#spoonie stuff

[chronically-izzzzle]

#spoonie #spoonie stuff #chronic pain #chronic illness #chronically ill #chronic illness meme #irritable bowel syndrome #ibs #spoonie meme #fibromyalgia #chronic pain memes #heds meme #heds #hypermobile ehlers danlos #bile acid malabsorption #spoonie tag #chronic pain meme

[my-brain-is-soup]

#brain fog #foggy brain #chronic pain #spoonie #chronic illness #chronic illness memes #autoimmune disorders #spoonie life #spoonie memes #spoonie strong #chronic inflammation #spoonie stuff #chronic fatigue #fibromyalgia #chronically ill #fibromyalgia warrior #fibro #fibromyalgiasucks

[plague-of-insomnia]

Feb 29 is Rare Disease Day

[Via rarediseaseday.org*]

Today, on the “rarest” of days felt like a good time to spread awareness.

My disease hasn’t even been fully identified yet. But even if your disease has a name and is established in the literature, getting a diagnosis and treatment can be difficult. Getting respect from medical professionals may be even harder.

*I think they’re being slammed with traffic today so you may not be able to get into the site right away

#rare disease day #not kuro #spoonie stuff #chronic illness #no alt text #i’m sorry

[zhooniyaa-waagosh]

You can really tell who has and hasn't dealt with regular migraines by how they react when you mention self-medicating with soda.

#saw a tumblr post yesterday where someone mentioned drinking diet coke or something for migraines #and the notes were filled with people saying that was bullshit or that it was a caffeine addiction #as if caffeine isn't one of the most common treatments for migraines around lmao #hush and shush #spoonie stuff #cripplepunk #i guess

[mamaangiwine]

If you're like me, there are going to be days when the gods feel quiet and small in your life- maybe even fictional or a figment of your imagination. There are going to be days where you don't have time for prayer or practice; and even if you do? Your words will lack their usual weight, and any ritual will feel as directionless as a spinning compass.

There will be days where you seek out your ancestors; and know that they are in your blood, and know that they are in your laughter, your smile, or even in the way you cry- and it won't be enough. Despite all this proof that they are with you, it will not enough proof that they are listening.

There will be days when you feel like a child in their master's robes which, in some ways, is worse than a fraud- because a fraud has a goal, because a fraud knows that when he hands you a cure its snake oil, and at least thats something to be confident in. There will be days when you felt like you were finally attacking the iceberg with a pick axe, readying yourself for the bits beneath the surface; only to realize this whole time you've been on all fours scratching at snow, and now your fingers are bleeding.

If you're like me, the mundanity of life outside your books, your candles, and your burning frankincense may wrap you in its arms and place a cold weight on your shoulders, and when you say "Hey, is this, you know, it? Is this all?" It will whisper back: "Yes, of course, what else should there be?"

Yeah- that?

All that?

That's part of it.

This is what I mean when I say that commiting yourself to the path of a practicioner is not only to declare yourself as one 'who knows', but also as one who is always learning- and part of that is learning to sometimes live with this feeling and take what we can from it. Sometimes it is learning to recognize when we are wrestling with angels.

#fuck that angel up #magic #folk magic #spirituality #magic practitioners #witchblr #folklore #witches #wizards #sorcerers #internet wizards #spoonie stuff

[smoking-witch]

I know the awefull feeling of chronic illness ruining stuff

Welcome to the club, here's your heated blanket and surprise bill 🤪 fr tho I'm so sry you've been thru that. It really does bite.

#chronic illness #chronically ill #chronic pain #chronic fatigue #spoonie #spoonie stuff #spoonie strong #invisible disability #disabled artist #disability #disabled #dissociative identity disorder #dissociation #chronic fаtiguе ѕуndrоmе #fibromyalgia #long covid #mecfs #smoking witch #smoking-witch

[unfilteredrealities]

Had a panic attack and a meltdown the second I arrived home today from work. All my muscles tensed up so badly that after they released a while later I fell asleep but when I woke up my lower back was hurting again and my subconscious stress is back…

I’m crying on and off since I’m awake. I managed to eat something but it was very hectic and chaotic.

Rn I want to just not exist for a bit or at least step out of my meat flesh suit and not feel the chronic illness the chronic pain rn because it’s fucking me up.

