #cripple punk #queer cripple #physically disabled #neurological disorder #disability #neurodivergent #neurological disability #tourettes #epilepsy #asthma #chronic illness #chronic pain #cane user #cane #mobility aid #mobility aid user

[dyspunktional-revan]

I still see the lightning bolt disability pride flag (the one with the zigzag-shaped non-bg part) being used occassionally.

Your reminder that it can *kill* people with epilepsy, as well as hurt those with other kinds of photosensitivity (I'm autistic and have chronic migraines, I can't look at it)

The creator was alerted of that and has long since made a photosensitivity-friendly redesign. It is also open to further edits. Her tumblr is capricorn-0mnikorn, she has the flag in her pinned, but just in case, perhaps also will draw attention more, I'll add it here too:

[Image description, copied from the creator's original post:

A “Straight Diagonal” version of the Disability Pride Flag: A charcoal grey flag with a diagonal band from  the top left to bottom right corner, made up of five parallel stripes in  red, gold, pale grey, blue, and green

/End image description]

#psa #disability #neurological disability #neurologically disabled #neurological disorder #epilepsy #autism #migraines #photosensitivity #accessibility #leviathan.txt #described #disability pride flag #disability pride #pride flags #important #chronic migraines

[valcaira]

I am... still not over the fact that one day I woke up with my right side suddenly paralyzed. Without any warning. It's been several weeks now without any improvement. I want to cry. I want to yell and scream. I'm scared. This is fucking terrifying! Who knows what'll happen next? The doctors didn't find an organic cause thus dismissed me so fuck me I guess!

Just like that! One half of my body! Gone! I still can't fucking cope with this. And everyone around me acts like it's not a big deal. Fucking hell.

#vent #cripplepunk #cripple punk #cpunk #paralysis #hemiplegia #paralyzed #actually paralyzed #fnd #functional neurological disorder #neurological disorder #neurological illness #neurological disability #actually disabled #physical disability #physically disabled

[underneaththatblackblanket]

"The 200+ Symptoms of Fibromyalgia"

(Note: Some symptoms may overlap)

