#disabled (multiple sclerosis) | Explore Tumblr Posts and Blogs

smoov-criminal · 11 months

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happy disability pride month to those with conditions no one talks about, online or in general:

multiple sclerosis (me lol)

marfans

cerebral palsy

bells palsy

hidradenitis suppurativa

cauda equina syndrome

mixed connective tissue disorder

hyperadrenergic pots

non hypermobile eds types

stickler syndrome

mitochondrial disease

cystic fibrosis

sickle cell disease

myasthenia gravis

post-cholecystectomy syndrome

SWAN (syndromes without a name)

...just to name a few. i see you and you deserve awareness and understanding.

this list is non exhaustive, rb with other conditions you want to see represented!!

[ID: a post banner with dark red background and medium grey bolded text in the center. it reads “This post is about physical disabilities, do not derail.” On each side there is the dynamic disability icon, a gray symbol of person in manual wheelchair leaning forward with arms bent behind them mid-push. /end ID]

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gayaest · 9 months

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Lishai 🌈🌸♿️🩷🪴 [ID in alt-text]

He has PPMS and uses an intermittent catheter! There is way too much stigma (from both disabled and non-disabled people) about incontinence, catheters, and bladder issues. It’s not “gross”. The only “gross” thing is being judgmental of disabled people for something they cannot control and keeps them alive.

#my art #art #original characters #disabled artist #disabled characters #disabled oc #wheelchair user #catheter #ms #multiple sclerosis #illust #illustration #babe with a mobility aid #disabled and cute #wheelchair

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rebirthgarments · 1 month

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TW: Chemical w-rfare, Ab-rtion

Urgent Ask to evacuate Nara, a 🍉 disabled woman with MS who also has pancreatic cancer due to chemical w-rfare.

Support by financially contributing to her @FedUp4Palestine vetted funhnd-raizer (that I personally vetted): givebutter.com/NaraMedicalAid

+ resharing/ reposting this post!

I, Sky Cubacub- a Fed up 4 Palestine team member, have been in direct contact with Nara to get to know her and her story more over the past few days. We have become fast friends due to so many overlapping symptoms of our disabilities. Nara’s story caught my eye because I have post-viral ME/CFS which many times is a precursor to MS. I really want my disability community to show up for her to get this campaign funded that is so close to my heart so that she can continue medical treatment.

We have chatted extensively! During our chats, I found out from Nara that she had not previously had health issues until she was exposed in the white phosphorus attack in 2008. The long lasting damage and effects of phosphorus continue to compound and become more and more disabling to this day, even after 16 years.

Here is her story in her own words (edited for clarity):

“Hi I'm Nara,

I'm a cancer and multiple sclerosis patient. I need treatment, examinations, and follow-up on a regular basis, but the hospitals in which I used to follow up were bombed and the other one was turned into military barracks. All I need now is to leave Gaza for treatment, preserve my life, and live with my family in peace.

We're a family of 4, including my 12 and 7 year old children.

I had been diagnosed with a tumor in the pancreas as a result of inhaling phosphorus in a previous war. A couple years after being exposed to phosphorus, I became pregnant, and the fetus was pressing on the tumor, which drew the doctor’s attention to the cancer. My fetus was emergency aborted, and the spleen, 80% of the pancreas, and part of the small intestine were removed. I complained every now and then of a lot of pain as a result of the removal of part of the pancreas. I was having follow up care in the Turkish Friendship Hospital for hematology and tumors. But since the beginning of October, I have not been able to follow up because the hospital has turned into a military barracks.

The remaining part is talking about multiple sclerosis:

In 2018, I was diagnosed with multiple sclerosis. I had many complications, such as inflammation of the seventh nerve in the eye, the inability to walk with balance, movement with difficulty, and many symptoms. I was then required to take 12 injections every month and many medications and vitamins. I was following up at the Nasser Medical Complex in Khan Yunis, but unfortunately the hospital was out of service due to the war. So for a long time I have not received any injections. MS is truly difficult and it controls my life completely, and the attacks occur in many and varied ways.”

A note about her breathing apparatus:

Because people in displacement have to wait in long queues and pay to use the bathroom, Nara had started to restrict her water intake because of a UTI she never has been able to heal from. This has created a problem with raised levels of potassium, so doctors have placed her on oxygen for fear of the potassium affecting her heart.

