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#chronic pain poblems

flourescencia · 9 months

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the poblem with chronic stomach issues is independently of whether they're bothering you at the moment or not, at least once a week you get the craving to eat something that you know for sure is going to cause you so much pain and there's no stopping the craving ...

#txt.me

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crps-chronicpain-ptsd · 5 years

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“For people who live with chronic pain, this seeps into all facets of their life like a slow poison. It disables one function after another, switches off mental and emotional connections, and corrupts all the rules of life.”

Chronic pain problems •

Many of these disabilities are ‘invisible’, which leads to societal stigmas. Humans are highly visual creatures after all. How do you empathise with pain that’s internal and therefore, unseen to the naked eye? Even family members can have trouble grasping the depth and complexity of chronic pain, and they’re often the people who are closest to us. What more about colleagues, acquaintances, and worse yet – strangers

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crps-chronicpain-ptsd · 4 years

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Something I clearly have to ask myself more often and give more thought to. During a manic episode it’s easy to use spoons in advance.We need to ask ourselves. “How many spoons will it cost ?” To ensure we don’t run out or end up with a flare that takes days to get over .

Chronic pain problems •

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crps-chronicpain-ptsd · 5 years

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Reflection can be a very powerful thing.

I just don’t know how much longer I can go with no support??? I have a bloody flare in both sides at the moment I can’t do anything I have no one who will help me. Begging my daughter to help me and it’s falling on deaf ears I guess I can’t be mad at her It’s my fault NO my illnesses fault she is suffering I’ve burnt her out, she put her life aside at 21 bringing up my youngest children taking care of me driving everyone everywhere including myself cooking cleaning washing ironing for everyone for +5yrs. Even paying for a Cleaner for 2 hrs is hardly enough to play catch up BLOODY INSURANCE COMPANY only added to the illness as they failed to give me treatments,support when needed, mishandling delaying, denying what I needed when I needed and now not only am I suffering with bad pain they have Exacerbated my anxiety,my panic , my bipolar along with my pain they have contributed in bringing my ptsd to the surface, giving me more to deal with. Like CRPS - living with pain every minute of the day with pain Isn’t enough to deal with. Not holding my employer accountantable when not allowing back to work meetings to take place not allowing the union 3 times in the building bullying me slamming and hitting tables to intimidate me not allowing me to complete a back to work plan in my room . All I wanted was to work in my room I miss my job . I made a difference I do not know what to do I NEED HELP I NEED the SUPPORTs & THE TREATMENTS MY TEAM OF SPECIALISTS ARE DEMANDING over and over again. It’s not just me they have screwed it’s my identity,my life,MY WHOLE FAMILY HAS SUFFERED, MY CHILDREN have had it hard and have grown up without a mother I can’t get upset at my kids When they say “I don’t have a mother.” I can’t get upset at them!! Just now as I’m pouring out my emotions out to Siri it hits me deeply ITS NOT MY FAULT I NEVER Asked for this!!! But it’s not just the pain that is to blame The way I have been treated is unjust criminals get treated better. To think all this time I was blaming myself for not being present for locking myself away in my room as I dealt with the pain of Crps pain that only fellow warriors can comprehend carrying all this guilt of being a bad mother, wife daughter,sister & friend 〰️ its the only way I knew how to deal with such high levels of pain, tremors electricity raging thru me hypersensitivity alloydnia; it’s such an issue I did the best I could couldn’t hug my kids I remember so many times telling my son who was so attached to me “mummy can’t hug you it hurts” I hope one day we can get that connection back - My new case worker at the time (they change them like the weather to confuse you loose documents delay awarded treatments makes it easier to mishandle your claim ) anyway she went on a power trip and took all my supports away from me at the same time- even when warned by IME psychiatrist it would be detrimental to my health she didn’t care! They pick and choose what they want from IME reports only taking what’s favourable to them.

As a result, Hope started to diminish and it started to turn positives into negatives I began suffering worsening symptoms both physically and mentally and a flare-up of PTSD symptoms. I isolated myself to deal with pain which was fed by loss of support services and recommended treatments, even things that were awarded in conciliation were battles I’m still waiting for things approved in 2017 to be addressed they hide behind the constant changing of case managers and loss of paperwork .They take your hope treatments supports away and as a result it becames harder tocontrol/manage PAIN /mental health issues with learned self-management techniques. My Pyscholigist and my treating physicians all made written complaints about the handling of my claim - providing clinical justification that this conduct would cause exacerbaction /aggravation and Re aggregation of symptoms- but nothing off to conciliation which is a stress unto itself as predicted physical and mental deterioration continued to worsen affecting ability to function on a day-to-day basis

Reflecting Now I can finally stop blaming myself. I shall try I finally see the truth. I can now free myself from the guilt I have been carrying!!! I shall try I NEED to get upset at the case manager who took away “ALL” my supports and treatments, all in ONE go !! 〰️ Not my children - not myself 〰️ but her Talk about mistreatment. WHY ??? So she could get her big fat bonuses at the expense of MY LIFE (crying ) these cash incentives should be an illegal practice !!! She stole my opportunity of maybe beating this !!!! Now the CRPS, it’s dug it’s claws into me so deep -that was early days of crps I was doing so well I was so close to claiming some of my life back that I could almost taste it - To the point I even reached out to my old mentor who gave me advice and set up an appointment with a careers counsellor at my old university. I started to have hope as I found a treatment that finally worked -it helped start the acceptance of crps and that it wasn’t going to take away everything I worked so hard to achieve -it’s the insurance company’s fault for my downfall - for not giving me what I needed when I needed it. How do they sleep at night ? Lying cheating denying delaying mishandling picking out words of a sentence looking for anything just not to give you the treatments services you are entitled too they would rather spend $2k on conciliation than pay for that $130 perching chair your OT says you need.

This treatment highlights the devastating impact WorkCover insurers’treatment of injured/ill workers can have on the mental health of an injured/ill worker.

Criminals get better treatment.

That was a vent from my drafts.

Venting

Chronic pain problems •

A continuous edit that I keep adding too maybe should of left it in drafts about t longer lol

Have been adding to this as remembering it was private posting again

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crps-chronicpain-ptsd · 4 years

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When the foundation of the house breaks- the house collapses•

Crps has changed the way my family functions. Prior to my chronic illness we were such a close nit family ,everyone had their own roles to play and we did everything as a family unit . Now the family dynamics have totally changed, the whole dynamic is so way off, that the best adjective is “dysfunctional” even the way we all speak to each other has changed,we don’t even eat as a family anymore . It’s a great loss that breaks my heart to see all we built collapse right in front of me it’s a travesty.

Family roles lost•

Chronic pain Problems •