#chronic illness vent

[chronicsymptomsyndrome]

I follow tons of disability/chronic illness/mental health tags and I keep seeing memes or infographics without alt text or image IDs. This is not okay for content of any subject matter, but its beyond ridiculous for these spaces in particular. You can’t call yourself an advocate if you are declining to use accessibility tools like this. There are absolutely no excuses, especially with the technologies we have now. Most devices can read and copy the text out of any image, for example.

Basically if it’s not worth including everyone, it’s not worth posting. Make it accessible or don’t post it. Thank you

#accessibility tools #disability accessibility #disability advocacy #alt text #image id #text id #screen readers #disability accommodations #neurological disability #physical disability #invisible disability #vision impaired #sight impaired #blindness #accessibility #inclusivity #disability rights #disability community #disabled community #chronic illness community #disability vent #chronic illness vent #neurodiversity #disability problems #disabled rights #disabled things #queer disabled #disability representation #accommodations #disabled representation

[frankiensteinsmonster]

Fibromyalgia folks who use wheelchairs!!

How did you get your doctor to. Prescribe one to you? I went to my first appointment with a new doctor and explained all my pain. Then I asked if I could possibly get a prescription for one and she's like

Nah. If you get that you're going to age really fast bc you won't be exercising :)

And I... don't know how to explain to her that I already am not exercising. I am laying in the bed every day. The only exercise I get is walking across campus :/

The plan atm is just. Asking for progressively "more intense" mobility aid until we get there

I know it's a first time appointment and she doesn't really know me like that, but I feel like I kinda know what I need here. I started a new medicine which is nice but it's like. What am I supposed to do? Wait until She feels like I've suffered enough and then she can wave her magic pen and give me the go ahead after she feels like it's her idea?

How did y'all do it? :'0 (DM, comment or tag pls tySM)

#chronic pain #wheelchair user #fibromyalgia #chronic fatigue #chronic illness #mobility aid #cpunk #cripple punk #fibro problems #chronic illness vent

[willowisachy]

aaaugh my pain is so bad with this weather that even an old surgery site from literally YEARS AGO is hurting again???

like the whole area outside and inside where the work was done hurts, does this happen to anyone else or is there something wrong and maybe it’s not the weather????? :(((

#chronic fatigue #chronic illness #chronic illness warrior #chronic migraine #chronic pain #chronically ill #fibromyalgia #chronic illness vent #helpppp #advice #advice please #spoonie

[narcatsisst]

sometimes my chronic illness just feels like being exhausted and having a stomach ache and sometimes it feels like im rotting from the inside out and theres nothing i can do about it

#chronically ill #chronic illness vent #chronic illness #potsie #pots #pots syndrome #dysautonomia

[tetanusvaccineofficial]

CW: VENTPOST!! pls dont read if that'd be uncomfortable for u!!

will probably delete, but i kinda want to say, like. i dont think ive seen anyone talk about how it can be so fucking scary to get sick in a different way than ur used to when you're already chronically ill. like oh my god. is this just a bug? are these symptoms normal for one of the several conditions i have and just worse rn for whatever reason? is it a new, worse thing? please do not be a new worse thing

it's so terrifying and uncomfortable. like, i don't know what's happening to this body but i know that i feel unsafe in it and i'm tired and i need a break

anyway if this is the first post you see from this blog i promise i dont usually complain like this, but man im havin a rough go of it rn and sometimes it is nice to whine

#vent post #personal vent #tw vent #cw vent #vent cw #vent tw #chronic illness vent #cw chronic illness #chronic illness #cw medical #cw mental health #tw chronic illness #tw medical

[chronically-doing-alright]

Pharmacies should make it easier to transfer prescriptions. I’m missing my PPI I feel so sick right now. And the day after getting an oral piercing too. I hope to god I don’t throw up that would literally be the worst case scenario right now

#chronic illness #chronically ill #gastroesophageal reflux disease #acid reflux #chronic nausea #chronic illness vent #cw vomiting mention

[thecouncilofidiots]

I am angry? Upset in a way that feels aggressive. It just... this is our life now? Living at the whims of a body that doesn't fucking work right? No known cause, no cure, just trying to avoid flare up triggers and managing symptoms. We hurt, we're tired, and there's nothing we can do to fix it. -Ace

