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#I don't mean to speak for those with full time disabilities
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A friendly reminder to all able-bodied individuals: Please do not park in a handicapped space. Even if it's for "Just a minute". In that minute someone who actually needs the spot could come along. Today, I got some petty revenge on someone who decided their time and/or energy was worth more than a disabled persons'.
What's massively frustrating for me is that I won't always need a mobility aide, and that there are people out there who live their whole lives dealing with people like that. So please, don't be a dick.
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submalevolentgrace · 1 year
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Hi! I'm very interested in attempting to write a disabled character (not for this blog, I assure, for an book I'm writing) in which the story doesn't fetishize/objectify her prosthetic limb. I'm in many writing circles and have been for a long while, but I've never seen this issue brought to light which I realise is a very important one. I have much to change in my thought process, and thank you for bringing this issue to attention.
I'm curious, and I apologise if this has been asked before, but what sort of design could you see for a functional prosthetic that doesn't go for a plainly aesthetic appearance, or is soully to please others? I do note that you said prosthetics are generally... not that helpful. So is there a way that it could be? Or do you think it would always generally be better to not use a prosthetic, as its mostly for aesthetic purposes, as you said?
I apologise if this ask is too outright or anything, and I don't mean to intrude. Thank you for your time and have a beautiful day!
okay, i want to answer this as in depth as possible, because whenever i talk about having a prosthesis, someone will always tag some variation of "#writing reference" and i do wonder what message they're taking away, and i want to get as much of my experience out as possible to maybe help shape how this is all portrayed in the future. and yeah… this is gonna be one of those rambly smg posts that the expand feature was invented for, so i'll start with the very abridged TL;DR:
if you're writing a character with an upper limb prosthesis; don't. arm amputees are unicorn level rare even compared to leg amputees, and i've never interacted with or even heard of an upper limb amputee that regularly uses a prosthesis, let alone relies on one. fiction has lied to you for the sake of cool aesthetics, don't repeat the cycle. more in depth writing advice including nuance and "but i waaaant to" will follow.
that said, grab your donning parachute and let's get started...
context for everyone involved: i am an upper limb amputee that rants a lot about how prostheses suck, i lost my right hand roughly five years ago at roughly the age of 30 after a very rough decline in health… it was pretty rough. this question is being asked in the context of a previous rant post of mine, and i checked that the ask is about an upper limb prosthesis in particular.
the situation regarding the usefulness of lower limb prostheses is totally different; i am definitely no expert, but by all accounts, prosthetic legs are incredibly useful for many people. getting a good leg can be absolutely life changing and more or less necessary for day to day life for some; mostly because infrastructure and society is just so fucking hostile to wheelchair users. being able to walk - at the cost of pressure sores and rashes and increased residual limb pain - is a preferable option to many people than being unable to fit through a doorway or in a bathroom stall or find out that the key to unlock the only elevator is in the admin office up three flights of stairs (true story).
but upper limb prostheses… see, the thing is, hands are incredibly complex organs that rely on a lot of immediate haptic feedback to work at all. hand dexterity is all about control, you need fine granular movements of the digits yes, but you also need the subtle sensations of pressure and proprioception in order to adjust your movements on the fly. i speak from experience, in the years leading up to the full loss of my hand, i was slowly losing function of it, usually swinging between numbness that made it clumsy at best, or screaming overstimulation from moving it at all resulting in unpredictable spasms… and let me tell you, a half working hand is infuriating to try and deal with. you can never know if you have a good grip on something or if it's slipping because of the wrong amount of pressure, and there's only so many smashed bottles of pickles on the floor before you give up using it all together… so amputation wasn't a great loss there, i had time to adapt.
a prosthetic hand of any kind has all of those issues and more. they're heavy and bulky, the cosmetic faux fingers or gripping claw have crude movement at best, and there's zero feedback (put a pin in this). 100% of the time you're using a prosthetic hand you have to keep your eyes on the grip and visually guesstimate whether or not the thing you're carrying is held tight enough but not too tight, that is if your "heavy duty" prosthesis can even support the weight without the servos disengaging or the wrist attachment socket just busting loose. i dropped a whippersnipper on my foot last week when my socket couldn't take the weight and i think that was the final straw in me desperately trying to prove to myself that there is a single task my prosthesis actually helps with.
this is usually where fully two handed people start talking about bleeding edge DARPA tech, and how we just need to invest more,research more, develop more. better tech, more tech, neural integration, more more more. okay i promise the writing advice is coming! for starters on tech, my experience is already with a mid-to-high end ottobock terminal device: i've got a myoelectric nerve-signal operated proportional control heavy duty greifer; about the only upgrade left for me to get would be a rotating wrist joint if i could coflex. it's not military, it's not "rockclimber that owns a prosthetic company", but it's quality tech. it still fucking sucks. secondly, that high level military tech exists primary for PR purposes so they can say they treat their discarded casualties well, "we can rebuild him, we have the technology" style. every war vet i've read about or heard from that's been gifted that high level tech also abandons it for the same reasons; it's imprecise, there's no feedback (or the haptic interface has to be fully recalibrated every time they put it on), but mostly they're more capable without one.
okay, the transhumanist ableds say (i should know, i used to be one), what if we did more ~research and development~ and got that neural feedback working? then we could have fireproof superhumanly strong robot arms to fix up everyone! here's where i take out that pin we put up before and i tell you that a class of prosthetic arms/hands already exists that has perfect proportional control, fine motor control, and physics perfect pressure feedback piped directly into the patients' existing sensory systems! they're called body-powered prostheses, and they were invented in like the 1600s. you strap a whole bunch of stuff to your arm and shoulders shoulders, and control the operation of the terminal device and elbow through cable tension by flexing your shoulders. they do take a considerable amount of training to operate - though hell i spent 18 months training to use my myo - but based on everything i've read, body-powered prostheses are the best option if you're an upper limb amputee and absolutely need a second hand for some reason.
but they don't look cool and futuristic, and according to my prosthetist, most people give up on using them too. we all give up on our prostheses, no matter the type. my rehab OT was impressed i lasted the 18 months of my training. towards the end, they even asked if the clinic director could drop in to one of my sessions to see my progress; he expressed genuine amazement at me casually using my bulky robot claw to use a brush and dustpan, and made an offhanded (hah) comment about what someone can achieve "if they stick it out to the end", implying it was somewhat of a rarity for me to have done so. several years on, and yesterday i wedged the dustpan between my ankles to sweep up into it, awkward but exponentially less effort than putting my dusty robot arm on. which, by the way, is a whole thing. look up some videos, they're all awful to don. i don't actually know the official technical name of what my clinic calls a "parachute" but it's a bitch to use! have you ever tried to pull back with your arm whilst also pushing it forwards at the same time, and simultaneously lean in to and away from an external force pulling on you? that's how you get a myo socket on.
bare with me, i promise writing advice is coming, and i promise it's more than the tl;dr. but. remember when i said a half working hand is infuriating to deal with? any prosthesis, from fancy myo tech to pirate-era body powered, will only ever be half as good as a working hand, and being juuuust within capability to do something but not quite able to is maddening! but you know what works way better than a half working hand? no hand at all. using whatever residual/vestigial limb you have - whatever "stump" you have, i hate that word - is pretty much always better than trying to use a prosthesis. i can use the inside of my elbow to grip and carry things, i can use the nub of my arm to apply pressure to hold things, open doors, use a computer mouse, turn on taps and lights, if i put a glove over it i can use it to prep for cooking. i have full proprioception and pressure feedback with skin contact, i don't think i've ever dropped and broken anything from my elbow, unlike countless things slipped from my greifer - which, by the way, absolutely will start clenching as tight as it can if i get even slightly too sweaty around the electrodes, which has both broken things i'm holding and also injured me, because surprise surprise but servo operated robot claws have pinch points on them right near the "emergency disengage" lever for some reason!
but i am exponentially more capable without it on than with it. no, i'm not fully independent, i rely on housemates and loved ones to help me out with some tasks that simply just need two handed dexterity, but none of those tasks are things a prosthesis makes me able to do anyway. i used to imagine my prosthesis would be like a bra; a bit awkward and uncomfortable, but i'd wear it throughout the day because it's helpful and take it off in the evening to decompress. in reality it's actually exactly like a bra: an absolute bitch to put on one handed, unbearably uncomfortable because it never sits right, ugly af unless you're a millionaire, and absolutely useless except for the fact that i get gawked at and judged by strangers if i leave the house without it on.
and if you really want to discover how far "no hand is better than a half working hand" goes, brace yourself, and look up the patient's stories (not medical system stories) of people that have had hand transplants. the first man to receive one hated it, he was promised a return to normal function, and what he got was a nightmare worse than being one handed; he wanted it removed again but the doctors refused because it would undermine their grand achievement of the first hand transplant. the doctors and society wanted him to be fixed, they wanted him to be normal, they wanted him to be abled. they failed. they made him less able to do things, denied his autonomy, and left him with someone else's hand slowly rotting on him, prioritising the idea of "scientific progress" and "two hands good" over the physical health, mental health, and ability to function of this man.
he's not alone; every story from the patients' perspective about hand transplants that i've read goes this way, including a woman who was born quad limb different and was promised hands would improve her life, pressured into a double hand transplant, only to find herself after the surgery essentially experiencing disability for the first time ever, because she had lived her whole life getting by just fine with her 'underdeveloped' limbs, but half working hands are worse than useless. you can try to find these stories yourself, but i'm not going looking for sources on any of these cases, because if you look back through enough of my posts you'll get a glimpse of the horrors and abuses that i too was put through by doctors who prioritised trying to "fix" me at any cost, rather than providing me the best quality of life, and in turn traumatised me and left me more broken than any loss of limb on its own could. dear goddess, i promise the writing advice is coming.
so. why do upper limb prostheses exist at all? if they're so terrible and useless, what is their function? i want to borrow something someone else left in the tags of a previous rant here, from someone who i believe works in prosthetics and/or rehab, cleaned up and anonymised at their request:
"upper limb functions are wildly more complex than: 1) bear weight static, and 2) bear weight moving. but every single upper limb amputee i know has a fancy expensive prosthetic just gathering dust in the closet because there is literally nothing it can do like a few years of adjustment and if needed non-dominant hand retraining can't do. the existence of forquarter prosthetics to begin with is just kind of silly and useless and entirely to make OTHER people feel comfortable, especially considering they universally are UNcomfortable for the amputee. i hate the notion that as soon as you get the amputation the prosthetic is The Thing That Will Fix You And Make You Feel Normal again because it universally isn't! but every forequarter person i know had like this ideal of Being Fixed By Magic Prosthetic that they were then obviously wildly disappointed by and had to do yet another grieving process with, versus if the dominant narrative were just one of: yeah. it'll take time, there is no magic fix."
and i think that really nails down what the actual purpose of upper limb prostheses is: they're not for the user, they're for the sake of other people. and not just their comfort when looking at our bodies, although based on the pressure for both amputees and people born limb different to get functionless cosmetic plastic hands, there is a lot of that. but it's not just that.
i fully believe that the reason prosthetic hands exists is to comfort the fears of the two handed. "don't worry", they say, "we can fix you again. you don't have to fear becoming Disabled, you don't have to worry about adapting or your life changing. we can make you Normal™ again."
you would not believe the number of people that have approached me to shower me with pity, to tell me how horrific my life is, how they can't imagine it. people have told me, apropos of nothing, that they'd kill themselves if they lost a hand. indirectly, that my life isn't worth living. unless, of course, i happen to be wearing my cool as fuck looking robot prosthesis! then they tell me how wonderful it is, how lucky i am, how glad they are that we have the technology to fix me. that's what a prosthetic hand says, what all the happy fishing photos on limbs4life posters at the rehab clinic say: don't worry, we can fix you. that's what the bleeding edge DARPA flexi-whatever fully articulated neuro-feedback hands say: don't worry if you get IED'd while hunting civilians for us to drone bomb, if you get hurt, we will fix you, we will fix the fuck out of you, we will motherfucking adam jensen you into a cool as fuck cyborg that your son will idolise; come on boys, don't you wanna enlist just for the chance at being as cool as this? join the bomb squad for a ticket to the upgrade lottery.
and so we arrive at fiction. as much as his dialogue options protest, adam jensen loves his robot arms, they punch through walls, turn into fucking swords! they make him the most special man in the world. what would he do without them? learn to cope? grieve? practice acceptance? take up poetry? just, be disabled? there's no power fantasy for ableds in that.
