#hashimoto's thyroiditis

[survivingfmandcfs]

Hey sorry I can't come out tonight after all. Yeah I accidentally ate some sweetened yogurt and now I have to spend at least the next twelve hours lying in bed because I'm shaking too hard to stand up.

#fibromyalgia #me/cfs #pots #hashimoto's thyroiditis #chronic fatigue #chronic illness #chronic pain

[danny-ric]

"Hashimoto's/hypothyroidism isn't a real disability. You're just being dramatic."

#kill stab murders you #personal #disabled #disability #hashimoto's thyroiditis #hypothyroidism #thyroid disorder #autoimmune disorder

[1863-project]

This is a really difficult time of year for me now. It's been this way ever since I got sick.

Hashimoto's thyroiditis, the autoimmune thyroid disorder I have, causes both weight gain and weight loss resistance. At this time of year, everyone is bombarded with things about weight loss and exercise and all of that stuff, and it's really difficult when your body isn't capable of it. Exercise is difficult when your thyroid pushes on your trachea and makes it harder to breathe, and you can't do it very long anyway since the same issue has caused you muscle weakness. You have to take everything slower.

I used to enjoy hiking. I can't walk uphill now without being short of breath almost immediately because of the pressure going at that angle puts on my trachea.

It hurts to see all these people talking about how they're going to "improve" their bodies and become rail thin and lose weight and knowing that they think your body is unacceptable because you're sick and it won't change the way theirs will. Diet and exercise can't really do much when you have an autoimmune disorder, and when you try to find out more you find all these quack products and solutions that clearly don't work.

My weight's plateaued at the point it's been at for a few years now. I'm not really getting any bigger anymore, and most people don't even notice it even though I feel like I'm distended. It's dysmorphia on my end - I never look the way I do in my mind - but since I'm not completely flat with no body fat the people in the commercials and ads and medical professionals are all going to just keep trying to "fix" something that can't be fixed because I have an autoimmune disorder.

I want so badly to feel comfortable in this body, but it isn't considered attractive or beautiful or even acceptable by society at large, so it makes it so difficult to really be okay with it.

I'm dysmorphic. This is what I look like in reality.

Even looking like this, doctors like to focus on my weight, so you can imagine what people far bigger than me have to deal with.

I wish we could just move on from this, but it doesn't look like we will anytime soon.

#Hashimoto's #hypothyroidism #tw: weight discussion #Hashimoto's thyroiditis

[aroaceconfessions]

Small vent, because recently I learned that I have Hashimoto's disease and that does explain a lot since it can cause a lot of different problems, but one of them is lack of libido.

I've identified as an asexual since I've been 14 years old, and over the years I've come to terms with it and became comfortable, even happy, by identifying as ace. I like not having any sexual attractions- but what if it's caused by this illness? It's not that I would feel like an impostor in ace community, but what if I'll get my treatment, and suddenly I'll just feel the attraction, because it wasn't there for the lack of my libido? I would have to accept that the label I was comfortable, that I grew up with, is suddenly not me? I'm suddenly really scared of the treatment even though I really want it, because I feel horrible in my body and this will help to change it, but yeah. I also have my concerns

Submitted May 4, 2023

#asexual #ace #aspec #acespec #hashimoto's disease #hashimoto's #Hashimoto's thyroiditis #impostor syndrome

[delusional-delirium]

GUESS WHOSE THYROID IS SO MUCH BIGGER THAN THE SIZE IT SHOULD BE

GUESS WHOSE S NEW ENDO SAID THEIR OLD ENDO SHOULD N O T HAVE IGNORED IT THAT LONG

GUESS WHOSE S NEW ENDO SAID THEIR THYROID IS ONE OF THE BIGGEST THYROIDS THEYVE EVER SEEN

GUESS WHO NOW HAS TO POSSIBLY HAVE SURGERY TO REMOVE THEIR THYROID

GUESS WHOSE OLD ENDO CONTINUOUSLY IGNORED THEIR CONCERNS AND BLAMED IT ON THEIR WEIGHT OR ANXIETY DIAGNOSIS AND TOLD THEM TO TALK TO THEIR PSYCHIATRIST FOR YEARS

