#fasd
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Today's contribution for Disability Pride Month
Obligatory "I don't have this disorder. I'm raising awareness because I'm so fucking sick of women that drink while pregnant bitching about how hard it is being an 'autism mom'". (Autism mom in quotes because a) it's probably not autism and b) the phrase "autism mom" to describe "mom if an autistic kid" is stupid.)
(I'm going to use the term "women" instead of "uterus haver" not to be exclusionary or transphobic. But because I have a severe headache effecting my ability to find words. I am trans-masc. Don't cancel me. I'm not a FART.)
(This is not to demonize people that suffer from alcoholism. Addiction is a very real disability. This is to raise awareness for one of the only known preventable birth defects and hopefully seek help.)
Thank you for the people at @bfpnola discord for checking my post to make sure this doesn't sound eugenics-y.
Fetal Alcohol Spectrum Disorder (FASD)
FASD (previously known as fetal alcohol syndrome) is a disability that can range from mild to severe dependant on how much the mother drank while pregnant. It only takes one glass of wine while pregnant to cause this disorder
I already know what the fuck this is. Why are you talking about it?
Because your only know about the severe cases diagnosed as fetal alcohol syndrome. You THINK you know what it is. But the reclassification has only come up in like... 2003? Fetal alcohol syndrome is like... the far end worst severity of FASD. And since the new information of it being a spectrum disorder, estimates have the disorder as high as 5% of the population (and I really think it's higher based on some information I'm about to share).
Fine. So what is this... spectrum disorder?
Very good! So this disorder is HIGHLY misdiagnosed as autism. So all those boomers bitching about "the rates of autism going up?" Yeah they probably caused it. Symptoms include low body weight, facial differences, poor coordination, difficulty maintaining attention, poor memory, poor emotional regulation, slower development, poor reasoning skills, issues with the heart, bones, and kidneys, shorter height, shorter head size,
I have all of those things. How do I know it's FASD and not the autism?
That's kinda the issue. The only real way you can know is ask your mom if there's ANY possibility she's had a drink while she was pregnant. I can't stress this enough IT ONLY TAKES ONE DRINK. For instance I have a lot of those issues, but my mom was so paranoid she wouldn't even dye her hair or drink coffee. Like there's NO WAY.
Like what do I do about it?
Mostly get your accommodations met and raise awareness. Like people are still actively drinking while pregnant because they are still under the pre-2000 belief that just a couple of drinks are okay. It's really not. Not to mention most women don't know they're pregnant until 4-6 weeks in. So they shouldn't be drinking if they're actively trying to have a child. Because that increases the risk.
What the fuck. People are drinking while pregnant? I don't believe you.
Each of these claims are linked.
30.3% of all women reported drinking alcohol at some time during pregnancy, of which 8.3% reported binge drinking (4+ drinks on one occasion)
According to the Center for Disease Control, one in 10 (10.2%) of pregnant women in the United States reports drinking alcohol in the past 30 days.
Despite clear evidence that primary prevention of FASD is possible if prenatal alcohol exposure is avoided, up to 80 % of women drink during pregnancy, many before pregnancy recognition
What? Women are drinking while pregnant? That's fucked up.
This is not to say people with FASD are lesser than.
But all of this "curing autism" when most of this "autism" is caused by a pregnant person's ability to stop fucking drinking for literally 5 minutes. THESE WOMEN THAT ARE DRINKING WHILE PREGNANT ARE THE ONES CAUSING ALL OF THIS GIVING "AUTISM". IF YOU DRANK WHILE PREGNANT. IF THERE'S EVEN A SLIVER OF A CHANCE THAT YOUR DRANK WHILE PREGNANT? ITS PROBABLY NOT AUTISM. ITS PROBABLY THIS DISORDER.
I'm just really fed up with all of these "autism moms" that also make "wine mom" jokes and making light of literal alcoholism bitching about how hard it is to be an "autism mom" because YOU'RE THE PROBLEM. STOP LAUGHING ABOUT YOUR ALCOHOLISM AND PUT THE DAMN GLASS DOWN.
