Holy shit guys. Only some weeks ago I was feeling absolutely worthless and now I got my first real illustration job on the horizon, PLUS I got accepted for an art residency so basically I will spent one month making comics in FUCKING MARSEILLE AND I WILL RECEIVE FUCKING MONEY FOR THAT????!!
Oh nothing I just got Elijah Woods autograph through a virtual con AND HE PUT A HEART
(I already had his autograph from a convention YEARS AGO but I just bought that one from a stall because I couldn’t physically meet him and thats a whole other story) but wow I’m literally gonna cry I love him so much <3
Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
good omens the book, 1990: see, queen is so ubiquitous in london these days that if you leave a tape in a car for too long, it'll inevitably morph into a best of queen tape. which is why their megahits are playing in crowley's bentley all the time! isn't that a funny and topical joke?
good omens the show, 2019-2023: yeah crowley's car has a hands-free call system and also only plays cassette tapes. yeah it's whatever don't think about it. what's an incredibly earnest and passionate queen love song we can play during this scene where crowley tries urgently to reach aziraphale
just learned that the mechanisms song "frankenstein" was originally conceived as part of a set along with adaptations of dracula, dorian gray, and jekyll & hyde. don't try reaching me, I am in mourning for what could have been.