#I HATE HIM I HATE HIM #medical malpractice #medical neglect #bad doctors #good doctor #the new one is the good one #endocrinologist #endocrinology #hashimotos #hashimoto's thyroiditis #hypothyroidism #thyroid #medical problems #personal health #life update

[x22817]

Hek and I have done more in the last week than we have in the last year. We had way too much fun! Hek was showered with well-deserved compliments everywhere we went.

This is her watching me eat under the table at a very busy restaurant. Some may see it as a Bean begging to be shared with, but it's really her doing her job. I encourage her to watch me, especially when I'm eating, because a lot of her alerts/interruptions are visual. This meal was a fast food restaurant that I particularly struggled with. Hek ended up just laying her head on the bench so she could watch my hands continuously, and I could easily switch from harming myself to petting her.

Drug and health update below

Now that my parents are gone, I'm changing all the drug stuff. It's time to once again drop on my prednisone dose. The Fludrocortisone probably needs to be increased, but I can't do anything about that rn. I'm also changing the times I'm taking everything in hopes it will ease the tapering experience.

Current schedule:

12:00 - 5mg Pred

4:00 - 100mcg Levothyroxine

7:00 - 10mg Pred + 0.1mg Fludro

17:00 - 2.5mg Pred

22:00 - 2.5mg Pred

New schedule:

11:00 - 5mg Pred

5:00 - 100mcg Levo + 7.5mg Pred + 0.1mg Fludro

17:00 - 2.5mg Pred

Straight up, I'm not excited to transition from the immuno suppressive level to the adrenal support level. Pain and energy levels are meh at best. My joints are already becoming problematic again, especially my fingers and toes. I'm struggling with sleeping in every way, which baffles my endo, but idk what to tell her. Mostly, it's the salt cravings that have skyrocketed in the last two months that are driving me crazy. The weight problem is just something I'm learning to live with at this point. It's all water retention and gaining the weight I couldn't keep on before the cortisol.

#beans beans the magickal fruit #service dog #dogblr #autoimmune #spoonie #hashimoto's thyroiditis #addison's disease #chronic illness #chronic pain #disability #hypothyroidism

[ididit-allofit-foryou]

a self portrait i did when my chronic illnesses started becoming a Problem in 2021

#chronic fatigue #chronically ill #chronic fatigue syndrome #chronic illness #chronic migraine #chronic pain #pots syndrome #potsie #spoonie #hypermobility #hashimito #hashimoto's thyroiditis #hashimotosdisease #hypothyroidism #fibromyalgia #cripplepunk #cripple punk art #art #rain creates #eyestrain

[sisterofthebluemoon]

New stickers are up guys! Check my last post for my shop link!

#autoimmune #autoimmune disorder #hashimoto's thyroiditis #hashimotos disease #thyroid disease #thyroid disorders #anxitey #chronic illness #chronic fatigue #chronically tired #fypfypfypfypfypfypdypfypfypfypfypfypfyfpfyfpfyp #black alternative #goth aesthetic #punk girl #sadcore

[diagata]

she has thyroiditis

#diagata art #illustration #digital illustration #hashimoto's thyroiditis

[jjmej]

so apparently euthyrox changed their formula, which is a bit worrying, considering that the last time a medication for the exact same thing did it, it caused problems for a lot of people.

at least they wrote it on the box this time??

