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#Food allergy therapy
pharmainsights · 2 years
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Food Allergy Market - Emerging Therapies, And Understanding the Market Barriers and Future Scope
Food Allergy is an Immune System reaction that usually occurs on eating any specific food. The reaction to Food Allergy can be mild, but for some people, it can become deadly, and the Food Allergy Symptoms vary from person to person. Food Allergy market insights provides more in-depth details about the Food Allergy market and all the ongoing developments and will evaluate the Upcoming drugs in the Pipeline for Food Allergy Treatment. There are many common Food Allergies that can be seen among people, but Food Allergy Clinical Trials are way ahead to be launched in a functional way still, there is no promised diagnosis for Food Allergy Testing.
PALFORZIA, is the only marketed and the first FDA-approved food allergy treatment, which was developed by Aimmune and bought up by Nestle in October 2020, and was approved as Oral Immunotherapy (OIT) on January 31, 2020. FDA approved it as mitigation for allergic reactions, including anaphylaxis, that occurs due to the accidental peanut exposure for patients aged 4 to 17 years, with a confirmed diagnosis of peanut allergy. 
Emerging Therapies for the Food Allergy Treatment-
There are many companies working on the development of Food Allergy Therapies and many emerging Food Allergy Pipeline drugs are in various clinical phases like- Aimmune Therapeutics, Novartis Pharmaceuticals, DBV Technologies, InnoUp Farma S.L., COUR Pharmaceutical Development Company Inc., Vedanta Biosciences, Regeneron Pharmaceuticals, Genentech, Rho Federal Systems Division, Inc., Alladapt Immunotherapeutics,Inc., Camallergy, and others are currently involved in the development of various food allergy drugs. 
Many companies are still developing therapies for the Food Allergy treatment and are in different phases of the clinical trails, such as NIAID)/Genentech, Novartis, Camallergy, Vedanta Biosciences, Alladapt Immunotherapeutics, InnoUp Pharma, COUR Pharmaceuticals, and others.
Expected Roadblocks for the Food Allergy Treatment-
From the past decades, diagnostic research and development have led to a better understanding of the Food Allergy conditions. However, there are still many factors that are affecting the growth of the Food Allergy treatment market. Due to the lack of understanding of the mechanism of the Food Allergy, it is often diagnosed by relating it to other Food Allergies or diseases. And the prevalence of food allergies is further underestimated due to different symptoms observed in the different people for the same food allergy, and the unwillingness of people to disclose the symptoms they feel over any certain food allergy makes the diagnosis of the food allergy more complicated.
Way ahead to a better Food Allergy Treatment-
Due to many barriers, researchers are continuously trying to find a proper treatment for the Common Food Allergies. Food Allergy testing has still to pass many underlying barriers from the society, where people are seeking a preventive rather than a curative therapy treatment. Increasing patient awareness about the Food Allergies, continuous development in the Food Allergy Pipeline and more improved diagnostics will drive the Food Allergy Treatment market in the future ahead.
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ayyponine · 9 months
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(oh victory. stern talking to frm boss on diminished performance at work prompts local woman to finally book drs appointment and figure out wtf wrong w her <3)
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cluethegirl · 1 year
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weed when you're autistic is no longer just like the happy little thing you get to make you dizzy and think things sometimes it's cathartic as fuck I am in a really good rock like a little baby and i have no judgement over my thoughts so i can just let them go and even still i act more neurotypical with the people around me so i don't even get followed around as much by people in stores. Like i litterally went to Saks while high for a *really expensive but cheap sample of * fragrance and the ladies were so nice to me???? and helped me out??? I felt like I was in a world full of love and even though i didn't even buy the rollarball i wanted to get because i didn't like it they were so nice about it and i was like " omg this is why were all addicts if we weren't diagnosed and put into therapy before kindergarden" this is the only way i can feel safe and well fitting into society. Anyways so you know how Armani just released their new line and they
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chomesuke · 4 days
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someone should give my cat therapy so she doesn't hate other cats to the extent of trying to fight them through doors so I can have a second cat too
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totesmag · 1 year
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The Impact of Food Allergies and Intolerance on Mental Health
Food allergies and intolerance are conditions that affect millions of people worldwide. They are caused by the body’s adverse reaction to certain foods or food ingredients. These conditions can have a significant impact on physical health, but they can also affect mental health in many ways. The connection between food allergies/intolerance and mental health is often overlooked, but it is…
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haojun · 1 year
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Anybody else refuse to eat certain foods bc you are home alone and you're afraid you might have suddenly developed a severe allergy to said food and don't want to risk not having someone to rush you to the ER should things go south when you eat it? Just me?