in fact, can you think of a single fictional character that's an upper limb amputee that's, well, just an amputee? they all have robot arms. not realistic prostheses, not medical devices; robot arms. sleek or bulky, top of the line or broken down self built, steampunk or nanomachines or magitech automail; they're never without them. never just an amputee. never born limb different either! there's always that element of tragedy to overcome, always suffering and misery porn, always focus on the pain and the helplessness without the absolutely vital robot arm that makes them Normal and Whole. the closest amputee example i can think of is furiosa from mad max, who iirc fucking punches max in the face with her residual limb like a motherfucking badass! i can barely lean on mine wrong and she punches a guy! but she still apparently needs a dieselpunk robot hand to drive a truck, something you can do one handed so easily most drivers don't even notice they're doing it! please don't, by the way
and so many disabled fans love to point to robot armed characters as disability representation; the winter soldier, luke skywalker, edward elric, misty knight, that genderswapped furry girl from ratchet and clank, jet cowboybebop, finn the human, and yes, adam jensen…. these are all characters that someone disabled i know has told me they love because they "represent disabled bodies"…. and i know nobody wants to hear this, because i've been screamed at for saying it before, but… they do not. they are not disabled, functionally or within fiction. they are either perfectly able bodied Normal people with chrome paint on an arm, or tortured misery porn we are supposed to pity and feel lucky we're not them. sometimes both!
also you ever notice how it's basically always arms? lower limb amputations are orders of magnitude more common than upper, my prosthetist said i was probably only the 4th or 5th upper limb she'd worked with in her career, with literally hundreds of lower limb fits. but fiction doesn't seem to reflect that, huh? or any other part of the reality of disability. it's always cool as fuck robot arms, never cool as fuck wheelchairs or crutches or dialysis machines or colostomy bags. a fair few "i was blind but now i can see with Robot Eyes and also infrared and xray" around, which again, plays into that "we can fix you and make you cooler" propaganda.
by the way, up above when i was describing body powered arms, if you wondered to yourself why i went with a myoelectric one instead when i clearly believe body powered is better… yeah. i am not immune to propaganda! i too wanted to be cool as fuck. i spent years with deteriorating function in my hand for reasons that are still unknown, was misdiagnosed and medically neglected to the point that removing my hand seemed to be the only option left to offer some relief, and even that was a clusterfuck that left me worse than ever… of course i wanted to believe in the power and prestige of a cool robot arm that fiction promised me.
but fiction promises fantastical lies. and so.
we get to the writing advice portion of the novella that is this post. you asked for advice on how to write a disabled character with an upper limb prosthesis. you've read the tl;dr, you've read everything above i assume, you know i don't want you to do it. the obvious twist is that it's been writing advice all along, me trying to share my perspective on what it's like being an amp with a robot arm and how shitty it is, implying how almost any fully realised and realistic character that's missing an upper limb would give up on a prosthesis at all. you can already tell that every value judgement in me says "don't give her a prosthesis, no matter how functional or cool you make it. don't try to make the tech better to justify it, just let her be one armed, one handed. just let her be disabled, but not helpless. let her show off her elbow or underarm carry strength. let her love interest appreciate how soft and squishy her residual limb is in a moment of tenderness. let her natural disabled body be respected and valued."
but that's a personal value judgement from me, and you are the author of your own work. i know it's trite to say, but you are! even the act of deferring to someone with lived experience in the hope of doing a better job at representation is a value judgement, a good choice in my opinion, but one you needn't necessarily take. maybe you do want to write a character that has a cool as fuck unrealistic robot arm as a power fantasy, or a comfort blanket… i did.
i've been slowly writing my own probably terrible scifi epic for over a decade now, and when my arm was giving me hell back then, i'd take great comfort in this fantasy of my protagonist with her chunky robot arm, the terrible traumatic suffering of her loss, overcoming, the power and ability her advanced prosthesis gives her over others, that she alone has access to, because others are not willing to make the sacrifices required. inspiration porn. awful stuff to me now, but empowering to me then. as i grew and gained direct experience, i slowly reimagined her, rewrote her, ship of theseus'd her into an entirely new character; a reflection of me now, bitter at the whole thing, spiteful that her natural flesh arm evokes fear and distrust, but unwilling to suffer the pain and frustration of her unnatural prosthesis just to make others comfortable and respect her as "whole", however artificial that whole is. and as with the ship of theseus being two ships, once i realised the transformation, i re-added the old protagonist back in whole cloth as a separate character; proud of her robot arm and its power, but in new context, as a foil and antagonist, an in-universe military prosthesis propaganda figure to reflect how i now feel characters like her exist to us, the readers.
i'm not just sharing that as egotistical self promotion, but to highlight that, even if i sit here begging you all up and down not to write characters with robot arms for how bad and unrealistic they are; there's still something genuine and true that their inclusion can say. the great thing about the story that you're writing is that only you can write it, as they say. but i whole heartedly believe that to write to your best, you have to be aware of what you're writing and why. as tempting as it is to feel these characters form naturally in us and therefore we're averse to changing traits about them that feel organic and self evident; as authors we have omnipotent control over the text, every trait and detail is a reflection on us, so we'd sure as hell better understand why we're choosing to write a character with this trait. because anything you write without being aware of intent will take on its own meaning in the space between.
and on that note, if i don't say this, i'm leaving it to be inferred: i definitely don't want to appear to come down on the side of saying "you cannot write an amputee unless you are one", because we are rarer than single young bisexual unicorns! and it would be a tragedy if anyone read through all this and then turned away in fear, deciding to never write an amputee character (with or without robot arm) because they feel they can't do it justice… believe me, no matter what anyone says, some hack writer somewhere is going to keep writing adam jensens and winter soldiers. don't let them be the only voices in fiction! just try to do your best.
so my ultimate advice on the topic of writing a character with a prosthetic limb is to ask yourself one question in two different frameworks, and meditate on what you feel the answer is:
why does she have a prosthesis?
from a doylelist perspective as the kids say, as an author with omnipotent control, why are you choosing to write about this topic? why are you choosing to give this trait to this character? what does it say about how you view ability and disability, what makes a person normal, and what our society values? will you let her be in her natural body? or will you give her a prosthesis, force her to wear it by authorial fiat, or author her a meaningful reason to choose to? if yes, be sure you know; why did you give her a prosthesis?
and from a wastonian perspective, diegetically, inside the story, why does she choose to wear a prosthesis? what does it say about her inner character, and how she interacts with the world? how does she feel about doing it, is she prideful and loves the attention she gets, or does she resent whatever necessitates its use? how do people in this world view ability and disability, what does this society value? and above all, whatever the answer to these questions, whether or not she uses a prosthesis or is badass without one, how does she deal with the eternal freezing cold that every amputee ever feels constantly in their residual limb and why does nobody make a heat pack that fits over a nub without drafty gaps???
i can't outright tell you how to write a good upper limb amputee, but if you at least know why you're writing one and for what purpose, you're on track to write the best character that you can. that's the best advice i can give… other than, like, this whole rambly mess.
and, as a reward for reading this far, please have a very blurry cryptid photo of my cat doing his old man sit:
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my frustration with “going nonverbal/nonspeaking” (as a fully nonverbal person)
transcript: my frustration with “going nonverbal/nonspeaking” (as a fully nonverbal person)
this written for instagram because of this post. but thought tumblr may like it too. “you” means general you, no one specific.
the instagram post and this on wordpress
this disclaimer is for instagram but also for anyone new to this discussion:
in full honestly, don’t know how to write this. am tired, language and complex ideas too much at time of writing, and general exhaust at having to argue same thing over and over again and justify own existence. tired of being minority within minority, wish there are others to do these work for me so i don’t have to do it all by self, singlehandedly advocate for everyone (not to mention problem with that—i can’t speak for everyone).
so honestly, if you don’t have anything nice to say, especially if you speaking (yes, even if you lose speech. include you), just don't say anything at all. move on.
online actually autistic community (AAut) dominated by white, lower support needs. level 1, speaking, late diagnosed, high masking autistics. find people like you is great, what not great is you treat your very narrow community as “voice of all autistic” and your experience as ultimate autistic experience. i write plenty about that, many more elaborate than this, if you not familiar with this concept.
many people in this community experience times when cannot speak, sometimes because overwhelm, shutdown, dissociate, or anxiety (situational mutism), but do not struggle with act of speaking rest of time (some struggle with speech all the time but still can speak - more on that later). the community call “going nonverbal/nonspeaking,” or even “when i am nonverbal nonspeaking” (not talking about those nonverbal as child and verbal now older), after clinical term “nonverbal” (nonverbal autism) and term coined by apraxic nonspeaking autistics “nonspeaking.”
both of which talk about it as an “all the time” experience.
when i search nonverbal or nonspeaking because i want community too, want see people like me too, two category i see: 1) parents of nonverbal nonspeaking children, whom can’t relate to because age, who can’t write own experience because their age and developmental ability. and 2) overwhelming amount of speaking autistic talk about going nonverbal going nonspeaking.
and the very very few fully nonverbal nonspeaking voices. drowned out. cannot find anyone.
nonverbal used to be term to describe us, people who can’t speak or cannot functionally speak beyond few words. medical term, alright, so some of us don’t like. so some of us reject that and create term all of our own, called nonspeaking. created by nonspeaking autistics with severe apraxia and brain body disconnect, describe their own experience of able to think in words able to spell out words (with great dedication and work and support), just cannot do that with mouth. their term. they create.
and you take it? without knowing context? without reading anything by those same nonspeaking coiners?
when is last time you purposely seek out nonverbal nonspeaking voices? when is last time you accidentally came across us? can you name any nonverbal nonspeaking advocate that talk about their experiences? one? two? three? a BIPOC person, a (specifically) Black person? a Black woman? a trans person? a physically disabled person? a person not from western world?
same narrative over and over. “i can speak for nonverbal autistic i understand their experience because i am autistic i can’t talk sometimes” no you cannot. as someone who was able to speak when young who lose speech (”go nonverbal”) but now have no speech to lose because full time nonverbal. no the experience not the same. not comparable. you gain it back. i don’t. you can explain with mouth words what happen when you get out. i can’t, i only have AAC. countless nonverbal nonspeaking people without AAC or sign cannot, at all. you never experience daily small and big struggle of casually being nonverbal all the time.
your experience of lose speech unique from my nonverbal. but if you so insist to compare and equate, you only guest to my experience, my daily life.
“when i go nonverbal and no one understand so have to force to speak” i cannot force words out. know you don’t mean to say this, and not saying you at fault for this, but nevertheless accidental perpetuate and reinforce idea that anyone who don’t speak can just be forced to speak if try hard enough. but often not how it works. and this exact harmful rhetoric devoid and delays nonverbal nonspeaking people given access to AAC, because “need try to force words out first, AAC unnatural so last resort.”
this may be new concept for you. new concept to instagram, to tiktok. to other places. it may seem i only one with this problem, “i once saw a nonspeaking person’s account and they don’t have problem.”
yeah, because we are not monolith. some nonverbal nonspeaking people don’t care. some nonverbal nonspeaking people may even welcome “go nonverbal nonspeaking” or “when i am nonverbal nonspeaking.”
but don’t be fooled into believe i only one. have many nonverbal/nonspeaking and/or higher support needs friends on tumblr, who talk about this who have been saying this for years. *years*. years before i joined. i am not creator, i only bring message here, because many of us are too high support needs too disabled to do anything else. many of us only stay on our small corner of tumblr because it most peaceful, because at least some listen, because least hostile, because need to defend our experience against our own community the least. (but it happens less doesn’t mean it doesn’t happen, we still exhausted.) many of us only stay on our small corner of tumblr because that all we can handle, or because we not allowed or shouldn’t be on other social media because age or abilities or both.
i cannot handle conflict i do not do well and i shouldn’t be here. but if not me, who else? if i don’t do it, who else is going to?
some nonverbal nonspeaking people and parents of them may question, why you start debate about useless term when so many nonverbal nonspeaking people don’t even have access to communicate, real problems. to that i say i do those work too. and to that i say this is real problem too, because am autistic so online actually autistic community should also be my space too but it not. but it hostile. because am lonely because seeing yourself so crucial because don’t know anyone in person like me don’t have any friends in person like me, so i go online to find people like me and i cannot because no own term to search and what used to be term many people without similar experience insist they understand and can speak for me because they say we have similar experience. because this aloneness and the unique difficulty from being full time nonverbal and the struggle of future and the unique mistreatment from both outside but also inside community have drove me over edge many times and it is presence and knowing their presence of my tumblr nonverbal nonspeaking / higher support needs friends that gave me hope to stay. because so many people don’t listen and instead speak over. terminology only a symptom of problem. address roots, sure, but part of address roots is address symptoms.