#everyday echoes #unfiltered realities #chronic pain #echo rambling #echoes echo of today #unfiltered life #mental health #chronic fatigue #mental illness #neurodivergent #audhd #meltdown #panic attack #generalized anxiety disorder #burnout #food tw #chronic pain syndrome #chronic illness #cripplepunk #spoonie stuff #fibromyalgia

[feral-space-faerie]

this discourse between whether knitting or crochet is better/faster/etc. is BULLSHIT. Which is easier bc of counting more or less is BULLSHIT.

The only differences that truly matter are: Crochet hurts my carpal tunnel and Knitting hurts my arthritis and that's how I choose per project.

#not serious vent #knitting vs crochet #fiber witch #chronic pain gang #spoonie stuff #personal #art witch

[infernal-collective]

Spending a few 7 hours sitting criss cross on our bed, despite our chronic pain and leg cramps saying otha wise.

-💖

#system #traumagenic system #plurality #actually dissociative #plural #system account #dissociation #did osdd #plural system #system stuff #chronically ill system #chronic illness #chronic pain #spoonie #spoonie systems #spoonie stuff #ik its partially our fault

[girlwithsword]

Medical professionals HATE her!! Her medical history is long and complicated!! Plus she asks follow up questions!!!

#spoonie #cripple posting #spoonie stuff #crip stuff

[chronically-izzzzle]

#spoonie #spoonie memes #spoonie stuff #chronic illness #chronic Illness meme #chronically ill #heds #fibromyalgia #fibrosucks #ibs #flare up #chronic pain #chronic pain memes #hypermobile ehlers danlos #ehlers danlos syndrome #irritable bowel syndrome #ibs meme #fibromyalgia meme #endometriosis

[my-brain-is-soup]

They want to remind you!!

#chronic pain #spoonie #autoimmune disorders #chronic illness #chronic illness memes #chronic inflammation #spoonie life #spoonie strong #spoonie stuff #chronic fatigue #spoonie memes #chronically ill #fibromyalgia #fibromyalgia warrior #fibro #arthritis #autoimmune #take your meds #reminder #reminder to take your meds

[plague-of-insomnia]

it would be really nice if pharmacies could do their fucking job and NOTIFY when they have to cancel an order

#gonna miss my important medicine dose bc of the pharmacy fucking up #needless to say i am not pleased #sigh #it’s always something #as if being chronically ill and disabled isn’t exhausting enough on its own #not kuro #spoonie stuff

[zhooniyaa-waagosh]

It's been a really bad arthritis day today. I've been struggling to open any bags and bottles. My fingers keep twitching. I have to hold my mug around the body with both hands because curling my fingers around the handle hurts too much. Even the weight of my phone is putting strain on my wrist.

I'm learning to drive, but will I even have enough grip strength to hold onto the wheel in a couple years? I don't know.

I can very rapidly feel my joints and mobility and fine motor skills declining and I'm. Scared. I'm really fucking scared. It was hard for me to understand what having rheumatoid arthritis really meant when I first accepted I had it but it's starting to finally click and I'm scared for my future. I know people manage just fine with RA but I'm only 26 and it's already so bad and I don't have health insurance or medication and I'm too broke to afford the accessibility items that could lessen the strain and. It's just scary, okay?

#rheumatoid arthritis #cripplepunk #spoonie stuff #i don't feel very punk right now ngl

[theunapologeticallygaypirate]

150/2000 The short version is, I am on welfare, do not qualify for my province's Basic Income because my doctor does not believe I am "sick enough" for disability for more than a month at a time, and won't sign my disability papers long-term. My IBS is so bad I can barely do chores for a long period, which my family has turned into some kind of joke, and even though I spend all my time working freelance jobs online, I barely make enough to help make ends meet, and my mom ends up helping out a lot with laundry and money for my therapy.

Her attitude towards my chronic illness has gotten so bad it has now become abusive, and I need a way out, but I have no means to care for myself. The amount I am asking for would be a nest egg to put some distance between myself and my family, instead of feeling trapped because I can't live without their help.

Please donate if you are able, I know times are tough right now, and if you can't, please share this post <3

#ibs #irritable bowel syndrome #spoonie in need #spoonie #just spoonie things #chronic illness #need help #chronic pain #chronically ill #gerd #gastroesophageal reflux disease #spoonie stuff #spooniestrong #please donate #crowdfunding #our flag means death #need money

[slut-for-bad-guys]

"My battery is low and it is getting dark"

#spoonie stuff #i want this tattooed on me #my partner said it was morbid #i think its beautiful #i just feel like I relate to it #spoonie #spoon theory #low spoons #no spoons #i need spoons #spoons