#part time wheelchair user | Explore Tumblr Posts and Blogs

chronicallycouchbound · 9 months

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Most wheelchair users are ambulatory.

Meaning, most of us can walk for short distances. We aren’t faking just because we can walk some of the time.

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rainbowchihuahuabunny · 6 months

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I hate being in this disability grey space. I'm well enough to work most of the time but that means I can't do anything else in my life. Disabled enough not to be able to keep up with others my age.

I'm constantly in pain and exhausted but well enough to have to push through to keep a job so I can afford to live and afford pain medicine and braces. I just subluxed my hip and am stuck in my wheelchair but I know I can't use my wheelchair at work cause I need my hands free. So, here I sit with a heating pad on my hip, sobbing and begging for the pain meds to help.

Just wish I were either fully abled or disabled enough to get help. Instead I'm stuck here. In the disabled grey space

#cripplepunk #chronic illness #chronic pain #chronic fatigue #chronically ill #ehlers danlos syndrome #pots #potsie #spoonie #fibromyalgia #actuallyautistic #autipunk #actually disabled #invisible disabilities #part time wheelchair user #ehlers danlos #ehlers danlos problems #ehlers danlos zebra #hypermobile ehlers danlos

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98lindsey · 1 year

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My sister: “So are you just not going to do anything ever again?” (Asking in reference to me not joining them on a family trip.)

Me: “Um, maybe. That’s kind of what being disabled means.”

Like seriously. Being disabled is literally not being able to do everything able-bodied people do. Me not going on the trip was a necessity so I didn’t push my body too far and crash, not something I chose because I didn’t feel like going.

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hell-on-sticks · 1 year

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Why do abled people have to be so weird about wheelchair users? I assume he didn't mean anything by it but I was putting back my trolley at the supermarket and stopped because a man was walking towards the entrance, I stopped to let him pass. And he stopped and did a grand wave forward and said "No YOU pave the way!!" all proud like me being at a grocery store in a wheelchair was massively inspiring to him.

Mate I was just putting a shopping trolley back it's not a grand act of activism, let a bitch buy cookies in peace

#disability #disabled #wheelchair #wheelchair user #ambulatory wheelchair user #part time wheelchair user #ableism #(?)#actually physically disabled #actuallydisabled #actually disabled #stick talk

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melodymorningdew · 9 months

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Having invisible disabilities causes a lot of tension in friendships and other relationships, because you're giving more than you should and they don't think you're giving enough just because you "look fine".

#invisible disability #invisible illness #chronic disability #degenerative disease #part time wheelchair user #wheelchair #dysautomnia #chronic pain #chronically ill #neurology #tics #tic disorder #tremors #audhd #autistic adult #autism #autistic women #adhd

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twyla19 · 5 months

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Im really pissed at how the healthcarw systems want us to just not be alive or not be able to do things on a regular basis.

I need a wheelchair part-time. I dont need it at home cause i can walk or stand, OR you know there are like at least 5 seats! But NOOOO my GP doctor said, "Since they (different pronouns cause im not out but yeah) can walk into the doctors office, im not saying they need it at all" AFTER GIVING ME A PERSCRIPTION FOR ONE

What the hell. Why give me a damn prescription and then basically say i dont need it?!?! Which is it? I know for a fact i need it or else im in immense pain, but no go ahead and show one fucking instance that I dont need it. But the multiple school trips, long concert days, and even just GOING TO LUNCH at my college's union doesn't count? Bullshit.

WE KNOW WHAT WE NEED

#what the fuck #physically disabled #wheelchair user #part time wheelchair user #disability

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chronic-chronic · 3 months

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Im gonna go pick up atleast a rollator but hopefully also a wheelchair from the disability services tomorrow for a loan!

#mobility aid journey #part time wheelchair user #rollator walker

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xerserise · 11 months

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I've made a few more customizations, but this was the first thing I added to my wheelchair.

Image: The back of a lightweight foldable electric wheelchair, with a black fabric back. A large patch of burgundy fabric is pinned to it with many safety pins. Bold white lowercase lettering on the patch reads, "my other disability is society's refusal to accommodate disabled people."

