#hypothyroidism

[talkethtothehandeth]

Here is a video that talks about the reality of living with Long COVID. This is another reminder that this virus is still prevalent and just as deadly, if not more. COVID has killed nearly seven million (documented cases) people worldwide. You are not immune, you are not invincible, and this is something you should still be taking seriously. It’s not in the past, it is still spreading and mutating and harming and disabling and killing.

Wear your masks, get the vaccines if you can.

Video Length: 1m 16s

Transcription:

"Hi, my name is Hannah, and COVID took my life from me. I was 23 when I got sick in August of 2020, and I'm turning 27 this month. I was an athlete for 10 years, and I had straight A's all through high school. I graduated with honors, multiple scholarships, and I was years in the school for my PsyD. I loved going on adventures, traveling, reading, painting, drawing, I even loved having a job. I even had a healthy immune system, and that was all until I got COVID." - "I've been diagnosed with epilepsy, and the back to back seizures have caused brain damage; it has caused dementia type symptoms, spelling problems, mood changes, POTS, which haused caused me to be hospitalized multiple times with concussions and injuries. I'm on IV infusions and medications for that." - "I have to use a wheelchair, I can no longer legally drive; diabetes, an autoimmune disease, chronic and debilitating fatigue, vision deterioration, had to have my thyroid removed, lost half my hair. I still have a hard time breathing and have low oxygen at points-- chronic pain, muscle aches, tooth decay, increased mental health issues and ideations. I had to quit my job, withdraw from school, and I never see anyone but my family and doctors I can longer draw, travel, and I really struggle with reading, which is my favorite thing." - "My loved ones are terrified to leave me home alone, and I'm scared to even sleep at night because I'm afraid that I won't wake up. I spend my days alone in bed because life has to go on without me. This is the reality of it [long covid]. And 1 in 5 infections cause long COVID. I promise you, you are not invincible."

#you are not invincible #long covid #covid #covid 19 #autoimmune #immunocompromised #get vaccinated #chronic illness #chronically ill #disabled #physically disabled #hypothyroidism

[spoonie-journey]

I don’t want anything to be wrong with me, but we’re past that, so I just want to know what is wrong with me

#texas thinks #spoonie #mystery illness #autoimmine disease #disability #actually disabled #hypothyroidism #disabled

[ididit-allofit-foryou]

Chronic Illness Products: Tried and Tested by a Fellow Spoonie

Hey! I’m Rain, and I have various chronic illnesses and disabilities, including: POTS, chronic migraine, chronic pain, and chronic fatigue. The following products are some that have helped me with my symptoms!

Migraine Ice Head Wrap

https://www.amazon.com/dp/B09BN7TV6N/?coliid=I2CB88I8424KRB&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

This is great because it can be either heated in the microwave or cooled in the freezer. It has gel in it and it is heavy so it puts a little pressure on your head. It also has velcro closure so it can be adjusted for head size and pressure. You don’t even have to put it in the freezer if you like it cold, because if you keep it at room temperature (my house is usually between 68-71 degrees F) it will get cold by itself and it can help for a while, about 10 minutes before it gets warmed by your body heat.

Monthly Pill Organizer

https://www.amazon.com/dp/B09V53JTM6/?coliid=I2IBUBXDTRNU36&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

I hated having to refill my pill box every week, so I got 2 monthly organizers and use one for morning and one for night, and I only have to fill it once a month! I like this band because it is easy to open and each week comes out by itself so if you travel you can take just one week with you. I also like that they are all in a case and it closes for safe keeping.

Bed Tent

https://www.amazon.com/dp/B07T4JV6ZT/?coliid=I33UE149JTQBTG&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

This is more expensive, but it is absolutely worth it if you have migraines. It has 6 zippers: one on each side, one on each end, and the top part of each end flap has a second zipper that opens a mesh area if you want air or light. You can close it entirely, and it makes it dark even in daylight, but it is still breathable and not stifling. There is also a pocket at one end that can hold a TON of stuff. I keep snacks and things in there for easy access. Finally, there is a little circle hook on the top where you can hang a camping fan or light if you want!

