#working spoonie

[the-spoonie-life]

So this week was really good, started my new job and was doing really well in training and got to stay in a hotel.

This morning however just went bad to worse, the weather is awful, then I was in a car accident (I’m fine, the car isn’t) and now very shaken up. My final day of training g got cancelled and I’m having to wait for my dad to rescue me because I’m stranded due to not having a driveable car.

I’m ready to curl up in bed.

Hope your Fridays are going better.

Anastasia

#spoonielife #spoonie #spoonie life #ehlers danlos syndrome #chronic illness #spoonie problems #mental health #working spoonie #work #car #car accident tw

[candlecafe]

Sorry, I haven’t done my work, yeah, I’m in spoon jail. Yeah, I was in really bad spoon debt, and I stopped paying my spoon taxes. Yeah, I can’t do anything until I gather enough spoons to pay my spoon bail.

#i’m so tired #disability #chronic pain #chronic fatigue #spoonie #i may have worked to hard on a good day #when will i learn #the consequences of my own actions #going to sleep now

[thedisablednaturalist]

Sometimes terms mean certain things and belong to certain groups of people and are not meant to apply to people outside that group. And that is on purpose and valid. You can make your own terms to describe your own experiences, you don't get to take terms from other people, especially people more vulnerable/less privileged than you. If multiple people tell you that the term is not for you, respect that.

When terms get used for many different situations they get diluted and trivialized. Remember "trigger"? It was a specific medical term and is now used to mean "something that pissed or upset someone". Brain fog is now turning into abled people just being a little sleepy or out of it, not literally a clinical term for brains not functioning correctly due to various illnesses. I tell someone I have brain fog and they say lol me too XD no you fucking don't. "Spirit animal" was taken from indigenous peoples so white people could make funny haha relatable t-shirts. Two spirit almost got taken by queer white people as well (although I think most people have backed off on that hopefully).

Not everything needs to apply to as many people as possible. You don't need to and can't relate to everyone. We can still support each other while respecting differences.

(Edited ver)

#wrenfea.exe #this is about people using nonverbal for selective mutism btw #and about mentally ill abled people using cripple #like if ambulatory wheelchair users can come up with our own term then you can too #idk if its not as concise or it takes effort to get it to catch on #you dont get to steal the work other people have done to spread awareness of their term and its meaning #disability #nonverbal #selective mutism #spoonie #chronic disability #chronic pain #chronic illness #cripple #cripple punk #autism #adhd #readying my inbox for a wave of the stupidest people who've never seen any of my posts to flood the gates #i saw someone throwing ambulatory wheelchair users under the bus to justify why they should be able #to use the term nonverbal #pls correct me if you are from the relevant communities #i updated this to make it more accurate bc funnily enough brain fog made me forget about chronic illness triggers

[imgae-insertshockedgasps-16]

"why don't you have a job?"

i can't find one that will hire/accommodate me or that i qualify for, bc i'm disabled.

"be a cashier!"

requires long hours of standing, which i can't do, or has a physical requirement of being able to lift 40+ lbs from the floor to above shoulder level, which i also can't do. some companies go so far as to expressly state that reading body language is required for this position, which i am very bad at.

"well you could buss tables!"

long hours of standing, a lot of walking, bending, lifting, carrying, all of which i am not capable of doing for extended periods of time.

"just work from home!"

doing what? it hurts to type, i have a hell of a time trying to figure out new software, no one in any work from home job i've ever done has communicated adequately which always results in me being in trouble, sitting for too long is painful.

"walk dogs or smth!"

again: can't do long walks. also, can't be reliable bc of flare ups and such (which applies to all of these, really).

"start your own business!"

with what money? with what product? art? can't consistently do it. music? not that either. sewing crocheting scrapbooking writing? nope nope nope nope. plus, i struggle so hard w/execution dysfunction that one of three things would happen: 1) i would make and create and package and send and nothing else ever. or 2) i would do unrelated stuff that needs to be done and never create or package or ship. or finally 3) i would never do anything ever bc brain refuses to cooperate and all the tasks are overwhelming.

"idk, be a crossing gaurd or smth!"

see previous statements.