I'm not going to go into details about what it means. If you know, you know. If you don't know, look up 'social model of disability'.

A shout out to the person who put my words on a t-shirt and sent it to me, years ago. I don't wear text or logos, but I hung onto it until I could find a good use for it.

The text of this patch was written by me, and is released into public domain / CC0 (Creative Commons Zero license)

#disability accommodations #wheelchair #my first punk patch #my other disabity is society's refusal to accommodate disabled people #part time wheelchair user #occasional wheelchair user #don't get me started on the curb cuts in my town

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arquaticdreamer · 14 days

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TW: Abl//sm with blood family:

Love when I get to blood family's home and sometimes they still look at me like I can speak but can't now. And its just like I'm trying so hard but literally can't even get my mouth to even open. Point is I'm fucking done being in denial about it. Late regression is here and it's here to stay guys. Stop acting like I can just spill the beans. Or how 'bout the other one my mom likes to say, "hmm maybe you can walk" sure maybe if my FND allows me to but right now at that moment I needed to be in my wheelchair. So please stop apologizing to my caregiver as if she doenst get paid to do this. *rolls eyes*

#nonspeaking #autism spectrum disorder #aac user #actually disabled #nonspeakingautism #nonverbal #nonspeaking autistic #tw ableism #part time wheelchair user #wheelchair user #mobility aids #mobility aid user #arquaticautistic #arquaticcries #high support needs #level 3 autism

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pureangelic69 · 23 days

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Let me introduce Blanche - the coolest wheelchair around… (it’s currently too late to take a picture of how awesome it truly is!)

Anyway, I test drove it around London as I had appointments and my legs are determined to collapse at any given moment… it’s a complete joy to drive, when I don’t bump into something - my excuse is that I’m still learning to drive it. But I didn’t realise how unfriendly London truly is for disabled people.

Yes, I’ve been with @westbrookwestbooks multiple times with my other wheelchair but it’s pretty easy to manoeuvre unlike Blanche up and down small steps.

I digress, anyway, London isn’t disabled friendly. I wanted to go into a shop, and a passer-by asked them if there was a ramp to use. Apparently they don’t. I reminded them that they were breaking Disability Discrimination Act, they didn’t care.

Then, I went to the local Waterstones - the lift was tiny and very bumpy and when I tried to reverse out, I almost fell down the stairs because the stairs are right by the lift.

Not one place accommodates disabled people the way it should be or needs to be and don’t even get me started on disabled toilets when they open outwards when you use a key - it makes no sense at all!

I’ve heard and seen many stories from people either in person or via social media about their issues with London being a wheelchair user and after experiencing it for myself, I can understand why they get so frustrated 😩.

When are people going to realise that disabled people have a life too and want to be able to go out and enjoy some freedom in their wheelchairs.

#fibromyalgia #chronic pain #fibromyalgia sucks #chronically ill #chronically iconic #ambulatory wheelchair user #this user is a wheelchair user #part time wheelchair user #wheelchair #fnd pain #fnd awareness

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peepawsammywammywoo · 5 months

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Who knew that one random day at 12 I would wake up and just have a chronic illness

I'm 15 now, almost 16 and we don't even know what I have I just know I got somthing.

It's crazy

One day I could run, jump, swing and climb and now I use a cane most days and a wheelchair some days.

I could run, now i can barley stand.

#disabled #disabled teen #chronic pain #fibromyalgia #??#HEDS #POTS #idk what i have #part time wheelchair user #wheels on the chair go round and round #actually they dong my dad broke my wheelchair on accident #cane user #walking stick user #i hit ppl with my walking stick sometimes #disabldd #i spelt disabled wrong #chronic pain hh

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chronicallycouchbound · 7 months

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Hi, I have a question for wheelchair users, and since you seem open about your experiences I was wondering if I could ask you? If not just ignore this.

So I recently got a dog who is INCREDIBLY friendly. We go on a lot of walks and I'm trying to get him very well socialized. I do keep a tight leash on him sometimes because he still hasn't figured out the "no jumping" rule but he's starting professional training classes next week.

