#neuro fatigue

[themonsterthing]

Fun disability things:

When you’re so tired you can’t do like, do anything. And I mean *anything*.

The normative idea would be to chill out and watch a comfort tv show or read an easy book.

But your disability makes using your brain and eyeballs exhausting. And makes unexpected noises exhausting.

So instead you just sit and play stupid simple phone games and listen to quiet indie pop from your teens for hours because your brain cannot brain today.

Neuro fatigue is a whole new level of fun, yo.

#disability feelings #disabled #neuro fatigue #fatigue #TBI #brain injury

[frankiensteinsmonster]

Is it invalid to worry about your environmental impact as a person who lives on this planet (especially when loads of other people seem to live in ignorant bliss or openly just do not care)?

Not at all.

But as disabled people* I really think we should allow ourselves those accommodations we need/that would make our lives easier.

Bottled body wash lathers easier and saves you that tiny bit of energy while you're washing up? Can't seem take care of your bar of soap so it runs out fast because it's always wet and actively makes your bathroom harder to clean? You deserve to preserve your energy and keep yourself clean. Use it.

Bottled water means your executive dysfunction won't get in the way of you getting hydrated? Means you can keep water by your bed so you don't have to endure the physical pain of walking to the kitchen? Means your OCD symptoms won't prevent you from drinking water for hours-days at a time? You deserve to drink water without stressing. Drink it.

Paper plates and plastic utensils mean you get to eat without having to worry about dishes + prevents you from having an overwhelming sink full of every dish you own covered in rotting, smelly food that may even attract bugs and cause them to breed in your sink? You deserve to eat freely and live in a clean and safe environment. Use them.

Can't wash clothes on the regular let alone cleaning rags due to energy/executive function, ability, finances, ect.? Use paper towels. For whatever reason you need them. Spills so you don't take up your only clean towel and risk it sitting + developing mold and mildew. Wiping off your counters. Dusting. Drying your dishes. Drying your hands. I literally do not give a fuck. Use them!

Use frozen vegetables that come in plastic bags and frozen meals that come in single use plastic and floss sticks and plastic cups and precut fruit and veg and whatever little necessary 'convenience' you can think of that makes your life easier. Just because you Technically, Physically can pull it off doesn't mean you should and it's important we think about the consequences of our actions even if we're the only ones really impacted by them. You're important. And for a lot of us, these things are what makes the difference between Getting Things Done At All and sitting in shame because we can't bring ourselves to make our own everything and do everything the long or right way. We put too much pressure on ourselves to make up for what abled people aren't doing themselves. If Anybody deserves a break it's us.

Don't misconstrue this as discouragement from doing what you can or whatever, but I need all of us to be a lot more realistic about what impacts our lives and which trade offs are worth it for our own sake.

It's unfortunate that we don't have options for more sustainable resources when it comes to taking care of ourselves, but it shouldn't fall on us to choose between a significantly more difficult life or feeling guilt free. Advocate where you can for better treatment of the planet, and until that can happen-- non-disabled people can and should pick up the slack for us. They literally have that option and the impact they face is an infinitesimal inconvenience compared to the real health/quality of life consequences that build up in such a severe way over time. We deserve that little bit of leeway.

*disabled includes both physical and mental ailments on this post btw

#cpunk #cripple punk #chronic pain #chronic fatigue #neuro punk #neuropunk #spoonie #mental health tips #menhera #mothie speaks up

[justanotherstardrop]

this user doesn't want you to give up

#our userboxes #userbox #positive #positivity #userboxes #this user #mental health #mentally ill #mental illness #mental illnesses #chronic illness #chronic pain #chronically ill #chronic fatigue #depression #anxiety #autism #adhd #neuro divergent #neurodiversity #neurodivergent #actually neurodiverse

[ink-asunder]

I think the one thing about the mentally vs physically disabled argument, the wheelchair bound vs healthy passing argument, the "why am I as an able bodied but neurodivergent person not allowed to say the c slur" argument is just that...

