#spoonie things

[fallenstarcat]

i think people underestimate the power of sitting. sitting down has saved my life. i sit in the shower, i sit to cook, i sit to get dressed, i sit and now i can do those things more and enjoy doing them now because i’m not in unbearable pain from standing!

#seriously #i recommend sitting down to all my friends #disability #disabled #actually disabled #physically disabled #fibromyalgia #fibro #chronically ill #mobility impaired #disabled life #spoonie #spoonie things #cripplepunk #chronic pain

[chronically-izzzzle]

#spoonie things #spoonie meme #spoonie #spoonie tag #chronically ill meme #chronic pain meme #chronic pain #chronically ill #chronic Illness #ibs #ibs flare up #irritable bowel syndrome #ibs meme #fibrosucks #fibrolife #fibromyalgia meme #fibromyalgia #heds #ehler danlos syndrome #hypermobile ehlers danlos #endometriosis #ibd #inflammatory bowel disease #chronic fatigue #meme

[nondivisable]

I love it when the school year finally ends so I get to start showering regularly and taking care of my hair and practicing witchcraft daily again

#chronically ill #spoonie #spoonie things #witchcraft #witch community #pagan witch #cripplepunk #cripple punk #chronic pain #fun facts #i usually dont celebrate yule or ostara because im so tired by that point in the year #not even gonna talk about how my hair looks like right now

[chelseaisdisabled]

saw a video where when someone asked a disabled guy what he likes to do, he said he enjoys sleeping in and i just love that level of not feeling guilty at all. hate that we're made to feel guilty for simple things bc we're disabled

#disability #chronic illness #chronic fatigue #chronic pain #ableism #disabled #spoonie things

[chronic-this]

Chronic illness is simultaneously being the burden, while carrying the burden.

(Or at least that’s what it feels like)

#spoonie #chronic illness #chronic illness things #chronic fatigue #chronic fatigue syndrome #myalgicencephalomyelitis #mecfs #postural orthostatic tachycardia syndrome #pots #dysautomnia #endometriosis #cancer #feeling like a burden #spoonie things #spoonie thoughts #spoonie life #spoonie problems #spoonie friends

[breelandwalker]

That moment when you can literally feel the brain fog descending mid-sentence and you're just like, "WELP. There goes the day."

#Time to hit the coffee and vitamins. It doesn't fix the fog but it takes the edge off. #Bree in real life #spoonie things #ADHD life

[plague-of-insomnia]

I got approved for medical marijuana finally !!!! 😭😭😭😭

#so happy omg #i was using illegal med marijuana years ago but my source got busted #and i’ve been struggling ever since so i’m hopeful this will help a lot #not kuro #spoonie things

[teapartyfordeux]

As anyone with chronic pain/illnesses that have very little energy can attest, I wish bathing didn’t take up so much energy! I love treating myself to a nice bath, relaxing, taking my time with it, but it’s just so exhausting. I have to rest after taking a bath/showering and I’m honestly sick of it.

Anyway, rant over, but if you have any energy saving hacks, I would love to hear them.

#spoonie #spoonie things #actually disabled #shower hacks #disability things #disability #chronic illness #chronic pain #fibromyalgia #chronic migraines #disability hacks #spoonie hacks #help

[queerlyloud]

Hey, bestie, you doing okay? Yeah, you've just been using a lot more tone indicators and apologizing than usual, have you taken your meds? Oh, good. Water? Awesome! Food? You're doing amazing, sweetie. Sleep? I'm so proud of you! Gold stars for everything you did and silver for anything you tried but didn't. Stars of your favorite color for not attempting anything you don't have the spoons for. Being disabled or chronically ill is hard and fucking sucks, but I'm proud of you. You're doing great 💕

#mine #jo is talking #chronic illness #chronic pain #disability #disability positivity #encouraging words #spoonie #spoonie things

[ladyfarona]

How I'm feeling lately

#spoonie things #spoonie humor #Depression #Cptsd #Mental illness #Chronic fatigue #Chronic condition #Memes

[torturedpoetemotions]

Bought shower chair. Showered. Was not exhausted after. Very good.

#spoonie things

[complete]

Believed = beloved

As someone with an invisible disability, being believed is such an amazing thing.

My phone autocorrected to beloved, and it's right:

believed = beloved

Thank you to all friends, lovers, colleagues, family members and members of the public who listen to us, believe us, advocate for us and practically support us, it means a lot. 😊💖

#spoonie things #disability positivity #disability #allyship #disability pride #disability rights

[brainwasheddd]

Me when the disabilities actually disable me instead of just making me hot and funny

#fourth ER visit in a month and a half #I’m so fucking done #I’m so behind in all my classes l #my job might fire me for calling out so much #spoonie #spoonie things #actually disabled

[audhd-space]

Idk about you but my pet peeve is the joke about entering your 30 with the decline of health

bcs I’ve only seen able-bodied people use that kind of joke and it’s so annoying

#personal #pet peeve #neurodivergent #actually chronically ill #spoonie things

[plushies-and-petrichor]

For all my fellow spoonies who love the winter but have problems getting/staying warm:

🔥🍲🧣🌡️☕🧤☀️🧦🔥🍲🧣🌡️☕🧤☀️🧦🔥🍲🧣🌡️☕🧤☀️🧦

#chronically ill #chronic illness #chronic pain #spoonie #spoonie life #spoonie things #warmth #winter

[bbcphile]

Adventures in Chronic Illness Hell: Medication edition

My narcolepsy meds—which I spent 4 months fighting insurance and my sleep doctor’s office to finally get approved, and which revolutionized my sleep and gave me some semblance of my former life back—cause tachycardia and high blood pressure, and a host of other frustrating related symptoms.

Taking propranolol to lower my heart rate and blood pressure just makes me horribly dizzy and light headed and gives me non-stop headaches, so I can’t do anything but sit on the sofa. (And it doesn’t lower my blood pressure.)

I have one more thing I can try to make the narcolepsy med work. Because of hEDS, I don’t metabolize food or medication correctly, so if the high heart rate and blood pressure are caused by my metabolizing issues, then starting this new med has a chance of fixing those things. But, I learned the hard way that I have to make other med adjustments first; I tried the metabolism med without other changes and learned 1. It works, because 2. Suddenly I was metabolizing all my other medications, because I managed to get all side effects of all of them at once, which almost landed me in the ER.

So, I am currently off my narcolepsy meds (and dealing with sleep attacks and debilitating fatigue) so that tomorrow I can go off some of my MCAS meds and try the metabolism med, so that I can ultimately try the narcolepsy med again and hope the high heart rate and blood pressure go away.

If that fails, then I will have to spend the next several weeks trying to convince my sleep Dr and insurance to let me try one of the other nighttime narcolepsy meds, in which case I will be desperately hoping that they don’t cause anaphylaxis, the way that over half of the meds I have ever tried do.

I fucking hate this.

#about me #narcolepsy #hEDS #disability #MCAS #spoonie things #bodies are the worst #can’t I just be a brain in a vat plz? #that sounds so relaxing #and of course I don’t really have a member of my medical team equipped to help me navigate any of this #because that would be expecting something of our broken ass medical system #so instead I’m playing 5 dimensional chess with my meds and interactions #screams into the void #ok rant over #don’t worry I’ll go back to obsessing about mysterious lotus casebook soon