#medical negligence

[disableddyke]

onion not even doing satire at this point

#tweets #the onion #disabled #disability #ableism #medical negligence #oh this blew up #sure hope there aren’t any people being weird in my notes #5k #10k #20k #30k #40k #50k #60k

[pro-birth]

Sophie asked if they could help her daughter, but the doctors said at this age there was nothing to be done. They said that if she did survive because of medical intervention she ran the risk of being disabled. And though Sophie argued that other babies born at 22 weeks had survived and thrived, the doctor told her not to believe what she read on the internet.

I talk a lot about medical malpractice involving pro-choice doctors mismanaging miscarriages because of their politics about pro-life laws. The other side of the fence? Also pro-choice doctors mismanaging preterm birth and lying to their patients over ableist attitudes.

Baby killing isn’t medicine. It never will be, and the longer you ignore injustice against unborn babies and their mothers, the longer it will take to make real changes for both.

#pro abort hypocrisy #birth justice #ableism #medical malpractice #medical negligence #infant death tw #child death tw

[wormworker]

Wearing a mask/respirator to protect yourself & others from the continuing deadly spread of COVID, even while the majority of the public has been brainwashed into not doing so, is punk as fuck.

#peoples cdc #covid #disability tag #disability rights #disability justice #human rights #civil rights #social justice #ableism #medical negligence

[thebibliosphere]

TW: MEDICAL TRAUMA AND GASLIGHTING- UK FRIENDS, PLEASE HELP

Hey, this is a long shot, but do I have any followers in the UK--specifically Scotland, but I’ll take anywhere--diagnosed with MCAS/D with a doctor they can recommend?

My younger disabled brother who I share a lot of health problems with has just been hospitalized at the Queen Elizabeth Hospital (aka 'the Death Star') for symptoms consistent with a prolonged MCAS flare. He's hardly eating, he's got undiagnosable bladder pain, blinding headaches, worsening allergies, and his skin/eczema is so bad he’s at risk of sepsis and losing his eyesight because he’s been left to claw himself raw with chronic urticaria near his eyes that has been brushed off for years as “anxiety.” (Which he was then prescribed diazepam for and nothing else 🙃)

When my mother brought up my MCAS diagnosis over here in the US and how similar my brother’s symptoms and reactions are, the attending doctor said that MCAS “isn’t real” and won’t even prescribe famotidine for what my brother is describing as “suffocating acid reflux”—presumably because this doctor is now on some sort of bruised ego trip over my mother questioning his prognosis that my brother is suffering from anxiety and “a lack of personal hygiene.”

(My brother is severely disabled, and my elderly mother has to bathe and dress his wounds daily, just like she’s been doing for the last 32 years since he was born. This is not a lack of personal hygiene this is a lack of medical care!!!)

My mother is trying her best, but she’s got her own health problems and suffers severely from her own medical trauma, which is making advocating harder. They do have an appointment to see a dermatologist on Friday, but considering it's at the same clinic that said my chronic urticaria was also anxiety (🙃), we're not holding out much hope.

I've managed to find him some OTC meds that might help stabilize things, but he's at the stage where he needs a knowledgeable MCAS doctor to either confirm or rule this out and figure out what the hell is going on.

I'm trying to help, but from 4000 miles away, it's proving difficult and every possible lead I've found so far has been a dead end.

NHS is preferable but it doesn't have to be. I will find a way for him to go private if I have to. Fuck if you are an MCAS doctor in the UK, I'll pay for your petrol to go to Scotland. I'll pay for anything. I just can't listen to my mother crying in the Queen Liz car park anymore because she might be about to lose her second child to the illness that almost took her first.

Thank you. Sorry. I just don't know what to do anymore.

#chronic health tag #mcas #medical abuse #medical negligence #help needed #signal boost

[thebad-lydrawn-sanses]

The last post about Cat Ink's activity got me worried

DREAM, DEAR, ARE YOU OKAY? DO YOU NEED ANYTHING? HUGS, LOVE, TO BE LEFT ALONE?

