#CCI

[unstablemotions]

Help Save My Cousin's Life 💜

My 25 y/o cousin Line, known as @nebulow online, needs for surgery for Craniocervical Instability (CCI). This is her last resort as she's been deteriorating fast. She's also diagnosed with Congenital Muscular Dystrophy (CMD), which will kill her if her CCI isn't treated.

Here's her Fundraiser

Any amount helps!! If you can't donate, just reblogging/liking this is a help 💜

#gofundme #fundraising #crowdfunding #financial aid #spoonie #brain injury #cpunk #cci #cmd #actuallydisabled #actually disabled #craniocervical instability #congenital muscular dystrophy #brain trauma #chronic illness #chronic pain #chronically ill #medical fundraiser

[autmnsun]

my best friend layla made a gofundme for her boyfriend, who suffers from very severe me/cfs (myalgic encephalomyelitis / chronic fatigue syndrome) and cci (craniocervical instability).

because of these illnesses, he might die. only two doctors in europe do surgery on me/cfs patients, who also suffer from cci, and they are located in spain. he will have to pay a special flight from italy, somewhere to stay and the surgery itself, and none of that is covered by insurance.

he is suffering so much. layla listed a few of his symptoms in his gofundme already, but the only thing he can (or is forced to) do is lie in a dark room with no stimuli AT ALL. no music, no light, no touch, not even being on the phone for too long, accompanied with tons of physical suffering as in pain or seizure-like symptoms. his suffering is not imaginable for people who don‘t have very severe me/cfs.

please read, share and donate. it‘s so very very urgent and a reblog would mean the world and could save his life.

#i‘ll rewrite it tomorrow when i‘m feeling a little better but it‘s really extremely urgent. please please help by reblogging and sharing. #mecfs #cci #myalgic encephalomyelitis #chronic fatigue #chronic fatigue syndrome #chronic pain #chronically ill #craniocervical instability

[szepkerekkocka]

#center for climate integrity #cci #society for plastics #plastics industry association #vinyl institute #society for the plastics industry #plastics recycling foundation #epa #eastman chemical #exxon chemical #beyond plastics

[per1shed]

please, please, please donate and share if you can. it would mean everything to me.

#mecfs #cci #mutual aid #donations #please donate #l

[crowpunkcognitivedecline]

if you follow this blog and are considering unfollowing or suddenly are less excited im posting because make post where i talk like someone who doesnt have access full to words

consider why you expected (+ preferred) blog based on neurocognitive decline and spinal cord injury and loss of language/memory (+ explicitly welcoming ID) to never ever post like the ones who cant/dont mask it

#cripple punk #cpunk #crippunk #ableism #cripplepunk #nt sci #neurological disability #cognitive decline #neurocognitive disability #crip punk #cci #aai #speech loss

[whatshouldwecallchronicillness]

When I realize I’m fully recovered from my last surgery...

#Ehlers-Danlos Syndrome #Ehlers-Danlos #EDS #hEDS #jhs #hyper mobility #zebra #dazzle #cci #aai #Neurosurgery #tethered cord

[nfcomics]

Flashback Friday • Batton Lash, Jackie Estrada and George Gladir • Comic-Con International 2007 • San Diego

#Flashback Friday #Supernantural Law #Batton Lash #Jackie Estrada #George Gladir #Sabrina the Teenage Witch #creator of Sabrina The Teenage Witch #Comic-Con International #CCI #Comic Con #San Diego

[bbcphile]

Well. Hmmm. That’s new.

Note to future self: if you start feeling dizzy, are on the verge of passing out, and can’t remember words or say complete sentences, check your cervical vertebrae: it’s possible one of them has slipped out of place and you need to pop it back.

On the plus side, it’s fixed now! On the down side, that was terrifying and horrible, wtf?!

I am going to have to cross all fingers and toes that this doesn’t keep happening, because I do NOT want to have to get cervical fusion!!! One spinal surgery is more than enough, thanks!

