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#disabled in need
cpunkwitch · 1 year
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hey im in trouble and i need help
for context:
hi, you can call me cass or whatever fits, even my user, i have no preference. i prefer masc/neu honorifics if any though. im disabled, ND, queer, 20 y/o, and starting college again in the fall.
i got fired from my last job, i have no money, im going to apply for a student loan and everything thats going on has put a huge halt on my plans for moving out and getting any further aids and support beyond my cane and medication.
my family is really low on money right now, we cant even buy food this week or possibly even for the next week, let alone pay for our medication.
i have commissions and donations open, im trying hard to do what i can to get by, but im really struggling in such a tight situation and could really use any help i can get.
if you cant help monetarily but can help some other way, even just reblogging this so people who can help can see this, thats okay too! any support means the world right now, if theres anything anyone can offer my asks and dms are open for discussion.
my kofi is below, if you need any other info or have any ideas or just generally anything please let me know.
i dont like making these kinds of posts and reaching out because i always fear they never actually get anywhere but im at such a low right now its worth trying.
again even if you cant offer any money just reblogging this post and helping spread my reach for help is appreciated /srs /np
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myownjadedpieceofmind · 9 months
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I could really use some help.
In any way possible. Car insurance is due, electric bill is due, I haven't been able to get supplements I need that my insurance doesn't cover, and I've still not been approved for benefits.
I can't be without a car, because then I won't be able to make it to my appointments. I can't be without electricity because the little bit of food I do have will go bad without the electricity to keep the freezer and fridge running.
My website is live, tons of handmade pieces ready to ship out. I am always taking custom orders, which the holiday season is coming up, so there isn't a better time to get in on the list.
What I'm saying is.. life is kicking me while I'm down, but I'm trying like mad to earn my way, even with all the disabilities that I am learning to navigate around. My case with social security should be being approved any day now that my doctor sent in the residual functional capacity evaluation that social security asked for. I just gotta make it a little while longer.
If you can help, anything at all- even just $5. .. I would greatly appreciate it.
Cashapp: $6od3ss
Venmo: @ jaded-ink
Or, shop my website : Jaded Ink Designs
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salt-baby · 5 months
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yes, doctors suck, but also "the medical ethics and patient interaction training doctors receive reinforces ableism" and "the hyper competitive medical school application process roots out the poor, the disabled, and those who would diversify the field" and "anti-establishment sentiment gets applications rejected and promotions requests denied, weeding out the doctors on our side" and "the gruesome nature of the job and the complete lack of mental health support for medical practitioners breeds apathy towards patients" and "insurance companies often define treatment solely on a cost-analysis basis" and "doctors take on such overwhelming student loan debt they have no choice but to pursue high paying jobs at the expense of their morals" are all also true
none of this absolves doctors of the truly horrendous things they say and do to patients, but it's important to acknowledge that rather than every doctor being coincidentally a bad person, there is something specific about this field and career path that gives rise to such high prevalence of ableist attitudes
and I WILL elaborate happily
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longlostdiaries · 1 year
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I don't know who needs to hear this but:
-"it only hurts a little" is still pain
-"I can ignore it" is still pain
-"I can cope with/manage it" is still pain
-"it's bearable" is still pain
-"I can push through it" is still pain
-"it doesn't hurt that much" is still pain
-"it doesn't stop me from doing x" is still pain
You don't need to be in agonizing pain to be in pain.
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lightning-system · 3 months
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As a medium/lower support needs autistic who works with young higher support needs autistic:
We all matter. We all have the same diagnosis. We all deserve to be treated with dignity and respect.
But we are not the same.
I can mask and might be seen as 'odd' or 'weird' in public. The students I work with are seen as 'dangerous' and 'practically little kids'.
I can go to university and work with accommodations. The students I work with likely will never live independently and a few might find jobs that support them but still pay them less than an abled worker.
I have full control of my finances. The students I work with aren't allowed to make independent financial decisions, even if capable.
If I say 'no,' I'm making a choice. The students I work with can't say 'no' without being labeled as defiant and difficult.
I can feed myself, bathe myself, and take care of myself with extreme challenges. The students I work with are unable to take care of themselves without high levels of support/one on one support.
I had an IEP in high school but was mainstreamed in classes. The students I work with take separate classes and some rarely get to interact with their abled peers.