GENERAL

1. Activity level decreased to less than 50% of pre-illness activity level

2. Cold hands and feet (extremities)

3. Cough

4. Craving carbohydrates

5. Delayed reaction to physical activity or stressful events

6. Dryness of eyes and/or mouth

7. Edema (Oedema)

8. Family member(s) with Fibromyalgia

9. Fatigue, made worse by physical exertion or stress

10. Feeling cold often

11. Feeling hot often

12. Frequent sighing

13. Heart palpitations

14. Hoarseness

15. Hypoglycemia (blood sugar falls or low)

16. Increased thirst

17. Low blood pressure (below 110/70)

18. Low body temperature (below 97.6)

19. Low-grade fevers

20. Night sweats

21. Noisy joints – with or without pain

22. Poor circulation in hands/feet

23. Profuse sweating

24. Recurrent flu-like illness

25. Shortness of breath with little or no exertion

26. Severe nasal allergies (new or worsening allergies)

27. Sore throat

28. Subjective swelling of extremities – (feels swollen Bu can’t find anything)

29. Sweats

30. Symptoms worsened by air travel

31. Symptoms worsened by stress

32. Symptoms worsened by temperature changes

33. Tender or swollen lymph nodes, especially in neck and underarms

34. Tremor or trembling

35. Unexplained weight gain or loss

PAIN

36. Abdominal wall pain

37. Bad hip pain

38. Burning Nerve Pain

39. Chest pain

40. Collarbone pain

41. Diffuse swelling

42. Elbow pain

43. Exacerbated Plantar arch or heel pain

44. “Growing” pains that don’t go away once you are done growing

45. Headache – tension or migraine

46. Inflamed Rib Cartilage

47. Joint pain

48. Lumpy, tender breasts

49. Morning stiffness

50. Muscle pain - widespread

51. Muscle spasms

52. Muscle twitching

53. Muscle weakness

54. Pain that ranges from moderate to severe

55. Pain that moves around the body

56. Paralysis or severe weakness of an arm or leg

57. Restless Leg Syndrome

58. Rib Pain

59. Scalp Pain (like hair being pulled out)

60. Sciatica-like pain

61. Tender points or trigger points

62. TMJ syndrome

63. “Voodoo Doll” Poking Sensation in random places

NEUROLOGICAL

64. Blackouts

65. Brain fog

66. Carpal Tunnel

67. Feeling spaced out

68. Hallucinating smells

69. Inability to think clearly

70. Lightheadedness

71. Noise intolerance

72. Numbness or tingling sensations

73. Photophobia (sensitivity to light)

74. Seizures

75. Seizure-like episodes

76. Sensation that you might faint

77. Syncope (fainting)

78. Tinnitus (ringing in one or both ears)

79. Vertigo or dizziness

EQUILIBRIUM/PERCEPTION

80. Bumping into things

81. Clumsy Walking

82. Difficulty balancing

83. Difficulty judging distances (when driving, etc.)

84. Directional disorientation

85. Dropping things frequently

86. Feeling spatially disoriented

87. Frequent tripping or stumbling

88. Not seeing what you’re looking at

89. Poor balance and coordination

90. Staggering gait

SLEEP

91. Alertness/energy best late at night

92. Altered sleep/wake schedule

93. Awakening frequently

94. Difficulty falling asleep

95. Difficulty staying asleep

96. Excessive sleeping

97. Extreme alertness or energy levels late at night

98. Falling asleep at random and sometimes dangerous moments

99. Fatigue

100. Light or broken sleep pattern

101. Muscle spasms/twitches at night

102. Narcolepsy

103. Sleep disturbances

104. Sleep starts or falling sensations

105. Teeth grinding - "Bruxism"

106. Tossing and turning

107. Un-refreshing or non-restorative sleep

108. Vivid or disturbing dreams/nightmares

EYES/VISION

109. Blind spots in vision

110. Eye pain

111. Difficulty switching focus from one thing to another

112. Frequent changes in ability to see well

113. Night driving difficulty

114. Occasional Blurry vision

115. Poor night vision

116. Rapidly worsening vision

117. Vision changes

COGNITIVE

118. Becoming lost in familiar locations when driving

119. Confusion

120. Difficulty expressing ideas in words

121. Difficulty following conversation (especially if background noise present)

122. Difficulty following directions while driving

123. Difficulty following oral instructions

124. Difficulty following written instructions

125. Difficulty making decisions

126. Difficulty moving your mouth to speak

127. Difficulty paying attention

128. Difficulty putting ideas together to form a complete picture

129. Difficulty putting tasks or things in proper sequence

130. Difficulty recognizing faces

131. Difficulty speaking known words

132. Difficulty remembering names of objects

133. Difficulty remembering names of people

134. Difficulty understanding what you read

135. Difficulty with long-term memory