But my parents are literally autistic
So they don't really know the generational effect of FASD because the new knowledge is so new. But since FASD is literally genetic issues caused by alcohol while you're in the womb. It's assumed that it can cause issues that are passed down.
But like this diagnosis is SO NEW that we really don't know much.
-fae
#FASD#FAS#fetal alcohol spectrum disorder#fetal alcohol syndrome#disability#disability pride#disability pride month#disability awareness#disability awareness month
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Brains are body parts. There are no able-bodied disabled people.
#actually autistic#autism#disability#fasd#adhd#actually adhd#personal#actually neurodivergent#actually fasd#actually audhd#actually autikinetic#actually disabled
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I wanted to share something I found while working on a project for the hospital I'm doing an internship at.
There are very few resources* about Fetal Alcohol Spectrum Disorder that are aimed at kids and teens who have FASD themselves. If it does exist, it's usually so old it just says "Fetal Alcohol Syndrome" and/or is quite bleak in tone. But I found something good! It's current and has:
Information on FASD in plain language and in Easy Read format
Coping skills people with FASD can use to help with a variety of things
Emphasis on support and understanding
Specific people with FASD credited with providing extensive input, rather than a vague "board of advisors" (read: caregivers).
(If that link doesn't work, let me know so I can try and wrangle Tumblr into cooperating. In the meantime, Google "Me and my FASD" as a stopgap.)
*When I say "very few," I mean the real librarian and I both looked hard. Counting the stuff we already had, there were at most five substantial resources that met recency criteria, weren't horrendously ableist, and were aimed at people with FASD themselves. Five. At most.
#fetal alcohol spectrum disorder#fasd#autism adjacent#because lots of people with FASD are also autistic or have autistic traits#disability
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A moodboard for a Roman Sanders (Sanders Sides) who has Fetal Alcohol Spectrum Disorder (FASD).
The first moodboard is just a general moodboard, while the second one has themes of age regression.
(I forgot about the age regression themes for the first one, but it turned out so well that I figured I'd keep it as a bonus.)
Mod Haze (☀️Sol)
#fictionkin#sanders sides kin#roman sanders kin#red#gold#pink#age regression#agere#fasd#fetal alcohol spectrum disorder#moodboard#☀️#mod haze
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PhD Study: Neurodivergence & Grief
Hello, my name is Ally, I am a PhD student researching neurodivergent experiences of grief. I also am autistic and have ADHD too. I will be looking at publicly available posts on neurodivergent experiences of grief as part of a study I am currently running and wanted to let you know of this, as if you have any content you do not want me to look at, just let me know in a comment below, by emailing me, or using an opt out form (linked here and on my blog). If you want any more information, feel free to contact me or to check out the document explaining this study in more detail (linked here and on my blog).
#ActuallyAutistic#ADHD#AuDHD#Autism#Dyscalculia#Dysgraphia#Dyslexia#Dyspraxia#FASD#IntellectualDisabilities#LearningDisabilities#Neurodivergent#Neurodiversity#Stutter#Tics#Tourettes
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for the love of god please can an adult with fasd talk with me about our experiences???
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Ever have someone ask you: What is Fetal Alcohol Spectrum Disorder? Jeff Noble can help you with the answer! In his latest video he breaks down this definition by Canada FASD Research Network - in less than 8 minutes!
Check it out on YouTube @FASDSUCCESS: https://rb.gy/ru8g9
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『 Hi, I’m Magpie 』
★ I have some other names or you could come up with your own nickname if become friendos, maybe if thats okay !!
.˳⁺⁎˚ ꒰ఎ ★ ���꒱ ˚⁎⁺˳ .
♥︎ I’m a little shy and awkward but I do truely wanna make friends or something like that !!
.˳⁺⁎˚ ꒰ఎ ★ ໒꒱ ˚⁎⁺˳ .