Goals

she needs at least $15,000 to evacuate

2 adults at $5,000 each

2 children at $2,500 each

this price is subject to increase due to the cost of registration for evacuation continuing to go up

The other money will go to the cost of treatment and living costs.

Nara chooses to stay anonymous because she has had to mask her disabilities so much that only her family knows about her MS and Cancer, so we have not linked her instagram, but we are in direct contact with her and can verify that she is who she says she is! Because of this, she cannot promote her own fundraiser, so it is our job to collectively do it for her!

[Image Description: a digital illustration by @k8deciccio of Nara, a Pal-eh-stienian woman wearing a black hijab/outfit with purple highlights. She has a breathing apparatus that is bulbous that goes in her nose. Text Reads: Help Narawith Cancer and MS Treatment, She Must Evacuate with her family of 4. $30k goal givebutter.com/NaraMedicalAid . There is a QR code in the bottom right corner that goes to her support link. The @FedUp4Palestine logo is in the top left corner.]

#gaza genocide #gazaunderfire #stand with gaza #news on gaza #war on gaza #gaza strip #free gaza #gaza #gazaunderattack #save gaza #mutual aid #i personally vetted this fundraiser #disabled and cute #disabilityculture #disabilityarts #disabilityjustice #multiple sclerosis #cancer #pancreatic cancer

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spookysalem13 · 9 months

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I'm chronically ill. I'm disabled physically and mentally. I live a rough life from day to day. People always tell me how strong I am.

This may be with the best of intentions but in all honesty I'm not strong, I'm very weak from being broken down every single second of my life from my chronic illnesses.

I don't get to live my life, I'm surviving not thriving.

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crippledpunks · 2 years

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i need people to understand that when a person with a chronic illness talks about the fatigue that comes with it, we're not talking about the tiredness that comes from a 10 hour shift at work, we're talking about the inherent exhausting heavy malaise that hangs on your entire body like a weighted blanket from the time you wake up in the morning and doesn't get any lighter as the day goes on.

fatigue doesn't come from exertion. it's just innate- and when it does come from exertion, it's been worse than the innate fatigue that was already there in the first place, and it adds on top of it, not replaces it.

#fatigue #chronic fatigue syndrome #cfs #myalgic encephalomyelitis #cfs/me #chronically chill #chronically ill #actually disabled #fibromyalgia #arthritis #multiple sclerosis #hypermobile spectrum disorder #hypermobile ehlers danlos #heds #eds

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melodymorningdew · 6 months

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I cannot fight for my health and fight the world at the same f**king time.

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powerfulpheonix · 20 days

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Don’t be disabled this shit sucks /s

#chronic illness #chronically ill #chronic pain #invisible disability #multiple sclerosis #pots syndrome

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zebulontheplanet · 10 months

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if you think that disabled people who arent contributing anything to society are leeches then you are Ableist. Disabled people who arent able to contribute much, or anything to an already fucked up society are worth it and are amazing. Disabled people with higher support needs are told constantly about everything wrong with them instead of being told about everything thats right with them. How about instead of constantly tearing disabled people down, you instead love them because they’re HUMAN.

I see time and time again. “Go outside and do something. Everyone can do SOMETHING.” What if they cant? WHAT. IF. THEY. CANT? Then what? They arent worth any less. They arent moochers, or leeches, or anything like that. They are disabled. Stop being ableist, take disabled people into account with your language because your privilege shows.

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fedup4palestine · 1 month

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Evacuate disabled mom Nara and her family!

Send support to givebutter.com/NaraMedicalAid

They need $17,500 to evacuate their family and the rest will go towards medical treatments for her Pancreatic cancer and MS which were both brought on by a white phosphorus exposure in 2008.

Please support the @fedup4palestine_campaigns verified give butter and please share with your networks! Sending direct messages to people, texting and calling with specific asks for support work the best, so please take a little time out of your day to share mindfully!

Nara cannot share her own campaign because only her immediate family knows of her disabilities and cancer, so it is our responsibility to get her funded!

The other day she got her first chunk of money from Fed up successfully!

For our lesson today for my student Mos’s 13th birthday, they finished up this great poster of Nara!

