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#colitis
spooniestrongart · 1 year
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meshaamem-li · 7 days
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weird thing about chronic illness is how you're already used to the pains and the shit symptoms so you barely complain about them because "ofc that's gonna happen it's part of the Shit Disease", so the most impactful things are the privileges.
I remember I used to complain a lot about my weird diet as a teenager, I was like "woe is me, I have to eat quinoa and mashed potatoes and my mom won't buy ketchup or order pizza anymore" and my "friends" would roll their eyes and say there are real issues in life, and I'll just think "yeah well I can't complain to you about shitting blood and nutritional deficiencies now, can I?"
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crippled-peeper · 3 months
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I love oranges so much but they hurt my tummy so bad
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fleshthing · 3 months
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I'm full of self-hatred on a cellular level (I have an autoimmune disease)
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bpod-bpod · 1 month
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T for Tolerant
Single cell analyses and live-imaging in mouse gut reveals mechanisms underlying tolerance of the immune system's regulatory T cells to chronic bacterial infection and the intestinal niches where this takes place. Greater understanding of the disruption of tolerance which results in colitis
Read the published research article here
Still from video from work by Yisu Gu and Raquel Bartolomé-Casado, and colleagues
Kennedy Institute of Rheumatology, NDORMS, University of Oxford, Oxford and Wellcome Sanger Institute, Wellcome Genome Campus, Hinxton, Cambridge, UK
Video originally published with a Creative Commons Attribution 4.0 International (CC BY 4.0)
Published in Nature, April 2024
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cripple-council · 2 years
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• this user has a digestive disability •
[id: a purple userbox with a black border, to the left is a picture of purple pixelated guts, and to the right is black text reading: “this user has a digestive disability”. /end id]
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crohnschronicals · 2 years
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she’s a 10 but she has to run to the bathroom at any slight inconvenience
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Tfw you finally start to fall asleep only to need to get up again.
I have an emergency appointment in less than 6 hours and I haven't been able to sleep. And it's with the optometrist, so it's not like I can just call them for this. They gotta see my eye. But Idk if I can even make it to the office, this flare is so bad
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r0ttenbunni · 1 year
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So turns out I’m not crazy and my therapist was telling me it was metaphysical was wrong because seeing things for about 1-2 years before being diagnosed with epilepsy is actually normal ???
No schizophrenia. Just epilepsy. Not a witch. Need a new therapist. Apparently that was completely normal and I was thrown down the metaphysical Wicca rabbit hole for no reason. It’s normal to have paranoia or to even see things before epileptic seizures apparently. I was normal and I did not need to burn sage and buy crystals. Wow …
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steroidsforsalenow · 3 months
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newhologram · 1 year
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me when they probe my ass before zonking and directly upon waking up
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wheresernie · 4 months
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so my doctor calls me back in 48 hours but my mind is going a little too fast to wait for that: if i have severe stomach issues (incl constipation and sometimes that other thing, blood in stool, lost significant weight in 2 months, etc) that only go away when i take prednisone - whats the chance its something other than IBD/colitis?
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rchrgd · 5 months
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This colitis flare-up is very frustrating, but hopefully the vedolizumab infusion tomorrow is the beginning of the journey to clinical remission. Will hopefully have some time and energy soon for photography shenanigans before Christmas🤘🏻
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ostomyeducation · 1 year
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Hi Sky, I saw that you recommend maybe watching videos about ostomies for people who have just gotten them. Are there any particular videos you recommend for info?
Absolutely!
This is a super helpful video from a YouTube vlogger, LetsTalkIBD, who is both a person with an ostomy and a registered nurse. This is one of the best demonstrations and explanations for the placement of a new ostomy bag I have seen!
The same vlogger has a super considerate and insightful video on intimacy with an ostomy. It is helpful hearing these thoughts from a young person with a good sense of humor.
A YouTube channel, Truly, shares the story of Paula who went from dying of a bowel infection to being a fashion designer - for ostomy bags! - and content creator on TikTok. She describes her grieving process and how she discovered her love of sewing by making ostomy bag covers that match her outfits.
Truly also shares the story of a young man named Joel who learned about his condition through intense flares. He describes his battle of coping and grieving his condition and learning to love himself despite his ostomy and autoimmune condition. He says that his ostomy saved his life.
Shield HealthCare shares the story of Laura Cox's decision to have her ostomy surgery before her disease process progressed to an emergent state. She discusses the things she wishes that someone told her before her surgery; all of her points are inspiring and informative to a person considering an ostomy placement. Laura shares a similar video regarding top concerns with ostomies on the same channel.
To pair with LetsTalkIBD's video on new ostomy bag placement, Mr. ColitisCrohns shows both how to remove an old bag and place a new one. This video is particularly helpful for men or those who have extra body hair on their abdomen.
I am so thankful that the Internet has brought so many people with "invisible" illnesses together! The resources are truly abundant when you know what to look for.
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startingover2108 · 1 year
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-10 kg in past 3 months.
I do my weigh ins weekly and mostly on Mondays or Sundays. The weight loss is mostly because I have IBD (ulcerative colitis) and my medicine is killing my appetite currently.
Am trying to workout considering my cycle syncing. So currently I'm on walking and strength training. Did a brief 4.5k steps this afternoon
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crohnschronicals · 2 years
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“Listen to your gut”
My gut:
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