The threshold to be physically endangered via ableism is just really fucking low. Someone who cannot move at all without a wheelchair cannot enter or escape areas that are not ADA approved. But also someone with dietary restrictions and fatal allergies (the most invisble illness of all, it feels like) are CONSTANTLY endangered by negligence, laziness, and malice. You need the privilege of money or benefits to access healthcare, but if you have ANY problem that is not GUARANTEED to get 100% better within 6 months, you are fucked and abandoned by the healthcare system. (Because the healthcare system is NOT designed to treat sick people. It is designed to keep healthy people healthy. But I digress.)

Autistic and psychotic people are physically endangered via saneism and ableism in situations like interactions with police. Anybody who has ANY physical condition that impairs their physical ability will face apathetic or malicious negligence. Anything from food allergies to mild joint pain to literal paralysis, you can be gaslit by a doctor, assaulted in some form, or have a near-death experience that is the result of ableism.

The sooner people figure this out, the sooner a lot of people will stop clowning about the various aspects of disability.

#all that being said dont use the c slur for yourself if youre not physically fucking disabled #physical disability and mental/neuro disability DO have a lot of overlap! #but there are things exclusive to physical disability that need their own space. #also understand that physical disability DOES come in varying degress of severity. but that variation ALSO has overlaps as well. #the same disability often does not limit 2 people in the same way. #but someone who is able to walk CanNot speak over someone who isnt able to walk in terms of accessibility. #also also universal accessibility looks like everybody having lots of options available in order to take what they need. #okay thats all ily bbye #disabled #chronic illness #chronic pain #chronic fatigue #psychosis #autism #saneism #sanism #ableism #ablism #accessibility #inaccessibility

[smollestskele]

So according to my ER notes, a bitch might have FND....

I hate it here lmao

#functional neurological disorder #note to self #“symptoms consistent with func. neuro. symptom disorder” #but also basically “could be seizures” #all ik is my chronic fatigue and dissociation finally got so bad my partner and i went to the er #and i saw that at the end #i just... am not daijoubu rn folks

[impulsivelycontentious]

I feel like my body has a personal vendetta against me when the left aide of my face starts feeling numb, my speech starts slurring, and I get dizzy...

And all I did was not feed it or provide adequate liquids because I was tired and also forgot.

How dare my body react like an organic organism. I am being persecuted.

#food #not eating #it's spd #and neuro fatigue #and also dumbassery

[readbetweenthelyme]

The Great Medical Mystery: A Tale of Seven Doctors

You know that feeling when you walk into a room, and you can’t remember why you walked in? Now imagine that feeling, but instead of a room, it’s a doctor’s office, and instead of forgetting why you walked in, you have no idea why your body has decided to wage war against you. Welcome to my world, the Twilight Zone of health. Over a span of four years, my body had transformed into a symphony of…

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#chronicillness #chroniclymedisease #disease #lymedisease #LymediseaseAwarenessMonth #Lymelookslikethis #readbetweenthelyme #spoonies #advocacy #chronic illness #cognitive issues neuro lyme #coping #diagnosis #doctor #doctors #EBV #fatigue #fibromyalgia #headache #health #humor #lyme #Lyme disease #Lyme symptoms #Lyme treatment

[dustedprince]

local man is simultaniously alert, exhausted and happy to have the ability to smile.

#the neuro is trying different meds for this #im so so so tired but i was able to draw last night #pushed it way too far but i needed it for my mental health #hands hurt but thats okay for now #the fatigue is still in my bones but its less noticable i think #me/cfs is a bitch actually

[angryschnauzer]

January 11th 2024

Yeah its been a while since i updated. I haven't had the energy to if i'm honest, but here we go.

Hubby had his brain surgery end of November '23. The tumour they took out was a nasty one, somewhere between the size of a golf ball and a kiwi fruit. The wound has healed well with little to no side affects apart from some double vision, but he was checked out for that and it is a common after affect of brain trauma and was remedied with an eyepatch for a few weeks.

We met with the Neuro Oncology team at Royal Marsden Hospital in London. They are one of the best (if not the best) cancer treatment centres in the whole country, and we worked through a treatment plan.

Just before Christmas hubby was also cleared to have shoulder reconstructive surgery (he broke his shoulder bone in the original seizures back at the end of October '23). There was a really small window of time between it being enough time after the brain surgery that he could go back under general anaesthetic, but also enough time to mostly heal before he started Radiotherapy and Chemo, so just 5 days before Christmas hubby was in and out of our local hospital in a single day to have that surgery.