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got out and also decided I’m getting mcdonalds
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bloodycyrano · 4 months
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Little things I think team tadpole would do for one another.
Part 1.
I think Durge/Tav and Wyll would be willing to read karlachs favorite childhood stories to her, since I don't think she could really pick up and read books- being flammable and all.
Astarion would use his sewing skills to stitch up Clive- And maybe make a few more little stuffed animal friends for Karlach.
I also think Astarion would pull Durge/Tav aside when he noticed them getting stressed out and forcibly talk them through some self care.- Astarion is the king of passive aggressive pep talks.
Gale would definitely try to help Wyll try to figure out how to turn back to the way he was before Mizora turned him into a devil.
Tav hosts group therapy sessions every Sunday, prove me wrong.
Wyll has done a lot of research on vanquishing vampire lords, and has probably made up a complete vampire slaying kit simply labeled "Cazador"
Lae'zel does nice things for people all the time, it's just that nobody realizes it. She's carrying most of your weapons, you don't think she's the one who sharpens them? She does. Without being told to, without asking for praise. Sometimes, she'll go back to the traders after dark because she realizes Durge/Tav hit random on camp supplies again, and Gale has nothing to work with.
Everyone knows Gale takes care of most of the cooking at camp, but I don't think anyone realizes he has a list of everyone's food allergies clipped in the back of his spell book, and even makes potion modifications depending on how his companions react to certain ingredients.
I also feel like Halsin started experimenting with herbology after finding out that Durge is afraid to go to sleep because they don't want to hurt anyone in camp, and ended up making them a sort of sleeping tincture to help their Bhaal-induced sleepwalking.
This one will maybe be a little less popular, but I headcannon Tav/Durge to be autistic, largely because I'm autistic, and I could definitely see Shadowheart making little cards for them with like "Yes", "No", "Angry", "Sad", "Overstimulated", etc. So that they could still communicate while having a meltdown.- Bonus points, they start learning sign language together if they have really high approval.
Wyll made some flashcards to help Lae'zel understand some of the norms, pronunciations, and overall weirdness of Faerun.
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chaisshitposts · 8 months
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𝐌𝐮𝐬𝐜𝐥𝐞 𝐓𝐞𝐬𝐭𝐢𝐧𝐠 𝐘𝐨𝐮𝐫𝐬𝐞𝐥𝐟 & 𝐎𝐭𝐡𝐞𝐫𝐬 𝐓𝐨 𝐇𝐚𝐯𝐞 𝐀 𝐃𝐢𝐫𝐞𝐜𝐭 𝐂𝐨𝐧𝐯𝐞𝐫𝐬𝐚𝐭𝐢𝐨𝐧 𝐖𝐢𝐭𝐡 𝐘𝐨𝐮𝐫 𝐒𝐮𝐛𝐜𝐨𝐧𝐬𝐜𝐢𝐨𝐮𝐬 𝐌𝐢𝐧𝐝
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hello there! welcome to another blog for the nerdy manifesters who want to feed their logical minds. full disclaimer, these answers are solely based on the research I've done, and if you'd like to do your own research, you should! you are the creator of your assumptions and reality, after all. I will never stop encouraging others to find their own answers. while I was writing this, I had no idea someone had already talked about muscle testing on Tumblr, so, please do check out their post too!
what is muscle testing?
according to my holistic therapy, muscle testing is, "[...] a method of gathering accurate biofeedback on the body’s Physiological and Psychological state by stimulating the muscular system. The body’s cells know their entire history and what they require to regain full health. Muscle Testing is an elegant way to retrieve the knowledge imbedded into the cellular memory of the muscular system." ^1 when muscle tests are performed correctly, it allows the one being tested to have a direct conversation with the subconscious mind, aka the machine that controls the entirety of our body.
how does muscle testing work?
"Our bodies interact and move through the world by contracting and releasing muscles. A Tester will illicit either a contraction or release of certain muscles by applying gentle pressure to the muscular system. This testing unlocks the vast knowledge muscle cells by utilizing the binary contraction-release language of the body.