‘well nonverbal people are never around” maybe it because you don’t make it welcome for us to join.
“fully nonverbal rare anyway” estimated 30% of us nonverbal nonspeaking, which this statistic probably only count those nonverbal since birth. even more are minimally speaking or without full functional communication, abilities limited to requests. sure, 30% still not majority. but significant amount never the less. speaking lower support needs autistic without intellectual disability not majority anyway too but your experience still deserve heard. ours too.
“see less nonverbal people because they don't have ability to communicate and use social media” yes, many nonverbal nonspeaking people not given access to communication (like AAC), forced to live in silence (because body language communication not enough alone!). silence from birth to teenage years, to adulthood, even until they die. some cannot understand social media or AAC because intellectual disability or cognitive ability. some not allowed on there because safety, some not allowed on because presumed incompetent and abused. all true. do you advocate for them too? or is it just talking point against me, pretend you care?
but not all of us, we exist. some of us thankfully supportive parents all along, parents given resources, us given resources, so we access to AAC since beginning. some of us became nonverbal later in life (which not same experience as those early in life, i acknowledge). some of us after years of forced silence, finally given access to AAC and can now communicate and advocate! some of us on social media - do you listen?
but you see none of us in your community anyway. maybe one token person.
you can go nonverbal. i cannot go verbal. see difference? you can come close to my experience, but i never will have (future) ability to go to yours.
it frustrate that have to specify am nonverbal **all the time** when write this, because if don’t do that will be assumed otherwise. frustrate that when in neurodivergent space stranger see me AAC they assume i can speak because they only know part time users (know part time users frustrate too because people assume they cannot speak and get surprised when they do. me being assumed automatic part time is not fault of part time AAC users.)
even been told am privileged to be nonverbal nonspeaking, privilege over speaking autistic who lose speech because in their mind it mean i get all support i need i get all recognition get all the representation. which. couldn’t be farther from truth.
all that. is fraction of reason i frustrate at “going nonverbal nonspeaking” and “when i was nonverbal nonspeaking.”
so many other words. lose speech. intermittent speech.
just want have own sub community where can find people similar experience.
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one-flower-one-sword · 6 months
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"The images that Xie Lian was seeing in his left and right eyes were different, and it was incredibly uncomfortable. He blinked lightly, which made him discover that his right eye could still see the scene outside even while closed. So he kept his eyes shut."
TGCF Volume 5, page 253
So this is when Hua Cheng is sharing his butterfly vision with Xie Lian by touching foreheads with him. Which is a very cute hualian moment, but I actually wanna talk about something else - Xie Lian describes having those conflicting views in his left and right eye as really uncomfortable, and while of course Hua Cheng has had many years to get used to it, I think it's still a pretty good example at just how skilled he is at multi-tasking. Because he apparently does this - using butterfly vision and/or hearing to keep tabs on different locations/people - all the time. Meaning at any given moment he could be listening to several different conversations at once, plus "flipping through" different views in one half of his vision, while also paying attention to his current surroundings. And not just that, he has to sort through and evaluate all that input and information. Just thinking about all that gives me sensory overload.
Also, technically speaking, having only one eye means he should have no depth perception - in that eye, that is. His butterflies don't have that problem. Imagine constantly switching between vision with and without depth perception, that'd be so disorienting. But he's evidently trained himself to do all this to a point where he can just seamlessly switch back and forth or use both his normal vision and butterfly vision simultaneously.
In that sense, I also see the butterflies as a sort of disability aid. Because with his right eye missing, Hua Cheng has a huge blind spot on that side. And while yes, even as a child he used to constantly cover that eye, so he's had hundreds of years to learn how to compensate for this. But the butterflies allow him to navigate the world in a way that is significantly different to someone with full vision and also something he's honed into a unique skill - he's still blind on one side, but he's made it much harder for enemies to take advantage of that and actually learned to "see" in ways that they can't.
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samd1o1 · 7 months
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The Disability Coding Of Aphelios
Hey everyone! Today I thought I'd write a little post about my comfort character Aphelios; The Weapon Of The Faithful from League Of Legends!
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Specifically I wanted to talk about the disability coding of Aphelios. For those who don't know; coding means the character is written to be an allegory for a life experience. It's about the closest you can get to canon without being necessarily canon. Many stories in magical fantasy universes use this technique. The most common reasons are for hiding from censorship and backlash, and creativity. I personally find coding way more interesting because of all the ways people can think to use magic as an allegory. But I also understand the importance of canon representation. Luckily, Aphelios does both!
So let's start with base main universe Runeterra Aphelios. To be able to talk to his sister and access her weapons he has to drink a special moon flower poison. This poison causes him immense constant pain. It also renders him mute. Obviously he isn't technically disabled. He can choose to not drink the flower (though that would be a dumb decision). But the fact he *must* drink it to save his people and it leaves him to chronic pain and muteness to the point of becoming numb to the world. That screams chronic illness's that cause pain.
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Now many League lore nerds are always quick to do an "uhm actually" when you call Aphelios mute. But they're not thinking of the coding of it. Like I said earlier; fantasy stories using coding is very common for many types of minorities, not just disabled people.
My favorite example of disability coding is Hunter from The Owl House. Hunter lives in a world full of witches but he has no magic. He struggles at times but is able to find a way to navigate the world. He uses his palisman as a disability aid and makes do.
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Now I'd understand some people not seeing this or just denying it. But what they did with HEARTSTEEL Aphelios basically confirms to me the disability coding was intentional (or at the very least something they're sticking with).
HEARTSTEEL is a boy band in the League musicverse. If there was ever a time to make Aphelios speak, it would be a boy band that sings. But no they didn't do that. In fact they understood the music verse is a more grounded universe (hinted to be our own even) so they made him CANONICALLY disabled.
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When Aphelios was younger he had nodes in his vocal cords and they had to be surgically removed. Aphelios never fully recovered and lost his singing voice and the majority of his normal voice. He can't really speak above a whisper. In interviews he whispers to his sister Alune and she answers for him. (Someone teach this poor man sign language).
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Another thing I find cool about HEARTSTEEL Aphelios is how he copes. Aphelios is the lyricist of the band. Kayn and Sett's verses are very in character for themselves but K'sante's fits Aphelios as a character way better.
"They wanna kiss me long good night with a rose
Hoping that the Eiffel falls, of course
You don't understand the life we chose
(On life support, life goes)
I need my silence, my privacy so I can heal
And even rockstars got feelings that they feel
In reality, this just repeats like a drill
Always"
This verse shows Aphelios struggle with being disabled. He didn't choose this life, but life goes on. The best part of this verse is that his friends are his voice. The fact K'sante sung his lyrics is very powerful. Shown in the music video, his friends metaphorically (and literally) saved him from drowning.
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I can speak from experience that friends are very important. They really can help you through the toughest times and save you from drowning.
(I also feel it is important to mention; that while it's beautiful that someone sung Apehlios thoughts for him. It is suspicious they chose the ONE black champion in the band. The other two who sang solo verses got to have screen time all to themselves for their verses. K'sante isn't present at all for his verse and it is instead Aphelios and Yone.)
Anyway that was a little infodump about Aphelios and why I love his disability coding. I really appreciate that Riot are keeping him mute in all universes so far. (My worst fear is a legendary skin where he speaks.) Riot has stated that while champions are different people with different life experiences in the alternate universes that the champions will keep their core identities. They were mainly referring to LGBTQ champs in this statement, but disability is also a major part of identity. I'm sure it applies here too. Sona has also stayed mute in all universes as far as I know (she just uses aids like telepathy and text to speech).
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Anyway see you all later on the rift where I will OTP HEARTSTEEL Aphelios and maybe some Sett support because I'm gay.
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melrosing · 2 months
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Sorry if you’ve talked about this before but I can’t find it if you have. What are your thoughts on Jaime’s role in the Tysha situation?
I don't think I have actually talked about this at any particular length before?? which is weird bc i have thought about it a lot but to quickly summarise before launching into it:
I think Jaime's part in this is a human failing. it wasn't a malicious or spiteful act, but an ignorant one
that said, I think it's basically unforgivable regardless. Tysha and Tyrion are the only people who could forgive him for this and even if Tyrion does, I really doubt we'll ever learn Tysha's feelings on the matter
imo the way in which Jaime ultimately decides to come clean is near enough the cruelest thing he does, even if he didn't mean it to be
so first off, I don't think Jaime has ever truly believed that Tyrion couldn't be loved (in the romantic sense, anyway). Jaime himself is someone who loves despite appearances, and it seems he knows pretty soon after telling Tyrion the lie about Tysha that it wasn't really a kindness, but in fact the worst thing he's ever done (so far!!)
I also think if it hadn't been for what Tywin subsequently put Tyrion and Tysha through with the guards, Jaime would've come clean shortly after telling the lie. but after that, no doubt it felt almost impossible to do so, because the damage was now outsized and there was little chance Tyrion and Tysha would be able to return to what they had.
but he does tell the lie to begin with, and I think that is because Jaime lives in an ableist society and is touched by the stink. he loves Tyrion and Tyrion's disability has never impeded that love, but it has meant that Jaime has failed him many times, sometimes without even knowing he has. for one thing, I think he has failed to realise just how much Tyrion has suffered through childhood. he comes to some revelation following his maiming at the hand of the mummers:
Sometimes he even wept, until he heard the Mummers laughing. Then he made his eyes go dry and his heart go dead, and prayed for his fever to burn away his tears. Now I know how Tyrion has felt, all those times they laughed at him. (JAIME IV, ASOS)
however, it suggests that whilst Jaime has never been laughing with 'them', the full extent of his understanding has necessarily been limited. besides that, I think Jaime has always been in a unique position where he could have definitively stood up to Tywin and Cersei in terms of how they treat Tyrion - he alone had the ability to withhold something until they did so, whether that be love or obedience. but obviously he lets his fear of his father/codependency with Cersei get in the way of that, so.
he's also carelessly partaken in ableism without thinking, indeed in front of Tyrion - whether that's in calling him 'the Imp' (something Tyrion can reclaim but Jaime certainly can't), or this fucking gem:
"Even if the boy does live, he will be a cripple. Worse than a cripple. A grotesque. Give me a good clean death." Tyrion replied with a shrug that accentuated the twist of his shoulders. "Speaking for the grotesques," he said, "I beg to differ. Death is so terribly final, while life is full of possibilities." (TYRION I, AGOT)
again, doesn't really matter if Jaime has been able to push past some of the ableism others have adopted, the stink is still on him.
so, when Tywin dictated the lie he wanted Jaime to tell, I can imagine he was in two minds. on the one hand, Jaime loves Tyrion, wants Tyrion to be happy, and would be pleased if Tyrion found happiness with someone who truly loves him back. once again, Jaime himself loves despite appearances, and so I don't think he would ever have found it inconceivable that Tysha honestly loved Tyrion.
but again, he lives in an ableist society, and so when Tywin tells Jaime that Tysha's love was cynical, that might have seemed possible, too. Jaime has grown up in a world that has called Tyrion a monster since birth. it doesn't matter if Jaime doesn't think Tyrion is a monster; he knows that much of the world does, and accepts (if only for a time) that Tywin's assessment of Tysha could be true.
then there's the fact that once Tywin has made a decision, perhaps Jaime thought Tyrion and Tysha's relationship was a lost cause; besides that, if Tysha were taking advantage, Jaime doesn't want Tyrion to be hurt by it. hence, "a kindness". it's all deeply flawed logic, but again, this isn't about malice or spite on Jaime's part: it's ignorance mixed up ableism, and human failing.
then ofc, Tywin does what he does to Tyrion and Tysha and that's it. Jaime figures there's no way he could tell Tyrion the truth now without causing him even greater pain, and keeps quiet for the foreseeable future, retaining that as one of his very deepest regrets. because Jaime knows near enough immediately that he was lying to himself as well: he knows full well that Tyrion can love and be loved, and yet he propagated Tywin's lie..... for what.
could get into the absolute fucking tragedy of Jaime and Tyrion, practically the only two out of the Tywin/Cersei/Jaime/Tyrion quartet with a genuinely uncomplicated, loving relationship, having their love turned to poison by the worst dad of all time. but another time
then to move into ASOS: look like I don't know if it was ever the right thing to tell Tyrion the truth once the thing was done. I can see both sides: one, Tyrion deserves to know that he can be loved, and has been loved. two, how the fuck is Tyrion supposed to feel knowing the truth, and that his whole life he's been living a lie.
but I think the biggest problem is that Jaime doesn't really reckon with that so much as his own desire to be honest and do right and come clean etc. he certainly knows how much he risks hurting Tyrion or else he wouldn't have kept quiet all this time, but it seems at least part of it is about honesty for the sake of cleansing himself rather than doing right by Tyrion.
he also. forgets to apologise??