Image description: A marker drawing by 13 year old Mos of Nara, a disabled pal-eh-steinian mom who is using supplemental oxygen and has a line going into her hand. She has a heart over her face for anonymity and she is wearing a black hijab. Underneath her is a Pal-eh-steinian flag with a heart instead of a red triangle. Text reads “Evacuate disabled mom Nara and her family!” In colored pencil block text. There is a QR code that goes to the give butter link givebutter.com/NaraMedicalAid

End image description]

#donate #fundraising #donate if you can #crowdfunding #donations #fed up for palestine #fundraiser #mutual aid #philanthropy #volunteering #disabled #disabled and cute #invisible disability #cancer #pancreatic cancer #multiple sclerosis

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diversityinkidsbooks · 3 months

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Why Does Mummy Hurt?

Helping Children Cope With The Challenges Of Having A Caregiver With Chronic Pain, Fibromyalgia, or Autoimmune Disease

The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.

#fibromyalgia #lupus #lyme disease #Mecfs #cfs #arthiritis #multiple sclerosis #autoimmine disease #chronic pain #childrens book #kids books #disability #myalgic encephalomyelitis

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referencebaseforme · 11 months

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Yes doctor, I have an unexplainable cause of the ouchies. As you can see I am in pain, no I am not a hypochondriac.

#chronic illness #disability #disabilties #disabled #fibromyalgia #hypermobile eds #hypermobile joints #joint problems #multiple sclerosis #cpunk #cripple problems #cripple punk #queer cripple #cripple shit

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evanoxvt · 22 days

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The struggles of disabled people without support at home.

I've been away from home for over a week. I have next to no expectations put on me here, but I still have my weekly physical therapy and both myself and Town Crier to take care of.

TC eats 3x a day and obviously, I need food too. My grandparents are cooking about one meal a day at a nearly consistent time, so I'm eating at least once a day consistently. At home, I was lucky if I ate a single meal a day.

I (sometimes) help with setting the table, which consists of paperplates, paper napkins, silverware, and glass cups. Since both me and my cousin help with this, I'm usually not doing any heavy lifting at all.

I spend part of the day downstairs and 'randomly' will go upstairs to lay down for awhile. Usually, after my mid day break upstairs, I bring my laptop downstairs and play some games until dinner and end there or resume playing until the end of the night.

No one critiques my daily routine. No one asks me to do more than I can. Everyone appreciates when I help out.

I was having trouble walking and standing yesterday because I did far too much the day prior, but because I spent the entire day resting I was able to contribute to cooking dinner and I cooked the pasta roni (~10 mins of intermittent standing required). I was able to play games and rest afterward without being yelled at for not doing more, and was even thanked for helping cook a portion of the dinner.

I have a funny sad thing to say about this: Somehow by being asked to do nothing, I've found I can do so much more than when I'm asked to do a tiny bit.

The shittiest part of this story, as random small bits put together as it is, is that I am more disabled when I'm asked to be functional, and less disabled when I can go at my own pace or back out if need be. At home I get asked to do things like empty the dishwasher (which is tons of light to heavy objects, Ina short period of time), vacuum (which is alot of heat, standing, walking, arm movement, a eight on my arm, back movement and back bending, navigation, balance, etc), cleaning things like the bathroom (which required detailed work for some parts plus moving all the things needed so they don't get in the way or touch the chemicals). I could go on and on and on but the point will get muddled if I write the entire list and every problem on every "basic chore" because the truth is that I need alot of breaks, a long period of time, and the option to back out of all of these things to be successful at it without seriously hurting myself. If I do too much today, it will affect me for multiple days. If I do too much for an entire week it will affect me for a month or more, etc. I sometimes feel really good like I did on Friday and accidentally over do it and need to be able to back down from most things for a period of time afterwards.

I normally can't make a box of pasta roni AND move anything heavy (like my laptop) on the same day at home because I'm always expected and forced to do so much more. I usually can't make cookies on days like today where I need to spend multiple hours at a time lying down in between short bursts of sitting or activity, but today I could because there's nothing else I have to do so spending potentially all of my energy is okay. Resting afterwards is okay. No one is upset because less than an hour after making cookies I had to lay down and still am. NO ONE said it's not okay. However if I go home cookies are a luxury therefore the logic goes that "if you can bake some cookies, you can do some dishes too". At home I wouldn't be able to make the cookies because it opens up the idea I'm able to do a ton of chores. I'm not okay right now, that's why I'm resting.