#about me #personal post #medical stuff #hEDS #CCI #AAI #what the hell is my body doing and can it stop now? #if this is the new normal post COVID I am going to completely lose my shit

[wheelie-sick]

had the second worst migraine of my life yesterday all because I did two wheelie drops down curbs and my neck decided that was too much. even with a fuck ton of zofran I was still too nauseous to move and on the verge of throwing up. and it lasted for absolute hours. I wanted to go to bed but nooooo I had to stay up until 2am with a migraine because I was in too much pain to sleep. I also wanted to take my migraine medication so much but noooooo that's what gave me the worst migraine of my life. I want to remove my neck, fuck craniocervical instability

#craniocervical instability #ehlers danlos syndrome #hEDS #EDS #physically disabled #physical disability #migraine #cci

[chronicsymptomsyndrome]

feels like I died last night

#rants & reflections #pain log #migraine #craniocervical instability #cervicogenic headache #cci #undiagnosed chronic illness #undiagnosed chronic pain #chronic illness vent #chronic illness #chronic pain problems #chronic pain #comorbidities #comorbid conditions #chronic headaches #headaches #neck pain

[herofestival]

#fuka koshiba #小芝風花 #cm #シーシーアイ #CCi

[spoonielivingfree]

On going undiagnosed

The NHS has a really nasty habit of dismissing and gaslighting EDS patients. Not seeing beyond the norm and thinking further. The NHS has a habit of not properly diagnosing EDS and the various issues that arise as a result. Today I went to a specialist physio about my EDS head to toe body. She decided due to the extent of my neck and neurological symptoms + head pain that should be the priority…

View On WordPress

#aai #cci #chronic illness #Chronic pain #Cranio cervical instability #EDS #hEDS #Hypermobile Ehlers Danlos #ME #spoonie

[tristallyn]

boss 5 is here btw but . it is a comic instead of a video. you can read it on twitter

or you can also read it under this cut if you want but it will be longer because it is 25 images

#object oc #osc #my art #boss #cci

[diariesofabuggygirl]

Hello Again. Long time no see.

You haven't heard from me for a while. I was doing really well. Between the strain on my parents and I's relationship, and the improvement in my health I moved out.

It was great. I was so hopeful, and mostly able to care for myself.

The brand new apartment building hadn't been built correctly. I got hit by mold bad. I've been out of it for almost six months. I'm really sick again. It's better than it was, but, it's a nightmare.

I had finally started getting a lot of the positive effects from my neuro surgeries. That, figuring out my trauma, and medical cannabis changed my life.

Now I'm mostly bedridden again. My cannabis isn't as effective. My tolerance is crazy. And tolerance breaks aren't well tolerated, and don't help much. I am so tired of being uncomfortable, in pain, fatigued, and anxious.

I'm so devastated. Assisted suicide is feeling like an option again, though I plan on giving myself time first. I hate it. I hate I need this outlet again. I hate I'm back here in this place.

I cant stop thinking about what my life will look like when my parents are gone. Our relationship is much improved, thank god. But theyr'e at the point in life that kids are supposed to start taking care of them. And here I am still unable to care for myself, and they are having to burn themselves out for me.

They've worked on nothing but me and my health for 16 years this month.

I have one good friend. My relationship with my sibling is much improved. But I am so lonely. I want a partner so badly. And I don't even feel well enough to spend much time with the people i do have. When my parents pass, which I hope is far from now, my life will be so empty.

I am terrified. I don't know what else to say.

#lyme #eds #heds #ehlers danlos syndrome #mcas #cci #aai #bartonella #depression #suicide tw #MAID #cannabis

[disagigglebilities]

Sir, are you aware of where you are working?

#chronic pain #cci #craniocervical instability #neck pain #spine

[liminalpsych]

I am so tired of brain fog and fatigue

It was getting better and now it’s worse again

I would like to Do Things with my days. any Things. At all. Not have a few client sessions and then stare into space or have to be horizontal between each session in order to get through the day.

I am so tired.

#cci #craniocervical instability #intercranial hypertension #thanks ehlers danlos #Ehlers Danlos syndrome #chronic pain #chronic illness #health #disability #fighting the internalized ableism but fuck it’s hard