Cooling Neck and Head Towel

https://www.amazon.com/dp/B00JH4H5AS/?coliid=I3L6Z4MFFV2IK1&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

There’s a few different brands of these, and I couldn’t find the exact one I have, but any will work! My brother used this brand for when he played sports–I use mine to cool my neck when I’m nauseous lol. It stays cold for longer than just a regular rag and the water doesn't get everywhere.

Neck Pillow

https://www.amazon.com/dp/B09MQ416CR/?coliid=I34LO7QKQ5H4Z&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

Simple, yet effective. If you have POTS or any other condition that makes it hard to sit up for long periods of time, or a condition where you have neck weakness/pain, then this is for you. Riding in a car? Recline that seat a bit and put on a neck pillow. 10/10 much better car experience.

Cane With Seat

https://www.amazon.com/dp/B00DPOOCC0/?coliid=I133WRLIWPH40D&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

I have POTS, and I use a wheelchair for most places that require walking, but a lot of areas where I live are not wheelchair-accessible. So, I use this! If I feel dizzy, I can just open the seat and sit down for a bit until by body chills the fuck out.

Electric Toothbrush

https://www.amazon.com/dp/B08LJNZW3Y/?coliid=I189MT1VEIKUTZ&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

It doesn’t have to be this kind, but since I can’t stand long enough to brush my teeth very long (or at all some days), I use an electric toothbrush to get a better clean in a shorter amount of time. They cost a bit more, but less than a cavity filling.

Shower Chair

https://www.amazon.com/dp/B07NM77DJ2/?coliid=I1SRRBS7ISI3E1&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

If you feel dizzy in the shower, or can’t stand very long due to pain, or for whatever reason, and are considering getting a shower chair, this is your sign to do it!! It has helped me so much and makes showering SO much easier and way less daunting.

Bath Pillow

https://www.amazon.com/dp/B0B9WG925R/?coliid=I1C4T2MUPR33WU&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

I have chronic pain and laying in the bathtub in warm water can help with it, but it also hurt my neck to lay on the hard surface. Not anymore! I’ve also seen full-body bath pillows that would be GREAT but I don’t have anywhere to store it. For this one, I just keep it in the tub all the time.

That’s all I could think of at the moment, but I will reblog this with more items if I think of any! Feel free to add to this list yourselves!

#chronic fatigue #chronic illness #chronic pain #chronically ill #spoonie #migraine #chronic migraine #pots #pots syndrome #pot syndrome #zeebra #potsie #chronic illness hacks #chronic illness products #fibromyalgia #hashimotos thyroiditus #hashimotosdisease #hypothyroidism #disability #didabled

[crippledcryptidd]

Products that help me as a disabled person

1

ID: a neck pillow that’s also a c shaped orange cat plush with eyes sits on a black blanket. End ID

I’ve posted this before but I wanted to include it, this is a cat themed neck pillow that’s also a massager

It helps me with my neck tics and the pain they cause, neck pain from migraine and other conditions and keeping my head up in a comfortable position

I don’t know where this exact one is from but similar things are on Walmart and target’s websites

2

ID: a purple cat stress ball on top of a blue square stress ball on a black blanket. End ID

Stress balls

They help me with anxiety and stress, regulating emotions, tics (keeping calm can also calm my tics) and more

These are both from the brand nee doh and from learning express

3

ID: a kroger brand pain lidocaine pain patch and an aleve pain lotion on a black blanket. End ID

Pain patches and lotion

Helps with pain which can help with other stuff since i’m in less pain and good for pain on the go since you can just stick it or rub it on

Got both of them from kroger

4

ID: a the corner of a grey blanket and a calico cat plush with blue eyes on a black blanket. End ID