This simple, yet powerful process, is the first step of energy therapy, and it provides an accurate assessment tool of the client’s condition. This is a major part of Integrated Physical Emotional Clearing (IPEC) Therapy."^2
To better simplify what this means, everything that 'works' has energy flowing through it. You, me, your pets, the plants, and beyond. When doing a simple muscle test, you consciously may have a thought, or ask a question perhaps, and when the muscle test is performed, the subconscious will control your muscles in a way that gives an indication of 'yes', 'no', 'like', 'dislike' through a strong/firm or a weak/struggling muscle response that involves the muscles locking in place or stress causing weakness in the muscles. Energy therapy involves changing beliefs at the subconscious level with the use of energy, there are various energy therapy treatments, however, the one that I know about in a deeper sense is PSYCH-K. Again, I recommend you go and do some research of your own!
why would I muscle test myself or others?
muscle testing is just another application of holistic health, and there have been studies on how it can aid in decision-making, figuring out allergies, as well as what foods your body does and doesn't like. along with that, you are also able to test your subconscious' view on certain things that you are conscious of. bruce h. lipton details in his book 'the biology of belief' that DNA expression is not, "predetermined or unchangeable. Instead, the book details how DNA is influenced by signals emanating from outside the cell. The strongest energetic signals that cells receive are our thoughts, beliefs, and attitudes."^3 which is how we're able to manifest drastic appearance changes with our thoughts, feelings, etc, as well as completely eradicate health issues, pain, and other things of that nature with the use of our thoughts, beliefs, feelings, experiences, etc. the medicine you take for your colds is literally just energy, consider that.
how can I muscle test myself accurately?
there are various tests you can do. there are dozens YouTube instructional videos that can lead you in the right direction! however, my personal favorite is the sway test, which i will discuss a little further down. it takes trust in yourself, however, other people can muscle test you if you'd like a solid proof answer. even so, here are a few videos you can watch to better familiarize yourself with. please be advised, there are various ways to muscle test, I highly recommend that you do all of them and figure out which one feels right for you, your body will know.
The Finger Pad Test
Pendulums for Muscle Testing
7 Different Self Muscle Testing Techniques
how can I muscle test other people accurately?
How To Do Applied Kinesiology Muscle Testing
also, whoever you're testing or if you're being tested, your chin must be parallel to the floor while your eyes are looking downwards for the most accurate testing while your arm is being pushed down. the position of your eyes allows you to fully engage your subconscious without worrying about your conscious getting in the way of accurately testing others or yourself, it's been believed to assist in dissociation.
what are some benefits to muscle testing?
since muscle testing is apart of energy therapy, energy therapy has the ability to benefit all areas of life, including, but not limited to— relationships, family, individual growth, and overall well-being whether that be physical, mentally, or emotionally. if you find yourself struggling with certain thoughts or beliefs, muscle testing allows you to have a conversation with your 'higher self' aka your subconscious.
how does muscle testing correlate to manifestation?
when you perform muscle testing on yourself or others, you're able to connect with your 'higher self' aka your subconscious which uses about 95% of your brain on a daily basis, it knows when a lie is being said as well as the truth. after you've established what 'yes' and 'no' is according to your subconscious by making statements you already know the answer to (Examples: [My name is [insert your name]. I have [color] hair. My name is [fake name that's not yours] I have [insert wrong color hair]), you can then ask anything you want. You can also make statements and see if your subconscious agrees with you or not, that will then allow you to take the necessary steps you need/want in order to become your best self.
how can I do the sway test?
stand up with no distractions (no TV, no music, no outside conversation), feet should be shoulder width apart and planted flat on the floor. or if you are unable to stand, just sit up as straight as you can manage. then, lift your chin up so that it's parallel to the floor, facing forward, and focus your eyes down on the floor. once you're done with that, state "my name is [insert name]", notice which way you lean naturally, make sure you're relaxed, this'll be your 'yes/like/true'. you can do this a couple times to make sure. and then you state "my name is [fake name]," notice which way you lean naturally, this'll be your 'no/dislike/false.' once you've established that, you can ask questions, make statements, and anything else you want, you can even test supplements by holding them in your hand as well as holding certain foods. your body may lean forward, backwards, sideways, etc, it's all based on the individual. please be advised that at any point in time you can retest from your yes/no answers by making the statements above, as many times as you want, just to make sure your yes/no answers are the same. I would recommend that you do this after every question you ask, just to give yourself the satisfaction. but again!! do what feels right and what makes you feel that you're getting the most accurate answers.