"For your gold, Father said. She was lowborn, you were a Lannister of Casterly Rock. All she wanted was the gold, which made her no different from a whore, so . . . so it would not be a lie, not truly, and . . . he said that you required a sharp lesson. That you would learn from it, and thank me later . . ." "Thank you?" Tyrion's voice was choked. "He gave her to his guards. A barracks full of guards. He made me . . . watch." Aye, and more than watch. I took her too . . . my wife . . . "I never knew he would do that. You must believe me." (TYRION XI, ASOS)
like I think Jaime is honestly sorry. he's afraid to tell Tyrion because he's sorry, he accepts Tyrion's punch because he's sorry, etc. but he never manages to actually say it, he's too busy trying to make himself understood. he wants Tyrion to understand why he did what he did, and it's like. why would Tyrion give a fuck why right now, he'd trying to reckon with the impact it's had on him, and the fact that he and Tysha lost their happiness together and suffered so horribly for nothing.
so whilst I think it's human to botch an apology like this, to be so busy trying to explain yourself you forget to apologise at all, and that you're meant to be centring the victim of your wrong. but it is still fucking wrong lol. Jaime gets it so, so wrong.
all of that to say, I don't think Jaime has ever wanted to hurt Tyrion, but he has - he has hurt him badly. doesn't negate his love for Tyrion - it says in his own POV that Cersei and Tyrion are the two people he cares most about in the world. but he fucks it. partly because of the ableist society he lives in, partly because of the toxic family dynamic he's part of, and partly because he's human, and that's the tragedy.
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eris-snow · 4 months
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Hiiiii!! I hope you’re doing well ^^ this concept has been plaguing my mind for DAYS. listen. Mute reader joining class 2A where bakugou has already started going deaf from his quirk. AGH I swear it’s so cute I’m already dying, probably angst to fluff type stuff idk ur the boss here :3
(this is my first time requesting I hope I’m doing it right lol)
Oh you're so sweet! Don't worry about requesting your request was so cute 🥰
But YES, this is such a good headcannon 😭😭
Katsuki would think that you're way too quiet, and imagine his surprise when you start signing to him.
--
He'd just gotten back from the hospital after a particularly shitty injury, so he wasn't there when you were introduced to the class
He didn't know that you were mute, so when you camd rolling up to the dorms, all he saw was a way too quiet girl holding a way too big box for your size.
You must be the newbie, Katsuki sighs, squinting at you. It takes him five seconds to realise that your quirk wasn't strength based, and 10 to realise you had 5 of those big ass boxes to get through, before he kicks off the couch to help.
It's fine. He's been through this, he's gotten help. He can talk to people without brandishing insults now.
"Jeez, pass me that, you freak,"
Head, meet hard wood.
You, however, don't seemed fazed at all. Instead, you let out a sigh of relief, happily passing him the box and taking another one to carry to the lifts.
He's almost glad you don't say anything, because at least then, he doesn't have to go 'SPEAK UP, NERD' on ten different occasions. He wasn't wearing his hearing aids, after all.
When he does finish helping you, you're bowing to him profusely, and to his utter surprise, you lift your hands and start signing to him.
Do you know handsigns?
He almost rolls down the stairs.
Yes, Bakugou signs back. You bow at him again, and Bakugou feels giddy.
Thank you! I'm sorry if you found it rude when I didn't respond, but I am mute. I appreciate your help, Bakugou-san! I hope we get along !
And that's how Katsuki gained a new friend.
--
Oh and don't forget about the silent conversations.
Besides Deku, you were the only one fluent in handsigns and Katsuki took full advantage of that.
Just imagine, 20 odd class mates and no one knowing what words being exchanged between the two of you.
Communication is the one of the most important thing on the battlefield, and the scariest thing was that Bakugou was starting to have difficulty doing that, patrol or not.
For some reason, having someone who understands that fear makes Bakugou feel just a little bit more stable.
--
On paper, your disabilities should hinder your ability to get along, but like how two unlike poles attract, you get along swimmingly. Communication, which is supposed to be one of the most difficult actions to carry out is so smooth with Bakugou it's basically telepathy at this point.
A glance at you.
Oh, you want your protein shake.
A gesture to the teacher.
Oh, you need help with a question.
A middle finger...("Oi, Bakugou that wasn't a handsign-WAIT WAIT NO DON'T-")
Means a dead Kaminari.
And for some reason, even if Katsuki can never hear your voice. Even if you can't ever tell him how much he means to you, you'll stand by his side even if the world tilts sideways, or be the first at his door when his nightmares overtake him.
You'll be the first to guess what's one his mind and stand by him no matter what.
After all, actions speak louder than words, don't they?
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that-lazy-snail · 1 year
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Being a fan of Avatar (the movie with blue people) is literally the most exhausting fan experience I've ever had, and I'm a female Star Wars fan, who's favorite Star Wars movie is The Last Jedi.
I'm by no means claiming that the movie is flawless or even "great" but it is by scifi blockbuster standards pretty good. It's no more or less racist than the Star Wars prequels and the writing isn't any worse than the scriptwriting in the Star Wars prequels either, yet it's treated with such disdain among people on the internet that I can't even talk about it without receiving random hateful comments.
I cosplay from the movie, more specifically the new movie and an OC that I designed in 2018. I love the movie, especially the visual elements and the design of the Na'vi and their culture, I think it's a fascinating metaphor for our treatment of indigenous peoples and our planet, I love the themes the film presents. But I'm also aware that it's harmful to indigenous people as well because it promotes a white savior narrative, that it's harmful to disabled people by promoting the narrative that they can't live full lives unless they're normative. I don't deny those problems with the movie, and I have plenty of criticisms of the new film as well. Particularly the use of locks on Jake and Spider, and I saw a video on tiktok complaining about that and I left a comment saying that I really wish they hadn't done that and I thought it was a really poor styling choice since up until that point none of the Na'vi we'd seen have locks so it doesn't logically make sense to give them that hair style. I got quite a bit of response to that comment, some people agreeing with me but largely people were saying, "why do you cosplay it then?" "why do you support it then?" like is it not okay to like things and also have criticism for them? I'm allowed to like things about it and also not like things about it.
I also keep seeing videos saying that Avatar has no cultural impact, that it doesn't have a long lasting fan base despite having lore comparable to Lord of the Rings. Here's the thing with that, it totally does have lore comparable to Lord of the Rings but the fan base can't thrive like LOTR fans or even Star Trek could partially because the internet wasn't a space in the same way then as it was when Avatar came out and the other fact is the sheer amount of shaming and harassment that Avatar fans get. I've seen people leave the fandom because of the hate they received on the internet. They quite literally get bullied out of their enjoyment of the movie. People say that Avatar has no fans, but it's fans are chronically silent and reclusive in our liking of the film for fear of getting harassed. I am part of Facebook groups of that have thousands of members and a very active discord. Avatar fans exist, they just keep low and quiet so as to protect themselves. I know people who speak Na'vi in the same way people speak elvish or klingon, it's just not something we advertise because every time we try to share our enjoyment of the movie we get mean comments or mocking stitches/remixes of our videos, pictures, etc. It's not fun to be a public Avatar fan, it's scary and exhausting.
I love Avatar, Neytiri was one of the first truly strong and inspirational female characters I connected with as a child (I was 9 when the movie came out) and I was fascinated and enthralled with the world of Pandora, as were so many movie goers. I'm so tired of getting railed on for enjoying this movie, or even just the constant ridicule that comes through my feed about it. What happened to the golden rule of if you don't have anything nice to say (or on this case even anything that provides new/valuable commentary/criticism) don't say anything at all?
I'm so sick of hearing the same arguments I've heard a million times about why it's a retread plot of Pocahontas/Dances With Wolves/Ferngully, I've heard it all before, I've seen those movies before and their plots are in myths and any number of other stories, that's not why I love the movie. No amount of people saying that to me will change what I do like about the Avatar. I don't watch Avatar for the plot, I watch it for Pandora, and for the visual spectacle and the world building.
I'm sick of the argument that Avatar's treatment of indigenous voices is somehow worse than any other piece of media written by and for white communities, it's not. Even Avatar the Last Airbender (which is my favorite TV show of all time and is often acclaimed as a great example of native representation) also falls failure to the same mistake of casting white actors in POC roles and changing the narratives of natives to be more easily accepted and understood by white audiences. This is not to say that ATLA doesn't handle its message better than Avatar, but it's important to be aware of the ways in which all media has flaws, even the things we think are less problematic and it's important to acknowledge them and not tear the media down for it, but use it as means to make new media better. Cameron did improve with the Way of Water, he frequently consulted with the Maori tribes he was pulling inspiration from, there's literally articles written by Maori tribe members on it but it is still a white people movie, written by white people for white people so do with that what you will. But don't claim star wars is any better, the prequels were outrageously racist, and they still maintain majority white casts.
The new Avatar movie (the way of water) is not perfect, there are quite a few things I found to be poor choices in regards to cultural sensitivity (aka locks, and casting Kate Winslet as Ronal instead of a Polynesian actress) but it's still better than it's predecessor, and unlike so many people on the internet say, it is not "a bunch of white people playing poc" since neither Zoe Saldana, nor Trinity Jo-Li Bliss, or any of the Metkayina children or Cliff Curtis are white. In fact, Cliff Curtis is Maori, the culture that inspired the Metkayina and many of the extras who play background Na'vi in the films are POC, because in spite of James Cameron's failings, he did want the Na'vi to be played by people of color. Very very few of the Na'vi in the original movie are played by white people, only a few extras with less than 1 minute of screen time and no lines. All the major Na'vi roles were played by people of black and indigenous color. Eytukan was played by a Cherokee native, Mo'at (these people are the two clan leaders) is played by a indigenous woman from Africa and is very black. Zoe Saldana's parents are Dominican and Puerto Rican for god's sake! She is not white. This argument that he casts white people in POC roles is untrue. The Avatars are white cause they're meant to represent the invadors, wolf in sheep's clothing if you will. The Na'vi are bipoc, and they're played by bipoc.
After Avatar, James went to Brazil and became and activist for native communities. He went worked with Brazilian natives fighting the building of a dam over their local river, a dam with would power a major city in Brazil, but destroy the indigenous peoples access to water. He went to their community, and asked them what he could do to help. He donated money, protested, ran conferences and tried to disrupt the building of the dam using his influence, but it failed, and he had to watch the suffering of this indigenous tribe that he'd grown very close to in their time working together to prevent the dam. He's not Anti-indigenous as people love to claim, he's clumsy and arrogant (like all cis white men) but what he does is an attempt to elevate native voices not smother them even if he doesn't necessarily succeed.
The movie isn't the menace to society people portray it as, nor is it as boring or uncompelling as people claim. But I still can't go online to enjoy it because no matter what I say, I like it too much for "a bad movie" or I'm "too supportive of something harmful" although I still see people buying Harry Potter merchandise in the Barnes and Noble and I'd argue JK Rowling is an actively bigoted individual who's words and paychecks actively harm marginalized communities, unlike Cameron who despite his bumbling is trying his best and actually learning and doing better with the new content he puts out.
People also say things like, "You only like it cause you're white, no POC people like Avatar." which is blatantly untrue, I've seen native people who like it, black people who like it, I have black friends who like it, I know a black cosplayer who cosplays from it. In fact, I know more poc who cosplay from it than white people. Everyone is entitled to their opinion of the film, and should be allowed to interact with it without getting harassed. It's just exhausting to like it, so people don't say they do.
