#stenosis

[thetransplant]

How to gym as a cripplepunk

I confess I still feel a bit uncomfortable referring to myself as a #cripplepunk because my disability is invisible. I literally walk in to a gym like anyone else. CAT scans, MRIs and all the metal detectors can see me, but the others have no clue. To make it even more baffling I can get away with not using a cane or walker if I time my day right by spending most of it supine or seated. Right now…

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#cripplepunk #disability #fitness #gym #personal trainer #physical therapy #Scoliosis #sports medicine #stenosis #working out #ymca

[crispyduckbluebird-blog]

Found out this week that I need Mixed Media Level Spinal Fusion surgery in the coming weeks, after 2 years of suffering… but I still found it in me to take part in my Mixed Media Texture Course 🤩🤩

Found out this week that I need Mixed Media Level Spinal Fusion surgery in the coming weeks, after 2 years of suffering… but I still found it in me to take part in my Mixed Media Texture Course 🤩🤩

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#art therapy #arthritis #artist #chronic illness #Chronic Pain #fibromyalgia #how to #love #menopause #mental health #mental health awareness #mixed media #sculpture art #stenosis #step by step #thyroid disease surgery

[stacyspoonley]

#raredisease month: Getting out of #medicaltravel for #triggerpoint #injections for #spinalhealth. Have to keep #connectivetissue in mind though when utilizing steroids. When I get home it's time for my @zynexmedical #tens Wearing my old "Show your #rare , show you care" @rarediseasedayus shirt . . . #stenosis #herniateddisc #osteophyte #portrusion #impigement #degenerativediscdisease #nerveroot #chronicillness #spoonie #connectivetissuedisorder @rarediseasedayofficial @nord_rare @rare @nsmobility (at Pain Management of Long Island) https://www.instagram.com/p/Co8Hdgvp9cU/?igshid=NGJjMDIxMWI=

#raredisease #medicaltravel #triggerpoint #injections #spinalhealth #connectivetissue #tens #rare #stenosis #herniateddisc #osteophyte #portrusion #impigement #degenerativediscdisease #nerveroot #chronicillness #spoonie #connectivetissuedisorder

[indospinehospital]

Canal Stenosis (Lumbar / Cervical) - indospine

Spinal stenosis is a condition that causes a narrowing of the spinal canal, which can compress the spinal nerves, resulting in pain. When this condition occurs in the lower back it is referred to as lumbar stenosis.

#stenosis #lumbar #cervical #spine #spinesurgeory #spinesurgeon

[chronic--experiences]

After years of putting it off, I finally got my first cane.

Definitely having mixed feelings about it. I’m worried about judgement coming from people who have seen me move around without a cane, and people claiming that I’m faking a disability because I’m young.

At the same time it’s such a relief to have something that provides me with more stability while moving around. My left leg has gotten so weak and I’m constantly scared of falling after my leg has given out multiple times (once on a flight of stairs)

I’ve got great friends who are super supportive of me finally getting a mobility aid and are willing to fight anyone who looks at me funny, but it’s definitely going to get some taking used to.

#shout out to my doctor for also supporting this and giving me a script for one #I’m honestly just hoping that this will allow me to regain even a little more control in my life #on the verge of sobbing most days that a college student in too much pain to even walk around campus #chronic illness #chronic pain #young disabled #disabled #sciatica #degenerative disc disease #spinal stenosis #spinal epidural lipomatosis #herniateddisc #muscle weakness #joint pain #joint problems #cane user #mobility aid

[neuroticboyfriend]

This is a genuine question but would epilepsy fall under neuropunk? I just haven't looked into it fully and at a distance the community is mostly focused on autism/ADHD. It's confusing because it's a thing that isn't the same kind of punkness as my ADHD/BPD with NPD traits stuff. It's something else entirely. More physical than my BPD but less physical than hEDS, if that makes sense. Feels somewhere inbetween.

yeah, it would! nonpsychiatric neurological conditions count under neurodivergent (what neuropunk is based around). that's the cool thing about the term neurodivergent - it doesn't draw a line between "physical" and "mental," or encourage conditons being boxed into one or the other.

for example, I'm neurodivergent for both my schizophrenia and my spinal nerve condition. i'm neurodivergent for both my autism and my involuntary movements (which ,I don't know if they're seizures or from the spine condition). etc. etc. and i can be neuropunk in relation to all of these things.