"collect shopping carts!"

see previous statements.

"post office!"

see previous statements.

"electrician, plumber, hvac!"

see previous statements.

#it's not that I don't *want* to work #it's that i have a very hard time finding jobs that i am qualified for/will accommadate me #i. am. disabled. #it. is. disabling. #disability #chronic illness #chronic pain #disabled #chronically ill #physically disabled #actually disabled #spoonie #mentally disabled

[lifewithchronicpain]

The idea that all people are equal should never assume that all people are physically equal.

In other words my membership in this society should never be conditional on my ability to work. I understand many people want to just express that if you work hard you deserve an equal share of the pie. On the face of it, I get it. But you will always be leaving out disabled people who are still humans that exist and deserve dignity whether we can work 8 hours a day or not. Our work doesn’t make us equal, our humanity does.

#disability #chronic pain #ableism #spoonies #chronic illness #chronic fatigue #I’m so tired of politics that only care about the working man #and act like those of us in poverty for one reason or another don’t exist #or just don’t matter

[800-dick-pics]

Help a Black Disabled Lesbian out of debt for Black History Month!

In the past month(s) ive had to max out my credit card to survive and now my monthly payments are $492. Due to disability I have limited/no income at the present and jobs are not clamoring to hire a visibly disabled Black person. I am in the long process of training a service dog so I CAN work a traditional job in the future but for now I need support. If you can pls support n share this around.

Happy Black History Month!

CA: $sleepyhen

VN: wildwotko

DM 4 P@ypal

#black history #black history month #bhm #spoonie #chronically ill #black lesbian #im in debt bc i cant work and never get my c funding goals met #so pls help me if u can! im in pretty deep debt and its becoming overwhelming

[thepeacefulgarden]

#spoons #chronic illness #spoonie problems #self care #pace yourself #self compassion #you are enough #you do enough #you have enough #give yourself permission to rest #no guilt #no shame #adulting #doing your best #don't overdo it #stop the glorification of busy #to heck with the hustle #work culture #grind culture

[aesethewitch]

Spirit Work: The Power of Hanging Out

Elaborate rituals, intense meditations, and huge gestures have their places in spirit work. There's value in putting a massive effort into something for the spirits you venerate or work with. And sometimes, you need to do these big things for a particular outcome or as part of your tradition.

I have a bias against big, elaborate rituals for this purpose, though. In my practice, it's just unnecessary. All of the relationships I have and maintain with spirits are, at their cores, friendships. They're not working relationships, they're not worshiper-worshiped relationships, they're not transactional relationships. My spirits are my friends.

So I approach working with them like friendship. I'll light a candle and set a cup of coffee or tea on their altar in the same way I'd offer a friend a cup of tea when they visit. If I'm working on something, I'm accustomed to body doubling as someone with ADHD, and I like to invite my friends to work alongside me. In the same way, I'll invite my spirit friends to participate or just hang around while I work.

Heck, they hang out while I write these posts sometimes!

Not everything in spirit work has to be intense and serious. Yes, you should be respectful -- in the same way that you should be respectful to your neighbors and your friends. And yeah, not all spirits can or should be treated this way.

But I would like to posit the humble power of Hanging Out.

What I Mean By That

Literally. Hanging out.

Whatever you normally do to "call" your spirit(s), do that. My method is lighting a candle of some sort. Sometimes, I'll choose a scented candle if I'm trying to lure a particular spirit to the area, but an unscented taper candle will do just fine.

And then, you hang out. That's it.

If you're watching YouTube, invite the spirit to watch with you. Ask their opinions on what to watch, if you have an easy way to communicate with them. (One of my spirits loves Ghost Hunting TV Shows. He thinks it's hilarious.)

If you're playing a video game, leave space on the couch for the spirit to settle next to you to watch.

Make dinner, chat about your days. Set aside a little plate for them if you want. Eat together.

The Value in Hanging Out

The idea here is that time is valuable​. Time spent with someone else is valuable on its own, even if that time is spent doing little to nothing "productive."

