questions i am sick and tired of hearing as a chronically ill and disabled person (and why i hate them)
this did wind up a bit longer than i expected it to, but by all means, feel free to add on with any questions you hate to be asked (and why!)
abled people, please do refrain from overtaking this post, and, disabled people, please do refrain from making this post entirely about any one specific condition.
"do you really have to talk about being disabled all the time?"
yes. yes i do. i promise that however annoying it is for you to have to endure the absolute agony that must be me making an offhand comment, or, on occasion, maybe actually talking about something that affects me for more than a few minutes at once, it is infinitely more "annoying" for me to have to actually live with the issues i talk about for every second of every day of my whole life. when i stop talking, you don't have to think about it anymore.
but i always have to think about it. you get to put your full focus on something else, or, if the conversation is that annoying for you, you can leave! nobody is forcing you to stay. but talking about my problems is the only way i can get any support for them, and even when i stop, they are still there. i cannot "step away" from the figurative "conversation" with my pain. it is always talking to me, whether it be just a small whisper in the background or screaming at the top of its lungs in my ears, that pain is always there.
so, while it's unfortunate that you are getting "tired of hearing about it," please do understand that i got tired of experiencing it a long, long time ago; do not destroy my one way to speak about my experiences solely because you do not wish to be made uncomfortable by them.
"do you really need that pain medication? won't you get addicted?"
in response to that, let me ask you this: do you really need that water you're drinking? aren't you afraid you'll get addicted to drinking water? it sounds ridiculous, i am aware. but i will break it down for you, now (as, in my mind, it is an adequate comparison).
every human being needs things like safe, clean water, food, and some form of shelter to survive. however, the majority of humans can survive adequately with a reasonable amount of these items and will be able to function without major pain or other symptoms that detract from their general quality of life. some people, like myself, can have our basic needs of food, water, and shelter met, yet still experience major (or minor) pain, which cannot be blamed on a lack of rest, hunger, or thirst. therefore, in order to function the way society expects us to, and in order to not be quite as utterly miserable as we otherwise would, we may rely on other, stronger medications than the average person would, to manage that pain.
these medications are medically prescribed, and we therefore have every right to utilize the resources provided to us. if i were to simply stop taking certain "non-necessary" medications, while my body would technically continue to function with the aid of my "necessary" medications, i as a person would not be able to function.
imagine, if you will, the worst headache, joint pain, cramp, or other temporary ailment you have ever experienced. that probably wasn't a very enjoyable experience for you, was it? but you might've been able to use some ibuprofen or acetaminophen, maybe a heating pad, and after a little while it got better. now imagine if you tried to use those same things but the pain did not get better; imagine that pain lasting for months, even years on end, which you simply could not get rid of. a pain which you were expected to simply pretend was not bothering you, and continue to function the same way as everyone else, who was not in pain, was capable of.
surely, in this hypothetical, you would want the (perfectly safe, legal, usually non-addictive) medicine that could make that pain even a little bit less excruciating? even if you knew that the pain would never fully disappear, not really, you would still want it to be less.
so, i will take my medications, and leave you with the freedom to choose what you put in your body, just as i deserve the same freedom over mine.
"have you tried just exercising? eating healthier? meditation?"
the short answer is, for almost every disabled person i know, yes. though, granted that you've come this far, i'm sure you are prepared for the long answer, too.
exercise can, for some conditions, help to alleviate or lessen certain symptoms. the key thing to note here, though, is that the exercise must be safe and selected specifically for the person based on how it may negatively affect them, as well. even activities that most able-bodied people regard as minor, such as going on a walk, can be draining, nausea-inducing, painful, and outright miserable for some people. i cannot, personally, go on a fifteen-minute walk on flat, paved terrain, in very pleasant weather, without triggering dozens of sensations that would surely make any healthy person worry that they were dying.
when i tried to pick up an exercise regimen without professional help, i made my health several times worse. taking the advice of people who were, sometimes, genuinely trying to help, put me in serious danger. even when i did have a team of three doctors working on a plan for me, it took several rounds of trying and failing before we were able to determine what activities i could safely do, and which would be beneficial to me.
now, being told to "just eat healthier" particularly irks me, because what foods i have to eat to maintain a more "healthy" balance of sugars, sodium, protein, and fat in my system varies quite a bit from that which a healthy person might be told is the ideal.
i do understand that, generally, a low-sodium, lower-fat, mainly natural-sugar, high-protein diet sounds healthiest to a large percentage of people, the same cannot be said for myself. i have been told, by numerous medical specialists, that it is absolutely necessary for me to consume high amounts of sodium (think: eating salty food and snacks, on top of an electrolyte drink and salt pill every morning). i also deal with highly fluctuating blood sugar, which doctors cannot yet explain why it suddenly plummets (no, it is not diabetes, yes, i have been asked this dozens of times). as a result, i will often have to eat something "unhealthy," such as fruit snacks or a similar gummy candy, to get my blood sugar back up.
is a high-sugar, high-salt intake diet generally what outsiders will see as healthy? of course not. but, as these are things i have to do to specifically manage my symptoms, it is always frustrating to be told that maybe they are symptoms i experience because of my diet. they are not.
as for the types of people who insist that simply doing a guided meditation session each day can cure me of my dozens of health conditions, you are simply incorrect. while some people may experience a temporary psychosomatic alleviation of their pain in response to practicing mindfulness techniques, no one should ever urge another human being to substitute life-saving medication with guided breathing and essential oils. the two are simply not on the same level, and meditation does not, cannot, and will not help every disabled person deal with their symptoms.
"aren't you too young to be so unhealthy?"
no.
and, while i do wish that people would not press further when faced with such a simple, clear-cut response, some people simply cannot grasp the idea that anyone under forty-five could possibly deal with any sort of health complications.
people can be unhealthy at any age; even infants can have heart conditions, after all. while old age certainly has a higher correlation with deteriorating health, it is certainly not a reason to believe that, therefore, anyone who is not old cannot have poor health.
believe me, i do wish that whenever someone older told me that i really am just overthinking things and lying to all my doctors and somehow faking things like MRI and X-ray results, those problems simply disappeared. unfortunately, things do not work that way, and by saying things like that not only do you invalidate the experiences of countless ill individuals, you (deliberately or not) paint us as bad people, when all we want to do is survive.
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I'm sure this has been talked about plenty but I'm still awestruck at how well Frieren handles Himmel and Frieren's relationship. I have never seen the 'character haunts the narrative' story beat done to such effectiveness.
Frieren's regret is that she didn't know Himmel before he was gone- but he exists in everything Frieren does without her fully realizing it. Frieren is a fundamentally different person and we *know* it is mostly thanks to Himmel's influence. The constant flashbacks, the way in which Frieren's logic and everyday routines have been altered by his memory. She collect spells because he and the others complimented the mundane, random spells she had found. The way that instead of her master, Himmel is the person who the monsters choose to immitate.
The flashbacks too, are so so potent in characterizing who Himmel was- not only in regards to Frieren, but in regards to Himmel as the hero. The person who lead his group to kill the demon king. The person who did everything in his power to help those around him. The person who was so clearly in love with Frieren but understood intimately that Frieren would not love him in the same regard and even worse, would be walking a very long and lonely path.
Hell, it's at the start of every chapter, in which time is only kept by the years before and after Himmel's death.
It all comes back to him, in the end
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