what are some ways I can muscle test myself without fear of my tests being inaccurate?
practice whatever test you feel most comfortable with, or have someone else test you if you're unable to fully trust yourself. personally, I find that the sway test is easiest. you can also use a pendulum as a muscle test if you'd like, whatever suits you as the individual is what you should go with.
how can I use muscle testing to heal my limiting beliefs, trauma, and other detrimental things that have been holding me back?
muscle testing gives you a deeper insight on the beliefs currently settling in your unconscious/subconscious mind. truthfully, you'll find out things you probably would have never expected to be there in the first place, hidden away somewhere. who better knows you better than you?
is it an absolute necessity to muscle test myself when trying to create new assumptions/testing whether or not my beliefs have changed on a subconscious level?
nope, not at all! this is essentially the same thing as getting your palm read, your aura read, having a tarot reading, and other things of that nature. It's up to you on whether or not you want to try this out or if you think it'll work in your favor.
how can I use muscle testing and psych-k simultaneously to benefit myself to the max?
in my previous post I provided the instructions on how to do psych-k, and if you fully watch the video you will notice that the demonstration involves muscle testing before and after the psych-k treatment. you can do the muscle testing on yourself with various methods, and then you can figure out how your subconscious stands on your conscious belief/affirmation. if the subconscious likes the affirmation or views it as true, then you're golden. however, if it sees it as false, then the next step would be to ask your subconscious 'Is it safe and appropriate for [name] to balance for this goal?' If the answer is yes, then proceed, if the answer is no, you may have some underlying issues that need to be addressed before that. It's very rare for the subconscious to say 'no,' however.
after receiving a 'yes', you will then ask 'are all systems ready and willing for a balance of this goal?' once you've gotten your answer, you will go on to do PSYCH-K.
after performing the necessary steps to implement this affirmation/goal/ etc into your mind, you may do another muscle test and see where you stand.
what are some questions or affirmations/afformations, and belief statements I could use to muscle test?
I am a master at manifesting.
I can manifest anything I want right in this moment.
I am ready and willing for change.
My desires are already mine.
I am intelligent and capable.
and if you struggle to come up with your own affirmations or questions, check out this video and see if it'll help you!
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personally, I've only learned about muscle testing and psych-k within the last three days, and I've already had results. before I started doing this to myself, I did it to my brother and ma (they're my guinea pigs 🧍) and they both experienced some weird tingling sensations in their brains after looping a single affirmation. I decided to do the same for myself, but with self muscle testing. my manifestations are coming in faster than ever just because my subconscious now believes I'm a master manifester. plus, I used it to change another belief I had and I actually started crying like a lil' bitch. 🧍and I'll be honest, yesterday I muscle tested myself and asked 'can I enter the void right now?' and my subconscious said yes. so, there was an attempt on my end where I used the lullaby method, lulling myself to sleep with just the words 'I Am', and when I went to sleep, I didn't enter the void, but I had a dream. I can't entail what the exact details were specifically bc it's personal but it was about my family members who've hurt me in the past, with lots of rage and anger. and when I woke up, an affirmation immediately popped up in my head 'I forgive those who have hurt me and I'm ready to move on.' bruh. this isn't what I consciously wanted, but obviously my subconscious thinks I need to work on this matter before I can ascend and so, I'm gonna trust myself.
gotta be honest, I've read other people's posts where they have had their 'eureka!' 'aha!' moments and their little epiphanies... thought they were all completely bullshit and I was a hater, but gods-- that shit's real, and now I gotta make a change within myself, and it's time for you to do the same.
references + extra resources
Quoted Information
PSYCH-K
The recorded lecture about PSYCH-K (it's an hour long but I think the knowledge is worth it)
Rewrite Your Mind
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WIBTA for taking everything I can from a former friend?
I 20 met this guy J 24M last year through a mutual friend, and since we happened to live in the same neighborhood we hung out more. For context, during this entire time I am/was also supporting an unrelated person financially, so I need every penny and have way less than J.