Heated stuff like heating pads, plushies and blankets

They help me with pain and cold intolerance also with comfort, if you need heat on the go then packs of disposable or reusable hand, feet and body warmers are helpful

The cat is warmies brand, not sure where from and i’m not sure brand or store on the blanket

5

ID: a black and white floral cane wrist strap with a lungs charm on it is on a black blanket. End ID

cane wrist straps

It helps me not drop my cane which can happen from tics or other movement issues, it’s often hard for me to pick it back up and then catch back up

This one is made by my partner

#disabled #cpunk #cripple punk #queer cripple #neurological disorder #physically disabled #disability #neurological disability #tourettes #hypothyroidism #scoliosis #chronic migraine #asthma #mobility aid user #mobility aid #disability aids #disabilties #physical disability

[oscarisaacasimov]

reposting now that I've fixed privacy settings

#thyroid #hyperthyroidism #hypothyroidism #graves disease #hashimotos thyroiditis #autoimmune #endocrine #endocrine diseases #endocrine disorder #chronic illness

[cyber-therian]

i love to eat dried seaweed … i have hashimoto’s thyroiditis and the iodine in seaweed helps calm some of the symptoms (alongside my meds ofc) and the umami of seaweed also helps with meat cravings since i dont eat meat :3 plussss the salt content helps increase my blood pressure

not to mention makes me feel like a lil fox who just found the most awesomest snack ever by the ocean mmmmm

#otherkin #therian #alterhuman #therianthropy #canine therian #canine kin #caninekin #hashimotos thyroiditis #hashimotos #thyroid problems #hypothyroidism #low blood pressure #vegetarian #food #therian food #fox theriotype #red fox therian #silver fox therian #fox therian #fox kin #foxkin

[thescentofrainonstone]

As someone used to excess Dopamine because of how random my genetic polymorphism went (met/met), when I decided to lower my thyroid medication because by nature triiodothyronine fosters growth, and I'm in the middle of discovering if I have cancer or not, I didn't consider that despite the huge dosage I am on, lowering the dose would affect neurotransmitters.

And now for the last 48 hours I've lived with the frustration of never enough dopamine to get motivated, always little enough to realise I'm useless and can't do anything about it not even think words (I basically threw myself in accidental ADHD), and I have renewed respect for anyone that lives like this constantly.

How people with ADHD manage to get anything done, let alone be nice to anyone who ever interacts with them, is insane to me. There is literally nothing in their brain chemistry giving them the ability to access "decency" yet they do.

Wow.

Just wow.

#adhd #adhd problems #adhd brain #actually adhd #adhd things #neurodivergent #dopamine #neurotransmitters #met/met #worrier gene #warrior gene #worrier vs Warrior #thyroid #t3 #triiodothyronine #hypothyroidism

[chelseaisdisabled]

and what if im not doing everything it takes to manage my illness / disability? maybe im fucking tired. can i exist?

#disability #disabled #chronic illness #disabled life #chronic fatigue #chronic pain #wheelchair user #ibd #asthma #nerve damage #hypothyroidism #myopathy #cripplepunk #pmdd

[beanskelly]

Happy disability pride to those with thyroid conditions, whether it’s hypothyroid or hyperthyroidism. Thyroid issues suck!! If you are struggling with your thyroid issues, know you’re not alone

#disability pride month #thyroid health #hypothyroidism #hyperthyroidism #hashimotos thyroiditis

[danny-ric]

"Hashimoto's/hypothyroidism isn't a real disability. You're just being dramatic."

#kill stab murders you #personal #disabled #disability #hashimoto's thyroiditis #hypothyroidism #thyroid disorder #autoimmune disorder

[1863-project]

This is a really difficult time of year for me now. It's been this way ever since I got sick.