#asks #anon #neuropunk #neurodivergent #neurodivergency #schizophrenia #schizophrenic #schizoaffective #schizospec #autism #autistic #epilepsy #seizures #involuntary movement #spinal stenosis #disabled #disability #adhd #bpd #npd #heds #neurological condition #neurological disability #mental illness #physical disability

[under-same-sky]

#fuck fibro #fibropain #fibrofighter #fibromyalgia #fibro flare #chronic illness #chronic fatigue #chronic pain #autoimmune #treacheal stenosis #subglotic #breathing

[fin1915]

I'm here to ask my SPN family for some help.

Two weeks ago, I had major back surgery. This was my fifth surgery in three years. I'll need to be off work for three months. Since I didn't have an option to delay my surgery, I have no savings. This begging for money is creating some self-loathing. The only solace I have is that I've always tried to pay-it- forward or "do one good deed," etc. I work with autistic teens in a residential treatment program. I was a Cub Scout leader for a few years and a Girl Scout leader for more than 10 years. I've participated in service projects and volunteered at community events. I'm the type of person who keeps dozens of pairs of gloves in my car to pass out to the homeless in winter. I have always tried to be helpful whenever I can. So, I'm hoping if you have it in your means to donate to my medical bills, it would be so helpful and would warm my heart. Even if you are not in a situation where you can send money, I understand that so very well. I humbly ask you to share this with your page and any community pages or other social media that you are able to. Thank you.

https://gofund.me/b913fd37

VENMO @Findlay19

PAYPAL @[email protected]

#supernatural #spnfamily #spnfandom #back surgery #spinal Stenosis #spondylolisthesis #osteoarthritis #Fibromyalgia #sam winchester #Dean winchester #jared padalecki #jensen ackles #misha collins #castiel

[bpod-bpod]

Risk for Rupture

CT scan study finds an increased risk of diseases in the wall of the aorta [the body's largest and central artery] called aortic pseudoaneurysm and penetrating aortic ulcer in individuals with aortic calcification, which causes narrowing

Read the published research article here

Image from work by Siting Li and Haoxuan Kan, and colleagues

Department of Vascular Surgery, Department of State Key Laboratory of Complex Severe and Rare Diseases, Peking Union Medical College Hospital, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing, China

Image originally published with a Creative Commons Attribution 4.0 International (CC BY 4.0)

Published in Scientific Reports, January 2024

You can also follow BPoD on Instagram, Twitter and Facebook

#science #biomedicine #biology #heart surgery #cardiovascular #aorta #aortic stenosis #arteries #ct scan

[remembertheplunge]

The body will fall away

January 24, 2022. Monday. 8:39pm

Good time to start a new journal. 

Just as a new chapter in life rolls out.

Cardiologist nurse, 4:40 pm today said “You have moderate aortic stenosis.”

A callus has formed on the aorta valve, causing blood to, well, I guess, be pushed back into the heart..I’m not sure.

Nurse said that people who have it go on to live another 30, 40 or 50 years longer. Really. Doesn’t  she know that I’m 66 1/2. Maybe 5 or 6 hours longer. Or days!  (I’m joking here :))

So, just as in the New Dimensions Post Cast poet’s poem, death comes to visit.

He was sitting there, holding my arm, as I reviewed a journal awaiting the nurse at Stanislaus Cardiology.

He encouraged me to get the book out there as soon as possible.

Earlier, a teeth cleaning. My gums were parted, they could see the bone. Cavity, a major one.

So, a bit unnerving, but death is inevitable.

As James Hillman said on learning that his death from cancer was imminent “It shocks the conscious."

The teeth, the heart say “The body will fall away”

End of entry

Notes:

Late summer  2023, I returned to the Cardiologist’s office to get the results of an echo test on my heart. The nurse said now the stenosis was severe.

Knowing this, I still swam from just off Alcatraz island to Aquatic Park, San Francisco ion September 23, 2023. As a Doctor friend of mine told me before the swim “If you don’t feel symptoms before the swim, do it. If you die out there, you will have died doing something you love to do."

I finished the swim in 1 hour 20 minutes. I felt fine.

New Dimensions  Radio is a weekly program the features interviews with progressive authors and thinkers. It began in 1973.

James Hillman was an author, philosopher and progressive thinker who died in 2011.

I had a talk yesterday with a friend of mine who is a few years older (I’m 68). He also has heart issues, different than mine, though. We both agreed, it’s not the quantity. It’s the quality  of life that counts.

#1/24/2022 #journaling #writing #aging aortic stenosis #death is inevitable #quality over quantity #Alcatraz swim #dying doing what you love #risk

[crispyduckbluebird-blog]

Making Mixed Media Collage Part 2

Making Mixed Media Collage Part 2

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#art #art therapy #arthritis #artist #butterflies #chronic illness #Chronic Pain #design #eyes #fibromyalgia #journaling #love #menopause #mental health #mental health awareness #mixed media #stenosis #thyroid disease #women #yamapril22

[findlay19]

I'm here to ask for help from my Gubler friends.