136. Difficulty with simple calculations

137. Difficulty with short-term memory

138. Easily distracted during a task

139. Dyslexia-type symptoms occasionally

140. Feeling too disoriented to drive

141. Forgetting how to do routine things

142. Impaired ability to concentrate

143. Inability to recognize familiar surroundings

144. Losing track in the middle of a task (remembering what to do next)

145. Losing your train of thought in the middle of a sentence

146. Loss of ability to distinguish some colors

147. Poor judgment

148. Short term memory impairment

149. Slowed speech

150. Staring into space trying to think

151. Stuttering; stammering

152. Switching left and right

153. Transposition (reversal) of numbers, words and/or letters when you speak

154. Transposition (reversal) of numbers, words and/or letters when you write

155. Trouble concentrating

156. Using the wrong word

157. Word-finding difficulty

EMOTIONAL

158. Abrupt and/or unpredictable mood swings

159. Anger outbursts

160. Anxiety or fear when there is no obvious cause

161. Attacks of uncontrollable rage

162. Decreased appetite

163. Depressed mood

164. Feeling helpless and/or hopeless

165. Fear of someone knocking on the door

166. Fear of telephone ringing

167. Feeling worthless

168. Frequent crying

169. Heightened awareness – of symptoms

170. Inability to enjoy previously enjoyed activities

171. Irrational fears

172. Irritability

173. Overreaction

174. Panic attacks

175. Personality changes –usually a worsening of pervious condition

176. Phobias

177. Suicide attempts

178. Suicidal thoughts

179. Tendency to cry easily

GASTROINTESTINAL

180. Abdominal cramps

181. Bloating

182. Decreased appetite

183. Food cravings

184. Frequent constipation

185. Frequent diarrhea

186. Gerd-like Symptoms

187. Heartburn

188. Increased appetite

189. Intestinal gas

190. Irritable bladder - "Angry Bladder Syndrome"

191. Irritable bowel syndrome - IBS-C, IBS-D

192. Nausea

193. Regurgitation

194. Stomachache

195. Vomiting

196. Weight gain - unexplained

197. Weight loss - unexplained

UROGENITAL

198. Decreased libido (sex drive)

199. Endometriosis

200. Frequent urination

201. Impotence

202. Menstrual problems

203. Painful urination or bladder pain - "Interstitial Cystitis"

204. Pelvic pain

205. Prostate pain

206. Worsening of (or severe) premenstrual syndrome (PMS or PMDD)

SENSITIVITIES

207. Alcohol intolerance

208. Allodynia (hypersensitive to touch)

209. Alteration of taste, smell, and/or hearing

210. Sensitivity to chemicals in cleaning products, perfumes, etc.

211. Sensitivities to foods

212. Sensitivity to light

213. Sensitivity to mold

214. Sensitivity to noise

215. Sensitivity to odors

216. Sensitivity to yeast (getting yeast infections frequently on skin, etc.)

217. Sensory overload

218. Sensitivity to pressure & humidity changes

219. Sensitivity to extreme temperature changes

220. Vulvodynia

SKIN

221. Able to “write” on skin with finger

222. Bruising easily

223. Bumps and lumps

224. Eczema or psoriasis

225. Hot/dry skin

226. Ingrown hairs

227. Itchy/Irritable skin

228. Mottled skin

229. Rashes or sores

230. Scarring easily

231. Sensitivity to the sun

232. Skin suddenly turns bright red

CARDIOVASCULAR (Heart)

233. “Click-murmur” sounds through stethoscope

234. Fluttery heartbeat

235. Heart palpitations

236. Irregular heartbeat

237. Loud pulse in ear

238. Pain that mimics heart attack - "Costochondritis"

239. Rapid heartbeat

HAIR/NAILS

240. Dull, listless hair

241. Heavy and splitting cuticles

242. Irritated nail beds

243. Nails that curve under

244. Pronounced nail ridges

245. Temporary hair loss

OTHER

246. Canker sores

247. Dental problems

248. Disk Degeneration

​249. Hemorrhoids

250. Nose bleeds

251. Periodontal (gum) disease

252. Need for early hysterectomy

#fibromyalgia #chronic pain #chronic illness #chronically ill #invisible illness #spoonie #pwd #disability #hidden disability #sharing is caring #disorder #neurological disorder #central nervous system #nervous system disorder #mental health #health #awareness

[headpainmigraine]

Chronic migraine isn't a headache

I feel like, when we say 'a migraine is not a headache', people think 'it's not just a headache, it's also nausea and vomiting and being groggy' but it's not even that.

Migraine is not a headache, in that you don't have to have a headache to have migraines.

Not that I blame anyone - if you Google 'What is a migraine?', the NHS, Mayo clinic, etc, will always tell you 'migraine is a headache…' with additional add-ons.