I feel like I'm ranting in circles at this point... but honestly I don't get why most people will see me do one "simple" (for them) thing and assume I'm okay to do things even they don't want to do because it takes up alot of energy... I really don't get it. My health sucks, it goes up and down all day long, all week long, and yet people want to pretend I'm making it up if I can do literally a single thing normal people can...

I hope my fellow disabled friends and people I haven't met yet find themselves in better social situations than me because this isn't okay in any way.

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mascspomax · 7 months

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Life is fucking me and not in the good way

#fibromyalgia #hypermobile eds #chronically ill #chronic fatigue #chronic illness #chronic pain #sensory processing disorder #undiagnosed autistic #self diagnosed autism #actually autism #actually neurodiverse #multiple sclerosis #disability #disabled #queer #cpunk

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rebirthgarments · 22 days

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Mothers day is just a week away, please support and help evacuate disabled mom Nara and her family!

Send support to givebutter.com/NaraMedicalAid

They need $17,500 to evacuate their family and the rest will go towards medical treatments for her Pancreatic cancer and MS which were both brought on by a white phosphorus exposure in 2008.

Please support this verified give butter that I verified myself and please share with your networks! Sending direct messages to people, texting and calling with specific asks for support work the best, so please take a little time out of your day to share mindfully!

Nara cannot share her own campaign because only her immediate family knows of her disabilities and cancer, so it is our responsibility to get her funded!

[Image Description: a digital illustration by @k8deciccio of Nara, a Pal-eh-stienian woman wearing a black hijab/outfit with purple highlights. She has a breathing apparatus that is bulbous that goes in her nose. Text Reads: Help Narawith Cancer and MS Treatment, She Must Evacuate with her family of 4. $30k goal givebutter.com/NaraMedicalAid . There is a QR code in the bottom right corner that goes to her support link.]

#radicallyvisible #disabilityjustice #gaza genocide #gaza #free gaza #disabled and cute #disabilityculture #disabled and proud #disabled #pancreatic cancer #cancer #multiple sclerosis

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bea-l-zebul · 11 months

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Wanna know what really grinds my gears?

When I, a physically disabled woman, talk about the intersections of being both disabled and a woman, and other, able bodied women decide that it’s perfectly fucking fine to shut me down.

I have MS if you didn’t know. Recently studies have come out about scientists wanting to explore certain hormones in pregnancy and why they cause (some) women with MS to go into remission.

All of these people were talking about a potential “breakthrough”, and while that is a possibility, I live in a country that just took away reproductive rights from women.

So forgive me if I’m not ecstatic about scientists yet-a-fucking-gain talking about using pregnancy to treat a condition that’s more common in woman.

Forgive me for pointing out the downsides.

Like seriously, someone in Australia had the fucking gall to tell me to “stop freaking out about it because you don’t live in Nazi Germany, yet”

Really Becky, cause from what I can tell the USA is one fascist dictator getting into office away from turning into the reincarnation of it. And since you used “yet” you seem to recognize that, but don’t want to acknowledge that a positive for you is a negative for other fucking women in the same situation.

I don’t want my insurance company to turn around and refuse to cover my Ocrevus because they decided that me getting knocked up is the cheaper option than covering the meds that cost approx. 69k dollars out of pocket.

I don’t want to be forced to become a handmaiden to replenish ACB’s “domestic supply of infants”

I want to be child free, and I want it to become unacceptable for any scientist or doctor to recommend fucking pregnancy as a treatment,

…but, ya know, I’m just crazy for pointing out the potential negatives should the recommendations from further studies be “get knocked up, it’s the only way” when a lot of women don’t even have a right to bodily autonomy anymore.

#tw ableism #medical sexism #MS #multiple sclerosis #intersectional feminism #feminist #feminism #disability #disabled #cripple punk #cpunk #pregnancy is not an acceptable treatment #feminists start listening to disabled women instead of telling them to shut up challenge

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gayaest · 1 year

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He has ADHD-C like noya does! With Shoyo done, now karasuno players are done! 🧡♿️🏐

#my art #art #fanart #haikyu #haikyuu!!#hinata shouyou #hinata shoyo #kagehina #disabled artist #paravolley au #paravolley #sitting volleyball #hq #hq hinata #manga #anime #PMSS #multiple sclerosis

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