Christmas was a quiet and subdued affair. I also herniated a disk in my back the day Hubby had surgery (i was clearing the deep freeze out ready for grocery delivery), so it meant both he and I were dosed up to our eyeballs on strong painkillers for most of the holiday, and Little Dude spent the majority of the break either playing video games or building his new lego sets.

Two days before Christmas i also had to have emergency dental work (i had been grinding my teeth and had previously cracked a tooth) and whilst i was in the dentists office some utter idiot crashed into my car. That was the last thing i needed but i simply handed it all over to my insurance company (who are aware of my husbands situation) and they arranged a hire vehicle and sorted repairs.

Onto the start of 2024. This is the first week of Radiotherapy and Chemo for Hubby. He is getting very tired and fatigued already from the Radiotherapy, but thankfully no nausea from the chemo as yet, but that could change over time. He is scheduled for a full schedule of 6 weeks of this dual treatment, where we are having to visit Royal Marsden every day Mon - Fri for the six weeks, and then he also takes the chemo 7 days a week for the six weeks.

He'll then have 4 to 6 weeks 'off' treatment for his body to relax and recuperate, but will have scans and MRI's during that time to gauge what further treatment will be, but its likely to be just chemo but a stronger dose, but no radiotherapy. The chemo is to be 3 weeks off one week on, so a 4 weekly cycle.

The one thing we have discovered isn't done is prognosis's. When we first got to Royal Marsden we were shocked as they started talking about years, and explained that although it was a really nasty tumour, it was found very early and whilst it was still relatively small for its kind. They've discussed things like 'this years treatment plan then we'll look at next years', and also for a while Hubby was being considered for a clinical trial which candidates who have prognosis's of 12 months+ are only considered for. In the end he didn't meet the criteria (his cholesterol was too high). The Macmillian Nurses also have been talking to us about Mobility Car assistance schemes where you can get govt assistance financially and get an adapted vehicle on a 2 year rolling lease. All these timings are reassuring in one way, but worrying in another - we have no idea what the future holds and it really does cement in stone that our time is limited and could end any moment, and makes it very difficult to make any long term plans. You don't realise how much of your life is preplanned until you end up in this situation and aren't sure if you can book your kid onto the school residential trip in 5 months time.

Should anyone want the mundane daily day-to-day life updates you can follow me on my personal instagram @simone_with_an_e its generally a load of utter boring bollocks, but i try to keep it updated daily with updates when i can as its a lot easier to do 1 short paragraph than a big update.

For me my mental health is a little better now that i've had time to process Hubby's diagnosis and that he is getting treatment. There are still days or hours when i fall apart, and it could be something as simple as listening to a song on the radio as i drive back from dropping Little Dude at school and i realise the song would be lovely at his funeral. I end up having to pull over and have a cry whilst switching the radio off. I'm loosing weight and aging quickly, my hair is turning grey from stress and i realised i've aged about 15 years in the last 3 from stress. My appetite comes and goes, and things like red meat now turn my stomach and i can't digest it. But i also haven't drunk alcohol since the day before Hubby had his seizure back in October. I feel like i need to stay 'alert' in case i need to rush him to the hospital for something. I don't miss it as such, but I miss the ability to fully relax. Its hard to describe but i feel like at the moment i've lost myself and am just functioning to care for those around me, going through the motions as such.

Anyway, this has been a long update. I do still lurk here, you may see me pop up in notifications liking something, but at the moment i don't feel its right to start putting fandom stuff back on here yet. I do hope to get back to writing at some point. I miss it and the unfinished stories plague my mind as i have such lovely plans for story arc's and really want to finish them.

Take care all,

Schnauz

xxx

[thebibliosphere]

How did you get rid of yr migraines?? #ineedthistoo

They're not totally gone, but I found out they were being hugely exacerbated by atypical binocular vision disorder. (Meaning I don't have the usual expected double vision, which was why my regular eye doctor missed it.)

I got tested by a neuro-ophthalmologist who did a 3, almost 4-hour eye exam to find that my eyes were not working in harmony and were likely causing a lot of fatigue and pain.

If you want to read more about how I got diagnosed and what it was like, I documented the whole thing on my blog. Just look for 'binocular vision disorder.'

If you want the tl;dr version: I am now wearing micro prism lenses to correct my eyes, along with a red tint to the glass to help with my severe photophobia.