Doctors get an entire 4 hours of medical training on 'headache' in their entire 7 years of education. Of course 'migraine is a headache' will be trotted out - headache is the most common symptom, and the one that bothers people the most.

It's understandable, but wrong.

Check out what you get from places with a migraine speciality, like the migraine trust and the national migraine centre:

'Migraine is a disorder of the brain where the nerves become over-stimulated and cause a cascade of chemicals to be released'

'Migraine brains' are easily overstimulated in response to sensory input (light, sounds, movement, smells, etc), of which headache is a product. Also nausea, vomiting, sensitivity to stimuli, vestibular dysfunction, sometimes stroke-like symptoms.

If that sounds a little like a neurodivergency to you, then yeah, it is.

Migraine is not 'a bad headache' and if you're getting them chronically, you should think about seeing a doctor* (or asking them for a referral to a headache doctor, or at least a neurologist)

'Chronic' Migraine is defined by:

at least 15 headache days a month

with 8 having migraine symptoms

for at least 3 months

(IF YOU HAVE CHRONIC MIGRAINE, YOU ALSO HAVE CHRONIC PAIN)

Otherwise it's 'episodic migraine' (although recent research indicates this defintion might be changing to be less restrictive, based on impact on the individual)

Migraine can become worse and less responsive to treatment the longer they go without treatment, so it's always worth seeing a doctor*, even if you're not having enough to be considered chronic.

Just as you can have migraines without headache, you can also have headaches without migraines that still require treatment. There's a whole host of differential diagnosis for migraine, from tension headache to cluster headache, idiopathic intracranial hypertension, hypertension, sinus disorders, trigeminal neuralgia, and on and on.

NB: Chiari malformations can also mimic migraines sometimes, by causing symptoms that come along with migraines, like neck pain, unsteadiness, dizziness, etc.

Migraines 'not just a headache'? Migraines aren't even a headache.

*usual caveat on seeing doctors; yeah, they cost money (in the US and/or privately elsewhere), long waiting lists, a lot of them A LOT OF THEM are incompetent, YMMV, but it's worth it for migraines.

#migraine #chronic migraine #chronic pain #disabilities #disability #headaches #neurodivergence #neurological disorder #spoonies #migraine isn't a headache

[crowpunkcognitivedecline]

this is a reminder that if your headaches make your eyeballs hurt. that is almost definitely a migraine and that's why headache remedies aren't helping. drink something hydrating and eat a banana okay

#not a doctor just a bitch who didnt realize headaches shouldnt feel like someone digging their thumb into the back of your eyeball #cripple punk #chronic illness #neurological disability #neurological disorder #migraine #chronic migraine

[for-the-urizen]

I explained the definition of the word neurodivergent to my dad. We both have ADHD (I also have Tourettes), but he's in his 70s and doesn't stay up to date on modern terminology. English also isn't our first language which makes it even more difficult for him with how prevalent the English language is on the internet.

Now the way our ADHD works is that if we struggle to understand a certain word, we'll instead try to think of a different word that can help us express our thoughts on the matter. Normally this is only between the two of us because it won't make sense to other people.

But my dad's immediate response when I tried to explain the definition of neurotypical was so brilliant that I have to share it here.

That instead of saying neurotypical, we say "Variety deficient". Because if we're lacking something, then so are they.

#ADHD #actually tourettic #neurodivergent #neurological disorder #tourettes #tourettes syndrome #variety deficiency

[newhologram]

Is it really accurate to say it’s “narcolepsy WITHOUT cataplexy”? Or even still dividing it into only two types based on C? I swear emotional triggers get me droopy/numb but not fully losing muscle tone/falling. Maybe we should look at narcolepsy and cataplexy as a spectrum like other things.