Dream: i need more money so i can afford groceries

Dream: i would also like the doctors to listen to me about my health. mental and physical

Coworker: i don't know how to help with that, sorry

Dream: not you. uh.. i was talking to Blue

Coworker: oh, i'm sorry

Dream: it's ok

#dream sans #swap sans #cat #service animal #food mention #hospital mention #medical negligence #<- that's tagged for people who need it filtered out if you're looking for posts regarding that tag i am so sorry #dialogue didn't fit in the picture #queue

[feluka]

Found this on twitter. Robin was a Black nonbinary artist who died due to medical negligence from the transphobic, racist hospital staff that was supposed to look after them. Please help their family bring them back home to rest.

#antiblack racism #transphobia #medical negligence

[perplexingluciddreams]

well.

the appointment with the CMH (community mental health) doctor was really really shit. to put it lightly.

she said lots of bad and wrong things like saying that i have no sign of infection so i don't have ME/CFS (which is just not how that works).

she also made a bunch of assumptions about my life and experiences based from very scattered (and often inaccurate or just unrelated) medical notes. and tried to tell me my life story and how my FND is caused based from that which was all just completely wrong.

she also said that because i have FND "there is no reason you are not talking and walking". which was what made me so upset that i ran (/crawled fast) upstairs and had a meltdown crying and hit the floor really really hard (hand still hurts ouch).

me not talking is NOT from FND. it's from autism (plus regression, which is still a part of my autism for me). life long experience of communication struggle and language issue and body not in my fucking control. and she completely disregarded my autism basically and saying i have no communicating problems even though that is such a HUGE HUGE part of my life.

also she said that i am "medicalised" and don't really need bath lift or stair lift or medical equipment (EVEN THOUGH i am have low mobility and CAN'T have a bath or go up down stairs without it AT ALL).

i don't know what else she said because of the running upstairs and meltdown but mum had some more talking with her and then she left. then i had a lie down in mum's bed and she did nice stroking on my back and i calmed down a bit.

still very upset. today was supposed to be good because new AAC but now it just is ruined.

and this was me trying really hard to give a second chance because she was horrible the last time too but i was being good and really trying to stay and listen but it was just horrible.

and she had awful strong perfume and the house still smells like it. making me feel sick.

sad angry frustrated.

((ask if need more tags on here i don't know what ones is right to put)).

#autism #autistic #nonverbal #nonspeaking #bad doctors #autism meltdown #meltdown #swearing #medical negligence #fnd #functional neurological disorder #mecfs #cfsme #chronic fatigue syndrome #cfs/me #me/cfs #myalgic encephalomyelitis

[cripplerage]

Pro tip for any marginalised person going to the ER for heart attack symptoms: if you can take an antacid before you go, do it. It's a tip my nurse friend told me. There's a pretty high chance they'll tell you to take one when you get there so saying you've already done that and it didn't work might help you get listened to sooner.

#speaking from personal experience #cripple punk #medical negligence #chronic illness #I am NOT a healthcare professional I'm just used to getting gaslit

[ineloquent-creature]

i hate EDS like what do u mean i am DISLOCATING joints *passes out*

#one of the hardest things is that only other EDSers can relate… #when u look up hip popping out or ribs slipping it says its not humanly possible… well they forgot abt EDS #*rate ur pain* um when i stand my ribs pop out so i lose my vision what number wld that be?? #hypermobile ehlers danlos #chronic pain #chronic back pain #dislocations #vasovagal syncope #physical disability #medical negligence #mine #vent #text

[cemitadepollo]

By the way, can we not shame people for having a low tolerance to pain and for needing to take pills or needing more anesthesia to go through certain procedures??? I know folks with chronic pain that get constantly humiliated by their families for "being whimps that can't take a little pain."

Pain tolerance is something you're born with as far as I'm concerned, and even if that's something you build up, I don't see why you would need to make yourself endure unnecessary pain.

