#cauda equina syndrome

[smoov-criminal]

happy disability pride month to those with conditions no one talks about, online or in general:

multiple sclerosis (me lol)

marfans

cerebral palsy

bells palsy

hidradenitis suppurativa

cauda equina syndrome

mixed connective tissue disorder

hyperadrenergic pots

non hypermobile eds types

stickler syndrome

mitochondrial disease

cystic fibrosis

sickle cell disease

myasthenia gravis

post-cholecystectomy syndrome

SWAN (syndromes without a name)

...just to name a few. i see you and you deserve awareness and understanding.

this list is non exhaustive, rb with other conditions you want to see represented!!

[ID: a post banner with dark red background and medium grey bolded text in the center. it reads “This post is about physical disabilities, do not derail.” On each side there is the dynamic disability icon, a gray symbol of person in manual wheelchair leaning forward with arms bent behind them mid-push. /end ID]

#disability pride month #disability pride #cpunk #cripple punk #multiple sclerosis #marfan syndrome #cerebral palsy #bells palsy #hidradenitis suppurativa #cauda equina syndrome #mixed connective tissue disorder #hyperandrenergic pots #eds #ehlers danlos syndrome #stickler syndrome #mitochondrial disease #cystic fibrosis #sickle cell disease #myasthenia gravis #post-cholecystectomy syndrome #swan #syndrome without a name

[plague-parade]

happy disability pride to all of my fucked up spine havers

happy disability pride to those of us who have spinal cord injuries, degenerative disc disease, ankylosing spondylitis, scoliosis, kyphosis, lordosis, spinal arthritis, cauda equina syndrome, tethered cord syndrome, spinal fusions, stenosis, myelopathy, radiculopathy, spondylolithesis, craniocervical instability, spina bifida, spinal tumors, syringomyelia, and anything else spine related

we are so very cool and i love you all so much

#disability pride month #disabled pride #disability pride #disabled pride month #cripplepunk #cripple punk #cpunk #actually disabled #physically disabled #disabled #disability #physical disability #spinal cord injury #SCI #degenerative disc disease #ankylosing spondylitis #scoliosis #kyphosis #lordosis #cauda equina syndrome #spinal fusion #stenosis #myelopathy #radiculopathy #spondylolisthesis #CCI #spina bifida #spinal tumor #syringomyelia

[oseberg-shipper]

I wish I could explain to other disabled people and to doctors how exercise works for me, so that doctors could do a better job of helping people get exercise and other disabled folks could use exercise the way I have if it works for them.

Cause the way exercise has been explained and sold to me my entire life has not worked for me at all. But the way I'm exercising now really helps.

I have EDS, degenerative disc disease, spinal nerve damage from Cauda Equina Syndrome, endometriosis, and many other issues. I used to laugh at people when they told me exercise would help. All I ever did trying to exercise was hurt my body and my feelings. I got repetitive stress injuries at the drop of a hat, so as soon as I'd established any kind of routine, I'd hurt myself and be unable to exercise, and then I'd lost my groove and just felt terrible and guilty about it.

Exercise was sold to me as the least I could do to buy my right to exist as a fat cripple.

Last year, I had a lull in active health disasters, and I was worried about becoming so deconditioned that I'd catastrophically injure my back again. So I started a walking program under the guidance of my PT, who knows about EDS. She helped me get fitted with walking sticks to keep my form and give me more of a whole body exercise. She also showed me how to walk. I went to a great little medical shoe shop and got two pairs of sneakers and orthotics fitted by a butch.

I started with 15 minutes of walking, and .25 miles of walking, every other day. I didn't have to do anything else, just on the day it said, walk either 15 min or .25 miles based on what it said on my paper. Eventually, in a few months, I got up to a reliable 3 miles/1 hour walk. I saw the river in all the seasons. I felt the wind on my face and the rain and the sun. I bought exercise clothes and suited up, even for short walks, to make sure my parts all stayed where they should be.

The hardest part was not going ham. Not extending my walk, not going further and faster. The second hardest thing was getting back on the horse when a flare or injury made me take more rest. Also, the distances I was doing were actually too much. My legs hurt all the time and I had to take meds to help with the pain sometimes.

Then, this mystery stomach problem I have started. Intense epigastric pain and vomiting. I had to stop exercising because I was simply not taking in enough nutrition to be safe.

Once I got the vomiting under control, and was able to consume more calories and especially protein, I got back out there. Now, as long as I'm not desperately ill, I walk 1 mile around my neighborhood with my sticks. My back feels better while I'm walking. When I skip a day, my back hurts more. My bowels move better when I walk. Essentially, I've gotten my body physically dependent on exercise. Because that's what our bodies evolved to do, and we offloaded some things like digestion onto the assumption that we'd be moving our bodies.