Think about your friends and the people you enjoy spending time with. It isn't always clubs, parties, exploring, hiking, running, traveling, or whatever else you do. Even if that's how you met or your main activity together, there are always casual moments. Easy breakfasts, simple conversations, sleepovers in your PJs, watching movies.

Quality time is powerful. Choosing to spend your time with someone sends a clear message: "I value your presence."

Not everything has to be an elaborate party. Sometimes, all you want is to sit down and hang out.

Why can't it be the same with spirits? The answer is that it can. In my practice, I rarely do anything that elaborate. I'll put extra effort in for special occasions like holidays, but usually, it's a simple act of lighting a candle, saying hello, and then sitting down with the spirit to just hang out.

Not every relationship requires constant, intense focus. Especially if you're looking to befriend​ your spirits, rather than just work with them, the Power of Hanging Out is a valuable asset to keep in mind.

It doesn't have to be every day, either. I have a sort of open, standing invitation for whichever spirits to hang out whenever they like. They're welcome to chill anytime, unless I ask to be left alone. Because of our relationship, they respect that. (Usually -- the only time they don't is if something urgent has come up or they need something.)

I developed the theory of Hanging Out years ago. Spirit work was where I started, and it's always been Home to me. But it's intense sometimes, and a lot of what I was doing was burning me out very, very fast. So I adapted on the fly, as one does, and it ended up working really well.

Now, Hanging Out is my primary method of doing spirit work. Even with spirits I don't know or in new locations, there's value in projecting an aura of "I'm just here to chill. Feel free to talk to me, or don't. It's cool." Spirits, shockingly, respond to that. I end up with a lot of interesting, casual conversations, light taps on the shoulder to let me know I've been acknowledged by something that doesn't want to talk, and various visual anomalies from shy critters in the shadows.

Think of it like slow blinking at a cat or offering the back of your hand to a dog. Approaching respectfully and calmly in a very casual way attracts things that otherwise wouldn't show themselves. The Power of Hanging Out is alluring to even the shyest spirits.

Again, obviously, this won't work for all spirits. Do what works for what you work with. I've found Hanging Out works best with ancestors, house spirits, land spirits, and assorted ghosties over the years. It's not so good with, say, the Good Neighbors. But hey, maybe your experience will differ.

Extra Benefits of Hanging Out

Aside from the relationship benefits of casually sitting and hanging out, there are even more practical benefits. As a side-effect of adapting spirit work in this way to work for me, my senses for spiritual energy shot through the roof.

I've always been pretty sensitive. I'm that weird kid at the next table over in the restaurant who clocked the spirit of your recently-deceased aunt who left you her necklace which you're wearing under your shirt and which I couldn't have possibly seen. But when I started Hanging Out and just existing in a space with spirits, everything sort of... exploded.

It's like recognizing your family's footsteps coming down the hallway. When I stopped trying to force myself to understand and recognize every scrap of energy, it all washed over me instead. And in the Energy Soup, I started to recognize more signs and signals without effort.

This is, in my opinion, the greatest benefit of Hanging Out, even for people who don't do spirit work at all. There's no meditative aspect to it, really (though you can certainly meditate to enhance it, if that's something you do). It's just sitting and being receptive.

I don't think this method will work for everyone. People who have zero sensitivity to spirits may not see any results. But I think it has value even for those people.

At its core, Hanging Out is a mindfulness exercise. If you can't be with spirits, be with yourself. Put the call out to whoever or whatever you work with, venerate, sense -- or things you'd like to get to know better. See what answers.

​Light a candle.

Say, "If you want to come sit with me and watch TV, feel free. I have popcorn."

Hang Out.

If you like my work, consider tossing a tip in my Ko-Fi tip jar! Supporters get extra, early, and exclusive content every week. You can also view this post on Ko-Fi here!

Also, consider throwing a response at my Divination Theory Survey! This is an ongoing research project that needs all the help it can get. Thanks!

#aese speaks #witchcraft #witchblr #witch community #spirit work #spirits #working with spirits #spirit messages #casual witchcraft #easy witchcraft #beginner witch tips #beginner spirit work #deity work #ancestor work #the power of hanging out #spoonie witch

[something-existing-somewhere]

What people who have worked longer shifts in the day say to us coming in later who are chronically ill: "you can't be tired yet your day hasn't even started!"