I'm tired of even the things that should be praised about the new film being used as a way to tear it down. Cameron said in an interview that he "likes Captain Marvel and Wonder Woman as characters but they're not mom's" when asked why he chose to make Neytiri a mother. Neytiri's motherhood doesn't detract from her warrior-ness, she's still a badass bitch and I think that's the point that this person on tiktok clearly missed. He wasn't saying you need women to be moms to be heros, but how many warrior women who are also mothers can you think of off the top of your head? I can't think of any. The choice to make Neytiri a badass mom wasn't to detract from single or childless female characters but to provide even more diversity in the kinds of strong female characters out there. I loved that 1/2 the cast of that movie was women, just as I loved Neytiri in the first film.
In conclusion, can we please stop making Avatar fans lives hell on the internet. I do my own research about how it is and isn't problematic and make my own decisions, I don't need strangers to yell at me. I just want to enjoy my silly ecoscifi movie about blue aliens. I'm aware of its issues and I do my best to raise awareness of the issues facing real natives, to engage with real native stories and voices and support their protests, legal persuits, tribal sovereignty, land back etc, and be the best ally I can be, but I'm not going to boycot this movie because it does some problematic stuff, or because it has an unoriginal plot, if I did that I could never watch another marvel movie again (and yes they're just as bad if you dig, look at the early ones especially) I'm so sick of the insane amount of factually unsupported hate this movie gets and of having to deal with it. I'm tired, I just want to enjoy my movie which is no worse than any other white backed and driven Hollywood blockbuster.
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somewhat-very-insane · 7 months
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questions i am sick and tired of hearing as a chronically ill and disabled person (and why i hate them)
this did wind up a bit longer than i expected it to, but by all means, feel free to add on with any questions you hate to be asked (and why!)
abled people, please do refrain from overtaking this post, and, disabled people, please do refrain from making this post entirely about any one specific condition.
"do you really have to talk about being disabled all the time?"
yes. yes i do. i promise that however annoying it is for you to have to endure the absolute agony that must be me making an offhand comment, or, on occasion, maybe actually talking about something that affects me for more than a few minutes at once, it is infinitely more "annoying" for me to have to actually live with the issues i talk about for every second of every day of my whole life. when i stop talking, you don't have to think about it anymore. but i always have to think about it. you get to put your full focus on something else, or, if the conversation is that annoying for you, you can leave! nobody is forcing you to stay. but talking about my problems is the only way i can get any support for them, and even when i stop, they are still there. i cannot "step away" from the figurative "conversation" with my pain. it is always talking to me, whether it be just a small whisper in the background or screaming at the top of its lungs in my ears, that pain is always there. so, while it's unfortunate that you are getting "tired of hearing about it," please do understand that i got tired of experiencing it a long, long time ago; do not destroy my one way to speak about my experiences solely because you do not wish to be made uncomfortable by them.
"do you really need that pain medication? won't you get addicted?"
in response to that, let me ask you this: do you really need that water you're drinking? aren't you afraid you'll get addicted to drinking water? it sounds ridiculous, i am aware. but i will break it down for you, now (as, in my mind, it is an adequate comparison). every human being needs things like safe, clean water, food, and some form of shelter to survive. however, the majority of humans can survive adequately with a reasonable amount of these items and will be able to function without major pain or other symptoms that detract from their general quality of life. some people, like myself, can have our basic needs of food, water, and shelter met, yet still experience major (or minor) pain, which cannot be blamed on a lack of rest, hunger, or thirst. therefore, in order to function the way society expects us to, and in order to not be quite as utterly miserable as we otherwise would, we may rely on other, stronger medications than the average person would, to manage that pain. these medications are medically prescribed, and we therefore have every right to utilize the resources provided to us. if i were to simply stop taking certain "non-necessary" medications, while my body would technically continue to function with the aid of my "necessary" medications, i as a person would not be able to function. imagine, if you will, the worst headache, joint pain, cramp, or other temporary ailment you have ever experienced. that probably wasn't a very enjoyable experience for you, was it? but you might've been able to use some ibuprofen or acetaminophen, maybe a heating pad, and after a little while it got better. now imagine if you tried to use those same things but the pain did not get better; imagine that pain lasting for months, even years on end, which you simply could not get rid of. a pain which you were expected to simply pretend was not bothering you, and continue to function the same way as everyone else, who was not in pain, was capable of. surely, in this hypothetical, you would want the (perfectly safe, legal, usually non-addictive) medicine that could make that pain even a little bit less excruciating? even if you knew that the pain would never fully disappear, not really, you would still want it to be less. so, i will take my medications, and leave you with the freedom to choose what you put in your body, just as i deserve the same freedom over mine.
"have you tried just exercising? eating healthier? meditation?"
the short answer is, for almost every disabled person i know, yes. though, granted that you've come this far, i'm sure you are prepared for the long answer, too. exercise can, for some conditions, help to alleviate or lessen certain symptoms. the key thing to note here, though, is that the exercise must be safe and selected specifically for the person based on how it may negatively affect them, as well. even activities that most able-bodied people regard as minor, such as going on a walk, can be draining, nausea-inducing, painful, and outright miserable for some people. i cannot, personally, go on a fifteen-minute walk on flat, paved terrain, in very pleasant weather, without triggering dozens of sensations that would surely make any healthy person worry that they were dying. when i tried to pick up an exercise regimen without professional help, i made my health several times worse. taking the advice of people who were, sometimes, genuinely trying to help, put me in serious danger. even when i did have a team of three doctors working on a plan for me, it took several rounds of trying and failing before we were able to determine what activities i could safely do, and which would be beneficial to me. now, being told to "just eat healthier" particularly irks me, because what foods i have to eat to maintain a more "healthy" balance of sugars, sodium, protein, and fat in my system varies quite a bit from that which a healthy person might be told is the ideal. i do understand that, generally, a low-sodium, lower-fat, mainly natural-sugar, high-protein diet sounds healthiest to a large percentage of people, the same cannot be said for myself. i have been told, by numerous medical specialists, that it is absolutely necessary for me to consume high amounts of sodium (think: eating salty food and snacks, on top of an electrolyte drink and salt pill every morning). i also deal with highly fluctuating blood sugar, which doctors cannot yet explain why it suddenly plummets (no, it is not diabetes, yes, i have been asked this dozens of times). as a result, i will often have to eat something "unhealthy," such as fruit snacks or a similar gummy candy, to get my blood sugar back up. is a high-sugar, high-salt intake diet generally what outsiders will see as healthy? of course not. but, as these are things i have to do to specifically manage my symptoms, it is always frustrating to be told that maybe they are symptoms i experience because of my diet. they are not. as for the types of people who insist that simply doing a guided meditation session each day can cure me of my dozens of health conditions, you are simply incorrect. while some people may experience a temporary psychosomatic alleviation of their pain in response to practicing mindfulness techniques, no one should ever urge another human being to substitute life-saving medication with guided breathing and essential oils. the two are simply not on the same level, and meditation does not, cannot, and will not help every disabled person deal with their symptoms.
"aren't you too young to be so unhealthy?"
no. and, while i do wish that people would not press further when faced with such a simple, clear-cut response, some people simply cannot grasp the idea that anyone under forty-five could possibly deal with any sort of health complications. people can be unhealthy at any age; even infants can have heart conditions, after all. while old age certainly has a higher correlation with deteriorating health, it is certainly not a reason to believe that, therefore, anyone who is not old cannot have poor health. believe me, i do wish that whenever someone older told me that i really am just overthinking things and lying to all my doctors and somehow faking things like MRI and X-ray results, those problems simply disappeared. unfortunately, things do not work that way, and by saying things like that not only do you invalidate the experiences of countless ill individuals, you (deliberately or not) paint us as bad people, when all we want to do is survive.
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calamityquellerei · 6 months
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i get rly annoyed when i say something about my disability and people twist my words so that they can relate when they obviously cannot
when i say im semiverbal i dont mean im verbal most of the time but have verbal shutdowns when overwhelmed. when i say im semiverbal i dont mean i have temporarily "gone semiverbal". when i say im semiverbal i don't mean i prefer/choose not to speak.
when i say im semiverbal i mean my mouth literally does not cooperate with my brain. all. the. time. i will have the concepts present in my brain but the words do not properly come out of my mouth. on an average day i talk in simple sentences, if at all. sometimes those sentences make little sense or are full of grammatical errors. on a bad day i talk in single words or sounds. and no for the last time i do not mean this in a "go semiverbal" way i mean this in an all the fucking time way. even on my best days you can still tell my speech isn't normal.
stop trying to force your way into relating to people whose experiences you don't fucking understand.
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paperstorm · 4 months
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“My mom sent me to rehab. There’s plenty of good places in New York but she sent me to the other side of the country because she decided that one was better. My dad dragged me to Austin. Picked my therapist for me, made me live in his guest room like a teenager. And both of those things were the right choice in the end so I guess it’s not fair to be mad at them either, but neither of them asked me what I wanted, first. Or what I needed. They both just put me where they wanted me to be, and then expected me to be thankful for it.”
Love your new Missing Moments but this made me want to strangle TK. The spoiled brat should be thankful! If Gwyn had asked him what he wanted at that time he would have gone back to his little drug den and probably be dead. If Owen had asked him what he wanted before moving to Texas he very likely would have ended up back on drugs again and would probably be dead. I love TK to pieces, but you can't ask a drug addict what they want because a lot of times they're not strong enough to say that they want or need help.
Well first, in a way that is fantastic, because something I love playing with in these stories is an unreliable narrator who is giving voice to his own perspective and perception of events even if the reader isn't going to agree with what he's saying.
But second, as a recovering addict (who does not speak for everyone who suffers from this disability but can give at least some form of a voice to it) every case is different because every person is different. There are cases for sure where without forced medical intervention, a person will probably die. There are schools of thought that forced medical intervention is unethical even in these cases – the idea that forcibly removing someone's bodily autonomy in any situation where they are not an immediate physical danger to other people is not an ethical move even if it results in that person killing themselves. There are other schools of thought that believe things along the lines of what you said. I think I personally fall somewhere in the middle.
But choice and autonomy and agency are important, regardless of where someone falls on that debate. It's important to addicts because they are, first and foremost, human beings. And no human being likes to feel as if their loved ones are not respecting their autonomy or are forcibly removing their agency, even or perhaps especially if it's done under the banner of this is for your own good. TK, as I had him state in the dialogue, is very aware that his parents’ interventions likely saved his life. He is, as he says in a later paragraph after the one you quoted, grateful for that. But that doesn't mean he isn't also resentful of the fact that they never bothered to ask what he thought he needed.
Often addicts are very crystal clear about what they need. Often what's standing in their way is the fact that they can't get what they need, not that they don't know what it is. An addiction like TK's, in which he was still able to manage a full-time and incredibly difficult and demanding job, means he was not so far gone that he was incapable of rational thought 24/7. He wasn’t legally incapacitated, he would have been capable of participating in the conversation had his parents wanted to include him in that.
Even giving an addict a small amount of agency over their own decisions can be instrumental in their recovery, because it allows them to retain some semblance of control and to feel good about the fact that they are making the decision to get better. As an example, Owen could have let him pick his own therapist. Gwyn could have said "going to rehab is non-negotiable. Here are three I have done some research on, you can pick which one you go to." (As a side note, this is exactly why I think it's so important that in 3x08 she walked away at the airport and let TK go on his own. Because if TK had gotten into that car and said “Take me to a bar”, the driver legally would have had to do so or else it would be kidnapping. TK could also have just stood there for 10 minutes and then booked a flight back to New York. It’s so important that at the very end, Gwyn let it be TK’s decision to go to the clinic. For the rest of his life he can look back and hang his hat on that. That his mom gave him a push, but in the end he chose recovery. That he did it for himself.)
Sometimes, you’re right, there are situations where people’s loved ones are right to step in and take over. I don’t blame Owen or Gwyn for doing it in either of these moments, that’s their son and he was killing himself and what loving parent wouldn’t do what they did? But two things can be true. The fact that they made the right choice (and again, my TK knows that they made the right choice) doesn’t erase the fact that part of him is resentful that he feels like they didn’t value his opinion or his needs – or even know what his needs were, since they didn’t ask. And that lingering resentment flared up again when it felt to him like Carlos was now another person not caring about his opinion or needs. Those feelings I think are valid, even if they aren’t perfectly fair.
