#long term illness

[myalgicencephalomyelitiscfstom]

#chronic illness #spoonies #disability #disabled #long term illness

[pedro-spo]

Day 5: Rest day.

My ramblings below.

Good news, I can hold a high plank for almost a minute.

The bad news is that it's 'almost' a minute because I strained a muscle at 53 seconds.

It's my own fault. I should have been more cautious. I'm more susceptible to injury while I'm having a flare-up. I just find it so frustrating that my body will randomly betray me.

#pedro spo #rest day #my fitness journey #long term illness

[rueandkratos]

I don’t know if it’s more depressing or impressive. That I can talk on the phone to my mother who says I sound like I’m doing better. When in reality I’m not. The entire conversation I was crying and she had no clue, I’m in so much pain that she can’t even tell anymore. My partner watching me cry while having a normal conversation as if nothing is wrong, as if I’m not on the verge of completely passing out from pain and saying I’m just tired. My fake laugh almost sounding real that if I wasn’t right in front of them, they would believe I was okay too. They ask me if I’m okay once the conversation ends and I can’t look at them while I say I’m okay. The tears don’t stop flowing but my voice doesn’t waver or break. They know I’m not okay, but they know I need to tell myself that or I don’t know what I would do. So I’m okay…

I’m okay….

I’m okay…..

I just need to be okay.

#depressing quotes #health #long term illness #chronic pain

[the-kiarah-organisation]

Imagine having to write an email to your school, about this situation (in order:)

Sat down in a meeting and said "okay, let's look at how we are going to set up this physics assignment" (which is a final part of my grade!)

Made a plan, AND wrote it down

Chose the date (Mon 5th March) which happened to be the same week I had my 6hr assignment for computing

I go in on the Monday, and arrive at my scheduled periods to do the assignment.

There is nothing set up

I run around the school for half an hour trying to scramble with science teachers who have classes (because my one was off) to get what I need and to find a room, and the person who was meant to set it up isn't around

I sit the assignment

I ask if there's anything more I need to do ("no")

I get told on Friday (9th) that I "need to sign it off on Monday (11th / today) or I'll fail.

Monday arrives and I'm sick

Like, oh, I'm sorry, I'll just NOT have a chronic illness or whatever (yes, my school knows, that's why my assignment is late)

So anyway, I had to write an email in and said "either send me what you want me to fill in, or wait till Wednesday"

👀 sums up my opinion on this, lol

- Host Kītōne'h (Crew!KaU)

#tw vent #school #chronic illness #long term illness #exams #kinda vent

[ylimemariee]

A fellow friend of mine that deals with Chronic illnesses told me to get used to crying. And I’m glad I have…sucks when your body gives out on you when you wanna do so much and not have any limits. For someone as determined and dedicated as I am. I can’t express how hard it is.

#blog #follow #thinking differently #chronic illness #long term illness

[authenticallyspicy]

The Healing Paradox: Navigating Recovery with the Wisdom of the Chinese Finger Trap

When illness or injury strikes, it’s natural to want to force rapid healing and restoration of normal function. But paradoxically, research shows that patience and gradual rehabilitation better support full recovery. Just as pulling too hard on a Chinese finger trap entangles us further, pushing excessively through recovery risks re-injury and longer healing times. By respecting the body’s innate…

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#ADHD #Autism #burnout #Chinese Finger Trap #Healing #Long term Illness #mental health #neurodivergence #Recovery #success

[cj-parker]

Thursday 13th April 2023 uk

I woke up with yet another migraine, it's been everyday (except yesterday) sometimes I wake up with it, sometimes it comes on later in the day, but either way it's been everyday for almost two weeks now.

I can't get to the doctors because I can't wake up in a morning to call.

I don't know what it is that causes that, is it the fibromyalgia, or the cfs? Or is it the autoimmune disease? Or maybe the ptsd or gad? Or could it be the hdhd or sleep disturbances? The fact I can't allow myself to sleep properly because then I suffer sleep paralysis could also be the cause, either way waking up in a morning is such a chore, it's so difficult, it's like trying to force one's self out of an anesthetic, I feel like it is absolutely out of my control.

And no one, not one person (even my fellow chronic illness sufferers ) seeem to understand!

Today I have this migraine and my stomach is so incredibly bloated it feels like it might explode, my bowel condition has chosen today to flare up also just because I need to go out and that also entails trying to dodge those April showers i posted about yesterday!

I can't drive and have no one to ask for a lift,

Oh yes that's another thing you should know about me, I am completely and utterly alone no family, no friends, no one to help me out, no one to ask for favours, no one to lean on or to ask for support.

I mean there are people but no one, I've learnt, that I can turn too!

(More on that another time)

For today it's just a health moan, a chronic illness sufferers pitty party for one, a bad day, a day where everything seems to flare at the same time and I just want to feel sorry for myself...