I hate hate hate the way we talk about exercise in this culture, because it's denying people in pain a tool that could really help them, by wrapping it all up in this horrifying morality play.

I wish there were apps out there for folks like us, that encourage you to exercise but don't link stuff to shame or weight and don't punish you for taking time to recover or prioritize other things. Because it was really really hard to get into exercise and I had to spend a lot of time doing something I really really didn't enjoy, that stole spoons from me, before getting to a point of fitness that allowed me to actually benefit.

#body acceptance #fat acceptance #disabled pride #disability #actually disabled #exercise #fuck the protestant work ethic #spinal injury #cauda equina syndrome #degenerative disc disease #endometriosis #walking #fitness

[exlibrisfangirl]

Hi friends!

Unfortunately, I never met my goal for April, so I am now facing May with some unpaid bills and a dwindling grocery fund. I'm applying for jobs, but I've had no luck yet.

Anything you can spare will help keep Phoebe and me fed!

Venmo: Mellifluity8

CashApp: $mellifluity8

PayPal: link

I am 3 months post-op today, and walking rehab and surgery recovery are going very well, all things considered! I'm in physical therapy twice per week, and my PT is trying to get insurance to approve a custom orthotic to help me walk better. Pain levels and general function are hugely improved! =)

#mutual aid request #mutual aid #crowdfunding #disability #chronic illness #neurosurgery #tethered cord syndrome #cauda equina syndrome #etc. etc. #personal post #about mel #exlibrisfangirl #princess phoebe #cats #cat lady life

[a-deep-purple-feeling]

PAINKILLERS, 29.03.23; 10" x 12 " acrylic on canvas board

INSTAGRAM

#hands art #sunflower art #sunflowers #cauda equina syndrome #acrylic painting #spine surgery #abstractexpressionism #art #emily dickinson #hands #modern art #painkiller #trippy art #chronic illness #artists on tumblr #hospitalisation #surrealist art #degenerative disc disease

[newlifeprojects]

'fáj a lába, azért.' TUDOM BASZKI, es nem is a laba, hanem vszinuleg a kurva ideget nyomja egyre jobban a gerinceben a deformalodott csigolya, szuper erzes am ezt tudni, meg hogy kb legfeljebb szinten tartani lehet, talan, es fajdalmat csokkenteni, de a problemat megoldani es az okot eliminalni nem. :(

tegnap tudatosult bennem, hogy ez a kutya oktoberben mar het eves lesz 😭 de hiszen nemreg jartuk csak ki a kutyaovit!!

#fülöp #prs #cauda equina syndrome

[kennysnyder]

What Causes Cauda Equina Syndrome?

Cauda Equina Syndrome is a disorder that affects the spinal cord. It can cause difficulty walking, numbness or tingling in lower extremities, as well as difficulty in controlling bladder and bowel. The cause of cauda equina syndrome is not known, however it's believed to be related to compression or inflammation of the cauda-equina nerve which is the nerve that connects the brain and lower extremities. Treatment for this condition usually involves pain relief as well as rehabilitation therapy.  https://www.mrhsolicitors.co.uk/service/cauda-equina/

#cauda equina syndrome

[midnightdemon7]

feeling depressed and another shitty night sleeping

feeling depressed and another shitty night sleeping

Feeling depressed and another shitty night sleeping I had a shitty night sleeping. I woke up around 0130 and had to pee. I stayed up for about a half hour then went back to sleep after drinking a half a bottle of Gatorade. I shouldn’t have done it, I know, but I did and then I woke up two hours later to empty my bladder again. This time I was awake. I had a bad dream just before waking me up and…

View On WordPress

#blog #Blogging #cauda equina syndrome #chronic physical pain #coffee #complex regional pain syndrome #CRPS #depression #disability #FTM #hopelessness #insomnia #mental illness #mental pain #mood disorders #nerve damage #nerve injury #painsomnia #psychosis #PTSD #recurrent major depression with psychotic features #transgender

[firebirby]

OOC. ------ My body is far from thanking me right now for throwing it into a full-on flare as a result of cleaning my kitchen to the point I spent two hours on my hands and knees, scrubbing the tiled floor with a scrubbing brush to get it spotless. My left leg and back are in agony, to the point I can hardly walk, my right arm that I broke last September is also in Spain without the S and my endo is now starting with severe cramping... I still have more cleaning to do tomorrow too, ready for the assholes coming to reinspect the house on Friday.

#deep within the ashes a firebird does rise ( ooc ) #rant tw #pain tw #chronic pain tw #endometriosis tw #cauda equina syndrome tw

[fortitudina]

  * OOC.     ------     I’m so tired. I just had my referral letter through for Gastroenterology and I’ve got to wait 53 weeks for a new patient appointment?! I have fucking Crohn’s Disease... That can be potentially fatal! It makes me very sick every few weeks... I cannot live like this for the next fucking year! Not when I have endometriosis, Adenomyosis and Cauda Equina too! 