My eye doctor prescribes migraine patients red-tinted lenses, as the red tint blocks more blue light than either yellow or green-- which are the typical color of lenses designed for screen use.

Even if you don't have any form of BVD, I'm going to highly suggest looking into red-tinted glasses, as even when I was waiting on my new prescription coming in, I was wearing a pair of non-rx red glasses, and my migraine pain severity went down drastically.

I didn't realize how much I was squinting and clenching my facial muscles from pain caused by blue light (natural and tech generated). All the screens in my house are now set to the night-light setting, which makes them orange/red, and I'm getting uv films for my windows so we can still see out but not have as much sun/snow glare in our south-facing home.

I'm also replacing the green acetate cover for my screen with a red one, just for an added layer of protection.

It makes my world very rosy, but it's helping*.

I also take magnesium and b2 as directed by my regular neurologist, which seems to help--though obviously, it couldn't help correct the issue my eyes were creating, so I'm interested to see if I get more benefit from them now.

The rest of my migraines now seem to be hormonal, which I am still pursuing, though sadly, with little help from my current ob/gyn. Need to work on that.

Anyway, that's how I went from 15-20 migraines a month down to 3. My eyes were fucked. They are still fucked, and I'm doing vision therapy along with the prisms to try and help, but so far, it's working!

---

*For anyone wondering, I still do green light therapy, which is also recommended for migraines. I'm just also trying to block as much blue light as possible, as that seems to be a major source of pain for me, not to mention the disruption to my sleep schedule. I've suffered my whole life from delayed sleep phase syndrome as part of my ADHD, but my chronic insomnia and problems sleeping have improved a lot since I started wearing red lenses and filtering all the tech in my house. (Ignore that I'm posting this at 2am, I'm awake by choice.)

#binocular vision disorder #atypical binocular vision disorder #chronic health tag #chronic migraines #long post

[tengritexas]

Candle Light Meditation: The Peculiar Treatment for Insomnia, Irregular Sleep Patterns, and ADHD

Hi everyone! Today Im writing about a new meditation trick Ive been testing out and Ill be sharing how to do it if youre interested.

Why I chose to do it

While I may like to do old man things, sitting at home and watching candle lights werent really my idea of a good time. However in the past few weeks Ive had really big issues maintaining a healthy sleep pattern and Ive always struggled with ADHD and getting school work done. I was told by a buddy of mine about mindfulness meditation and that has helped my adhd in the past so I figured this was worth a go!

Candle Light Meditation Craze

If you go to google or youtube youll certainly find all kinds of gurus and spiritualists suggesting this meditation will "decalcify your pinal gland" which would be something impacting most of us around the age 18-30 depending on diets and things like that

Here is the issue THERE IS NO RESEARCH TO SUGGEST THIS PRACTICE DECALCIFIES YOUR PENAL GLAND. So to say if that happens or not is not my place. Im a dude who posts bangers on the internet, not a neuro scientist.

What it did do

Despite the research not being there. I can tell you in the few days of doing it I have noticed my focus has sharply improved. My fatigue isnt so bad either. My sleep schedule hasnt improved to much yet but hey! Im a college student Im busy chatting and making friends (doing essays lol).

I believe some of these symptoms are associated with the pinal gland but again, I have no idea. All I can tell you is I do eat frozen foods often and this did help. I dont have a CT scanner in my room so beyond that I have no idea lol.

How to do candle light meditation

Grab a candle, light it and turn off as many lights to get the room as dark as you can. Try to use a candle with a still flame and turn off fans aswell.

Try to focus on the most solid part of the flame for a few seconds up till 3 minutes. You ideally want to do this until you feel a fuzzy feeling in your head.

Turn away from the candle and close your eyes, you should see the imprint of the flame, stare at that for as long as you can until it goes away.

Try to do repeat process 3 times a day (in one setting) for 5 days. Usually by 5 days you should begin to feel a strange tiredness in your mind. This is what your looking for. You are overloading that part of the brain because its not really being used. Much like trying to run for the first time in a few months.

The end result

Around day 5 you should find yourself being able to focus more! Ive also heard some people report it helps them with creative writing aswell but I cant attest to that.