What will tomorrow's complaint be... we shall see.

Thanks for reading, catch up soon 🥰💝

#chronic illness #chronic pain #fibromyalgia #cfs #autoimmune disease #chronic migraine #bowel disorders #ibs #cptsd #generalised anxiety disorder #blog post #slice of life #rant #unload #pitty party #feelinig sorry for myself #long term illness #adult adhd

[spookberry]

Why is the Pool at Haunted High an actual giant cup of water tho

(Previous) (next)

#danny phantom #my art #monster high #haunted high arc #im thinking this comic may be getting away from me in terms of size cuz i have so much left and i EXPANDED PARTS #im having fun tho so as long as people dont mind ill just keep at it #hey to those of you who havent seen haunted the movie do yall still understand whats going on here? #like they went to the pool to teach the ghouls how to ghost better #half normie au

[gimmethemprimals]

🌊 wavecrest-confessions  Follow

whenever I see someone making fun of the tidelords disappearance I get SO angry. Its just so insensitive to water dragons, and it ALWAYS comes from a wind, earth, or ice dragon. Like I don’t think you have any ground to stand on guys, your deities are still more neglectful than the tidelord and he’s not even here

❄️ ice-ice-baby  Follow

Dude your god has been gone for so long his long lost children came back before him

🪨 freshpebble-deactivated

Aren’t you the one who carved your fanart of femboy Icewarden into the side of the pillar.

❄️ ice-ice-baby  Follow

???? You’re literally a shade apologist

💫 see-the-stars  Follow

HOW ARE THERE SHADE APOLOGISTS ON DRUMBLR IN THIS DAY AND AGE I THOUGHT THEY WERE ONLY ON DRITTER

🍃 riding-high  Follow

are we gonna just brush over the femboy icewarden thing

🦅 talonafan2477  Follow

@ see-the-stars the Arcanist is the ORIGINAL shade apologist what are you talking about

🦅 talonafan2477  Follow

btw “ice ice baby” is apart of from clan froststep that has a history of supporting the gaolers during the freezeflash war and thus the destruction of the banescales

🌑 walkingshadows Follow

Yeah but what about the femboy icewarden thing

🔥 its-gettin-hot  Follow

you can excuse genocide but draw the line at femboy icewarden?

🌑 walkingshadows Follow

im not drawing the line i just wanna see it myself

🌺 bug-claws Follow

thats fair

#flight rising #fr #unreality #unreality tw #fake post #tw femboy #???? #I PROMISE that i didnt mean to use it in like?? a transmisogynistic way I have only ever heard it used to refer to like #a guy (whether cis or not) who dresses in a feminine way and like… a term exaggerated by the internet? #please dont take this as me trying to like say that its NOT a derogatory term and that I was just ill informed but I dont really know #what else to do about it at this point #and my real intention here was to emulate irl tumblr posts and I fully understand that even using it in a comedic factor doesn’t excuse #the usage of a derogatory term but I don’t use that word in my normal vocab? #idk im sorry if this sounds bad long story short I’ve never seen it used in that way but I acknowledge that I could just be uninformed

[myalgicencephalomyelitiscfstom]

#chronic illness #spoonie #Spoonielife #homebound #long term illness

[frankiensteinsmonster]

Friendly reminder that if you find yourself Not using your mobility aid on occasion, for whatever reason, that doesn't make you a "faker". A lot of us, especially new mobility aid users, do this to our detriment-- and even if it's not, and it's literally just More Convenient/Makes You Feel Nice to not use it all the time, then that's what's up. Do you. Who is anyone else to police a cripple's life? You don't owe them a performance. Live your life, damn!!

(and stop policing yourself too! If the thing helps, it helps. Period. The aforementioned performance of disability expected of physically disabled people is an ableist move used to question the validity of our disability. Fight against playing into that.)

#obviously not everyone has the physical ability to be doing this #and i don't encourage folks risking their long term health #cpunk #cripple punk #chronic pain #mobility aid #chronic illness #mobility aid user #mothie speaks up

[crimeronan]

been thinking about the rabies condition in writing lately, which is a GREAT post about stakes and characterization. basically exploring how if there's a 100% chance a character is doomed, then they can and will do extremely dangerous/damaging/contraindicated things for the slimmest hope of survival. which is one of my Favorite narrative devices

but while we're using health metaphors, i've been thinking about another somewhat complicated means of introducing character stakes, which i'm tentatively calling 'the autoimmune condition' for reasons that are. obvious

the premise itself is simple: the character has Something that they need to survive. they either can't live without this thing or they will lose something vital about themselves if they lose this thing. there is no replacement or alternative for the thing. what's most important are that the consequences for losing it are Extreme, rabies-condition-style

in the real life allegory, this is the immune system. which is great for being alive!

then the problem is introduced when this thing starts killing the character.

the character still needs it to live.

