myalgicencephalomyelitiscfstom

[myalgicencephalomyelitiscfstom]

WE&ME Foundation:

We are excited to show you the first video of our campaign. This video will air on Austrian television over the next few weeks.

Please help us raise awareness by sharing this tweet. More info: https://weandmecfs.org/awareness

Donations help us liberate those affected. 🙏

💙

#mecfs #myalgic encephalomyelitis #chronic fatigue syndrome #me/cfs #cfs

[myalgicencephalomyelitiscfstom]

#chronic illness #spoonie #mecfs #POTS #pwme

[myalgicencephalomyelitiscfstom]

#chronic illness #invisible illness #chronically ill #chroniclife #neisvoid

[myalgicencephalomyelitiscfstom]

#disabled #severe myalgic encephalomyelitis #bedbound #bed bound #mecfs

[myalgicencephalomyelitiscfstom]

Today is #WorldIBSDay I wish when I was diagnosed with #IrritableBowelSyndrome the gastroenterologist had been on the look out for #MyalgicEncephalomyelitis which I had all the symptoms of at that time & is often comorbid. It would likely have helped prevent my health deteriorating #MEcfs #CFS

#WorldIBSDay #IrritableBowelSyndrome #ibs #MyalgicEncephalomyelitis #mecfs

[myalgicencephalomyelitiscfstom]

https://x.com/annieelainey/status/1145719907780386816

#chronic illness #disabled #spoonie #invisible illness #chroniclife

[myalgicencephalomyelitiscfstom]

#long term disease #chronic illness #long term illnesses #spoonie #chronically ill

[myalgicencephalomyelitiscfstom]

#resting #pacing #mecfs #LongCovid #cfs

[myalgicencephalomyelitiscfstom]

#myalgic encephalomyelitis #chronic fatigue syndrome #mecfs #cfs #me/cfs

[myalgicencephalomyelitiscfstom]

Link in image:

From:

#invisible illness #medically unexplained #medically unexplained symptoms #chronic illness #doctor patient relationship

[myalgicencephalomyelitiscfstom]

Press release for this Canadian study [Metabolomic and immune alterations in long COVID patients with Chronic Fatigue Syndrome]:

“We do not actually believe that long COVID is a separate new disease,” explains rheumatologist and clinical immunologist Jan Willem Cohen Tervaert, professor of medicine, who is an expert in fatigue associated with rheumatic illnesses.

“Some symptoms — such as the loss of taste and chest pain — are very specific for COVID, but we see a common pathway with ME/CFS, which leads to the same fatigue, brain fog, post-exertional malaise, widespread pain and non-refreshing sleep,” he says.

#long COVID #chronic fatigue syndrome #myalgic encephalomyelitis #mecfs #me/cfs

[myalgicencephalomyelitiscfstom]

(Please share widely on and off Tumblr)

From Putrino Lab @PutrinoLab today:

A reminder that if you live within 50 miles of NYC and you have a PRE-2020 ME/CFS diagnosis, then @VirusesImmunity

and I NEED your help! If you have difficulty traveling we will come to you. Please help us to hit our recruitment goals if you can! ---

Prof. Akiko Iwasaki is involved in this research. She just quoted this on Twitter/X saying: Please help spread the word about our #MECFS study with @PutrinoLab 👇🏼 thank you 🙏🏼

---

Post-Viral Trials News @postviraltrials quote tweeted it saying: David is underselling the benefits of participating – they give you microclot and platelet imaging and impressions! Here are mine:

https://x.com/postviraltrials/status/1774908103307198667?s=20

#myalgic encephalomyelitis #chronic fatigue syndrome #mecfs #cfs #me/cfs

[myalgicencephalomyelitiscfstom]

#myalgic encephalomyelitis #mecfs #chronic fatigue syndrome #me/cfs #cfs

[myalgicencephalomyelitiscfstom]

brain fog is so stupid. Like what do you mean my body is in such rough shape I have nothing but my thoughts but also I can't think?

[myalgicencephalomyelitiscfstom]

One viewpoint

#chronic illness #spoonie #long term illness #Chronicdiseases #chroniclife

[myalgicencephalomyelitiscfstom]

ME Research UK:

Many individuals report that glandular fever (infectious mononucleosis) preceded their ME/CFS onset.

Read more about Epstein-Barr virus (EBV), the virus behind glandular fever, and theories about how it is linked with ME/CFS:

#mecfs #glandular fever #mono #infectious mononucleosis #epstein barr

[myalgicencephalomyelitiscfstom]

Dr Speight's 5 free Irish ME/CFS talks, May 2024:

Plus he is seeing patients aged 20 or younger for free while he is in Ireland.

Please share widely, tag others, etc.

#myalgic encephalomyelitis #chronic fatigue syndrome #mecfs #cfs #me/cfs