Let me know what you guys think! Hope it helps :>

#pagan #witchcraft #magick #witchy #shaman #witchblr #paganism #witch #tengri #shamanism #adhd #adhd goes hard

[flutterbyfairy]

i have a neurologist appointment in about a month that i'm quite nervous about due to previously being dismissed/not having my concerns listened to, so gonna post this to ask for some advice on getting Taken Seriously or if anyone knows things about the type of condition i might have about what i should be asking them to do/test.

might be quite long so putting it under a read more, and tw for medical stuff and doctors being dismissive. also i am So So Tired and therefore not able to think very clearly so apologies if i've messed up any of the medical info about conditions i mention and apologise just generally for the rambliness of my writing.

summary of why i'm going:

bunch of disabling symptoms that have continually progressed over the past 5+ years, including: muscle weakness, fatigue, muscle twitches/small spasms, nerve pain, blurry vision, lack of coordination (have this from autism, however has gotten significantly worse recently so might also be related to neuro stuff). first symptoms were difficulty having my arms over my head (like having to take multiple breaks while putting my hair into a ponytail because i couldn't hold my arms over my head for the like.. three minutes to do a ponytail) and blurry vision (that optometrist has said seems like might be due to a systemic disease because of how variable it is) since i was 13, which was seven years ago. i started getting more impairing symptoms when i was 15, and began needing a wheelchair for anything that required standing or walking for more than 10 - 15 minutes. i'm currently 20 and need my wheelchair whenever i leave the house, i can't leave the house or do things around the house often, i can stand for a max of like four minutes and can't hold my hands above my head for more than like 30 seconds to one minute. pretty much all my symptoms get a lot worse with any exertion.

GP thinks i have myasthenia gravis, but the test for acetylcholine receptor antibodies was negative and he doesn't have the ability to do other tests.

the neurologist has already said he thinks i have functional neurological disorder and that i should do CBT and pysio to improve my functioning (i already know CBT is horrible for me, i'm in other therapy which is good, i've done some psyio before but she just taught me some stretches and that was it, more psyio could be good but it'd have to be with someone who isn't trying to do a graded exercise therapy type thing since i get PEM). he has mentioned doing a spine MRI but this hasn't been done yet. he said he doesn't want to do further testing for myasthenia gravis but i will probably try to get him to agree to doing a repetitive nerve stimulation EMG or something.

i also have scapular winging on the side of my body with worse muscular symptoms which has also caused a lot of nerve pain, and i might also have some sort of spine issues (straightening of cervical lordosis was seen on a CT scan, they said it was probably due to muscle spasms, and i get a lot of neck pain which might be due to that? as well as a ton of back pain along my spine. might have CCI but haven't been tested yet). since it seems like i'm getting some structural changes in areas where i also get a lot of the pain and weakness and spasms i'm hoping if i bring that up the neurologist might maybe look more at organic causes + the state of those structural changes but i dunno.

he did a basic neurological exam in my initial appointment with him and said that i have give way weakness/waxing and waning weakness because when he got me to do the pushing my limbs against resistance i could do okay for a couple seconds but couldn't maintain it. he also said in the letter that i had positive hoovers sign however i am.. very confused by this because from my understanding hoovers sign is mainly looked at when someone has one limb that's at least somewhat "normal" and one that either can't be moved or is very weak, and then the person can't move the weak leg but when asked to push the stronger leg against resistance they push the weak leg down. both my legs are strong enough that i can stand and whilst one leg is a bit weaker they're relatively similar. i lifted and pushed against resistance with both legs so.... i am not sure how hoovers is applicable here? does anyone know why it was applied and if that was correct or if i should be challenging that? he's saying that the give way weakness and positive hoovers are indicators that the problem is "non-organic" and therefore should be treated with CBT and pysio.

i'm not sure what i think is actually going on. i think myasthenia gravis might make sense, but also so could other neuromuscular diseases like a mitochondrial disease or something. also very possible it's myalgic encephalomyelitis (aka chronic fatigue syndrome) but obviously that one is a diagnosis of exclusion so i want to rule other things out if possible. i want to know what's going on so i can have the best chance of being as well as is possible for me. i know CBT is not right for me and whilst some type of pysio could help a bit/prevent some decline (based on past experience i know it won't Cure Me but obviously it can help a bit to build some muscle or maintain range of motion and things like that which are important) if there's other things i can do on top of that i want to.