★ I don’t really post much yet as im still new & nervous but I am a artist !! ʚ🗒️ɞ
.˳⁺⁎˚ ꒰ఎ ★ ໒꒱ ˚⁎⁺˳ .
★ I have ADHD & FASD and I also have problems derealization & depersonalization.
.˳⁺⁎˚ ꒰ఎ ★ ໒꒱ ˚⁎⁺˳ .
♥︎ My DMs are always open !!
♥︎ So don’t be afraid to message me at odd hours of the night !! ૮꒰˶• ༝ •˶꒱ა
★ I have soical anxeity and I’m a ambivert !
─── ･ ｡ﾟ☆: *.☽ .* :☆ﾟ.───
♥︎ I am Polyamorous and Pansexual as well as some other things but too nervous to share them, at the moment !!
┌── ⊹ ⋆ﾟ꒰ఎ ♥︎ ໒꒱ ⋆ﾟ⊹ ──┐
└── ⊹ ⋆ﾟ꒰ఎ ♥︎ ໒꒱ ⋆ﾟ⊹ ─���┘
★ I’m somewhat Nonbinary
★ I’m not sure what I am yet besides Nonbinary and Quiogender But I also use Xenogenders and Neopronouns to help !!
.˳⁺⁎˚ ꒰ఎ ★ ໒꒱ ˚⁎⁺˳ .
★ My pronouns are They/Xe/It with My Neopronouns im to shy to share at the moment , I’m also still looking for some and seeing what fits and what doesn’t.
.˳⁺⁎˚ ꒰ఎ ★ ໒꒱ ˚⁎⁺˳ .
★ I occasionally use He/Him pronouns but dont really connect with masculinity.
─── ･ ｡ﾟ☆: *.☽ .* :☆ﾟ.───
★ Sorry if I tend to ramble alot about random stuff or hyperfixations!!
★ I mainly like fandoms that revolve around fantasy and animals as well as other things !!
★ I also like gorey stuff and bones !!
★ I’m a little critter who likes shiny things !!
★ I also like Astology, Art and plants !!
★ I’m Fascinated with Pastel Goth Asethetics, WeirdCore, KidCore & Goblin Core !!
★ Other Random Things I Like are Patchwork, Buttons, Trinkets, Moths, Bees, Dandelions, SunFlowers & Inkcapped Mushrooms !! Theres more that I like I just can’t remember currently !!
.˳⁺⁎˚ ꒰ఎ ★ ໒꒱ ˚⁎⁺˳ .
♥︎ Fandoms I Like ☆
➼Warrior Cats
➼Monster Taming Games !!
➼My Little Pony
➼Wings Of Fire
➼Sonic
➼FNAF
➼Mogai/Xenogenders +
➼More I can’t remember currently !!
─── ･ ｡ﾟ☆: *.☽ .* :☆ﾟ.───
User boxes !!
─── ･ ｡ﾟ☆: *.☽ .* :☆ﾟ.───
DNI: Dont Interact if your bad people
Basic DNI Criteria [Homophobic, Racists, Ableists, ect !!]
Anti-Mogai/Xenogender/Neopronouns
#looking for mutuals#looking for friends#xenogender#nonbinary#neopronouns#polyamorous#pansexual#Artist#Fandom Hopper#mogai safe#Mogai#transgender#friendship#adhd#fasd#this user#neurodivergant#my dms are wide open#social anxiety#ambivert#intro post#bigender#demibigender#wc fandom#mlp fandom#wof fandom#furry fandom#acespec#pokemon fandom#introducing myself
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Man, getting diagnosed with FASD has made me feel so alone. I had a community when I thought I was autistic, now I have nothing. There's NO FASD community, and what little people do talk about it are just repeating science jargon. :/
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How do you ask your mom if she accidentally gave you fetal alcohol syndrome? I can't find a way that sounds like it will go well.
I'm mystery sick all the time and have mystery mental illness since forever. Some of these fasd symptoms are really lining up here.
