#chronicillnesslife

[candidlychronicsblog]

Chronic illness is a lot of picking + choosing. Picking and choosing what events/parties/outing you go to, picking and choosing what family you see on holidays, picking and choosing what errands you’ll run… picking and choosing how much you push your body so you don’t completely end up in a worse spot than you began. It’s a lot of disappointment and missing out and wanting to attend more things than your body will allow. We have to listen to our bodies or we will be unable to function for days or weeks (sometimes longer).

#chronic illness #chronic pain #chronicillnesslife #chronicpainlife #endometriosis #fibromyalgia #interstitial cystitis #hypermobile ehlers danlos

[myalgicencephalomyelitiscfstom]

#chronic illness #longtermillness #longtermdisease #SpoonieMeme #Chronicillnesslife

[livingwithlupus614]

Truth

#lupuswarrior #narcolepsy #chronic illness awareness #chronicillnesslife #systemic lupus erythematosus #sle lupus #adhd #adult adhd #chronic illness warrior

[ettadear]

yesterday at yet another doctors appointment, i was asked about documented medical history of how my pediatricians/past doctors helped with my issues. i told my doctor (new, 2nd appointment) that my mother did not allow me to discuss my medical issues with doctors and i didn’t get treatment until a few months after i turned 18, without my parents knowledge. catching my dad up on my appointment, i mentioned that. he asked me if i’m “going to get over it.” i said no. no i’m not going to get over being called a liar and attention seeker for my entire life. no i’m not going to get over being ignored and told i’m dramatic. no i’m not going to get over the medical and emotional neglect i experienced my entire life. maybe if i got help when i needed it i wouldn’t be disabled right now. i could do the things i love that i will never be able to do again. it’s their fault. it’s her fault. so yes i’m still upset. i will never not be.

#chronic pain #deep thoughts #chronic disability #chronic illness #disabled #fibromyalgia #chronic fatigue #babe with a mobility aid #cane user #carpal tunnel #growing up #chronicillnesslife #chronicpainlife #disabled pride #hypermobile eds #hypermobile ehlers danlos #ehlers danlos problems #ableist parents #fuck ableists #fuck fibro

[thebeegalaxy]

I hate this body.

I hate this body because it fails me.

Im always in so much fucking pain, I never get a fucking break.

Its currently 4am and I can't fucking sleep because my ankle is in too much fucking pain. Its like if someone stuck my entire foot in acid, and even then I feel like Id rather that. Atleast then I could take my foot out of the acid, atleast then I could get medical care that actually helped.

Im so sick of always being in pain. Whether its my hips, my ankles, my head, or something else; Im so sick of it.

I use crutches and a cane and Istg its not enough but I dont have enough money to get the braces that I need, and sure as fuck don't have hundreds or thousands of dollars to spend on a wheelchair. I dont even have a hundred dollars to spend on a single Physiotherapy appointment each month.

I just want to stop being in pain.

I just want to live a normal, abled life.

I didn't ask for this.

And Im so fucking sick of abled people and how badly they don't understand me or my pain. It is painful to do anything, no matter what.

A short walk to my kitchen and the small amount of standing to make myself food can leave me in agony for an hour or longer.

Having to walk all day at school makes it impossible to do anything else at home, its not a lack of putting in effort.

I am doing the best I can with the body that I have.

Life feels like such a waste when every second of it is spent in agonizing pain.

I just want the pain to be over.

I want to stop living like this.

I hate my life, I hate my body.

#vent #vent post #vent tag #chronic disability #chronic fatigue #chronically ill #chronic pain #chronicpainlife #chronicillnesslife #flare up chronic pain #disabilties #i want to disappear #actually disabled #disabilities #disability #disabled #painful #pain #this is hell #unalive #mental illness #I hate myself so much #i hate my body #i hate my liiiiife

[invisibly-amy]

#crohnsawareness #crohns #crohns disease #crohnswarrior #crohnsdisease #ulcerative colitis #colitiswarrior #colitis #chronic illness #chronicillnesslife #chronic pain #chronically ill #ibdawareness #ibdwarrior #ibd problems #spoonielife #spoonie #spoonieproblems #nausea #invisibleillness #chronicpainlife #hidden illness #invisibledisability #autoimmune #autoimmune disease