Two weeks ago, I had major back surgery. This was my fifth surgery in three years. I'll need to be off work for three months. Since I didn't have an option to delay my surgery, I have no savings. This begging for money is creating some self-loathing. The only solace I have is that I've always tried to pay-it- forward or "do one good deed", etc. I work with autistic teens in a residential treatment program. I was a Cub Scout leader for a few years and Girl Scout leader for more than 10 years. I've participated in service projects and volunteered at community events. I'm the type of person who keeps dozens of pairs of gloves in my car to pass out to the homeless in winter. I have always tried to be helpful whenever I can. So, I'm hoping if you have it in your means to donate to my medical bills, it would be so helpful and would warm my heart. Even if you are not in a situation that you can send money, I understand that so very well. I humbly ask you to share this to your page and any community pages or other social media that you are able to. Thank you.

https://gofund.me/b913fd37

Venmo @Findlay19

PayPal @[email protected]

#criminal minds #shemar moore #spencer reid #aj cook #Matthew gray gubler #back fusion #back surgery #medical help #medical expenses #spinal Stenosis #spondylolisthesis #osteoarthritis #go fund me

[batz]

neurologist says my optic nerves are fine/same as last few appointments but still tells me to start taking 12 diamox a day and tells me to get out before i can ask why . also diamox like. cannot fix an issue involving my veins. but idk im not doctor so whatever

im 100% not taking 12 pills a day tho thatd hurt me. past few appointments hes just been rlly wanting me to have more diamox even tho he keeps saying im in remission but he wont answer when i ask why i need the meds then

#frank.txt #diamox doesnt even fix venous stenosis . its a diuretic that fixes like. pressure and water distribution n stuff #my jugular vein is too small and the blood flow sounds are simply Too Loud. its not effecting anything long term #but its causing migraines and nausea which is why ive been sleeping 24/7 . like my life has been sleeping. smoke. make coffee. read news #also i have never heard of someone taking 12 diamox a day. especially when im IN REMISSION #unfortunately its fatphobia. my neurologist is less concerned with my brain now and more concerned with making me smaller #which diamox already did and it was hell. #anyway im not going on 12 pills a day . that will just make me more sick. sticking with 4 and just seeing if it helps w Everything #the big thing is my optic nerves r still good at least. and my brain is too. its just my damn veins #theyre simply too small for my big blood... #fatphobia m #idk tagging that just in case #sorry minor venting abt medical shit. this disease is just annoying bc i do not feel like im in remission and i feel like they just #say that without knowing what it means #like theres no more damage and im basically all good but i still FEEL sick. like . idk its just Annoying #idk annoying is an understatement its distressing but i am learning 2 cope with it #just in a bad flare up or Sick Moment idk #long post #kinda idk #im FINE just mad

[indospinehospital]

Spondylolisthesis - indospine

It can occur anywhere along the spine, but typically occurs in the lumbar region. Spondylolisthesis is less common among young children, occurring primarily in adolescents and adults.

#spondylolisthesis #spine #spinesurgeory #stenosis #bestspinehospital #myleopathy

[chronic--experiences]

Apparently I did NOT have enough spoons to go shopping today, just walking through the store was such a challenge.

#i am in so much pain #walked around the mall yesterday and definitely over did it #I hate not being able to just do basic things like grocery shopping without feeling like my legs are going to collapse under me #chronic pain #degenerative disc disease #sciatica #spinal stenosis #severe stenosis #spinal epidural lipomatosis #joint problems #joint pain #cane user #young disabled #disabled #spoon theory #cw chronic pain

[neuroticboyfriend]

i see the neurologist today, would anyone be able to give me advice on how to get my concerns addressed properly? for context, i'm going for:

spinal nerve (mayhaps cord?) compression, causing pain, spasms, and weakness. i need medication for the pain & spasms, and nerve tests done on my limbs (mainly legs).

..myoclonic jerks and attacks? triggered by loud noise and fatigue, but sometimes the trigger is unclear. i have it on video, thankfully.

i'm nervous they won't give me medication and won't test properly, causing me to be misdiagnosed with FND, if I don't have it. like.. what tests should they be doing before they even think about diagnosing me with FND?

(im ok with this being reblogged for reach btw)

#i could very well have FND but i was misdiagnosed with fibro already... it turned out to be cervical spinal stenosis and hypermobility #really don't want a repeat of getting misdiagnosed with something that has little treatment and a lot of stigma around it #julian rants #neisvoid #chronic illness #chronically ill #neurological condition #fnd #functional neurological disorder #myoclonus