J has borderline personality disorder and does not go to therapy. I don't want to vilify anyone in the same situation, I'm just bringing it up because J's bps deeply impacts every aspect of his life.
He'd been going through some tough times, with his love life going to shit, cutting off his toxic family and having to find his own apartment etc, so I helped him often.
Since neither of us have much, we shared stuff regularly, e.g. he'd buy me food sometimes and I gave J my skateboard, among other things. I painted his walls & decorated, because I have the skill necessary and he doesn't. I went out to look at furniture with him. I asked my parents to give him furniture they were selling (he got it free). I frequently went to his place in the middle of the night, whether he had splitting migraines or thought someone had tried to break in. I helped him organize a Christmas party, even though he cancelled it because he got angry at someone or something. I cooked for him a few times (he doesn't cook). I let him use my washing machine after he moved into his new apartment without one, even though he owned a cat so all his clothes were covered in cat hair and I have a severe cat allergy, meaning I couldn't do my laundry normally & sometimes it came out with cat hair no matter how hard I tried (this lasted 8 months and would have gone on indefinitely if not for following events). Btw I did all of this without asking for anything in return.
Earlier this year, because of his ridiculously high expectations, he dumped his best friend at the time (the mutual friend), and assigned me his new best friend. After a few months, they became friends again anyway but I kept the "best friend" title.
In July, he hurt his dominant hand during an angry outburst. I was there when it happened but he seemed fine at the time. When he came to do his laundry the next day, Sunday, he told me that his hand was sprained and we talked about how he'd need to see the doctor the next day. He agreed to go. He promised to go to the doctor.
I know he's not good with going to doctors, especially on his own. So I texted him the next day and asked if he'd already gone. He responded "Nope, don't feel like", and upon asking why, he said that "it'll heal on its own anyway". Which to me read as 'I don't care.'
This pissed me off. I blocked him. I planned to unblock him once I'd calmed down, probably in a few days. I was really upset about this because it happens regularly. Him not going to the doctor when he should is a pattern, a bad pattern. He's gotten me sick that way.
The next day he texted my partner, asking if I was okay. They explained that i was upset at him for telling me he'd go to the doctor but then not going. He blew up at them that it was none of my business anyway whether or not he went to the doctor. Whined about his medical anxiety (which is valid but wasn't the point). Said that the sprain was healing so he didn't have to go. They argued for a while until my partner got tired and stopped responding.
Apparently I am now no longer his friend. He asked our mutual friend to tell me to pick up my stuff. I'm busy these days, so I haven't done it yet.
When I pick up my stuff, it's gonna be a whole list of things: a seat/cushion, a stovetop, 75€ worth of comics, a measuring tape, the skateboard, a box. I'll also bring him laundry detergents that are laying around at my place still.
Now WIBTA if I ask him to also give me pain medication to replace all the meds I gave him and money for the furniture I got him for free at the time (I'll ask 40€ even though they're worth more)?
What are these acronyms?
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ethereal-feline · 7 months
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I wanna read a Nature of Predators fanfic all about cooking
Because the aliens keep assuming humans are hunting and killing prey and eating it all bloody and raw. An understandable assumption when that's how Arxur attacks are, but the time is 2100s, close to 2200, and humans have synthetic/lab grown meat!
Give me a Venlil seeing a culinary option in the exchange program and hesitantly pursuing it, maybe to see "proof" humans are like Arxur or if there's edible vegetation worth saving from Earth before the Federation does what it does.
Give me the Venlil realizing the already huge list of recipes they're learning is just the vegetarian/vegan options and when they work up the courage to ask about recipes with meat they're given a substitute like tofu because the humans are trying to be extremely careful about actual meat(lab grown or otherwise).
Give me that Venlil learning that cooking and sharing meals is one of the quintessential human bonding experiences and trying to make a traditional Venlil dish with Earth ingredients or making an Earth meal and its a comedy routine with a happy ending.
Give me that Venlil learning about food allergies and how in the everloving hell do reactions range from a tummy ache/being gassy to literal death.
Give me that Venlil accidentally eating meat somehow, having a whole ass existential crisis, but its perfectly timed around The Reveal about the Federation so they feel less bad but still need therapy, and they willingly try meat again to respectfully go "thanks I hate it!" and return to their veggie diet with full informed confidence.