i've tried to do research to work out the best tests to ask for and i think EMG might be good but also know a normal EMG doesn't typically pick up myasthenia gravis so it needs to also have repetitive nerve stimulation i think?

i can't see a different neurologist at least not anytime soon, so i need to get this neurologist to do as much to help as possible. a social worker from where i get therapy is coming to the appointment to help me so that should be good but i need to work out what the best way to advocate for myself is and what tests are going to be the most useful to ask for.

if anyone has any advice for getting doctors to take you seriously or for any tests i should be advocating for or conditions i should be looking into or anything i would really appreciate it <3 (emoticon description: heart)

#in case it's relevant: i also have type one diabetes autism and POTS #things i've had ruled out : FSHD and multiple sclerosis (had brain mri and spinal tap) tho a nurse told me she thinks i should get checked #for multiple sclerosis again because it can have false negatives? not sure #FSHD was tested through a research project thing and the result was negatiev #medical tw #doctors tw #gonna put this in a couple of tags so people who have had similar experiences/might have advice might see it #cripplepunk #actually disabled #neurological disease #neuromuscular disease #ME/CFS

[zeldahime]

Highway to Pail Day 8

[Day 1] [Prev] [Next] @do-it-with-style-events

February 8: I need a cup of coffee before I can espresso my feelings.

One of the upsides to being a demon was that, sin all you like, you couldn't get addicted. Didn't have the neuro-whatsits and thingies for it. It was kind of unfair to stick the humans with that, in Crowley's opinion, but nobody had ever asked him. Aziraphale would probably say something something overcoming the body through strength of will showed the triumph of the Almighty or whatever, but Crowley knew he didn't really believe that either, not after whatever happened while he was Downstairs in the 1800s. Last it came up, Aziraphale had said something about China, got a haunted look in his eyes, and changed the subject.

Anyway. Addiction. Just because a demon couldn't get physiologically addicted to substances and/or sins, apparently didn't mean he couldn't experience something like it.

When humans don't get their morning coffee, they're irritable and feel like shit and really long for something nice and hot to drink to help them focus. When Crowley skipped a morning coffee, he was irritable and felt like shit and wanted something hot to drink that'd help him focus. It's a good thing Crowley didn't know about the headaches or fatigue, or he'd probably get those too.

He'd been in Las Vegas for four and a half hours, all of them had sucked, and all the coffee shops in a mile radius were either Starbucks brand or used Starbucks products. The infernal inspiration job he'd done on Howard Schultz had gotten him a good thumbs-up from the line supervisor in charge of the Americas, but Crowley seriously regretted it now. Maybe if he'd at least handed it off to Aziraphale, the quality of the mass-produced omnipresent too-burnt coffee would be halfway decent. Then again, probably not; you couldn't teach taste, and Schultz didn't have any.

He was desperate enough to try his luck anyway. Maybe if they dumped enough sugar and milk on it, it'd be almost drinkable.

He stood in the interminable, echoey line at the MGM behind a pair of blonde teenage girls with the words "AMERICAN EAGLE" written across their faux-vintage t-shirts in bold—jingoism extended to even trendy rich kids, apparently, weird fucking country—scrolling through the contacts in his Sony Ericsson (custom matte black with red lettering on the keypad) to decide who it would be most annoying to be on the phone with while ordering.

"—and Sammy was like, what are you gonna get, and I was like, to be honest I don't really know because, like, I never tried it before? And he said the best thing for me would be a frappy-whatever, since they're sweet."

"Sammy's a freak, dude, they've got so many calories, oh my god. I could never."

"No, what? But he said it was like, mostly milk? I thought milk was good for you."

"Maybe like with cereal but my mom said the frappés here have like two thousand calories or whatever."

"No, oh my god!"

"Right? Oh my god. So I'm getting a 'PSL,' that's what Lauren, you know, Jessica's sister that goes to UNR, that's what she gets." Crowley could nearly hear her saying the quotation marks around "PSL." He perked up, just a bit. Almost anything teenagers thought uni students did was either sinful itself or could be twisted that way for work, and he did not have a great feeling about this temptation job.

"What the heck is a PSL? I don't see it on the menu?"