[thegabecole]

the pandemic has meant not going to a barber literally since early 2020 and I’ve often missed the haircuts I could get when my hair was done professionally. but…not gonna lie I’m actually digging this length 💁🏻‍♂️ #transgender #transguy #transmasc #vitaminT #chronicillnesslife https://www.instagram.com/p/ClIORNJgSKo/?igshid=NGJjMDIxMWI=

#transgender #transguy #transmasc #vitamint #chronicillnesslife

[megpie]

Little things like this make my ocd heart happy. I have noticed over the years that my #OCD flares up when I'm stressed. Which makes sense -- I have a dozen things right now that I can't fix or manage or solve. But I CAN bring order to cupboards, organize drawers, colorize books. I bought a pile of cheap plastic organizers from #DollarTree - this sage green color wasn't my first choice (and I may still spray pain them all?) but it was the only color that had lots of sizes available. I hadn't measured or planned ahead. I just happened to be out earlier this week, I've had the worst chronic illness flare in years - and impulsively decided: I will reorganize all the things. I feel like trash. But my laundry cupboards LOOK less like trash now. And that's... something, right? ;) Right. Swipe to see the overflowing mess it was. Amazing how a few pretty storage boxes can bring chaos under control. Anyone else an #ocdclean type? I need things symmetrical, in groups of 3's, colorized, etc. My brain gets itchy when they're not. #ocdawareness #chronicallyawesome #chronicillnesslife #chronicillness #chronicallyill #autoimmunedisease #flareup #organizedhome #controlthechaos #cleaningday #onestepatatime (at Terrace Heights, Washington) https://www.instagram.com/p/CoYvKU9rwHd/?igshid=NGJjMDIxMWI=

#ocd #dollartree #ocdclean #ocdawareness #chronicallyawesome #chronicillnesslife #chronicillness #chronicallyill #autoimmunedisease #flareup #organizedhome #controlthechaos #cleaningday #onestepatatime

[baldgirlandherwigs]

The Roller Coaster Ride of the Chronically Ill •This was a good time—September October 2021. The fullest my hair had been. My skin had improved, my musculature, and most of all my mood. •I had recently seen my family that I never see •lol that embarrassing facial expression says it all ”🥳” 😂 Today I am in a beanie, with very little hair on the sides of my head with one goal: —To Not Fall Asleep. They are soon to run a CAT scan to hopefully find some kind of answer to my inability to stay awake/control being awake. Does anyone else struggle to be awake or stay awake? Any advice? How is everyone else’s day? I LOVE YA! ☮️💟ash . . . . . #baldgirlandherwigs #baldwomen #chronicillness #chronicallyill #autoimmune #thyroid #womenshealth #healthandbeauty #dayinthelife #wigs #wigreview #shorthair #shorthairlove #shorthairdontcare #normalizebaldwomen #alopecia #alopeciasupport #chronicillnesslife #chronicillnesscommunity #baldgirl #baldwoman #lookatme #selfiegram #shorthairstyle #blondehair #blackandwhitephoto #thingswereokay #wellness #healthandwellness https://www.instagram.com/p/CZZ-Jqcpkql/?igshid=NGJjMDIxMWI=

#baldgirlandherwigs #baldwomen #chronicillness #chronicallyill #autoimmune #thyroid #womenshealth #healthandbeauty #dayinthelife #wigs #wigreview #shorthair #shorthairlove #shorthairdontcare #normalizebaldwomen #alopecia #alopeciasupport #chronicillnesslife #chronicillnesscommunity #baldgirl #baldwoman #lookatme #selfiegram #shorthairstyle #blondehair #blackandwhitephoto #thingswereokay #wellness #healthandwellness

[crazycatsiren]

When your body doesn't know how to regulate its own circulation, that's when cute compression socks come in. 🦊 #compressionsocks, #cutesocks, #thingsilove, #pots, #chronicillnesses, #spoonie, #spooniestrong, #disabledandcute, #chronicillnesslife, #disabledpride https://www.instagram.com/p/Cd9BV-KKRQL/?igshid=NGJjMDIxMWI=

#compressionsocks #cutesocks #thingsilove #pots #chronicillnesses #spoonie #spooniestrong #disabledandcute #chronicillnesslife #disabledpride

[cozy-comfy-cuteness]

