#fibrospoons

[fibrospoons]

Spoonies & new symptoms

Is it a new symptom of an illness I already have, or a different new illness?

Is a side effect of a new treatment? If so, which one?

*vaguely searches Internet*

Internet: "Call 911 now! Go to A&E!!!"

Me: I will choose to ignore it until it becomes a problem.

#spoonie #endometriosis #fibrospoons #spoonie problems #chronic illness #chronic pain #mirena coil #elhers danlos syndrome #fibromyalgia #spoonie life #my foot keeps going numb #it's probably fine

[fibrospoons]

Starting new medication:

Doctor: take these pills twice a day before meals

Me: OK easy enough

6 months later:

Me: I don't feel even slightly better, actually probably worse

Doctor: well you are taking the pills wrong. You need to take them 40 mins before food, with a whole glass of water. Also eat more calcium because the pills destroy your bones.

#spoonie #fibromyalgia #endometriosis #fibrospoons #spoonie problems #chronic illness #chronic pain #joint hypermobility #spoonie life #elhers danlos syndrome #irritable bowel syndrome

[fibrospoons]

I usually work 36 hours a week, last week I did 40, this week 40 again, and next week it's looking like it will be 42.

I thought, yeah it will be a drag, but I can do it. IGNORING the whole fact that I reduced my hours in 2018 for a REASON, I am chronically ill! It's just a non-negotiable fact that I need more time to rest and recover.

I am not able to do anything outside of work because I'm shattered, plus no extra money for any of this!

#spoonie #fibromyalgia #endometriosis #fibrospoons #spoonie problems #chronic illness #chronic pain #migraines #spoonie life #joint hypermobility #rant #spoonies at work

[fibrospoons]

Social anxiety convinced me to have an edible before going to see a fancy ballet in London...

It was certainly an interesting day!

#social anxiety #spoonie #fibromyalgia #endometriosis #fibrospoons #spoonie problems #chronic illness #chronic pain #migraines #spoonie life #joint hypermobility

[fibrospoons]

I'm burnt out - I kept pushing through to do as much as possible at work, and now my resilience is at it's lowest.

I can't tolerate work as it is, I need more room to breathe and to be allowed do tasks within a reasonable time frame.

I keep pushing back and trying to set boundaries, but all it does is buy me time for a day or two and then they pile it all back on.

Then I get stressed, then I get sick, then I'm off work, when I go back there's even more work than before, then I get stressed, then I get sick, etc, etc, the cycle repeats...

#chronic illness #spoonie #fibromyalgia #endometriosis #fibrospoons #spoonie problems #chronic pain #migraines #rant #spoonie life #chronic illness problems #office spoonie #work and chronic illness

[fibrospoons]

TW: weight

Today was my first day in the office for a few weeks and someone immediately commented on my weight and told me that I look like I've lost loads, which I don't think I have but my weight changes all the time - that's just life with chronic illness!

But mostly it just made me paranoid that maybe I should pay attention to how much I weigh "for health reasons", e.g. sudden changes could be caused by something etc etc.

But then I thought fuck that, I don't want to. If I notice something isn't feeling right I deal with it, I don't need random co-workers commenting on something they shouldn't be bringing up anyway.

#spoonie #fibromyalgia #endometriosis #fibrospoons #spoonie problems #chronic illness #chronic pain #migraines #spoonie life #joint hypermobility #tw weight #tw weightloss #office issues

[fibrospoons]

My family: do you want any wine?

Me (who just had an awful migraine last night): no thanks, that seems unwise as it gives me headaches at the best of time...

My family: but it's Christmas!!

Me: still no thanks.

#Chronic illness doesn't take breaks #chronic illness #migraines #alcohol #fibrospoons #christmas #chronic Christmas #fibromyalgia #endometriosis #spoonie problems #spoonie life #chronic pain #spoonie #joint hypermobility

[fibrospoons]

My doctors has merged with another local surgery, which means repeat prescriptions are all messed up and I can't order them myself.

Last time my doctors merged my new doctor cut me off Tramadol cold turkey and couldn't care less about it, so understandably I am stressed about how it will go this time.

Luckily I'm no longer taking opiates, so fingers crossed it's better this time.

#spoonie #fibromyalgia #fibrospoons #endometriosis #chronic illness #spoonie problems #spoonie life #chronic pain #joint hypermobility #fingers crossed

[fibrospoons]

I had my iud changed yesterday, so I'm experiencing excruciating cramps and some intense hormone swings today.

It's such a barbaric procedure and no pain relief is offered.

I'm grateful that it was quick at least, and I knew what to expect.

#fibrospoons #spoonie #chronic illness #spoonie problems #endometriosis #chronic pain #iud #mirena coil #iud change

[fibrospoons]

I tried to ignore a migraine and prescribed myself a big mug of coffee instead of my *actual medicine* and it didn't end well.

#spoonie #fibromyalgia #endometriosis #fibrospoons #spoonie problems #chronic illness #chronic pain #migraines #spoonie life #joint hypermobility #Coffee is so tasty but it kills me

[fibrospoons]

Just had a final appointment with my therapist (ending because it's on the NHS and I've run out of sessions), and she wrapped it by recommending I try and continue therapy privately...

Great.

#therapy #I still have issues clearly #spoonie #mental health #endometriosis #fibrospoons #spoonie problems #chronic pain #spoonie life #NHS

[fibrospoons]

Just had an appointment with a private doctor who said it was obvious from my medical history that I have ehlers-danlos syndrome, pots and possibly mcas too.

I just responded with 'I know, but it's such a fight to get an appointment I just focus on one illness at a time'

#spoonie #fibrospoons #spoonie problems #chronic illness #elhers danlos syndrome #mcas #pots syndrome

[fibrospoons]

Chronic illness doesn't take breaks

I'm getting married in less than a week and I've got a huge bruise from my blood test yesterday and prescriptions to pick up 😴 👰

#spoonie #endometriosis #fibromyalgia #fibrospoons #spoonie problems #chronic illness #joint hypermobility syndrome #chronic pain #actuallyfibro #chronic fatigue #endowarrior #invisible illness #tired #spoonie wedding #wedding planning #Bride to be

[fibrospoons]

Stop telling people they don't look sick

It's not a compliment, it's ableist.

#ableism #But you don't look sick #Spoonie #Spoonie problems #Relatable #Chronic illness #Fibromyalgia #Endometriosis #Chronic fatigue #Fibrospoons

[fibrospoons]

Impossible to relax

So I found out last week that I have costochondritis and this week I have severe mouth ulcers and tonsillitis on top of that. I keep getting iller because I'm so run down.

I'm stressed at work, I'm stressed about wedding planning, stressed about my family and funerals. So I finally decided to have two days off work and the toilet starts leaking through the kitchen ceiling! 😭

It's literally impossible for me to relax...

#Health update #Spoonie problems #House owner problems #costochondritis #tonsillitis #Spoonie #Ill #chronic illness #Fatigue #Stressed #Anxiety #Fibrospoons

[fibrospoons]

Costochondritis

I've had a couple of times over the past months where I thought I was having a heart attack. My anxiety has been really bad recently so I brushed it off thinking it was a panic attack and the physical pain was caused by that.

I was diagnosed today with costochondritis which is inflammation of the muscles around my ribs (usually caused by a virus or infection). It's almost reassuring to know the pain is caused by something other than anxiety, but not really because at the end of the day it's still painful and it's another diagnosis.

#costochondritis #Spoonie #Spoonie problems #chronic illness #Chronic pain #health update #joint hypermobility #Chest pain #Rib pain #Fibrospoons