#tw ableism #ableism #disability positivity #disability #disabled #actually disabled #health #tw medical neglect #medical neglect #medical negligence

[disableddyke]

“why don’t you just go see a doctor” i go see doctors and they perform $10,000 worth of basic tests that i’ve had done hundreds of times and already know will come back normal and then when they inevitably do, they tell me they don’t know what’s wrong with me and send me home with zero answers, the same problems and a medical bill i can’t afford. don’t tell me i just need to see a doctor.

#medical negligence #disabled #ableism #can you tell i’m american

[pro-birth]

Medical negligence is the monster you want to fight, not abortion restrictions.

You can’t sit there claiming you fight systemic sexism and obstetric violence, then go on to ignore the age old tradition of doctors letting women die due to negligence, abuse, and ignorance. These doctors denying life saving care to women with pregnancy complications are not victims, they are not your allies, they are maliciously compliant with a system that tells women that they and their children are not worthy of their medical efforts.

You can be angry that a woman can’t have an elective abortion all you want, but don’t be a tool for excusing abusive medical care.

#check out my following tags to learn more: #medical negligence #birth justice #obstetric violence #etc

[sapphicczaroftorture]

Saw this post about "labs coming back normal" and the patient is like "my symptoms aren't normal."

And let me tell you why it is so right and annoying.

4 years ago I was sent to an MS specialist who laughed me out of his office cause my labs were "normal". He saw stuff in the neurological exam, but said it does not match the lab results, hence, GTFO.

I am now starting to get back really bad lab results and the main suspect is...... MS! FUCK ME! I am no longer able to walk.

4 years ago, on said appointment I walked. Barely. But I did. Now they say that we can only delay the condition, weather its MS or some other neurological disease, we will not go back.

I was telling you something was wrong w/ my legs and hands 4 years ago.

I could have walked today.

My more "advanced" friend get the medications and it literally stopped the decline dead in its tracks. My leg nerves will NEVER COME BACK.

Listen to your patients. Pls, just listen to them!!!

#multiple sclerosis #cripple punk #disability #chronic disability #neurological disorder #medical negligence

[shit-posts-and-trauma-thoughts]

When I was in middle school I started getting random sharp pains in my right side, it wasn’t so bad at first, the pain was sharp but it didn’t hurt too badly and it only lasted for a couple seconds at first, I told my parents but since it wasn’t on my left side they said they was no reason for us to take me to the doctor. The pains didn’t go away though, the pains got sharper and started lasting longer, in the next few months they started lasting multiple minutes at a time of pain that started in my sides and left me unable to move in certain cases.

I tried to tell my parents, I was terrified that something was wrong, I didn’t know what was happening and it was terrifying, I wondered more than once if whatever it was got bad enough if it could be fatal, I started wondering how many people would comfort my parents and tell them there’s no way they could have known cause after all no one would know that I’d begged to get it looked at.

The pains only got worse for a while after that, until one day in Ag when I went to raise my hand sharp pains when through my body so strong that I couldn’t move, it hurt worse than anything I’d ever felt before, it hurt worse than getting a concussion and worse than being ran over, I couldn’t even move my arm that froze midway up, the pain was going out in waves from my abdomen and I couldn’t move, I couldn’t cry, the teacher didn’t notice that my hand was halfway up and I couldn’t even move. It stayed like that for about fifteen minutes before the pain left suddenly like it was never there. I tried again to tell my parents but they still didn’t believe me.

It happened again in the same class a couple of weeks later, that time a few minutes longer, again it felt like someone had doused every nerve in my body with gasoline and set them on fire, but eventually it stopped as soon as it came, again I told my parents and again they thought I was making it up.