"Pumpkin spice latte, it's on the big sign in the middle."

"Oooohhh, that looks good, maybe I'll get that too."

Well, now Crowley had a new coffee order. Wouldn't freak the barista out as much as "six espressos in a big cup, nothing else" and then filling the rest of the cup with sugar and half-and-half to absolutely drown the shitty coffee, but a little recon was still work. Besides, how bad could it be?

The girls ordered their coffees without incident, he ordered his coffee while obnoxiously on the phone with nobody since Aziraphale was in New Delhi for a book thing and refused to buy a cell phone, and it took a hellishly long time for the shortstaffed baristas to make the coffee, but that was all alright. It would be fine. Crowley would get his caffeine fix and everything would be alright.

The coffee was bad. He'd expected it, but still managed to be disappointed. Burnt Arabica made lukewarm by the addition of cold milk was just a bad job, which meant he had done a good job on the Schultz thing, but was currently bad news for him.

But the coffee wasn't as bad as it could be.

Pumpkin spice, it turned out, was mixed pudding spice, cinnamon and nutmeg and allspice and cloves, no vegetables involved. It made the coffee smell wonderful, and putting it on actually good coffee was something he'd have to suggest to Aziraphale when he got home.

He'd have to put some a little creativity into twisting this into a sin, but his bosses would like it, always liked a bad job paying dividends in the future. Lying to people about vegetables to sell coffee was probably something. Greed, maybe, if you squinted? Could probably twist it into a virtue, too, Heaven liked it when Aziraphale could "thwart" one of his schemes. Maybe humility. Have some burnt coffee with nice spices to remind you that God made spices and humans made bad coffee, or something.

He'd figure it out after he found the guy he needed to convince to card-count and the lady he was supposed to convince to go into politics. He wasn't sure he remembered which was who's job, honestly, but the "PSL" thing was going to be a hit both Up and Down.

Author's note: This is a period piece. It's set in 2005ish.

I don't remember if there actually was a Starbucks inside the MGM in 2005 but there was one by 2007 so I'm going with it.

American Eagle is a clothing brand that was extremely trendy at the time; I desperately wanted to have one of those shirts, but I have never ever fit into skinny-mini model clothes, and so alas, I never did.

The Sony Ericsson was a high-end phone in Europe at the time and boy does this take me back. That's what my knock-off not-Nokia looked like! I used to be able to type so quickly on that thing under my desk, you have no idea.

UNR stands for University of Nevada, Reno. I don't know why Crowley knows what that is. Maybe one of the targets is a student there.

#my writing #do it with style events #highway to pail #crowley good omens

[madamlaydebug]

Hidden deep within your brain the pineal gland is regulating daily and seasonal rhythms in response to sunlight. Unfortunately, accumulating neurotoxicity, inflammation, and calcification, is silently crushing this critical gland.

Pineal Purpose

The pineal-body is a pea-size pinecone-shaped endocrine gland weighing just 0.1g and floating in its own pool of cerebrospinal fluid, above the roof of your mouth. It contains photoreceptive cells that switch on, and off, hormone and neurotransmitter production on or off in response to sunlight.

Seeds, greens, avocados, and burro bananas - make sure you fuel pineal production. Dr. Sebi taught us that “Real Soul food is food that enhances the Soul, our central Sun, our carbon. Fruits, vegetables, grains, this is REAL food.”

Master Conductor

The pineal gland controls other endocrine glands, interlinking the brain with the body via hormones and neurotransmitters. Acting like a biological-clock, the pineal gland coordinates our interaction with the sun:

Rhythms: sleep and wake cycles, seasonal responses.

Reproduction: fertility levels and sex hormone production.

Regulation: growth, body temperature, and blood pressure.

Immune: activation, tumor suppression, cell rejuvenation.

Neurotoxins and Calcification

Toxins cause inflammation, reduce mental efficiency, and deregulate hormone production. Sleep disorders, depression, and neurodegeneration (e.g. Alzheimer’s) are all associated with calcification of the pineal gland.

Deposits of chalky calcium restrict the gland, reduce its size, and impede the production of neuro-endocrine substances. The pattern of pineal calcification is similar to teeth-enamel, and fluoridation (water and toothpaste) is linked to the destruction of this enigmatic gland.