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An unpopular opinion that actually makes sense when I explain why I have it. (Well makes sense if you're not abelist)
I'm not too fond of the "I don't want to be led by the people that ate off of led paint and played in asbestos." Criticism against baby boomers.
Obvious abelism aside (the criticism is implying that baby boomers are less fit to lead because asbestos and lead severely negatively impacts cognitive functioning.)
But both of these mass disabling events are centered around a lack of knowledge that asbestos and lead has such a severe impact on cognitive functioning.
And I don't like that because many people today are also victims of a mass disabling event caused by a lack of information.
Fetal Alcohol Spectrum Disorder.
Up until 2013. The only fetal alcohol diagnosis that existed was Fetal Alcohol Syndrome. And it's caused by severe alcoholism in the pregnant person, and the baby tends to have withdrawals after they're born.
Back then. It was believed if you drank while pregnant, you could still get lucky, and your child can be born "completely fine".
But very recently (I think it was in the early 2000s?) People started saying "No. They're not 'completely fine'. They don't have the classic signs of Fetal Alcohol Syndrome, but they're still impacted by the alcohol on the developing fetus." And it was in 2013 they realized that yes. Even "just one or two glasses" causes Fetal alcohol spectrum disorder.
It's estimated 1 in 10 pregnant women between the ages of 15-41 have had alcohol in the past month and 1 in 5 first graders have fetal alcohol spectrum disorder.
Fetal alcohol syndrome is pretty well known. They have a distinct face shape and learning disability.
But fetal alcohol spectrum disorder can (but doesn't always) have specific facial features. Other symptoms include
Trouble with emotional regulation
Issues learning
Low body weight
Loss of coordination
Issues with empathy
Shorter height
Hyperactivity
Holding attention difficulties
And you're thinking "wow. That sounds a lot like my autism/ADHD diagnosis". Yeah. Since it's not well known in its mild forms. It's often misdiagnosed as autism/ADHD and often times the best way to know is by straight up asking your parents if there's any chance your mom drank while pregnant.
I asked my mom, and she was one of those strict "I didn't even dye my hair while pregnant because I thought the chemicals would seep through my skin and affect the baby."
But like...
Let's not make fun of baby boomers for being disabled due to a lack of knowledge? When a lot of us Millennials and GenZ are probably affected by a similar lack of information.
-fae
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1, 2 and 3 for disability ask game!
Which disability/ies do you have? Diagnosed Autism and KMS and suspected FASD (diagnosis wouldn't make a difference for an adult but my therapist and psychiatrist are pretty sure I have it) and/or ADHD.
How long have you known you're disabled? Known much later than said. When I was 11 some arsehole thought it was a good idea to ask me "Are you disabled?" when I was on the edge of overload to meltdown and I said "Yeah, you got a problem with that?", but actively known I'm disabled I only realized when I was about 17.
What, if any, disability aids do you use? Various stimming toys, sunglasses and ear-defenders or headphones (depending on where I am and what I'm doing)
#personal#disabled#disability#disability pride#disability pride month#autism#autistic#actually autistic#adhd#fasd#kms#kasabach merritt syndrome#disability aids
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If you are struggling with mental illness and doing dishes is preventing u from eating buy disposable paper plates and utensils! I know - but the environment - listen, you will never in your whole life produce the amount of waste one Walmart does in a week
#depression#mental heath awareness#mental health#anxiety#adhd#fasd#funny#funny text post#advice#mental health advice
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📚 Katelyn’s 2022 Booklist 📚
January
The Change (Animorphs #13) by K.A. Applegate
The Unknown (Animorphs #14) by K.A. Applegate
The Escape (Animorphs #15) by K.A. Applegate
Amish Grace: How Forgiveness Transcended Tragedy by David L. Weaver-Zercher, Donald Kraybill, and Steven Nolt
Mississippi Jack: Being an Account of the Further Waterborne Adventures of Jacky Faber, Midshipman, Fine Lady, and Lily of the West (Bloody Jack #5) by L.A. Meyer (reread)
February
The Weight of Our Sky by Hanna Alkaf
King and the Dragonflies by Kacen Callender
The Whole-Brain Child: Twelve Revolutionary Strategies to Nurture Your Child’s Developing Mind by Daniel J. Siegel, M.D. and Tina Payne Bryson, Ph.D.