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tavyliasin · 3 months
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Fandom Essay - Body Positivity and Validation
Good timezone darlings~ Lia is back at it again with some examination of BG3 Fandom and some more of the wonderful things we can find within it. This time we are talking about representation of different physical features. If you feel this might be a little much for you, either in regards to your relationship to your body or any potential dysphoria, please feel free to skip it. Second disclaimer that I will be mentioning trans and nonbinary people here from the perspective of a Cis person - this is absolutely not my right to speak for or over anyone so I thoroughly welcome the voices of those with lived experiences to join in the comments with their input, but I also did not want to leave the topic out of the discussion and you may just see why as we get into it~ So on with today's long title:
How FanWorks Can Be Important To Self Acceptance And Body Positivity - The Next "Callout Essay" from TavyliaSin (Who is calling herself out with these too) ((there are reasons it feels targeted I know where to aim)) (((but honestly it's fine it's all positive I promise)))
Today we will be discussing: body types, disability representation (only a little though, this one may need a full post of its own), body size, gender (and gender euphoria), scars and "imperfections", visible ageing. This will be through the lens of both the canon inclusion and everything we see in mods, edits, and fan creations of all kinds. As usual I will use sub headers and encourage anyone to skip what makes them uncomfortable, as well as to join the discussion~ so let's begin, shall we?
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What Does Body Positivity Mean?
Let's start off with the simple one. Body positivity doesn't mean promoting any one body type as the ideal or as better than any others, it is about being positive about the mortal flesh vessels we inhabit and all of their features. A lot of people can find this difficult, to love oneself or even just accept oneself, especially in a highly critical society. But that is where representation and even fan creations can step in - by being vocal and loud about appreciating features that people may feel negative about in themselves, we can help build up confidence and self worth, as well as reminding all of us that we do not have to look a certain way to be desirable and desired~
How Does This Relate To Baldur's Gate 3?
On the surface, we do have a lot of characters with more conventionally accepted body types in the main cast and romance characters, though it is worth noting that the base models were updated to be less "Hollywood muscles" on a couple of characters, which made more sense to the character stats and backstories (unless Gale was working out every day in his tower, he's not that much like a bodybuilder physique).
But aside from this, when you look closer, there's also an awful lot to appreciate in the standard character designs. A lot of these are things which fans pick up on and adore, despite how they may be features that people are actively bullied for or that are seen as undesirable by beauty standards. Those "beauty standards" can get in the trash too, but I'll use it here to point out the things we are shining a positive light on in the face of those societal values~ Karlach - Our tall queen, strong and muscular and not particularly feminine with her tattoos, piercings, and hairstyle. But she is adored for all of those things, even her broken horn is an important feature, alongside the glowing heart and fire that have some in the game view her as monstrous until they look closer and know her. Astarion - His laugh lines. Gods don't we love those? The wrinkles in his face are experience, and of course he has those signs of exhaustion in his eyes that make him so much more relatable to many of us. Lae'zel - This might feel like cheating as she's not human, and is less human-like than most of the other characters, but in a way that is also an important one. She's still desirable and treated as such in the romances, as well as very much adored by the fans. Gale - The little signs of ageing and stress mark Gale's face, and even the hints of greying in his hair are picked up on and chewed on by those who love him most. Wyll - More on him later but honestly is he not the poster boy for physical acceptance? Not only do we have his initial appearance with the stone eye but with one choice his entire body is completely changed and part of his story is arguably learning to live with this and how his new look is likely going to be seen as everything he ever feared. Halsin - Are we cheating with BIG TALL MUSCLE MOUNTAIN because many people find this attractive to start with? Maybe, but again he has clear signs of ageing, as well as very obvious facial scarring. His look might easily be described as fearsome, and yet his personality couldn't be further from it. Raphael - Hello there lovers of older men, who look at each one of those wrinkles and his brow lines and start sweating a bit more. I'm with you, he's gorgeous because of those signs of aging, not despite them. Abdirak - Our real poster boy for scars and visible wounds. Features which have long been given only to villainous characters in fiction (particularly that aimed at younger audiences) and yes he is one of the most violent characters, but he is also immediately deeply sympathetic to the player. So we are no longer equating scars/visual difference with pure evil. In general we have a lot of features that are not overly smoothed out or homogenised to fit certain standards. We have different nose shapes, visible pores, scars, acne marks, wrinkles, greying hair, moles, freckles, body hair, and a lot of variety across face shapes and features. It makes the characters feel more real, more relatable, and seeing features closer to our own can be comforting and validating in a lot of ways. Of course there are more examples, and far more we could say about each one of these and all the things that make them unique that we love about them, but we would be here all day and there are other topics to cover!
What About The Player Characters?
So we do have a range of fantasy races, many of which arguably don't represent real humans at all, and we do also lack variation in body types in the standard game. But we also have player characters with shorter statures with the dwarves, halflings and gnomes. Beyond just being part of the lore and story, there is some representation here for similar body types in real life. I can't say a lot on this as I neither have personal experience nor do I personally know anyone who could speak on how they feel about these races in comparison to lived experiences, but it would be equally unfair to leave the point out of the conversation - please do add something in the comments if you have the knowledge and emotional bandwidth to spare, I would love to hear about your experiences and opinions! Aside from this we have a wide range of skin tones (though my own is too close to plain paper to be able to tell you if this is anywhere near adequate so please feel free to weigh in with lived experience here) as well as scars and other features in the character creation. There's also vitiligo pigmentation, which is not only representing the condition but also normalising it to those who aren't familiar and making some rather beautiful options for our characters in my opinion. Even in the hair styles there are a couple of options featuring thinner hair or baldness patterns. There are less options for textured hairstyles and the facial features are equally limited, but there are some truly gorgeous mods out there which I'll mention later.
Player Characters And Gender
Another caveat to please weigh in with your lived experiences, but this one is one that I've seen friends enjoy and it was really wonderful to see that delight. Being able to select pronouns, genitals, body type, and voice all independently of each other is something which is so vastly meaningful to a lot of players. To some it might just be "oh cool I get to choose what my character looks like naked", but to a nonbinary friend of mine... Well, they were sending me happy, joyful, and what can only be described as "delightfully shouty" messages when they were in character creation. To paraphrase, and to tone it down just a little, it went something like this:
"Wait you mean I can have a character look and exist the way I want to be? I can actually have myself represented on screen, and nobody will misgender me, and nobody will decline a romance based on any of this?!"
Maybe it seems silly but I got tearful to see them just absolutely losing it over having these options. They've been stuck with binary options in most fantasy RPGs for so long... Of course there's still things that could be improved, there always will be, but that joy? Priceless. It meant something in that moment and I hope it will continue to mean something to a lot more people in many moments to come. Of course there are still flaws - the faces and bodies are still gender matched, and it isn't possible for people to refine the size and shape of player character chests. In some ways really what we have is the bare minimum, a start that needs to go further, but seeing as there have been precious few games in the genre to even reach this low bar it is good to recognise it, to say "this brought people joy and is worth the effort to make it happen", and to say "please go further because there is genuine interest."
What About Mods?
This is where we can see a lot more of that positivity flourishing. There are countless options, from having more hairstyles and hair types, to face shapes and features, all the way to body types and adding in top surgery scars. Giving the game the ability to be modded, and potentially even encouraging and supporting it, means we can see so much more of that body positivity and representation. Having a hero who shares your features, seeing romances play out where the characters are valued in every way just as they are. Being able to mod softer and wider body types to the Origin characters too, taking the form away from the bodybuilder/model physique and far closer to more average - and undeniably still devastatingly attractive - body types. Seeing the trans-Origin character headcanons portrayed too, that's just so utterly divine~ (There is a lot to be said about parallels to LGBTQIA+ experiences in the Origin storylines, too, so feel free to comment on those at the end if you would like to) To all of you out there making mods, and sharing the characters you've created using other peoples' mods - thank you! I adore seeing all of these, as well as people's happiness in sharing and using them too~
I don't even use mods, honestly darlings I'm not the best with tech at times and as I'm spending vastly more hours writing than playing it's likely not as worth it for me - especially when people share the modded content for us all to enjoy in videos and screenshots. But I love how many there are, that they exist, and all the ways they give people joy and euphoria to see their own body types and/or body types they find to be desirable~
But Wasn't This Post About Fandom and Fan Creations?
It was - and is! Because after all of the content you can get in the base game and in the modded version, what comes after is where the fans go with it from there.
That's truly where we get the most body positivity and joy. Headcanons leave the head and pour onto the page. We see characters reimagined a hundred times, each with their own twist, their own enthusiasm both from the creator and from fans just eating up every piece that comes out. There's so much variety there seems to be almost anything you could wish for with almost any character, and I can guarantee you that if there's something you'd like to see and aren't seeing out there, there will be an artist willing to work on the idea (most likely on commission basis, we do prefer to ensure our artists can eat after all, but there may be some willing to just adopt ideas to draw as their own too). This even extends to cosplay, with gender-swapped characters, as well as the one thing I will always be vocal about in cosplay - everyone should be allowed to wear the character costumes they love regardless of body types or how well their body/face matches the original character. Though this does come with the caveat that skin should never be darkened to match a character's look (if that character has a natural type skin tone, obviously green etc is not an issue) - just be your own version of the character if you adore them enough to put the costume together.
And your work?...
Thank you for asking Lia, let me answer that one for you. Of course, take it away, Lia! Ahem silliness aside, there is something you might or might not have noticed in my writing. I don't do a lot of body-type description. You can imagine whatever you like as you read - Gale with a soft tummy to snuggle? Yes please! Or you can imagine him with sculped abs, or a more slender frame - whatever brings you the most joy to read. This is especially true for anything I do with gender neutral character fics (usually "character x Reader"/2nd person pieces) - I try to stay away from any specific gendered features and focus on actions and sensations which can be common to any body.
How Does This All Add Up To Body Positivity?
Simple, love - by sharing and making all of these works we are saying "these features are beautiful, we love them, we want to see more of them as we fall head over heels time and time again". It might not seem like a lot, but the mind is both powerful and very easily open to suggestion. If a person keeps seeing negative things about a feature they have (eg, as a mild example body hair on women/feminine people) they will internalise that and wish to change themselves (eg, waxing/shaving/etc). In the case of a bit of body hair that might not seem drastic, but it still changes how someone feels about themselves. At the end of the day, the more we love ourselves the easier it is to look after ourselves and be happy in the mortal flesh vessels we pilot around this terribly strange universe~ For my part, I have seen my body shape which I had struggled with shown time and time again as "wow look at this character who looks this way, they are amazing! I love this feature, and that feature, and the way the artist made sure to include this particular thing-" Every time I see that, every time I see parts of myself I struggle with being applauded and appreciated, I feel a little brighter. A little more comfortable. A little more like I am allowed to dress it up nicely and spend time and care to feel good about it. I also feel less shame for old scars, for every part of myself that has made me look at the mirror with unkind eyes. Confidence is not a single brick, it's many that need to be built carefully with the right cement. If it is chipped away at too many times, even by little self-deprecating "jokes", it will erode. It will crack. It will wear away piece by piece instead of building up. And before anyone decides to try equating weight and health, darling this is not the place. If you truly care about someone's wellbeing, leave their health to the private discussions they have with their doctors, and remember that looking after oneself is far easier from a place of loving oneself. If you care about a thing, you want to look after it. If you see a thing as already broken, you're less likely to be cautious in how you handle it.
Where does this essay end?
Well, I believe that would be here. With the endless gratitude for every creator out there bringing us mods, images, fiction, art, cosplay, content of all of these wonderful characters in every incredible variation that we can think of. I encourage those of you who are feeling lower in confidence about yourselves to really look at the fan responses to these creations - the excitement and desire for every body type, every feature, everything that we might see of ourselves and dislike there are so many people out there seeing those exact same features we have and feeling nothing but attraction, desire, love, adoration, and praise~ We are often our own worst critics, but not one of those characters would ever reject us, neither are we rejecting any of our favourites when we see them on the screen. I certainly hope to see more games bringing us this variety, and going further too. There is power in fiction and fan-works, and it is helpful to recognise it too.
