#living with eds | Explore Tumblr Posts and Blogs

akindplace · 23 days

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My illness has no cure. It probably won’t have for the duration of my life. It won’t “get better” because the scientific community is still trying to understand it and there is not enough academic research on it, unfortunately. Many doctors haven’t heard of it, and they don’t always know how to help, how to treat it. Everything is always very experimental and there isn’t a single solution for the symptoms of my illness since every person suffering from it has very different experiences.

Yes, there is no cure, and they won’t probably find one soon. But there is something else that can be solved, there is a resolution to be found: it’s acceptance by society. Accommodation. That often involves people having to be educated, because often the worst judgments come from a place of ignorance. But I believe society can know better. I believe in advocating for the rights of disabled people. The quality of life of a disabled person like me can greatly improve when others understand that my body might work differently than theirs, that my limitations don’t always allow me to be the most productive all the time, that I am dealing with chronic pain, and chronic health problems, but I am still a person, just as anyone else.

As social creatures, we need each other. And it’s okay that different people have different needs. And needing more or less support should not define your worth or how integrated you should be into society.

#cw chronic illness #cw chronic pain #on being human #on support #on suffering with a chronic illness #living with eds #living with chronic pain #on acceptance #original writing

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spookietrex · 2 months

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On this week of my body is trying to kill me

I keep waking up in severe pain and having severe insomnia. So I started researching into what could be flaring any of my millions (could be an exaggeration, but who really knows) of chronic illness. Guess what I found out!

Even though my testosterone makes me feel more comfy in my body, it can make my depression worse and flare my fibromyalgia, POTS, hypermobile EDS, and others because hormone changes (like perimenopause) are hell for the chronically I'll. My testosterone is at 94 (hell yeah!)

Even though heat and hot baths make my fibro and hEDS better, it makes POTS worse 😂😂

Flashback central this week and who would have thought all those intrusive memories about being told that I'm fat that led to an eating disorder would make it hard to eat...? 🤷‍♂️

I'm in so much pain that I can't exercise...Exercise and physical therapy help improve my pain with EDS and POTS.

I hate my body.

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cliopadra · 6 months

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*laughs nervously* Izzy? Dead and gone for good? Naaaah, of course not, he’s just in the gravy basket…or on his way to get sea witch necromancied back by seagull Buttons. He’s ok, he’ll be back…he’ll totally be back 🥲.

#ofmd s2 spoilers #our flag means death #our flag means death s2 #izzy hands #ed teach #stede bonnet #anyway he crwled out took his stuff rowed into the sunset where he caught up with the revenge and got to live his happy ever after with his #found family and didn’t die until YEARS later where he got killed during a raid or died of some crazy pirate disease or something #cliopadra blabbers on #my art #my art crap

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thebeloathed · 2 months

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They all could be switched around and it'd still be true

#I love them sm #they live rent free in my head #alphonse elric #edward elric #ling yao #fmab #fma #fanart #digital art #first ever time drawing Alphonse #he looks so polite but Ed knows he's just as much of a little shit as he is #no one just believes him when he says that #fullmetal alchemis brotherhood

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soapbubbles511 · 6 months

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And now free

#they needed to let their past lives go #including the person that they had been trapped there with #and now free #ofmd #ofmd s2 spoilers #our flag means death #edward teach #stede bonnet #ed/stede #izzy hands #mary bonnet

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tennant-davids · 7 months

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OUR FLAG MEANS DEATH 2x03 The Innkeeper

What do you like about living?

#our flag means death #ofmd #ofmdedit #ofmdsource #blackbeard #taika waititi #twaititiedit #usereena #userkristi #userisaiah #userleila #userelio #*laurengifs #userbbelcher #chewieblog #congratulations and best wishes to stede bonnet on his efforts to make ed's life worth living <3

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laniidae-passerine · 6 months

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Our Flag Means Death Season 2 Episodes 6 + 7 Reductress Headlines

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sollee-art · 25 days

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Thanks guys! 💜 I’ve read all your posts, mb I should reconsider the concept of finished artwork. In my thought a finished work is with clean line, background and complex colors. Well, some more practice drawings, mb you want to see one of them as a full-color art?

#ofmd fanart #our flag means death #ofmd #blackbonnet #gentlebeard #ed teach #stede bonnet #ed x stede #ofmd s2 #long live ofmd #ofmd season 2 #sollee art #sollee-art

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dorywhynot · 22 days

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"What Makes Ed Happy" (detail) 2022.