Detoxification, Relaxation, and Nutrition

Chronic inflammation causes calcification. Reducing exposure to inflammatory neurotoxins begins to restore the correct mineral balance, and decalcify the pineal gland:

Fluoride: highest concentration in the body found in calcified tissue in the pineal gland.

Chlorine: public water is bleached with chlorine, associated with neurological birth defects.

Aluminum: leaches from pots, pans, and foil, associated with plaques seen in Alzheimer’s.

Sugar & chemical sweeteners: over-stimulate and damage neurons, reduce dopamine.

MSG & derivatives: confusingly labeled, many processed foods include this neurotoxin.

Endotoxins: bad bacteria in the gut produce toxins that inflame the gut and brain.

Stress: prolonged fear is toxic, causes the amygdala to shrink, and emotional fatigue.

The next step is supporting the brain to clear the waste and rejuvenate:

Sleep: at night the brain is ‘washed’ clean, detoxified, and replenished with nutrients.

Hydration: to bathe the brain and pineal gland you need to keep fluids flowing.

Meditation: like exercise for the brain, rewires, and strengthens your emotional health.

Berries (except cranberry): reduce free radical damage and nourish with flavonoids.

Coconut oil: alternative fuel for the brain which produces less oxidative damage.

Apples, seeded grapes & prunes: are high in boron which naturally displaces fluoride.

Tamarind: increases fluoride output in urine, helps retain zinc and magnesium. Fresh organic tamarind pulp or paste is easily mixed with water into a sweet and sour flavored drink, add a little agave if the taste is too lip-puckering!

•Dr. Sebi

[vikingnerd793]

I've had such a good symptom week and today has been the best I've felt in months

I've been able to swallow without much issue, even if I do feel slightly fatigued in my jaw after. I've been able to walk around as I see fit without worrying my legs will give out. I've been able to talk without my larynx feeling like it is being squeezed.

I even sat up on a client call in a gaming chair and had real energy!

My neck is still super fatigueable but for the first time since February, I can turn it when standing and it feels like there is real muscle tension there.

Honestly, this level of strength I am at today is very reminiscent of my strength level in 2020 when I had enough symptoms to be able to game in a recliner, and maybe go for a brief walk. I have my neuro appointment on Monday and it's starting to feel like I am coming out of some kind of acute disease flare of whatever is yet to be diagnosed (thanks, fucking infection, surgery, three antibiotics with two allergic reactions, panic attacks and new medication that caused a further exacerbation!!!) .....my hope is this goes the way of 2020 and I return to a normal-ish baseline. But this time, the disease gets a diagnosis and an actual treatment instead of me waiting for the ticking time bomb of the next flare once every few years.

Fingers crossed I continue to improve and can return to a life where I can game, work, maybe lift even, and eat normally so I maintain muscle mass I have left.

[headpainmigraine]

Day Four of the Migraine World Summit involved an interview with Aimie Apigian, who founded 'Trauma Healing Accelerated'

She spoke about how trauma is physically stored in the body, the difference between the body's stress state and the trauma state.

She considers that telling your trauma story over and over re-traumatises the body, so that often people feel fatigue or a chronic pain condition flare up after therapy.

She offers help with dealing with the physical effects of trauma in the body regardless of the 'story' of your trauma, whatever it may be.

The interview included some links that might be helpful for people to look over

Trauma Healing Accelerated

Somatic Experiencing International

Adverse Childhood Experiences

Guide: Steps to Identify and Heal Trauma

Study: "Relationship of childhood abuse and household dysfunction to many of the leading causes of death in adults"

NOTE: The Migraine World Summit cautions that "the alternative theories presented in this video have not been medically reviewed"

HER CREDENTIALS: Dr Apigian is a double board-certified physician specializing in trauma, attachment, addiction and cellular-level trauma, as well as a fucntional medicine physician specialising in neuro-autoimmunity, nutrition and genetics for addiction, mental health and mood/behavioural disorders, with certificates in trauma therapies.

I hope this is helpful to someone, but please read with a critical eye, and of course, don't take drastic action on this information if you're under the care of a doctor without discussing it with them first.

#trauma #trauma recovery #chronic pain #spoonies #trauma and chronic pain #migraines #chronic migraine #headache #headaches #migraine #chronic illness #trauma therapy #disability