Anyways - there's at least 3 wheelchair users who we sometimes come across on our walks. Two are ladies who will reach over the side to pet him, and another is an elderly man with a lifted motorized wheelchair. They all like to say hello, and I don't want my dog to be freaked out by wheelchairs, so I always let them. With the man, I will pick my dog up for the initial greeting so that he can easily pet the dog, and then I put him down because he's a bit heavy while I talk with the man. The dog has tried to jump/put his paws on wheelchairs to get closer to the person, but I don't let him because that's the same/worse than him jumping on the person directly (especially if the wheels were to start rolling or if he were to damage the chair). Also, if someone doesn't show an interest in saying hi, we just keep walking - it's only when they want to say hi that I bring the dog over.

Am I doing okay with this? Do you have any advice on what else I could be doing to make sure people are comfortable with my dog and I don't put anybody or their wheelchair at risk?

Thanks for asking! I think you’re doing great so far!!

I always appreciate when someone lets me know what their dogs comfort is with mobility aids first and foremost. Things like “Hi! He’s really nervous around wheelchairs so we’re gonna try to stay out of your way!” Or “Hey! My dog is great with wheelchairs and I can promise they won’t jump on you, can they say hi?” These indicators usually give me a better idea of how to proceed!

I also recommend trying to just get consent before getting too close “can they say hi, they’re friendly” works great. Sometimes I turn down saying hi to even friendly new dogs when I’m using my cane or crutches because even a light bump against me will knock me over (let alone if a dog jumps on me!) and allergies or fears can also be a concern for some people! It sounds like you’re already having these conversations which is great!

Training is of course a solid way to make things easier for anyone with mobility aids so I’m glad you’re doing that!

I would also add, if the person seems not interested, trying to keep the dog as far away as possible is usually best, especially in narrow spaces! I always worry about accidentally rolling over their lil feets!

Thanks for the ask!

#asks #asks answered #chronically couchbound #disability #disabled #mobility aids #wheelchair user #ambulatory wheelchair user #wheelchair #part time wheelchair user

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rainbowchihuahuabunny · 5 months

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Anyone know where I can get a decent wheelchair cheap? I dont have a lot of income and am in the process of getting on disability but y'all know what kind of process that is. I have one of those cheap Amazon folding wheelchairs but I'm looking for a decent, used wheelchair. Im located in Missouri and I've already checked Facebook marketplace to no avail. I can't afford to buy a new one anywhere. I don't need it full time but I'm needing to use one more and more, and I might be needing one to be able to work.

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98lindsey · 1 year

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I’m tired of having to qualify my need for help.

Like if I say I need help getting dinner and need someone to bring it to me, believe me and just do it. I don’t want to have to explain in detail every symptom I’m having that prevents me from walking to the kitchen to get my own food just so an able bodied person can decide if I actually need help. Because, trust me, if I could just get up and do it to avoid the drama I would.

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gean-grey-blog · 8 months

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I canoed at least 31 miles down a river last weekend and I was only mildly fucked up. Yesterday I spent one whole hour on my feet and today I'm a blob of pain why is walking so hard 😂😅

#eds #elhers danlos syndrome #fibro #fibromyalgia #wheelchair user #part time wheelchair user

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melodymorningdew · 7 months

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Yo! Calling all disabled furries (18+) I'm opening up a sfw adult furry Discord server for those with disabilities of any kind where we can share and encourage and educate each other as well as engage in our darker senses of humor. I know there aren't a lot of disability/furry safe spaces so pls reach out if you would like to join.

You will be required to prove you are an adult by sending me or a moderator a pic of your government ID with all sensitive info covered up except your birthday. In the same picture we need a piece of paper with your username on it. We do not use or keep this information for anything other than verifying you are an adult. It's an adult server bc I want ppl to speak freely about tough subjects.

You do NOT have to be a furry to get in, you just have to be supportive and understanding of it.

You do NOT have to have an official diagnosis to be disabled or to be in the server.

If you are cool with those things hmu and we'll get you in!

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