#* OOC #rant tw #hospital tw #crohns disease tw #endometriosis tw #adenomyosis tw #cauda equina syndrome tw #chronic illness tw

[disaster-demon]

My pain is really bad today and I’m so scared that I’m going to get cauda equina syndrome again djdnnxxn

#recurrence is kinda common and like #my legs are sore my back is sore and while I have other aches so it’s probably fibromyalgia I’m still scared

[neuroticboyfriend]

😎 going to the ER to get evaluated for (gradual onset) cauda equina syndrome and the lot. woohoo. wish me luck even tho they probably wont find anything knowing me.

#julian rants

[drrutherford]

Amélie 📱 Gideon.

Amélie: Sometimes I think about work, and how much I love it and there are days like today where I wish I could crawl into a blanket fort in my living room and pretend the outside world doesn't exist, and that people are just a simulation and that none of this is real. Y'know?

Amélie: Actually, you probably DON'T know, because I'm a crazy person who sends you essays that make absolutely no sense at all. Wild. Maybe I'M the simulation, and I somehow fell into your world by accident.

Amélie: I watched Matrix last night. I apologise.

Amélie: I was actually messaging because I bumped into Yvonne in Hyde Park, and I realised I forgot to mention it to you??? She's so lovely. Your family seems like such wonderful people, Gideon.

Amélie: Maddie is just...gorgeous.

Amélie: How was your day? Tell me something interesting. If it's surgical tho, give it to me in lames terms, please.

Gideon: Speaking of blanket forts in the living room, wanna watch a movie tonight? I could sweeten the deal by bringing over takeout.

Gideon: I’m glad you fell into my world and this better not be a simulation. But I’m still astounded by how quickly you type out these essays... I can’t believe there’s only a single minute between all of those texts, bloody hell.

Gideon: Maddie takes after her mum.

Gideon: She's gonna be trouble when she hits her teens, even Yvonne says so. Hell, already trouble anytime she smiles. Which is often, bless her.

Gideon: What would interest you about my day... Operated on a man with Cauda Equina syndrome. That's Latin for horse tail, bc of a bundle of nerves at the base of the spine resembling a horse's tail.

Gideon: Sometimes they get impinged and emergency surgery is needed to decompress the spine before paralysis sets in. Thought you'd like the Latin bit.

#reposted it bc the formatting was so ugly when i tried to reblog #soz #G x Amelie #texts #May '23

[consolecadet]

Lately, medical professionals have been believing me when I say that I do home PT 2-3 times a week, even though historically doctors have acted skeptical when I mentioned exercising regularly.

I'm not sure if it's that they think I mean a physical therapist is coming to my house or telehealthing with me and they believe I am Undergoing Treatment as opposed to Voluntarily Exercising, or if they just see EDS and cauda equina syndrome on my history and are like "hmmm...he probably does do exercises so his spine doesn't collapse or whatever". It's certainly not that I'm any thinner (and thus more believable) than I used to be. Maybe it's just more plausible to them that a guy with a connective tissue disorder would do exercises to support his joints than that a fat person would bicycle 20-50 miles a week (which I used to do, and which they were always like 'LOL, SURE' about) 🤷‍♂️

#honestly some of it is that they are experiencing me as a cis man #and as we know people love to disbelieve women and trans people #boring text posts #medical #fatphobia

[exlibrisfangirl]

🎶 Hello, ER, my old friend... 🎶

I'd appreciate prayers, virtual hugs, funny posts, and good energy, as my left leg has gone numb and keeps seizing up. I'm in a ridiculous amount of pain and just beyond exhausted from weeks of intense nerve pain and declining leg and bladder function. It looks like spinal surgery is inevitable at this point, which sucks, but it's... better than the alternative (permanent nerve damage).

Thank you to those of you who have been keeping tabs on me through my recent health stuff and checking up on me! I love you all. I'll keep you posted as much as I am able in the coming weeks. 🥄💜

#ehlers danlos syndrome #hypermobile eds #hypermobility #nerve damage #neuropathy #cauda equina syndrome #herniated discs #joint subluxation #nerve compression #chronic pain #chronic illness #disability #spoonie problems #personal post #mel has a face

[a-deep-purple-feeling]

UNTITLED (16"x 12", acrylic paint, oil, dried flowers on canvas board; 21.1.23)

INSTAGRAM

#art #painting #mixed media #medical art #degenerative disc disease #weird art #beautiful bizarre #surrealcore #chronic illness #abstract art #abstractexpressionism #surrealist art #acrylic painting #cauda equina syndrome #dried flowers #spine surgery