Guess who tried to go for a walk in sunny weather? This dumbass. This is before, during, and after. With sunscreen and a hat. I am not sure what to do. I want to go walking without my skin feeling like it's going to melt off. Happy the weather and time is changing. #chronicillnesslife #chronicillness #chronicillnessproblems #lupus #lupuswarrior #spoonielife #spooniesupport #spoonie https://www.instagram.com/p/CkmiobFry3R/?igshid=NGJjMDIxMWI=

#chronicillnesslife #chronicillness #chronicillnessproblems #lupus #lupuswarrior #spoonielife #spooniesupport #spoonie

[candidlychronicsblog]

I wish more people understood that resting because you’re chronically ill and flaring is mandatory. We will not be functional and we may even end up in the hospital if we don’t. Resting for self care/to chill out is something you choose to do (and it’s healthy!) but it isn’t the same thing…

#chronic illness #chronic pain #chronicillnesslife #chronicpainlife #endometriosis #fibromyalgia #interstitial cystitis #hypermobile ehlers danlos

[myalgicencephalomyelitiscfstom]

#chronic illness #ChronicallyIll #Chronicillnesslife #Chronicdisease #long term illness

[livingwithlupus614]

Weight gain is a known possible side effect of some lupus medications, especially Prednisone. I take prednisone daily and have the notorious “moon face” that this medication is known to cause, which can really affect my self-esteem sometimes. This poor woman has the world bullying her over an unavoidable consequence of the meds she takes to keep herself alive and that is despicable. I am grateful that Selena Gomez uses her platform to spread awareness about lupus, so it really hurts my heart to see her getting picked for her weight, especially since it comes from her taking care of her health by taking her meds 💜🦋

#lupusadvocate #lupusawareness #living with lupus #lupus warrior #chronic illness warrior #chronicillnesslife #we need to do better

[ettadear]

Sometimes I forget that I’m only 19. Everything I’ve been through, the events I’ve lived through, the fact that I don’t remember a time where I wasn’t in pain every day of my life. I have lived more life at 19 then most people ever do.

#chronic pain #chronic illness #chronic disability #disabled #fibromyalgia #chronic fatigue #hypermobile eds #chronicillnesslife

[simplelittlebrowngirljae]

Dating with a chronic illness....

I've said it once and I'll say it again, date with chronic illnesses is almost impossible. I decided to try again and well, my results have been the same....either being completely disrespected or totally ghosted. I don't think my plus one is out there. And I'll be honest, it breaks my heart.

Once upon a time, dating used to be kind of easy. I was thin and pretty and the right type of man actually came around me. I had meaningful conversations and things kind of went somewhere. But after my divorce things got harder. And I got older and sicker things progressively got harder and well let's just say the pool of men was infested with algae and piss. Like I just can't believe what is coming my way now.

I get men with hundreds of kids or who don't have goals or careers or who are abusive( verbally and mentally), or who are very judgemental or who just ghost me. And well I will be honest, it hurts. It has made me question who I am amd what I am doing.

Allow me to explain. I know I'm not as thin as I used to be, I'm working on that, but I still have a great personality and many things to bring to the table. But apparently that's not good enough. The constant rejection has made me question my essential being and things like my approach to conversation, my reactions to certain things and what I reveal in conversation. I just don't understand anymore. I try and try and no matter what I get ghosted or rejected, most often times after they find out about my chronic illnesses or they when they find out I have a career ( which is quite odd). I have tried many ways to present it all and well each time it just doesn't work out.

At first it didn't hurt too bad but now the pain is deep. Some days I want to cry. I just want a fair chance like anyone else. I want a chance for that first date, a chance for good conversation and magic. But sadly I'll never get it. My guy friends try to make me feel better by saying it's not me it's them but I know the reality...it is me.

I try to paint a brave face like it's okay but I realize that I do deserve love and special things. I do deserve someone to go out to dinner with and to special events with. But, alas I guess I won't have that. It's just me, myself and I. I guess I've met my match. It's over now.

So what now? I'll wipe my tears, hold my head up high and find a new path. I'm sure there is some greater calling and purpose out there for me. One that doesn't require a mate. So here's to the new journey and the success it will bring.

#awareness #chronicallyillandstrong #chronicillnesswarrior #autoimmunelife #lupie #endowarrior #chronicpain #crps #heartpatient #dating #datingchronicles #spoonielife #gastroparesis #chronicmigraines #morethanjustaheadache #chronicillnesslife #ckd