#i dont really know exactly what happened but i know it wasnt great. #i wasnt diagnosed yet when this happened (im actually not sure i even HAD it yet tbh) #i do think i remember hearing a news story about it though #vaguely but still #hashimoto #hashimoto's thyroiditis #hypothyroidism #spoonie #chronic illness

[bpdshan]

if anyone has heard of/ tried the AIP diet… what do you even eat because it basically cuts out everything…

#i’m so scared my doctor will tell me i need to stop being veggie #i get intrusive thoughts abt eating animal products it’s why i stopped in the first place #hashimoto's thyroiditis #hashimotos #disease

[survivingfmandcfs]

Younger sibling is the best. Sliced peaches for me without even being asked just because I mentioned that I'd been having trouble preparing fresh fruit for myself due to fatigue.

#food #fibromyalgia #me/cfs #pots #hashimoto's thyroiditis #chronic fatigue #chronic illness #chronic pain

[1863-project]

Something I’ve noticed in the ten or so years that I’ve had this autoimmune disorder is that you don’t see much positivity or even body neutrality regarding Hashimoto’s thyroiditis. Frankly, this disorder has been wildly damaging to my body image, and it doesn’t help that nearly everything you read about it is about fixing weight issues, with so many of those articles being about fad treatments and dangerous diets.

So, for those of you currently living with it...I promise you’re not hideous. I promise that the weight gain doesn’t make you ugly, or misshapen, even if you feel like you look pregnant, as I do. I promise that the puffy face doesn’t change anything about how I see you. I’m sorry about the fatigue; I know how difficult it is to not have the energy you once had. Your hair is still your hair no matter how much of it there is, and I hope you can feel okay with it. At the end of the day, these are just bodies, not measures of our self-worth, and it’s my sincere hope that all of you will someday feel comfortable in yours again. I’m still working towards that myself, but you all deserve it too.

#Hashimoto's thyroiditis #Hashimoto's #hypothyroidism

[lunaraindrop]

*sigh*

I need a tea and, like, four hours to chill and write by myself. Instead, I am being overwhelmed by extended family, being in big crowded rooms, watching pagents *because* of said family...and I work tomorrow. Bah!

My little introverted heart is exhausted

#luna says #luna is a writer #luna's family sucks #preschool teacher #i need caffeine #introvert #overwhelmed #hashimoto's thyroiditis

[x22817]

Herz got to have her new comfy bed to lay on at my endocrinologist appointment today!

I think the appointment went really well. We discussed the vertigo issues that have been re-emerging along with the joint pain. She wants me to slow down on my taper, so I'm going to stay at this dose for a couple of months. I need to keep my patience hat on and not rush into anything. I'm so used to pushing through feeling bad that I am rushing taper, thus not giving my body the time it needs to adjust.

We're doing a LOT of bloodwork: full thyroid panel, adrenals, testosterone (no point in doing estrogen since my menstrual cycle is regular for the first time in my life), vitamins, minerals, electrolytes, and DHEA

I LOVE not producing hormones *sarcasm*

Having a doctor who actually listens to me and is willing to work with me is such a game changer.

#beans beans the magickal fruit #service dog #spoonie #health #endocrinology #endocrinehealth #thyroid #hormones #hormonal balance #hashimoto's thyroiditis #addison's disease #chronic illness #chronically ill #disabled #hrt #testosterone #adrenal fatigue #adrenal insufficiency

[rosesandthorns44]

I have a bone to pick with my ancestors when it comes to my dogshit genetics:

I am, for lack of a better phrase, EXCESSIVELY Irish.

Like, hot damn, maybe if any of y'all had left your island and procreated with anyone a few shade darker than vanilla ice cream, I wouldn't be in this predicament.

No, knocking boots with German, Polish, Norwegian, and Czech folks isn't what I fucking meant! 😤

Then everyone immigrated to Wisconsin and stayed there for a couple hundred years.

Now I've got a fuckton of health problems.

[GIF description in alt text]

#alt text #chronic illness #dysautonomia #p.o.t.s #idiopathic hypersomnia #gastroparesis #ehlers danlos syndrome #chronic pain #sleepy bitch disease #celiac disease #hashimoto's thyroiditis #shitty genetics