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dumpforfunwhump · 5 days
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Fun experiment ideas for immortal/alien/nonhuman whumpees:
-measuring the healing rate. Seeing how it differs with different injuries (acid burns, fire burns, cutting with a knife, crush/pressure wounds, broken bones, removing limbs, removing organs, gassing them) , and areas on the body (fingers, legs, eyes, teeth etc) and if repeatedly injuring it slows or alters the healing process
-seeing how they react to different drugs and how it differs from how a human would react
-feeding them different foods to see the effects on the body (seeing if sugar causes tooth rot like humans, seeing if they have any allergies like how dogs can’t eat chocolate)
-seeing how they react to poisons
-seeing how they react to deprivation— oxygen, blood, water, food, social interaction, mental stimulation, sensory
-vivisection! Then doing some of these things to see how it affects the organs (feeding them to watch it get digested, using poison to see the damage etc)
-seeing how they react to abuse vs kindness, to manipulation etc. deliberately triggering certain emotions to see how they react (e.g making them jealous by giving another subject privileges).
Seeing how they react to interacting with another subject in different circumstances.
Seeing how they react to a subject being tortured vs being ignored/treated neutrally vs being treated kindly.
Seeing how they react to being able to help another subject vs being able to hurt or being forced to torture them.
Simulating betrayal by being very kind to them and ‘helping’ them only to betray them.
Getting a psychologist or therapist to give them therapy to see how they change or to see if they have traits of human disorders such as PTSD.
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rainyfestivalsweets · 7 months
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10/20/23 Things I did to help myself.... what did I have to change? Seems like everything some days.
Healthy Tips
Realistically evaluated my eating habits. It was either not enough or too much, no in-between. That was part of my problem.
Most restaurant meals are too much, even if you think you are ordering the 'healthy option'
It is not normal to gorge yourself on appetizers, drinks, & a giant entree. Choose a moderation mindset: Pick one or 2. Share an app. One drink. Pack half your entree 'to go'.
Our society is driven by consumerism. I had to take steps to stop that. Meet people to do activities, not to consume things.
Water- I shoot for 200 oz of water a day.
I take low cal beverages with me... nearly everywhere. Tea, coffee, sparkling water.
Try all kinds of different tea.
Meals focus on protein and produce. If you are still hungry- eat another portion of meat and produce.
Try to eat as unprocessed as possible. They add stuff to our food to make our brains light the F up. It isn't natural and devastating to people like me who are especially susceptible. Often when I have issues (yesterday!) It is because I had a processed item.
Sometimes I add a fiber supplement to my drink. Adds calories yes but I don't worry about it.
Try to only have 1 sweet thing a day. The later in the day, the better. I will actually be shooting for every 3 days or so.
Some of my craving issues were blood sugar related because I was pre-diabetic and had PCOS- which has an insulin problem.
If you haven't eaten, plan and eat a healthy meal that has a substantial amount of protein.
If you have eaten already, try to distract yourself with a task. If you are still truly hungry 20 minutes later- have another bit of protein & veggies.
Walk daily. But don't count it as your cardio.
If you work at a desk, get a standing desk and try to work up to standing daily.
Cardio 3x a week. Whatever you enjoy. Yes, you have to enjoy it. If you don't, you haven't found your activity yet.
Weight training 3x a week. Lift all the weights you can, as often as you can manage. You are now in training. For life!
Supplements- figure out what works for you. I am currently on: Sam-E, NAC, Nomorbidity, Alkemi, allergy stuff, and some other stuff I rotate in.
Read books that help your mindset. Atomic habits, mindset books. 10 mins a day, make it a habit to improve yourself.
Watch YouTube videos that build your motivation and determination.
Things can get better. I also utilize therapy! There is no shame in needing help!
I am becoming a healthier person and every choice reflects that.
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jhscdood · 5 months
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i woke up in a Bad Headspace today and imma use by blog to vent about it like it's livejournal circa 2004.
tw for discussion of medical stuff
- I hate xmas. I'm jewish but my dad is not and the pressure to have An Perfect Xmas every year and the disappointment every year just grosses me out now. Not even going to talk about american xtian hegemony but there's some of that in there too.
- Today i began to suspect that the awesome new migraine med that actually stops my weather-induced migraines might also be interfering with the efficiacy of my prediabetes meds. or maybe im wrong and im Just That Fucking Exhausted.
