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#Fibromyalgia
fibro-memes · 3 days
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dizzy1ife · 3 days
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There is a highly irritating ghost standing behind me, just stabbing me repeatedly.
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also-stop · 2 days
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wxrmeaterz · 1 day
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being told my chronic pain isnt "that bad" will get me to punch u
i cant go outside today because i can barely walk up the stairs in my own home
i have collapsed many times in the past, which is something i rarely bring up just because people always follow it up with some kinda gaslighting
YOU ARE NOT IN OUR BODY
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herbertthefrog · 2 days
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Disability tumblr: How do you stay positive when you know it's getting bad? I'm getting so much worse and it feels like it is taking everything from me. My job, my relationship, my education, my friendships, my hobbies. It feels like everything is just falling away from me because I am too tired and in pain to spend time with anyone or do anything and my misery is rubbing off on everyone around me to the point it feels like everyone is just miserable interacting with me. I've really lost all hope and faith because nothing is working and no one is listening to me. Does anyone have any advice for some realistic positivity? What do you do to feel happy whilst being disabled? Any advice would be really helpful :) Thank you!
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ohfuckwho · 2 days
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on a high note for today, I had a doctor take me seriously and finally got a referral to the right specialist
unfortunately, that appointment is in 5 months. But hey, I'll take it!
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spookysalem13 · 7 hours
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My health has lead me to needing to call out from work again. I feel so guilty.
This time its my fibromyaglia and rheumatoid arthritis that's causing weakness and pain throughout my whole body. Severe swelling and agony in my joints.
My brain is so entirely fogged I can't even verbally articulate a sentence properly. I don't know why, please let me know if you're also chronically ill, especially if you deal with a lot of high inflammation levels. And if you also struggle to articulate speech as your inflammation levels rise. Because for me, it seems to be my first signal something isn't right.
So today is an under the heated blanket, in bed with my kitty kind of day.
The fatigue is so bad I anticipate sleeping a great deal. Other than sleep my intentions are to spend time in my social media communities today. It's always comforting to me.
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vtk13 · 5 months
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“slut era” i whisper to myself as i rot in my bed, sick like a frail victorian child
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Sorry I Spent all mY spoons this week already and it's fucking Tuesday. We're heading to the knives
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fibro-memes · 3 days
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potsiepumpkin · 1 year
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When the chronic fatigue is chronic
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tumble-tv · 6 months
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"kill them with kindness" WRONG run them over in your wheelchair 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽
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hellyeahsickaf · 4 months
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I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)
It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:
How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.
Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."
How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills
How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud
Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides
Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance
Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!
There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.
Please boost!
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riddledem0n · 11 months
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Yesterday the 12th of May was Fibromyalgia awareness day. I'm a little late uploading it, but spreading awareness is being done nonetheless. Lots of love for my chronic pain people!! <3
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it’s okay to do things that make your symptoms worse (as long as you’ll stay safe)
every once in a while you need to eat something yummy. or go on a walk. or a trip to the zoo. take a hot shower. cry your eyes out. dance. listen to music. draw for way to long. write. laugh. sit in a cafe with a friend. paint your nails. dye your hair. go on a run. pet a cat
sometimes you need to do things that are cathartic or make yourself feel alive. sometimes you need the reminder of why you’re fighting so hard to stay alive
this is your reminder that just because it makes your symptoms worse, it isn’t always the wrong thing to do. there can be value in these actions
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