Me who wakes up feeling like I'm gonna pass out: "mhm" as I think to myself that 'if only that was the only form of tired I feel'

#chronic pain #actually mentally ill #fibromyalgia #aroace agender #chronic illness #actually disabled #chronic disability #chronic fatigue #disability #spoonie #neurodiversity #actually neurodivergent #many mental illness #many physical illness #starts to almost faint at work half way through the shift

[ryegarden]

no art lately + no spoons + silly comic that has a sadder tone than planned but i hope other people can relate to

#spoon theory #chronic illness #chronic fatigue #spoonie #chronically ill #im ok actually i just dont have much time to rest #and have a lot of work and uni #so not much art!!

[chronically-wonky]

"wait why am I using a cane I feel fine?"

*stops using the cane*

"...O yeah..."

#blue.txt #send spoons yall my heart is acting up and im a dummy and didn't bring an aid to work with me 😭 #chronic pain #spoonie #cane user #mobility aid #cpunk #cripple punk #cripplepunk

[the-spoonie-life]

So I love my job apart from one Co-worker who makes me dread having to go into work when I know I’m on with them. Yesterday was the final straw to the point I’ve told my boss I’m not working today because I had multiple panic attacks yesterday and if I have to keep doing so many shifts with this person after next week I will be leaving about a month before I planned to.

So I guess I’m just saying with some support I’m actually looking after my mental health and setting boundaries I should’ve set along time ago. And yes you can just tell your boss how it is because it will help you even if doesn’t help them.

Hope everyone’s having a good week

-Anastasia

#tw: panic attack #tw: mental health #working spoonie #work #job #toxic coworkers #venting

[chaos-and-ink]

EDS/POTS/Scoliosis Stickers

All of these will become available on my shop in June. You can follow my page on Ko-Fi to get an email update when they're for sale so you don't miss it :)

Tomorrow is the last day of my class and this is my final project. Chronically ill stickers. I definitely plan to make more but this is what I have so far. I can't wait to sell these in the Summer and if anyone has suggestions for what kind of stickers I should make next, absolutely let me know! I love getting sticker ideas from others.

Reblog to share them around :) I'd really appreciate it.

Here is the link to my shop : Chaos And Ink

Image Descriptions are from left to right

[ID: A skeletal leg with the knee hyperextended and a rainbow behind it. The text reads 'Nothing about me is straight' / A crooked vertebrae column with a rainbow behind it. The text reads 'Nothing about me is straight' / A zebra pattern awareness ribbon with the initials 'EDS' on the right side / A skeletal arm with a hyperextended elbow and a rainbow behind it. The text reads 'Nothing about me is straight' / A blue awareness ribbon with the initials 'POTS' on the right side / A black leg with a hyperextended knee and a decorative vine tattoo on the thigh. The text reads 'Clinically too bendy' / A white wrist and hand with the thumb pressing against the forearm. The hand wears a ring and bracelet and has a tattoo that reads 'Enough'. The text reads 'clinically too bendy' / A latino arm with a hyperextended elbow and a bracelet and watch. The text reads 'clinically too bendy' End ID]

#my work #scoliosis #ehlers danlos syndrome #postural orthostatic tachycardia syndrome #pots #pots syndrome #spoonie #disabled #physically disabled #cripple punk #c punk #hypermobile eds #hypermobile joints #joint pain #chronic pain #ehlers danlos zebra #potsie #dysautonomia #actually disabled #disability pride #lgbtq #lgbtq pride #lgbt #lgbtqia #stickers #sticker shop #described #image described #hypermobile spectrum disorder #hsd

[thedisablednaturalist]

"It is illegal for an employer to discriminate based upon disability! So if you have no excuse if you are unemployed!"

Employers:

[ID: Snippets of job requirements. By bromantically]

1. "This position requires the individual to drive either a company car, rental car or his/her own car in the course of performing their job from time to time. Employee must be able to perform the physical functions of operating a motor vehicle, including use of eyes, ears, arms, hands, legs, and feet. Employee must be able to prove that he/she has a current, valid driver’s with no restrictions." The part that says, "Employee must be able to perform the physical functions of operating a motor vehicle, including use of eyes, ears, arms, hands, legs, and feet." has been highlighted.