March
Trying Differently Rather Than Harder: Fetal Alcohol Spectrum Disorders by Diane Malbin, M.S.W.
Bonhoeffer’s Black Jesus: Harlem Renaissance Theology and an Ethic of Resistance by Reggie L. Williams
Cinder (The Lunar Chronicles #1) by Marissa Meyer (reread)
April
Call Down the Hawk (The Dreamer Trilogy #1) by Maggie Stiefvater
The Dream Thieves (The Raven Cycle #2) by Maggie Stiefvater (reread)
May
Queen of the Tiles by Hanna Alkaf
The Warning (Animorphs #16) by K.A. Applegate
#booklist#k.a. applegate#animorphs#amish grace#mississippi jack#bloody jack#l.a. meyer#the weight of our sky#hanna alkaf#king and the dragonflies#kacen callender#the whole-brain child#daniel j. seigel#tina payne bryson#fasd#diane malbin#dietrich bonhoeffer#bonhoeffer’s black jesus#reggie l. williams#cinder#lunar chronicles#marissa meyer#call down the hawk#the dreamer trilogy#maggie stiefvater#trc#the raven cycle#the dream thieves#queen of the tiles
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1)Social workers, police, doctors, therapists, teachers, *anyone*.... please educate yourself on RAD
2)RAD family members... you're not alone
my adoptive brother has been diagnosed with Reactive attachment disorder (RAD), as well as Fetal Alcohol Spectrum Disorder (FASD). However, there is hardly any knowledge of the subjects by most people. The following is a short memoir that I wrote to a social worker involved with my brother.
"You know that feeling when your heart just freezes for a moment? It drops… and then it begins to beat and pound three times faster than it should and adrenaline kicks in and you tear through the house searching, wondering, unsure where he is, what he’s doing, who he’s stealing from, or if he’s even alive. It’s a feeling I’ve had over a dozen times, a feeling hardly anyone can relate to. The feeling every night when you go to bed not wondering how you’re gonna wake up, whether or not he’ll be there, or whether you’ll wake up with a knife over your face. Because he’s just that unpredictable.
Let me paint a picture for you. He was nearly five years old when he came over, only a few weeks younger than me. He had a hard time with a lot of things, like reading or tying his shoes or coming up with ideas, but I didn’t mind. I liked to help him. We would play legos together, even if I had to whisper to him what to make his characters say because he couldn’t think of it. We would play school, and I would make up little worksheets to help him learn when he was struggling in school. I would make him obstacle courses to go through and tents for us to play in. Sure, he wasn’t a perfect kid. He didn’t always listen. But he was my friend.
Then, he started taking food and hiding it under his bed. Massive amounts of food that he would consume during the night. He was allowed to have as much food as the rest of us, besides being allergic to dairy, but somehow he thought he needed more. I’m not exaggerating when I say he could eat a bathtub full of food. He’d even put things like milk under his bed, so it would spoil because of the warmth, but he’d still drink it.
Naturally, my parents were concerned. They limited his access to the kitchen, and sent him to his room. The next morning he was gone, and so was his bike. Eventually the police found him, after he had stolen from both of the grocery stores in town.
He just kept getting worse over the years. Anytime he got in trouble, he would lash out and do more bad stuff. But it’s gotten to the point that he won’t even accept nice things. Nothing is ever good enough. You can never know what he says is real; one day he would tell me that I was a great sister and thank me and apologize for ever hurting me, and the next day he’d be stealing food and money and running away, telling the police what horrible people our family was. He’s always been known to lie, no matter how small of a thing it was about. It’s practically instinctual.