- Spouse spent all last week recovering from a severe medication allergy and hives on 70% of his body. and steroids Do Not Agree with him so it was just. a wild time. terrifying af. stood over him with an EpiPen basically the entire time.
- 3 days before The Hives, i scratched my cornea while pruning bushes and that right there is a pain i do not ever want to revisit. had to go to the optometrist and get The Goo.
- 2 days before Cornea i had my first Botox For Migraine treatment. 31 injections to the face, neck and shoulders. it stung but it was over in like 4 minutes. takes 3 sessions to start kicking in. sessions are 12 weeks apart. so i guess we'll find out in August if it's working.
- day before Botox i had an ENT appointment and he stuck a camera up my nose and then diagnosed me with a weird vocal cord paralysis thing so now i have to go back to speech therapy for the first time in 26 years.
- Week before that, saw my neurologist and she diagnosed me with a weird intermittent lazy eye / motion lag thingamawhatsis so now i have to go to an ophthalmologist AND vision therapy.
- That week I also saw my PCP and explained to her about the intermittent abdominal pain I've been having since like 2021. She took me seriously!!! Which is good!!! But now i am scheduled for baby's first colonoscopy. And i have to keep a food journal, which i HATE because food is STUPID.
- All of the above all happened this month btw. December 1-23.
- My final appt in November was yet another ultrasound of my former left tit because there is an oil cyst at the site of my top surgery and they are VERY SURE it is a benign oil cyst but the rules require them to poke it every few months for 2-3 years.
- Before that I had a 48 hour ambulatory EEG which was the itchiest i have ever been in my LIFE. That same week our basement stairs collapsed and a contractor had to come rebuild them (up! to! code!). That same week i also went to the dentist to get my crown fitted.
- I think my MIL was in the hospital that same week, too. so that's a thing that's been going on the whole time since then.
- I spent most of October deathly ill with food poisoning thst was originally misdiagnosed as viral. I ended up with a CT scan and colitis. and, eventually, cipro. it was the sickest i have ever been in my adult life. i would rather have mono again. i fantasized about those cholera beds with the hole in the center so you didnt have to get up to have your horrid dysentery. nightmare.
- The day before that hit i had ONE golden day where i felt good and had energy. we went to temple and i got glomped by about 10 different people. my 80 year old bestie kept finding me to hug me again. Rabbi hugged me super hard.
- Before that was a root canal, and before that was a tooth infection that took 2 rounds of antibiotics to kill, and before that was the original cavity filling that started it all. the dentist kindly comped me the $172 for the filling against the $3,800 bill for the root canal + crown.
- Before that? IDEK man. I have lost track. Somewhere in there i got diagnosed with insulin resistance which explained my HORRENDOUSLY TERRIBLE fatigue and cloudiness and waking up starving every 3 hours. The meds they gave me changed that literally overnight. it was a miracle. which is why im freaking out about the new migraine med possibly counteracting that. i spent the entirety of last summer in a fog. several of my very good friends visited and all i could do was nap on them. i couldnt go anywhere or do anything. it was a nightmare. i don't want to go back to that. but also i don't want to have a migraine every time the wind blows. but i would rather have a migraine 50% of the time than be back to that fatigue fogged state 100% of the time. nope nope nope.
- and amongst all of this, still having the seizures. they were going down for a while but the last week or so has been 1-2 per day. so. another checkmark in the "gee do you think you're stressed?" column.
- it is going on 10pm and I'm tired so i very likely have accidentally omitted several other things. to be fair to me, there's Quite A Bit to remember.
- so if youre wondering why i havent updated my latest fic, its partly bc i am TIRED and partly bc if i gave jason even a third of the health bullshit i have dealt with the past few months, it would absolutely defy belief. TWO kinds of eye problems AND a speech problem AND food poisoning AND dentistry?? surely no one in the world has to deal with that much!
sigh. anyway. thanks for listening. i promise i am stressed out of my GOURD but, shockingly, have not slid into any sort of depressive space. mostly im just annoyed. i spent today watching dinosaur documentaries and reorganizing my craft supplies.
tomorrow will be better. today just sucked.