Hashimoto's thyroiditis, the autoimmune thyroid disorder I have, causes both weight gain and weight loss resistance. At this time of year, everyone is bombarded with things about weight loss and exercise and all of that stuff, and it's really difficult when your body isn't capable of it. Exercise is difficult when your thyroid pushes on your trachea and makes it harder to breathe, and you can't do it very long anyway since the same issue has caused you muscle weakness. You have to take everything slower.

I used to enjoy hiking. I can't walk uphill now without being short of breath almost immediately because of the pressure going at that angle puts on my trachea.

It hurts to see all these people talking about how they're going to "improve" their bodies and become rail thin and lose weight and knowing that they think your body is unacceptable because you're sick and it won't change the way theirs will. Diet and exercise can't really do much when you have an autoimmune disorder, and when you try to find out more you find all these quack products and solutions that clearly don't work.

My weight's plateaued at the point it's been at for a few years now. I'm not really getting any bigger anymore, and most people don't even notice it even though I feel like I'm distended. It's dysmorphia on my end - I never look the way I do in my mind - but since I'm not completely flat with no body fat the people in the commercials and ads and medical professionals are all going to just keep trying to "fix" something that can't be fixed because I have an autoimmune disorder.

I want so badly to feel comfortable in this body, but it isn't considered attractive or beautiful or even acceptable by society at large, so it makes it so difficult to really be okay with it.

I'm dysmorphic. This is what I look like in reality.

Even looking like this, doctors like to focus on my weight, so you can imagine what people far bigger than me have to deal with.

I wish we could just move on from this, but it doesn't look like we will anytime soon.

#Hashimoto's #hypothyroidism #tw: weight discussion #Hashimoto's thyroiditis

[ididit-allofit-foryou]

a vent piece about living with chronic illness

#chronic fatigue syndrome #me/cfs #pots syndrome #fibromyalgia #chronic pain #hypothyroidism #hashimotosdisease #chronic migraine #migraine #chronic fatigue #chronically ill #disabled #disability pride month #rain creates

[crippledcryptidd]

Re decorated cane, purple theme with some stars, the wrist strap and battery pouch are made by my partner they’re amazing

ID: 4 pictures of the same black cane leaning against a grey couch

First image, the while cane it has various stickers, spikes in the middle, lights wrapped around that are turned off, a purple star pattern wrist strap and pouch for the lights batteries at the top and a purple cat plush keychain at the top

Second image, a close up of the top angled so that the main thing in frame is the purple star pattern wrist strap.

Third image, a close up of the top showing the purple star pouch

Fourth image, a close up of purple cat plush keychain.

End IDs

#disabled #cpunk #cripple punk #queer cripple #neurological disorder #physically disabled #disability #neurological disability #neurodivergent #tourettes #asthma #chronic migraine #migraine #chronic pain #chronic fatigue #hypothyroidism #cane user #walking canes #mobility aid user #mobility aid

[spoonie-journey]

I love when I remember to take my melatonin. Slwwpy and cozy beyond compare

#texas thinks #spoonie #mystery illness #autoimmine disease #disability #actually disabled #hypothyroidism #disabled #invisible disability #warm and cozy #snug as a bug #melatonin

[sweetpeauserboxes]

[id: a white userbox with a pastel blue border and pastel blue text that reads  “this user has hypothyroidism.” on the left is an image a blue heart. /end id]

#hypothyroidism #soft userbox #soft aesthetic #soft userboxes #softcore #soft #cute userbox #cute aesthetic #cute userboxes #cutecore #cute #pastelcore #pastel aesthetic #pastel userboxes #pastel userbox #pastel #userboxes #userbox

[flowersofjannah]

I have hypothyroidism and feel tired quite quicker than others my age, it upsets me at times as I’m not always able to do things that I wish to do, or go places I wish to go. I was thinking about it a little while ago and then opened my instagram, Subhanallah this post popped up for me (2nd post I looked at):

Isn’t Allah so beautiful? Redirecting my focus to what’s more important…keeping a good heart. May Allah make it easy for us and purify our hearts, ameen.

#unwind #hypothyroidism