Our experiences are fundamentally different. Higher support needs autistics will experience a specific type of ableism I never will, and can never fully understand.
Lower support needs autistics need to stop saying we understand what higher support needs autistics are going through and then present autism as only being disabling because of society/lack of acceptance because that is dangerous. We need to stop saying every autistic person is capable of everything if given the right support because that leaves out huge parts of our community who will never be able to do certain things, regardless of support.
We are worthy of existence regardless of our abilities.
Autism is a spectrum. It is not the same for every autistic person. Autism acceptance and advocacy has to come with accepting, acknowledging, and listening to our higher support needs peers.
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andthebeanstalk · 11 months
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
#hlep#original#mental health#my sympathies and empathies to anyone who has to rely on this kind of hlep to get what they need.#the people in my life who most need to see this post are my family but even if they did I sincerely doubt they would internalize it#i've tried to break thru to them so many times it makes my head hurt. so i am focusing on boundaries and on finding other forms of support#and this thing i learned today helps me validate those boundaries. the example with the milk was from my therapist.#the example with the towing company was a real thing that happened with my parents a few months ago while I was age 28. 28!#a full adult age! it is so infantilizing as a disabled adult to seek assistance and support from ableist parents.#they were real mad i was mad tho. and the spoons i spent trying to explain it were only the latest in a long line of#huge family-related spoon expenditures. distance and the ability to enforce boundaries helps. haven't talked to sisters for literally the#longest period of my whole life. people really believe that if they love you and try to help you they can do no wrong.#and those people are NOT great allies to the chronically sick folks in their lives.#you can adore someone and still fuck up and hurt them so bad. will your pride refuse to accept what you've done and lash out instead?#or will you have courage and be kind? will you learn and grow? all of us have prejudices and practices we are not yet aware of.#no one is pure. but will you be kind? will you be a good friend? will you grow? i hope i grow. i hope i always make the choice to grow.#i hope with every year i age i get better and better at making people feel the opposite of how my family's ableism has made me feel#i will see them seen and hear them heard and smile at their smiles. make them feel smart and held and strong.#just like i do now but even better! i am always learning better ways to be kind so i don't see why i would stop
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bisexualseraphim · 2 months
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You know what, fuck it. Let’s show some love for the “unpleasant” autistics.
For the autistics who are always accused of being angry or moody when all they’re doing is sitting there.
For the autistics who take everything literally and respond sincerely.
For the autistics who come across as “blunt” or “rude” for being honest.
For the autistics who are called “control freaks” for needing a sense of order and routine.
For the autistics who get told to shut up for infodumping about uncomfortable topics.
For the autistics who find it too exhausting to mask and pretend to be sunny and friendly.
“Unpleasant” autistics, I love you.
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cpunkwitch · 7 months
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need help paying bills - comms open
i just had to pay my mom most of what was left in my account so she could pay the power bill for the month. i wont be getting that back for a while and i was trying hard to save that up.
we're lucky we got power back as soon as we got home because i have an assignment due tonight and missed all my classes for the day due to the power being shut off.
we dont have much collectively between us (myself, older brother and both parents) for the next bill or groceries and my pay coming in this week from work wont be enough to make a dent.
i have commissions open and items in my store on kofi, anything you can do to help out is majorly appreciated.
i do tarot readings, digital art, i make pride themed bracelets (including custom colours) and i may add in options for art adopts, "special goober" commissions and more when i have the time.
if you cant buy anything or commission me, please reblog this post and spread it so folks who can will see this!
thank you!
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tombraiderrocker · 6 months
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If they claim they can cure your condition that you have been told is incurable, run. If they claim they cured themselves, run. If they claim they have cured everything from cancer to lupus holistically, run. If they claim you have to buy only supplements from them, run. If they claim they that only thing that will cure is x but x costs tons of money, run. If they refuse to run tests or address your diagnosed conditions before insisting you do an expensive treatment not covered by insurence, run. If they offer a one size fits all treatment/cure, run.
I have been scammed by "holistic" and "naturalistic" people before as a chronically ill person. In fact it was an actual doctor who went to medical school who scammed me for years. So watch out. If it seems too good to be true it probably is.
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"Disabled people should be allowed to be as independent as we can be" and "disabled people should not be pressured to be hyper-independent in order to not wind up in nursing homes against our will" are two thoughts that can, and should, exist at the same time.