2. "Ability to repetitively stoop, crawl, bend at the knees and waist, squat and lift 50 lbs; includes body weight, equipment, tools and boxes, in addition to ability to stand for long periods of time on varied surfaces. Must be able to stand up to five hours at a time." End ID.]

#working while disabled #disabled employee #i have seen desk jobs use the must be able to lift 20 lbs loophole #this is ESPECIALLY PREVALENT in environmental science jobs even those that dont require fieldwork #the first one is for an entry level environmental scientist at dewberry #disclaimer: the second one is from a security guard position bc i couldnt find a ready example of this #without searching through a ton of job descriptions #but i promise you i have seen shit like this for non physical labor jobs #and jobs that have some physical labor but can have accomodations #they just dont want to do the extra work of accomodating to make the work feasible for a disabled person #so they outright say this shit #disability #physical disability #cripplepunk #cpunk #chronic disability #chronic pain #spoonie #wheelchair #from the field

[audhd-space]

as a neurodivergent working adult with variety of health issues, I hate professional team-building trip because that means I have to socially perform/mask for 3D2N straight around colleagues, esp when I have no idea which colleagues I will get as roommates

there is no ‘safe’ place and space to ask for accommodations and you will be forced to function and neuro-conform to the social rules

#team-building is ableist #autistic #invisible illness #ableism at work #neurodivergent #actually autistic #chronic illness #spoonie #audhd #disability #chronic pain

[esoteric-chaos]

Esoteric Chaos Masterpost - Online Grimoire

Need help finding all of my personal posts on my blog? Look no further! Here is everything collected in one place for you.

If a link is not working please let me know and I'll fix it immediately. If you do not see a link and it's just text* those are upcoming posts scheduled.

Spiritual Hygiene and Beginner Work - The foundations of witchcraft and spiritual upkeep

Grounding and Centering - How-Tos and Methods

Cleansing - The How-Tos and Methods

Banishing - The How-Tos and Methods

Protection - The How-Tos and Methods

Warding - The How-Tos and Methods

Low Energy Practices - Spoonie Edition*

Basics in Witchcraft - The basics of witchcrafting

Intention

Visualization

Energy Manipulation*

Safety in Witchcraft

Spell Crafting Basics - The basics of spellcrafting

"How do I create a spell? Spell reversals?"*

"What is casting a circle? Do I need to?"*

"How do I Power my Spells?"*

"Planetary Timing? What’s that?"*

"My Spell Backfired! Help!"*

"I Think I Was Cursed. What Do I Do?"*

Wheel of the Year Masterpost - Spoonie Witch-Friendly

Intermediate/Advanced Witchcraft - Types of more advanced practice

What is Intermediate and Advanced Witchcraft?*

What is Energy Work?*

Divination*

Cursing, Hexing and Jinxing*

What is Ancestor Work? Breaking it down and how to start + extra

Types of Magic - Different categories of witchcraft

Lunar magic*

Glamour magic*

Hearth magic*

Chaos Magic*

Energy Healing 101

Kitchen Witchcraft - Infused Cooking Oils, Dinner Recipes, Baking, Tea Blends, Syrups, Etc

Kitchen Witchcraft Masterpost

Herbalism - Herbal Education, Recipes

Herbalism Masterpost

Spells - Spells, Pop Culture Spells, Sigils, Spell Oils, Spell Powders

Spells Masterpost

Spoonie Witchcraft

Low Energy Witchcraft - Chronic Fatigue Edition

Disability-Friendly Prosperity Magic

Tips and Tricks

Low Energy Cleansing Tip

Extra’s - Any extra reading material on different topics

Sustainability and Witchcraft*

Endangered and Threatened Plants and Resins*

UPDATED: 4/06/24

#Esoteric Chaos Masterpost #witchcraft masterpost #witchcraft #spoonie witch #witch #witchblr #cleansing #banishing #warding #Energy work #spells #witchcraft spells #herbal magic #kitchen magic #wheel of the year #online grimoire #grimoire