if you catch covid-19, chronic health problems like arthritis, fibromyalgia, hypermobile ehlers danlos, irritable bowel syndrome, other gastrointestinal issues, asthma, respiratory diseases, and other chronic pain problems may flare up very strongly while you are ill. it can be alarming and especially for respiratory issues, it's important to monitor your health and how you are doing.
however don't feel totally isolated in having a flare up due to covid- my arthritis, fibro and hypermobile eds flared up for several days making it very hard for me to stand or lay down from pain and hurting my joints. take it easy and focus on recovery.
You have to plan your life around it. Feel like going out? You can but only if you avoid specific foods, drinks, and follow a strict food regiment 3 days leading up to going out. Having a good day? Maybe a sudden wave of cramps will hit while you're no where near a toilet. Walking around the house? Maybe the pain will start and you will be forced to curl up on the floor to help ease it.
Is it a disability? Not by itself. But is is VERY common in disabled people, the symptoms are gross by regular standars and it hurts like hell. The last thing people with IBS need is the Internet at large turning it into 'shit disorder' which can be made fun of as used as a gag for TV and movies, games, 'unlikeable' characters, even 'your fave has x' blogs.
I'm tired of the stigma around IBS and similar conditions. We deserve to be able to talk about it with out people saying "maybe not in public- you'll gross people out".
I hope you're having a good day, that your cramps aren't bad and that when you do use the toilet it's not painful.
I really wish I wasn't in pain all the time. It's on varying degrees, but it's always there. And nothing ever shows up on tests and scans. I wonder what it's like to not be in pain at all most of the time unless some incident happens to you, what it's like to not need to take medications every day in order to stay alive. What it's like to not be restricted in your hobbies and activities because of your health.
the peak “people mock a product they perceive as excessive when it’s actually important for disabled people” imho is different types of water with pH balances and electrolytes and stuff, because those can be a lifesaver for people with GI issues who often can’t get electrolytes from food or have internal environments that are highly sensitive to acidity
related: saying you can’t drink tap water/“plain” water for whatever reason and people looking at you like a cartoon parody of a rich person
hello! i am politely requesting an emoji of a yellow person sweating and feeling nauseated/dizzy… thats what usually happens when i have migraines. also could you do one for IBS? /nf thank u for everything u do!
Yeah sure :) I hope these are good!
[ID 1: a dizzy and sweating person holding their stomach (colored green) with one hand and putting their other hand to their head. They are slightly bent over and have an uncomfortable expression.
ID 2: a person with a neutral expression, with their digestive system pictured and having an angry “irritated” face, and green jagged lines radiating out from it. /End ID]
Tried a new restaurant yesterday and got burned. 🫠 But at least I can show y'all what I do for flareups. Part of why I like having tinctures on hand is because it makes it easier to grab something when I feel bad.
I hope this helps y'all next time you have tummy troubles!
TMI but having NPD and IBS is crazy like I put ALLLLLLLL this work to put up this super suave charismatic front only to have it ruined by clutching my stomach and BOLTING to a bathroom before I shit my pants. Or shitting your pants and ultimately crashing from embarrassment because u could've avoided it by just not eating an apple or something
Me: I don't feel even slightly better, actually probably worse
Doctor: well you are taking the pills wrong. You need to take them 40 mins before food, with a whole glass of water. Also eat more calcium because the pills destroy your bones.