Apologies if this one felt too long, rambling, or like I lost my point - it was done over 3 days and I'm rather tired~ I have other essays coming in the next few weeks too, and I really would love to hear your opinions on any of them~
As a final note - please do add your own views and experiences on the topic! I can only offer my own as a disabled white cisgender asexual/bisexual/panromantic woman with too much time on her hands~ I neither wish to ignore experiences outside of my own nor speak over them. All I can offer is what I see, what I hear, and of course my endless love to all of you~ That, my very dear darlings, is never in doubt. I love you just the way you are, because of who you are, and will see the beauty in everything that makes up the sum of your wonderful selves~
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annymation · 3 months
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for the asks requests:
1: DARIO BACKSTORY NOW
2: I wanna hear abt bravo
3: Florian reaction to everything
4: SYMBOLISM. PLEASE. 🍽️
Oh I actually didn't expect for all of these to be asked all of the same time, as they're kinda long answers... Specially number 3. But I can work with that :)
I think you guys might really like what's down here:
1- What Did Dario Not Tell Them At The Campfire
So when asked if he had any bad experiences with the king, Dario just answered he'd rather not talk about it. The reason isn't because Magnifico did something to him directly, but rather indirectly. See, Dario's dad is the royal announcer and his mother is a singer, both jobs that require their voices, and they value their voices a lot, while Dario was born with a speech impediment.
One day, Dario overheard them talking in their room, and they said how they hoped when Dario turned 18 he'd wish for the king to give him a voice.
Now, to some that may seem like a good wish, "who wouldn't want to have a voice?" you may ask, thing is that most disabled people don't want to be changed, what they want is to be accepted. Obviously though I can't speak for the whole ASL community, however I did study the basics of sign language in college, and my teacher, who is deaf, taught us about deaf culture, and how you shouldn't assume someone WANTS to be like you, to be "Fixed".
Dario didn't want to change himself, but in that moment he felt like his parents saw him as someone broken and hoped the king could fix him...
So yeah I didn't have him explain all that because it's way too depressing even for me.
2- Where Did Bravo Come From
A more wholesome little story with our faaaaaaavorite evil duo! Yay!
So, Amaya often goes to the woods to get ingredients for her potions, mushrooms, herbs, animal parts, you name it. She goes alone, just wearing a hooded cloak so she's not recognized.
One day, during her foraging, she heard a sound coming from behind her:
"Miirrrau!"
It was a quiet, growly meow
And she kept hearing it over and over, like it was asking for help. Now although the queen has a heart as cold as ice, she felt moved by the tiny cries, so she followed them into the woods.
And here's what she found:
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"Awwwwwwwn~" Her iced heart melted at the sight of what she thought was a little kitten "Are you lost, little one?"
"Miaurrr!" the kitten had a weirdly growly voice, but still high pitched like any kitten, he seemed to be scared and lost, looking for him mom
"Don't fret, you're safe now" she takes him and puts him in her basket full of mushrooms "I'll take you to your new home. Heh heh heh my love will have quite the surprise when he sees you"
So she goes back to the palace, Magnifico is busy changing some wishes when she arrives
"Daaaaarliiiiing~ Look what I found in the woods today!" She says showing him the kitten
Magnifico looks quite surprised, although he has seen Amaya do some REALLY messed up things, he never thought she'd use a whole kitten as a potion ingredient
"Hmmm... How nice dear, but uh- If you don't mind me asking- What kind of potion requires a kitten sacrifice?" He asks smiling, trying to be supportive of her weird hobbies
"SACRIFICE???" She holds the kitten close to her, looking very offended that her husband would imply that "I don't want to kill him! I want to keep him!"
"OOOOOH I see, I see. That makes more sense" The king says kinda relieved
(They have murdered and ruined the lives of millions, but they draw the line at killing a kitten)
"Well then, if that's your desire then he's all yours, my beldam. But don't expect me to take care of him as well" He said
And that basically went like one of those "Dad said he didn't want the dog" memes, because Magnifico really liked the cat and took care of him just as much as Amaya.
They named him "Bravo" because it's both what you say to cheer for someone after a performance, and their whole thing is that they're constantly acting to their people, and also means angry in Spanish, and the kitten often looked grumpy.
But as time went on, and Bravo grew... They noticed he just wouldn't stop growing. And soon enough they realized... That wasn't a cat, that was a lynx.
And thats how the situation went from good to GREAT!
Like, they just raised their own killing machine without even knowing it was a killing machine, they were beyond ecstatic, they were running around like "YES YES YEEEES!!!" ya feel me?
3- How Florian Reacts To Everything
Now, to answer this one, I'll tell you a story... About something that happened in the chapter "Into The Eye Of The Storm".
Something that happened from Magnifico's perspective... After he got struck by lightning.
So let me set the scene.
...
He felt excruciating pain he never imagine possible course through his body, and light was all he could see.
Until it wasn't.
Everything went black.
Magnifico shot his eyes open, and all he could see was a dark emptiness surrounding him, and feel water beneath his feet.
The king looked around completely lost, one moment he was in the storm with that star, and in the next he was here... His staff wasn't with him, he was powerless.
He hears a voice
"Huh... Took much longer than I would've liked, but oh well, looks like you finally got what you deserved."
Magnus gets startled by the voice coming from all around him, but tries to hide his fear by masking it with anger "Who's there?!" he demands to know
"Really? After just 25 years you've already forgotten my voice?" The youthful but voice says, bitterness dripping from his tone. Magnifico's eyes widen as he indeed starts to recognize the voice... The voice he celebrated he'd never would have to hear all those years ago. The figure starts to manifest itself in front of him as it says "But then again, you never were the type to listen much, were you, Mag?" Florian calls him by the nickname he used to affectionally call his older sibling.
Magnus sees his younger brother floating in front of him, but the expression on his face is one the king has never seen before. Florian was always happy, always kind and sympathetic, innocent, he was like the personification of sunshine itself. Now? Now his expression was so full of hatred, hiding behind a mocking smile, like Florian has been waiting for this a long time.
"See you grew a beard heh heh you look just like dad" The spirit jokes
Magnifico is staring at the apparition before him with wide eyes, his mind is racing, trying to make sense of any of this, how could he go from fighting with the star to thi-... Wait... He remembers something he read about wishing stars, they have the power to give people dreams... He must have been knocked out and the star is trying to play a trick on him... Yeah, that's gotta be it.
He smiles thinking he just figured this all out "Hahah guilt tripping? Really? Didn't think that was your style, Aster, I'm almost impresse-"
"You died." Florian just gives it to him straight.
Magnifico freezes.
"You flew too close to the sun brother, or rather, too close to the storm." The spirit explains, and starts to float circles around his older brother "And soon, your soul will completely leave this plane, and I will finally rest in peace knowing MY people are free from you." The spirit speaks almost spitting on Magnus face, emphasizing how the people of Rosas are his people, his kingdom that Magnus stole.
But the older brother is almost blocking out the sound of his voice, too busy processing that if what he's saying is true then... "Amaya... It can't end like this, I can't leave her no-"
"HAH! That's what you worry about? That wretched witch?!" Florian now has a mocking smile on his face, it's a smile Magnifico has never seen from his caring little brother in life... It doesn't even look like him anymore.
"DON'T YOU DARE CALL HER THAT!" He yells, now starting to accept that yes, that is indeed his brother's ghost, and he's enraged to see him again.
"Pretty sure I get to call the woman who poisoned me whatever I want." Florian says nonchalantly
"Tsk not our fault you made it so easy" the older brother smirks, trying to come out on top of the situation "I mean, a random mystery woman shows up out of nowhere, and you just invites her to be the royal potion maker? What did you think was gonna happe-"
"I thought you'd finally be happy." Florian interrupts him with a serious expression, Magnus stops talking and stares at him confused, so Florian continues "When you first locked eyes with her, I saw a spark in you... A gleam of happiness you never shown in all the years we lived together... I knew you were in love with her... THATS why I let her stay." He explains with every word dripping with bitterness "I thought "Finally, my big brother won't be so lonely and angry all the time! Love will surely make him move on from the fact he wasn't meant to be king!"" Florian makes a slightly more high pitched and cheerful voice as if to mimic how he used to sound like when he was alive "Hahah It's quite the tragic comedy, ain't it? I helped in your union... Unaware I was digging my own grave."
"... And do you think I care? We would've ended up together regardless. And I would take the crown that is RIGHTFULLY MINE regardless of whatever you did!" Magnus exclaims. If he's really dead and this is just the limbo between the land of the living and the after life, then he might as well take this opportunity to let out everything he wanted to tell his little brat of a brother all those years "The throne was MY RIGHT! But he said "NoOooO son! You must learn magic! So you may grant their wishes" WELL what if I don't WANT to grant all their whiny little pleas, like I'm some kind of SERVANT?! I wanted to follow my own path! I dreamed of being a good king! But then YOU showed up!"
"Sorry for being born, I guess" Florian says sarcastically
"YEARS watching them give you everything I ever wanted... I was pushed aside like I was NOTHING." Magnus sounds more and more deranged as he begins to smile sadistically at his brother "WELL GUESS WHAT! Now I "grant" more wishes than YOU and all of those old fools EVER DID! The people ADORE ME! And no one even remembers you!" Magnus spats out like he just won this argument, Florian is raising one eyebrow, looking at him like this is quite pathetic. The older king walks closer to him with a grin "So, how does it feel huh? Knowing your legacy will forever be "Just King Magnifico's little brother that fell ill and died""
Florian looks at him serious for a moment, before smiling confident again "I never did it to be remembered, I did it because I wanted to make my people happy, and I can rest easy knowing I did just that... While you lived a meaningless life, trying soooo desperately to make everyone love you, hoping that would make it up for the years you were ignored... Did it work?" Magnus looks shocked by those words, he tries to respond but Florian doesn't let him "Of course it didn't, you'll never be satisfied. And now, as if making my people suffer all these years wasn't enough, you try to steal the magic of a star, but oh-oh that didn't work, it got you killed in the most foolish way possible!... Now it won't be long until people find out the truth, then NO ONE will "Adore you" nor "Remember you"." Florian smiles widely as he asks "So, how does it feel huh? Knowing your legacy will forever be... Nothing."
Magnus has no words... His brother had never spoken to him like that... No one has ever spoken to him like that.
Florian looks satisfied, but he already know that... Unfortunately, Magnus time hasn't come just yet
"*sigh* Karma really does work in mysterious ways... Looks like the witch comes to your rescue, Mag... Again." Florian says with his arms crossed.
Magnus doesn't understand what he's talking about "Wha-"
"When you get back, if you even remember any of this... Tell Amaya that I lied, her tea tasted terrible." He says with a cheeky grin while waving his brother goodbye.
Magnus feels him sink into the water beneath his feet. He screams and-
His eyes are shot open.
He gasps for air.
Amaya brought him back from the dead with her kiss.
...
So yeah, that's dead Florian, his personality is waaaay different when he was alive by the way, but I enjoyed writing someone that can spit some facts on Magnifico's face.
4- Symbolism
I've wrote a whole lot in this, so I'll just end on a simple note:
I like the symbolism of Asha's family always being with her, from her wearing her mother's cloak and her ability to draw being what saved her, to her singing to inspire the people like her father, and playing her grandfather's mandolin, it really feels like even though they weren't THERE they were essential characters in her journey. And I'm proud of this little detail.
There's more juicy symbolism but now I'm exhausted from writing because MY GOSH Florian was intense, I really got into the mindset of a 20 year old that got murdered by the brother he once admired and I don't feel well. OOF. Imma take a break lmao
Thank you for the ask and
Thank You For Reading!
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utilitycaster · 1 year
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oh PLEASE elaborate on your thoughts about why people say Brenann's hogging the spotlight after you're back from work 👀
This is actually a very long answer, because morning me is someone with the bright sun shining behind her and a full cup or four of coffee who does not think of the consequences of her actions, so it's below a cut.
I think the first reason is something best described as cultural but in a very specific way. Like...the bulk of actual players we talk about are people who have, just by default, spent a lot of time in a handful of cities in the US where there's a significant entertainment industry presence, and for D20 they've specifically been comedians. I say this to set a particular scene: I almost never get it when people think the cast of an actual play show is angry at each other, or that people are being too pushy or that the humor is off. I suspect this might be cultural; I am from the urban Northeastern US and my mom grew up in Los Angeles and I have three siblings, and so a lot of what people clock as aggression or unkindness reads to me as simply banter or straightforwardness or decisiveness, all of which I see as very positive things. I mean obviously there is a such thing as inappropriate humor, bigotry and jokes at the expense of other groups and so forth, but most of what I see in actual play I watch/listen to is just, as NADDPod puts it, taking your friends to the raspberry patch. It's good-humored teasing. Anyway I think Brennan is very willing to engage with that banter and that decisiveness (and like, he spent a lot of formative time in New York City which I'm sure is an influence) and I think that reads to people who are uncomfortable with it as aggression.