so: there is a 100% chance that you will die if you destroy the thing killing you. if you impair it through other means, there is a 100% chance of consequences, though the severity of those consequences is up to the author. (these are medication side effects in the real life allegory.)

if you do everything you're supposed to then you'll PROBABLY survive, but you're gonna have to play lifelong tug-of-war to balance everything, and you are often going to have to choose between two shitty options. bc there is no alternative.

this is a counterpart to the rabies condition in terms of stakes; with this condition, your character has to make complicated and difficult decisions about what they're sacrificing for their future. it's not the immediate life-and-death stakes of rabies, it's a slow decay instead.

what side effect consequences are they willing to take on?? and what are they NOT willing to take on?? where do their priorities lie in terms of symptom management?? what other solutions are they looking for?? what are they willing to sacrifice??

and perhaps most importantly: what exactly do they need to lose before they'll Accept the side effects / sacrifices that used to terrify them?? how high do the stakes need to be??

at what point is this character going to look back at the choices they've made up to this point, and realize that they no longer recognize themselves??

#have had this on the brain bc every medication i take or have taken related to my illness has a LAUNDRY LIST of terrible side effects #like most of them are only prescribed for very short periods of time #and the only reason they're ever prescribed for long term maintenance is if like. you will actually literally die otherwise. #you would not BELIEVE the side effects i'll weather to get my brain back. give it to a character #torment them. theres so much room for complication and messiness here. it's great #autoimmune tag #writing #writing advice #i guess????? #hopefully this is coherent. i tried to keep it concise #long post

[puppyeared]

man

#maybe im being pessimistic abt this. im not saying u should wear a mask every waking moment of your life god knows i cant #but also. hell no i dont trust u if anything i distrust u ppl even more after how things played out for the past 3 years #like there are situations where it might be inevitable catching covid. most of my family members are nurses and in constant contact #but there are also a ton of ways to make that risk low as possible like masking and wearing a face shield and having sanitizer #for me its not enough to just say oh we're in a small group and we're all vaccinated #motherfucker your kid is sick from preschool EVERY TIME WE VISIT. of course ill be wearing a mask she gave me covid last year #also no the fuck it isnt seasonal the cases go up because lack of caution makes the virus spread and mutate especially around times when #ppl gather. add that with virus transmission in cold weather and its a matter of different factors increasing the risk of spread #im also tired of ppl not understanding that i wont be their responsibility if i do get sick. maybe they can help me recover #but at the end of the day the risk of death and long term health is all on me. i cant change that #the govt barely gives me accommodations what makes u think theyll do anything for every individual case of long covid or worse #im so tired. im so tired #i dont even know if its possible to want this to be over anymore i just wish we didnt have to deal with this in the first place #ALSO COUGH INTO YOUR SLEEVE SERIOUSLY HOW IS THIS SO HARD TO REMEMBER #oh its just a cold/dry throat its not like i have covid or anything. no!! its basic hygiene!!! how is this so hard to understand!!!!!!!!!! #and no this isnt abt whether people have the means to protect themselves this is me bitching abt my relatives not taking me seriously #vent #my art #myart #doodles #covid 19

[gamchawizzy]

[ OFF Game ] Grind culture

#off game #off mortis ghost #elsen #off elsen #rpg maker #i was a kid when i first played this game and now i'm viewing it thru the eyes of an adult and WOW #been thinking about the themes of conformity + anxiety + mental illness and how it thrives in workplace culture and consumerism #bread and circuses (or sugar and carnivals) distracting the elsens from the dangers of their work and the long-term stress it causes

[spectrumgarden]

Every time I see someone say "& that's why I'm not getting diagnosed" in regards to some sort of discrimination against an autistic person by police / government / the judicial system / health care system / school system ... it's like. It just hurts. I get so jealous. I needed a diagnosis so I could continue to attend school with a 1-1 support worker. I needed a diagnosis so I could get my disability ID, which is the only way I can take public transport on 2 routes by myself, & the only way its possible for someone else to accompany me everywhere else without it costing a fortune. I needed a diagnosis so my AAC device would be covered. I needed a diagnosis so specific autism therapy would be covered. I need(ed) a diagnosis so my at home care would be covered.

I wish it could've been my choice whether I'm at risk of legal discrimination...

#actually autistic #autistic adult #autistic community #medium support needs #actually disabled #aac user #semiverbal autistic #negative #in theory some of these should be accessible via mental illness diagnoses. didnt stop me from being denied for years though when those were- #- my only diagnoses... & without this help i likely would've ended up long term institutionalized...

[hools]

cats club comic cover concept 🐈

#my art #my ocs #CATGIRL-ADJACENT #original #cats club #<- about time i start tagging them as cats club #started out as just something to draw on stream but turned into something cool i think (-: #DOES NOT mean ill be doing something Big/Long Term with cats club anytime soon i just thought it was fun to conceptualize