#narcolepsy #sleep disorder #neurological disorder #chronic illness #disability #spoonie #teku

[radiotransmissionaac]

chronic illness folks, does anyone know the feeling that, prior to illness I would have said was low blood sugar but that doesn’t apply anymore. It’s like feeling like your muscles are wobbly? Or maybe a little bit tingly? Is this ‘muscle weakness’? /genuine. For the most part I can operate as normal things just feel worse and require more concentrated effort. Are there things people do about it or is it just is?

#Chronic illness #fnd #neurological disorder #spoonie #chronically ill #advice

[crippledcryptidd]

I want to talk about migraine and mobility aids.

I’ve made a post on Tourette’s and mobility aids so I’m going to talk about another neurological disability I have that is a reason me and many others use mobility aids. Migraine.

Migraine is a neurological disease that causes migraine attacks that are most known for causing headaches but not every attack will have a headache, migraine attacks come with many different symptoms some of which may cause someone to use mobility aids.

Some symptoms that may cause someone with migraine to use one or multiple mobility aids are

Vertigo

Vision changes

Weakness

Pain

Pain worsened when moving

Fatigue

Dizziness

Nausea which can be worsened by moving

Those symptoms and others may cause someone with migraine to use mobility aids. Everyone is different, not everyone with migraine uses mobility aids and those who do may use different ones for different symptoms.

One person may use different mobility aids depending on the day, situation, symptoms, severity of symptoms, ect.

#cpunk #cripple punk #queer cripple #disabled #physically disabled #neurological disorder #disability #neurological disability #migraine #chronic migraine #migraine attack #mobility aid #mobility aids #disabilties #disability aids

[sapphicczaroftorture]

Saw this post about "labs coming back normal" and the patient is like "my symptoms aren't normal."

And let me tell you why it is so right and annoying.

4 years ago I was sent to an MS specialist who laughed me out of his office cause my labs were "normal". He saw stuff in the neurological exam, but said it does not match the lab results, hence, GTFO.

I am now starting to get back really bad lab results and the main suspect is...... MS! FUCK ME! I am no longer able to walk.

4 years ago, on said appointment I walked. Barely. But I did. Now they say that we can only delay the condition, weather its MS or some other neurological disease, we will not go back.

I was telling you something was wrong w/ my legs and hands 4 years ago.

I could have walked today.

My more "advanced" friend get the medications and it literally stopped the decline dead in its tracks. My leg nerves will NEVER COME BACK.

Listen to your patients. Pls, just listen to them!!!

#multiple sclerosis #cripple punk #disability #chronic disability #neurological disorder #medical negligence

[valcaira]

I need some more paralyzed mutuals. Feeling terribly isolated from the rest of the disability and even cripplepunk community as a whole.

So yeah. Hi, I'm Cyrus and I'm hemiplegic on my right side due to a neurological illness.

#cripplepunk #paralysis #neurological disability #hemiplegia #cpunk #disability #physically disabled #neurological disorder

[theatresofarcana]

i wanted to say i can hate my disability for constant pain in my joints, weariness, tiredness, even complete exhaustion making me unable to cook and go to the shop and still think my experience is so unique that it makes me feel things deeply, see this volatile, fragile beauty in every sign of life, everyday, in art, it makes me sensitive to anything that is underground, on suburbs of the art, the horror of living, the constant fight for living and seeing even a very sad happiness in things. it just makes me sensitive, righteous for unprivileged individuals, a nice and understanding person and i like it. i would like to not to be in a constant grieving, even though the pain is unbearable.

#actually disabled #neurological disability #neurological disorder #personal #disabled and proud #possibly fibromyalgia #disabled and queer #chronic illness #chronic pain

[nightmaretour]

I hate getting involved in discourse but you both need to stop

#neurological disability #neurological illness #neurological conditions #neurological disorder #actually disabled

[chris-wonder]

Shout out to the bitches with weird under researched neurological disorders. We are the badest bitches out here

#it’s me i’m bitches #chris wonder talks #neurological disorder #AIWS #alice in wonderland syndrome