Someone who took more linguistic anthropology or sociology than I could probably explain this better but it's just like...as a person I find the rapid-fire and heated but good natured heckling on D20, or Sam's satirical ad reads, or bold moves in any D&D game, or the arguments on NADDPod D&D court to be very normal and enjoyable, and I find hesitation and hedging and uncertainty and "are you sure?" and endless check-ins to be very negative and anxiety-inducing and draining.
With that said I don't think Brennan is particularly egregious (Evan Kelmp is the one case where I think this is a valid criticism, but even then I didn't find him an ungenerous player, merely one who by design was going to occupy a certain position) so I think that brings me to the really delicate part of this conversation.
I've mentioned this in the past but I think a lot of the actual play fandom on Tumblr suffers pretty severely from what's been labeled "the soft bigotry of low expectations." I've been vocal quite specifically when it comes to misogyny and how the agency of the women of the cast is treated as true only when convenient, because I feel that as a woman I'm able to actually speak on those terms, but I think it's true across the board. Essentially, this means that the bar is (often unconsciously) set lower, or people overly applaud, to a perhaps even condescending degree, people from minority or underrepresented groups. It is not, to be clear, having DEI programs or helping people be in something (in this case...popular actual play) in the first place and acknowledging structural inequalities that might make the path more difficult; it's instead assuming that once they get there they'll never be quite as good, or being surprised when they are. I think the most classic example is the overuse of the word "eloquent" to describe Black speakers, as it often comes with this connotation that being well-spoken is something the person providing the compliment didn't expect. You know, if you're an adult with no significant cognitive or physical disabilities and someone compliments you for tying your shoes, it's pretty fucking insulting. That's what we're talking about here.
The way this manifests in the fandom is that there's really no room to provide criticisms that are not motivated by bigotry. I'm a critic by nature, and there's a general veneer of obnoxious insistence on positivity across the board in this and many fandoms, but, as I've said many times before (and to be fair it's getting better) the pushback people receive for completely valid criticisms of Marisha is intense. I've mentioned that I've had issues with story pacing for Brennan, Matt, and Aabria as DMs at different points, and the backlash for Aabria was the strongest even though the criticism was by no means the harshest. There is a certain degree of nonstop fawning that at times occurs that doesn't actually permit engaging with characters or discussing the actual strengths of the actors, and which often wraps around into something insulting; see the "Emily, breaker of DMs" nonsense that's finally getting called out. Because it's not a compliment! Part of why Emily is such a good player is that she is immensely collaborative and makes characters who will help with party composition, and she self-identifies as a big fan of DMs, and treating her (or like, anyone) as a perfect force of nature rather than a thinking person who makes decisions, some of which are good and some of which are bad, is not praise! It's not praise to exclude someone from valid criticism; it's treating them as lesser, to do so.
For a number of reasons I am a person who is not generally stopped by this, but a lot of people understandably aren't, or are deterred even by that more general need for nothing but praise...except constant praise starts to become meaningless, and more importantly, people sometimes have negative feelings about a show! Maybe a character they liked died, or their predictions didn't come true, or their ship didn't happen, or they're just not very interested in a specific plot. But it's impossible to actually pick apart what isn't working for them, because there's this environment where, if you start asking questions, the answer might be "I don't like the choice a player who is a woman, or nonwhite, or queer, made, and how it weighs upon the story." And so, and this is where I am treading so lightly, I don't think the issue in the fandom or TTRPG is "oh the poor straight white men in D&D", because that's obviously fucking ridiculous, but I do think that if you block off any criticism of anyone else, it lands somewhere, and it's often not actually justified.
The example I actually have in mind more often is Sam Riegel. I've made some pretty harsh criticism of Sam and some of his characters in the past, but it has always been very much about his choices. But every single time I've gotten some weird (and uh...very uncomfortable, frankly) venting about Sam's sense of humor. I have never really focused on his sense of humor as the problem. I like it. I find it extremely relatable. At the risk of using the bigotry script again, Sam is, in fact, of the same ethnicity and region of the US as I am (ie, northeast US Ashkenazi Jewish) and when people act like his humor is discomfiting it's like a neon sign that to me reads "I HAVE NEVER MET SOMEONE FROM YOUR CULTURE," which on the one hand, not necessarily their fault, but on the other, does not feel great to have someone on anon venting to you while this sign is staring you in the face.
But that is a different point - my point is that I feel like there's this...seething magma of discontent sometimes, that has built up because there is an attitude that criticism is to be avoided at nearly all costs. And when it must be vented, there are only a small handful of acceptable targets (ie, the cis straight white men, although among the CR and D20 casts, Taliesin and Zac both get a decent amount of this despite Taliesin not being straight and Zac not being white), so the criticisms that come out are often excessive for the infraction (Brennan, a famously wordy guy playing a literal college of eloquence bard, turns into "Brennan is a spotlight hog" despite him being a player who is enthusiastically yes-anding everyone at the table), flat-out misdirected (my criticisms of Sam's mechanics are treated as an invitation to talk about a dislike of Sam's jokes) or just straight up bile (I am quite frankly never forgetting the somehow popular post that said Travis was too stupid to play a druid; it really was a breaking point where I said oh this positivity is all fake as hell, huh.) And eventually these criticisms become the "safe" and "accepted" ones in the fandom. Which is also bad because like, at this point, those three examples are to me just signals of someone saying "I'm not happy but it might not necessarily be at all related to this." And it is possible that someone might genuinely not enjoy Sam's sense of humor, or think Brennan is hogging the spotlight (though I disagree), but I struggle to believe them because these are just the well-worn codes, devoid of their actual meaning. I also think it's notable these all squarely blame people and not just like, "I don't vibe with this choice and no one is specifically at fault" but that's also a whole other post.
This is of course not to say that there isn't also actual bigotry within the fandom; looking at that person who freaked out about Utkarsh wearing a sweatshirt and not having an encyclopedic knowledge of the divine soul sorcerer class, or the person who called Deni$e unpleasant and abusive in the main tag, rather than simply saying their characters were not for them. Nor does it mean that you can't have criticisms of Brennan, or any of the many white guys in Actual Play, because my point is that thoughtful criticism based on what's onscreen is what I live for, and no one is exempt. But I think most if not all people saying this about Brennan are mad about something else in the Ravening War.
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bewires · 1 year
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sometimes I see posts going around about various life skills, asking "why don't we teach this in schools????"
and they give me such complicated feelings
because the answers are long and complex imo. like, people are not wrong to demand they get taught how to cook or file taxes or build a shelf or fix a car or whatever, but it's not a cut and dried issue of "this thing should be taught and schools won't do it". and because this is my blog I will proceed to enumerate the reasons I see for it.
schools do actually teach most of these skills. maybe not how to file taxes but many life skills, there is a school class to cover it. Home economics notably teaches a lot of skills not only surrounding cooking but also literally household economics and working with money. However, these classes tend to be electives, so not everyone has the opportunity to take them.
why are such important classes electives? well, I can only speak to the german education system, but it's because the core classes required for different degrees are different. If you want to go on to university someday there is no space in your schedule for life skills classes like home ec. Although if you are in an integrated school you will at least get classes specifically on resume building and work etiquette.
A secondary reason these classes are electives is a lack of qualified teachers, because skillsets in the home improvement and home ec area are universally viewed as being "low skill" areas and teachers trained in those areas tend to learn less.
This is bad. It is a bad thing. It is also a thing no one in educational policy seems at all interested in changing, currently everything is about expanding digital education and enabling more students to learn more and achieve higher degrees. Home ec and home improvement classes are currently seen as the last vestige for the academically ungifted. This is the only place where students with learning disabilities flourish; this is where "unteachable" students go. The skills learned in these classes are utterly undervalued by the state as a whole.
actually, a subject of MUCH debate in the german school system currently is "how much education on basic life skills can we reasonably assume happens in the home?"
Because, you see, as educators we are in the awkward position of both educating and, to a certain extent, helping to raise young people. And when we help to raise young people, we aim to work with their parents cooperatively. However, in recent years, a frequent lament in staff rooms and in actual teacher training seminars is that "parents aren't raising their kids properly anymore" and "we're having to teach them basic social/life skills". To some extent I think these conversations have always happened, but there is a microdose of truth in there somewhere, which is that over the course of the last forty-fifty years we have gone from an economy that allowed for a single-earner household with one parent raising kids full-time to an economy that does not allow for that, meaning the role previously filled at home teaching home life skills often goes missing
This is not to say everyone always had a parent teaching these skills, obviously that is not true. These days we just have a lot more kids with less teaching happening at home in a statistical sense.
Schools, however, were founded with the sense that their dance area is everything academic while family covers life skills, and to take over that area might be presumptive/create conflict.
tl;dr "we should be teaching cooking in schools!!!" - yes, we should, but in order to do that we have to a) dismantle years of prejudice against practical learning as not academic and not rigorous, and b) institutionally clarify that this is an additional skill schools are responsible for teaching, and provide funding and time because I cannot stress enough that we do not have the funding and time for everything we're already doing
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halfagone · 2 years
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What would Danny do for work?
I have a quick question to my fellow Danny Phantom fans... When you imagine Danny picking a career/job, what do you headcanon for him? And this is if he can't- for whatever reason- be an astronaut. This is a hypothetical question, it's not- like, going to affect any of my stories in the future or anything *chuckles nervously*
For me, it's always depended on the headcanon I choose for any particular story/AU. But that gets complicated when I have multiple headcanons that could offer opportunities for him.
For example:
Astrophysicist/Aerospace Engineer - He can't be an astronaut, but that doesn't mean he can't still do some kind of work that involves his love for space.
Engineer - In a similar vein, he could be a regular engineer. Especially if he takes after his dad, Jack, more and maybe even creates his own prototypes and inventions.
In a subset to engineer, in my story weekend wonders, Danny is majoring in biomedical engineering. This is because in this AU, the accident gave him chronic pain, and that's how he gained an interest in this field. This could also work great if he gets attention from the Justice League in a DP x DC crossover, or the Avengers in a DP x Marvel crossover; Danny could just as easily work with heroes who have disabilities or chronic pain from many decades of work as heroes. It helps that he personal experience with the same struggles, after all.
Translator - If you headcanon that Danny can understand a lot of languages (or maybe even them all) due to ghost speak, then Danny could totally use this to his advantage with work. Plus!! This offers many different avenues that could be used to your advantage. Want Danny to be connected to the UN in some way before debuting as Ghost King? Have him be a translator that works there. Want Danny to be busy often with his royal responsibilities/ghost fighting? Have him be a translator; he can work remotely or stay self-employed/on contracts.
Teacher - Danny doesn't have great experience with educational staff, so I could imagine him going into this field of work due to nothing but spite. And! He could teach ectobiology, or just ghosts in general. He could do so many topics: Biology, government, history, hell he could do a whole semester on how physics work in the Ghost Zone.
Blacksmith/Ironsmith - Okay, this one is more self-indulgent, but imagine if Pandora teaches him how to fight with a sword and then he gets obsessed with the sword itself that he wants to make one that's perfectly suited for him and this just dominos into going full-blown into this field. (Trade skills are still important, and sadly, don't get as much attention even when they can usually offer fairly decent pay without the thousands of dollars worth in student debt.)
Writer/Author - If you wanted him to be more artistic, he could be a freelance author/novelist or something similar. I feel like being an author would be one of the better choices for him because, again, if you were writing a story where Danny would be busy with a lot of other responsibilities, then he could largely work on his own schedule. Plus! I can totally imagine him hanging out in Long Now with Clockwork when his head is just full of ideas for a story but he wouldn't have the time to write it otherwise. So he kind of uses Long Now to get that time, but he can promise it's for a good cause, stop laughing, Clockwork!
Actor - I really love the concept of Danny being an actor, just for the laughs if nothing else. While this could be a pain if Danny does actually get famous, since that's a lot of media he would probably prefer not to deal with, the concept alone offers a great deal of shenanigans. And... if he does get a good movie deal, he could very well be set for life afterwards. He could be one of those one-hit wonders in television or something.
If anyone has other possibilities, feel free to add! My head is constantly spinning with even more ideas, I might just add some myself.
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