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thebibliosphere · 2 years
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hello! a friend sent me your post about cirs and mcas the other day and it’s got me doing a lot of research, i’ve been sick since 2019 and was diagnosed w cirs in 2020, i’ve since hit a plateau where i’m not really improving tho and my cirs doctor doesn’t really know what to do with me until i build tolerance to a nasal spray or somehow banish more toxins from my already toxin-free room. i wanted to ask what your experience with cirs doctors was and how you figured out you were misdiagnosed? a lot of stuff around cirs is pretty sketchy but i’ve been at a point where i’ve just overlooked that :/ thank u i hope ur having a good day !!!!!
So, unfortunately, my experience sounds a lot like yours. I (skeptically and out of desperation) followed the advice of several alt-medicine doctors who believed I had CIRS and saw some improvement that ultimately hit a plateau and never really moved beyond it.
This was because some of their recommendations removed triggers from my environment that were causing my mast cells to react (scented candles, perfumes, strong chemical cleansers) as well as some high histamine foods. Gluten, for example, is a mast cell destabilizer and iirc “go gluten free!” is common CIRS advice but they never really explain why beyond some pseudo-science.
And while removing some triggers did help, they weren't doing anything else to meaningfully shore up my immune system or address the fact that mast cell dysfunction can fluctuate rapidly due to things like seasonal allergies, stress and also your own monthly hormonal cycle. (This is more common in individuals who menstruate, or those who use estrogen hormonal therapy, as estrogen can cause inflammation and act as a histamine liberator.)
I already suspected that CIRS was not my issue, but I ultimately soured on my doctors, when, like yourself, they continued to insist there was “toxins” in my environment* and I must not be following their advice properly. There was also heavy emphasis on things like essential oils and herbalism, which I knew from being a licensed practitioner of numerous holistic therapies in my 20s that they were promoting inaccurately and sometimes unsafely when they also continued to insist that my reactions to certain things were caused by “toxins” leaving my body and if I just persisted long enough, I’d see the benefit.
(As an aside, what nasal spray are they insisting you take?)
While it is true many of chronically ill people suffer from chemical sensitivities, the insistence on labelling everything a “toxin” and pushing natural alternatives to an extreme, made me nope out and continue my medical research.
A few years later, I started getting worse following a gnarly dental infection, and I began to experience slow-acting anaphylaxis which a Horrendous number of doctors misdiagnosed as panic attacks and even in one spectacular instance of medical incompetence, bipolar disorder.
By then, I had learned about and suspected that I had MCAS but was too ill to keep fighting my doctors. It wasnt until I almost died in 2019, that a new doctor panicked, threw me at seven specialits in a week and I walked away with a diagnosis of perniciois anemia, likely caused by a mast cell disorder and my body’s inability to absorb things properly.
The hematologist who saved my life referred me to an MCAS specialist who took my hand to shake, looked at how the joints moved in her grasp, and said, “this is now an Ehlers Danlos exam.”
I walked out eight hours later with a diagnosis of hEDS and “probable MCAS and undefined dysautonomia.” which is a fancy way of saying I have a genetic disorder and multiple forms of autonomic nervous system dysfunction.
Not everyone with MCAS has Ehlers Danlos Syndrome, but a lot of us do. So if you have problems with chronic pain, joint instability, hyper flexibility (muscles), hyper mobility (joints), soft and easily bruised skin, migraines or a lot of unexplained GI symptoms, it might be worth your while to check and see if EDS might be relevant to you.
The Ehlers Danlos Society has a global directory of physicians you can look up.
Its also worth noting there’s a lot of overlap between people with Autism and ADHD with Ehlers Danlos and Joint Hypermobility Disorder.
Like I said, it may or may not be relavent to you. I’m just throwing it out there in case it helps.
So yeah, that’s basically how it went for me. Two years on mast cell stabilizers and a lot of prescription supplements to combat numerous deficiencies, and my health is unrecognizable from what it was. I still have nasty flare-ups (like now), but that's just an unfortunate reality of life with the numerous conditions I have. I’ll take it any day, however, over what I was living before.
I hope this was helpful and that you find real relief soon. Take care.
______
*nb: to any long-term readers, this was before I unknowingly moved into a house with mold, which is a mast cell destabilizer.
This is partly what makes me think that some people diagnosed with CIRS actually have undiagnosed MCAS because so much of CIRS theory hinges on things like mold sensitivity and other environmental factors, though they never explain why beyond a basic “it's a toxin and toxins are inflammatory.”
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i have to do so many things now :(
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