Around a month later the school had a pep rally, it was loud and the sets were uncomfortable but it wasn’t the worst, that’s when it happened again accept that time it didn’t stop after around fifteen minutes, it hurt as bad as the past two times combined, that’s when I can honestly say that for the first time in the life I felt sure I was going to die, I accepted it relatively quickly, I wondered how people would react, I wondered if my parents would wish they’d believed me, I wondered what it actually was that was causing me so much pain, I can honestly say that I didn’t expect to still be conscious at the end of the pep rally. I stayed like that for about little over an hour, the pep rally was about to be over when the pain started to fade, slowly unlike the other times and it hurt to walk when the pep rally ended but eventually the pain went away again, I went to the bathroom and cried once I could walk well enough again, I never wanted to feel like that again.

After that the pains started to happen less and not as strongly, they still happened for a few more months but never as bad as before, my parents never did take me to the doctor for it though and for years I was terrified of it coming back, I had to pull over when I was driving on more than one occasion because I felt a sharp pain that caused me to panic and start crying hard enough that It inhibited my driving ability.

It wasn’t until around a year ago while I was out from college that a doctor finally told me that it sounded like I’d most likely had ovarian cysts that had eventually ruptured, but he couldn’t be sure since it happened years ago.

For years I’ve been afraid of it coming back, my mom said that I needed to get over it because it happened years ago (8 years ago now) but it still scares me. Then two months ago it happened, I started getting sharp pains in my chest, at first they were small but they’ve started to last longer, the last time lasting several minutes with my chest staying sore for the rest of the day. In the beginning I was too afraid of my parents getting mad at me if it turned out to be nothing, but it’s starting to really scare me.

That’s why I finally did it, I booked a doctor’s appointment for myself tomorrow. I’m terrified about how it’s gonna go but I finally did it, I’m so scared that it’s gonna be just like last time and my brain is convinced that it’s come back to finish what it started and kill me, I’m terrified of what I’m going to find out at the doctor tomorrow but I’m finally going, my parents tried to convince me not to go but I want to know this time, maybe this time someone will believe me.

#trauma #childhood trauma #depressing shit #abuse recovery #medical negligence #mother issues #neglect #gaslighting #tw depressing thoughts #medical neglect #maybe the doctor will believe that I’m not crazy #I just want someone to believe me #child abuse #child neglect #trying to tag everything #ovarian cyst #how tf am I not dead yet

[myriad--starlings]

doctors looking directly at me: I don't think you should have this treatment because I think the risk to your body is too great from the essential medical device that is the only way for you to receive the treatment. have you considered trying drugs we don't use in outpatient settings because they have severe risks of permanently, incurably, and untreatably damaging your body with anything more than extremely short term use?

me: at this point could you JUST take me out back and shoot me

#local birb opens beak #stop trying to kill me one thousand different ways!!!!! #hello???? #medical trauma #medical negligence

[kelpie-mare]

I hate the medical field. With a burning, righteous passion.

Go on Propranolol for the high blood pressure that was caused by the nephrectomy and anti-depressant that I had/was on.

Develop "asthma." Asthma turns into bronchitis. Bronchitis turns into pneumonia.

Antibacterial for the pneumonia. Steroid for the bronchitis. Asthma medication for the "asthma."

Pneumonia clears up. Asthma medication does jack SHIT for the post nasal drip.

Post nasal drip turns into sinus infection. Antibiotics for the sinus infection.

Post nasal drip causes cough, which is chronic, and turns into vomiting spells.

More asthma medication. More steroids. More cough medication. Decongestants every day.

Hot tea, salt water rinses, cough drops, cough syrup, cough pills, expectorant, and anti-nausea meds.

Mind you, I have ONE functional kidney that is filtering all this crap out.

Me: does 5 minute Google search and finds out that beta blockers and channel blockers...like propranolol and amlodipine...cause post nasal drip.

It's been SIX MONTHS of hell. If anyone in my care team had said "hey, this sounds like post nasal drip" maybe I could have avoided screaming about how I would rather die than have one more coughing fit.

#medical trauma #medical negligence #vent post #post nasal drip is hell #tw sui ideation