He tried to poison my brother once. I never know if he could try to do the same thing to me. He’s so unpredictable, switching from trying to be helpful to trying to destroy everything. For the last few months, however, he hasn’t shown his good side. He used to be cheerful and polite to at least the outside world. Now, the only time he speaks to people is to complain to whoever will listen to it. To tell them that he feels unloved, despite the hundreds of hate filled looks he has given to every member of his family lately. We try to help him, taking him to doctors to fix the problems he causes by binge eating, eating what he was allergic to, and eating from the trash, which has given him parasites and illnesses in the past. We try to rein him in, to keep him safe, and he states that it is unfair, and he isn’t happy.
But would he be happy living on the streets? He wants to run away so badly, but he can’t even remember to look both ways before crossing the street. He’ll go out in winter without so much as a coat, planning to live outside. My parents are deemed the mean ones, yet without their extreme measures, he would be dead.
Why is it that he is the victim? Is it because he is small and cute? He’s only six weeks younger than I. If I ran around stealing and hurting people, would I not be blamed? Would I not face legal consequences by now? Perhaps only because I have a functioning brain, but then, all the more reason to use unconventional means on my brother. After all, he is an unconventional child. But he’s hardly a child. So do we treat him like a man, who must own up to every crime he has committed, or do we treat him like a child, who needs help making decisions, and must be under the guidance and protection of his parents? He’s nearly a man, but a man who could not survive on his own. So why can he call the shots? Does he know what’s best? He can’t even feel when he’s full after eating three dozen cookies. So why are we taking his feelings into consideration, over his safety and well-being?
Everything my parents have done has been to keep him safe. To keep him alive. Has he always been happy? Well, when one’s greatest desire is to steal from people and live in garages, should one be happy? Not if his joy is causing hurt to both himself and to others. He could be happy. He was happy, when he was a seven year old kid, playing legos with his sister. But then he decided that he knew better. And it has hurt him so badly ever since.
He doesn’t want relationships. He doesn’t care about me, or my parents, or anyone else. He doesn’t care about you either, and if you don’t give him what he wants, you are of no use to him. He only reaches out to people to see what he can get out of them, and if they don’t give him that, the bridge will burn and he will tear down everything, lashing out, and hurting everyone in his way."
please read. Do your research. The current methods of dealing with these kinds of disorders are tearing people and family apart, and causing physiological damage both of those with the disorders and those closest to them.
If this is similar to your story, remember you are not alone. Whatever hurt you are going through, there are people who understand, people who care. keep going sweets, I know it's hard, ik sometimes life is hell, but you can make it. I'm cheering you on.
*disclaimer: I am not saying that this is what everyone with RAD and/or FASD acts like this. There are different degrees, and my brother has it to the extreme. And if you have it, I am not against you. I want to support you. However, this was my life, my experience that needs to be shared.
#reactive attachment disorder#fetal alcohol syndrome#fasd#adoption#foster#foster care#adoptivefamily#mental illness#family issues#family trauma#childhood trauma#RAD
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complicated feelings about my fasd
so i've been thinking a lot lately about my fasd and how that affects my life and like. doing research about it is so painful because most of it is just "fasd sucks so pregnant people don't drink please!!" and that's never going to change the fact that i already exist with fasd.
and fasd isn't like autism or adhd. so many people hate their fasd, hate that they have something preventable. and that's valid, but i actually don't hate my fasd?
yeah there's parts to it i don't like. I don't like how much i interrupt conversations because reading social queues is hard and i'm impulsive as hell. i don't like how anxious and depressed i am.
but there's also parts of it i do like! i like how i'm funny because i say stuff before my anxiety can stop me. i've had 14 jobs in five years and i like how i'm always trying something new, never staying anywhere i don't want to be. i like how i'm not scared to go for what i want or share my interest in niche things.
but no one wants you to like your fasd. pregnant people shouldn't drink! that means everyone with fasd must have shit lives because drinking while pregnant is Wrong and Bad Things happen when you do the wrong thing.
but no. i don't hate my fasd. i don't hate my life and i don't hate myself. why does that feel so radical sometimes?
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