#shitpost #screaming into the void #chronic pain #joint problems #joint pain #chronic fatigue #chronic illness vent

[eternallysluggish]

Becoming chronically ill as a teenager is insane. Like damn I should be doing exams and hanging out with friends not trying to figure out what things make me bedridden

#me/cfs #cfs #chronic illness #chronically ill #disabled #chronic illness vent

[queercatcave]

Chronic illness makes it way too easy to self destruct. Feeling a migraine attack coming on and just not taking my rescue meds. Knowing I’ll be in agony and puking my brains out within a couple hours and not doing anything about it.

I feel like I should be more than willing to do anything to avoid that kind of pain, but all I need to do is take one pill and I’m just not doing it. I’m tired and I’m sad and I feel like a whiny little kid.

#vent post #chronic illness vent #self destruction

[sleepymenheragirl]

Really bad insomnia again. About to be 24 hrs no sleep.

Last time I was like this (last week) I had a seizure. Very brief, but it was the 3rd one this year, I think? Unless the constant deja vu and dream flashbacks counting.

I can't afford to see a doctor right now and get an official diagnosis or do the necessary testing to see what is going on. I'm scared for my health and future.

#seizure mention #epilepsy #chronically ill #health mention #health problems #chronic illness vent

[chronicsymptomsyndrome]

Mentally preparing to physically prepare to shower wish me luck lol

#audhd problems #executive dysfunction #sensory issues #autistic things #autistic thoughts #i hate showering #adhd autistic #neurodiversity #activities of daily living #self care #autistic self care #autistic trauma #adhd paralysis #adhd brain #adhd problems #adhd life #audhd brain #audhd struggles #adhd experience #adhd adult #autistic adult #autistic experiences #audhd life #adhd mood #audhd creature #audhd things #comorbidities #chronic fatigue #chronic illness #chronic illness vent

[frankiensteinsmonster]

I wish my individual joints weren't in such specific pain I have a kinesthetic map of my entire skeleton :(

#chronic pain #chronic illness vent #joint pain #fibromyalgia #cpunk #cripple punk #mobility aid user

[willowisachy]

im so young yet im in so much pain all the time.

its so depressing how i am stuck with all this and im not even 18 yet.

im so tired.

#chronic fatigue #chronic illness #chronic illness warrior #chronic migraine #chronic pain #chronically ill #fibromyalgia #chronic illness vent #vent

[narcatsisst]

maybe its my npd talking but i fully believe that no non-chronically ill person can understand what i mean when i talk about it. i tell someone im tired and they say i should take a nap and i tell them that wont work and they tell me they understand LIKE NO!!! YOU DONT UNDERSTAND. maybe sometimes youre already tired when you wake up. maybe sometimes naps dont work for you. but we are NOT the same. sometimes you get stomach aches when you dont know why. everyone gets tired after they exercise. but it is NOT comparable to what i experience. i wake up every day, still exhausted, no matter how much sleep i get. i have stomach aches 99% of the time. i feel like i could literally fall apart at the seams after doing minimal exercise. walking up the fucking stairs makes me feel like im gonna pass out. if youre able bodied and im talking about my illness, never fucking say you understand. because you dont. even if i try to explain it time and time again there arent words i could use to accurately describe what being sick all the time does to you.

#chronic illness #potsie #chronic illness vent #pots syndrome #dysautonomia #spoonie #pots

[0desiderium0]

it rly is exhausting to live like this. i’m exhausted. i’m gonna keep being exhausted. i will keep going. i wish it made it less exhausting to know that it won’t stop. it doesn’t. but maybe i am getting more comfortable with the thought.

#anon speaks #wolfteeth #trauma vent #chronic illness vent

[chronically-doing-alright]

this shit sucks I don’t feel well at all, my legs hurt. the heating pad is doing jack shit for my stomach cramps. I almost wanna remove body parts for my own satisfaction at this point. Diseases suck. Being sick sucks. Knowing it’s never gonna go away for good is the worst

#chronic illness #chronically ill #chronic pain #hypermobile ehlers danlos #diverticulosis #joint pain #leg pain #stomach pain #stomach cramps #chronic illness vent #vent