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meowtismz · 6 months
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Remember that if talk or type weird all ok
Remember that if not low support need all ok
Remember that if not level 1 autism all ok
Remember that if nonverbal or semiverbal all ok
Remember that if cognitive function low all ok
Remember thay if dysfunctional all ok
Remember that if "more debilitating autism" all ok
Remember that disability ALWAYS debilitate one thing or another, if have "less accepted" autism still valid and deserving of love respect help
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neuroticboyfriend · 3 months
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once again thinking about how fucked up it is that special ed used me and other disabled children as unpaid, coerced labor. i worked enough to be making $100 a week. i was "paid" in fake money redeemable only at the school cafeteria, which i worked at, and was forced to do things that distressed me. they gave us $1 a week, if they remembered to give it to us at all.
this was while i would sometimes go the entire day without eating because i didn't have the money to buy food and the free food was not sensory safe. we also worked outside the community - grocery stores, warehouses, shoe stores security tagging items. all under the guise of job skill development, we did $100 of labor a week without ever getting paid. and we were demeaned while we did it. and we were just teens.
so no, i don't want to hear about how special education is good. not with the way me and my peers were treated and taken advantage of. death to institutionalization, in all forms.
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radiostatic166 · 5 months
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Please stop infantlizing autistic people
Stop being weirded out when we cuss. Stop being weirded out when we talk about nsfw topics. Stop being weirded out when we are semiverbal or nonverbal.
We can smoke too, we can drink, vape, and cuss and do anything normal people can do. We can have (concented) sexual relationships. We can kiss people. We can have kinks. We can like BDSM or have fetishes. We are not innocent little kids.
Just because we have a disability doesn't mean we aren't people.
Just because we sometimes need to live with someone else doesn't mean we aren't people.
Just because we don't pick up on social clues doesn't mean we aren't people.
STOP INFANTILIZING US. STOP CALLING US INNOCENT. STOP THINKING YOU NEED TO PROTECT US. WE ARE REGULAR PEOPLE TOO.
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the-jesus-pill · 10 months
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You’ve got to forgive yourself for being traumatized and needing to learn how to function again. 
Recovery isn’t always nightmares and depression, it’s forgetting to eat, being scared of what others might see as completely normal things, it’s getting random panic attacks, not knowing how to take care of yourself, not knowing how to live like an adult, even if you’re twenty, thirty, forty, fifty, of feeling like you’re failing to function in a world where everyone seems to have their shit together. 
If you need help, ask for it. Go to forums and ask for advice. Take advantage of community resources. Buy pre-sliced veggies and fruits, eat instant meals if you can’t cook for yourself today. Hire someone. Ask a neighbor for a favor. Buy any item you think might make life easier, even if you feel like you aren’t ‘disabled’ enough to have it. 
Some of the depression posts (ie open your windows, take a shower, go outside, call a friend) are really helpful but they’re not always enough. I’ve found advice for spoonies, people with chronic pain or other disabilities have the best tips because they know what it’s like to be bedridden, out of energy, stuck in a brain fog. 
You may never return back to the energy you had when you were younger and you might always need to use crutches to help you through life. It’s the same with medication. 
Trauma is a real thing that happens to you, it physically alters your brain and it’s alright to have lasting scars. 
You’re not broken, your life is not over and you can still be happy. 
It’s not your fault.
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astraltrickster · 7 months
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ngl I'm not a fan of how the very necessary discussion of how autistic girls (and many poc for that matter, not that we usually remember this) often end up masking hard due to the pressure to "be ladylike" or "not be too angry" and therefore end up being seen as "very polite" and "mature for your age" and so on and so forth is morphing into being less about how social pressures may impact how autism presents and more about saying "so there's Girl Autism and there's Boy Autism and Girl Autism makes you nice and polite and pleasant but Boy Autism makes you gross and annoying and rude and offputting and no it's not ableist at all to say that being overly excitable or trying to get a turn to talk when you don't know when your turn is or struggling with arbitrary rules is rude and annoying because Girl Autism exists uwu"
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hussyknee · 10 months
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my disabled ass, after (1)good day: "obviously I am cured. in fact it may have all been in my head. who can say? now to rejoin society!"
me, the next day: "it has come to my attention that i may be chronically ill."
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