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prints

#because i fucking miss them actually #I want to make new art to express my love and heartbreak #art block is a bitch #our flag means death #long live ofmd #ofmd #stede bonnet #ed teach #gentlebeard #fanart #drawing #illustration

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bizarrelittlemew · 7 months

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i hope someone mentions to Ed how Stede was moaning his name in his sleep every night. he deserves to know

#especially if it's maybe pete saying like “at least we don't have to listen to that every night anymore” while ed is present #turns out they'll just get the double-up live version now #ofmd s2 spoilers #ofmd s2 #ofmd #our flag means death

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akindplace · 1 year

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My body is not what I wanted it to be, what I expected it to be in my late 20s. But it is still my body. It still gives me life. It is still trying to keep me in this earth despite its shortcomings, despite the awful things that have happened to it. My body might not look or feel the best, but it allows me to be here to watch my dogs play, my boyfriend laugh, to see the specks of brown in my mom’s loving green eyes, to observe birds on the trees and how pretty the sunset is. My body fought alongside me through thick and thin, and by accepting it and taking care of it, I can honor it.

I need to work with what I have, and not despise my body when it feels sick and exhausted. I cannot accept only the good parts about myself, I cannot love my body only when it’s most useful. It deserves be cared for in appreciation for keeping me alive and for it to continue to do so. My body should get to just… be. It doesn’t need to be judged so heavily by what it can and cannot do. It can just exist, and I don’t have to be ashamed of it, because human bodies don’t work based on moral values, they work according to their own nature. Every life is valuable in itself, and that’s all that matters, so it’s not for anyone to judge someone’s body, and I don’t want to judge mine for not performing to high standards.

For now, I want to think of my body as something that I can fight with, not against it. It is just another human body, even though it’s different in some aspects from other people’s. It’s okay for it to just be.

It’s okay for me to just be.

#self-acceptance #body neutrality #self-worth #self-compassion #recovery #perfectionism #chronic illness #living with eds #original writing

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xwhimxpronex · 1 month

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It’s doooooooooooone! My second piece of OFMD fan art🏴‍☠️

This one took me two weeks. I took some artistic license with their hair because hair is hard lol. And I could analyze it for flaws forever, but I’m mostly content with the finished product.🥰

I am SO grateful to everyone involved with the making of the show and to every single member of the crew I’ve interacted with so far…thank you so much for welcoming me with open arms and being the very best humans! This community and this show give me so much joy and comfort, and I’m so inspired by all of you every single day.🫶🏼

#our flag means death #ofmd #ofmd fanart #stede bonnet #ed teach #blackbonnet #gentlebeard #boyfriends #taika waititi #rhys darby #long live ofmd #save ofmd #adopt our crew #crew for life #mermen #ofmd season 2

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anagirllifeblog · 3 months

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Best feeling ever

The feeling of updating my cw to a lower number 💕💕💕

#tw ana diary #ana bllog #ana trigger #ana rant #pro a4a #ed disorder #tw restrictive ed #tw ed diet #ed not sheeren #ed life #living proof #thinspø #tw disordered eating #cw #low cal diet

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babykittenteach · 21 days

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Happy soft sub Saturday!

#ofmd #ed teach #stede bonnet #or just caturday if you prefer #if ever a man was made for a day collar tho #how often do i think about the cravat?#trick question “often” would imply I ever stop and then come back to it #no the shelter i live in is made of the cravat and the stab me scene leaning against each other over a base of the bathtub head rest #anyway hi hey how're you today

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persephon3schild · 2 years

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that shit never ends

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laceratedlamiaceae · 7 months

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"It wasn't actually you who stabbed the painting, was it?" Stede asks suddenly in the middle of their training.

"No," Izzy answers after a moment of careful consideration.

"Then why'd you tell me you did?"

"I thought Edward was dead. And I want"--Izzy heaves a shaky sigh--"I wanted someone to remember him fondly."

"You mean me?" Stede asks, pointing at himself dumbfounded.

"Fuck if anyone else is going to, after all the shit he did."

Stede takes a moment to consider this. Even after everything his crew has told him about Ed, he finds it hard to believe that it isn't all just one big misunderstanding. But if Izzy, Blackbeard's most loyal servant, was saying it as well…

"Not even you?"

Izzy shakes his head, holding back the tears threatening to well up. "Not anymore."

#and then they kiss and live together happily ever after without ed the end #idk my internet went out for like half an hour and then this happened #our flag means death #ofmd #stede bonnet #izzy hands #stizzy #kind of #ficlet #ofmd season 2 #ofmd season 2 spoilers #ofmd s2 #ofmd s2 spoilers

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