#chronic illness psa

[sparkles-and-trash]

Sometimes it feels like people kinda forget your pain when it’s chronic.

When someone healthy/able bodied gets sick or injured, people will pour out their support and understanding right away, which is good, obviously.

But after a while, people get tired of hearing about it.

They get tired of having to work around it, tired of having to be understanding.

But just because your empathy fades, doesn’t mean our pain and grief does.

I’m so, so tired of my pain. Of having to be understood. Of not having any chance to have a proper career, or dreams, or relationship.

I’m tired of my hands not working enough for me to write, draw and craft, which is what is normally keeping me going.

They just keep getting worse.

I’m tired of the pains related to my endometriosis and pcos making me unable to eat properly, get any exercise, and for making me bedridden more and more these days.

I’m tired of having to beg for support in what little buisniess I manage to make sure I survive during my rough recovery periods after surgeries and bad flare up’s.

I’m tired of knowing my life will not be a long one.

I’m tired of complaining, of being in pain, of grieving, of feeling like a burden.

There are no breaks for me.

That doesn’t mean I get used to it. I will never be used to it.

And I think I should be allowed to talk about all of this without feeling like a burden.

I probably won’t ever get to that point, but this is me trying to get there.

By being open and honest, and hoping that at least one person takes the time to read.

If you’re still here, still reading, thank you. It means the world.

Be kind to those around you who are like me.

We’re not happy about our situations, either, but having people willing to stick around and listen makes it a little easier to survive.

Thank you ❤️‍🩹

#chronic illness #chronic illness awareness #chronic illness psa #chronic illness support #disabilties #disability #lupus #lupusawareness #living with lupus #endometriosis #pcos #cfs #scoliosis #chronic migraine #chronic mental illness #mentalheathawareness #irl tag #personal

[jemineye]

i cant stress this enough, disabled people know their own limits. i fucking promise you. we are not being lazy or jerks because we won't do something YOU want us to do or something YOU THINK will make us feel better. it wont. stop.

#shoutout to my parents #physical disability #disabled witch #disability #disabled #chronic disability #chronically ill witch #chronic fatigue #chronic illness #chronic pain #cripple punk #crip punk #cripplepunk #actuallydisabled #actually disabled #wheelchair #wheelchair user #rambles #psa #mobility aid user #mobility aids #mobility aid #babe with a mobility aid #chronically ill

[theygender]

August 11, 2022

I just wanted to give everyone a heads up that 30+ brands of nutrition drinks including but not limited to Ensure, Pediasure, Glucerna, Oatly, and Premier Protein just got recalled for possible contamination with the bacteria that causes botulism, a paralytic toxin with a lethal dose of 1.3 nanograms. If you've purchased one of the affected lot numbers please return it to the store to be properly disposed of as a biohazard but do not accept any compensatory gift cards because that can be counted as a settlement if you need to file a lawsuit for any potential damages caused by this later on. If you have any questions regarding the recall there's a phone number listed in the article above that you can call, but if you believe you may have ingested toxins then please call your local poison control hotline. Stay safe

#spoonie #actually disabled #cripple punk #chronic illness #physical disability #momblr #parenting #parenting tips #fitblr #gymblr #exercise #exercise tips #tagging with different disability/parenting/exercise tags bc i know those are the groups most likely to use nutrition shakes #if ive missed any please let me know #rambling #botulism #clostridium botulinum #recall #food recalls #psa

[audhd-space]

[Alt text from image]

Screenshot of tweet from user @/hi_its_annaleah here :

less telling marginalized ppl to "Find your community"

more telling society in general to "Cultivate safe spaces"

less telling struggling ppl to "Reach out for help/support"

more telling society in general to "Provide meaningful, affordable, informed, accessible help/support"

#important psa #support system #disability #marginalized people #chronic illness #chronic pain #invisible illness #accessibility #inclusivity

[rainbowstripedwolfe]

You have approximately a 50% chance of experiencing either temporary or long-term disability before the age of 65...

The struggles experienced by disabled people might not effect you today but fighting for proper accessibility and inclusivity might save you tomorrow.

#disability #chronic illness #actually disabled #disabled #accessibility #psa

[youngchronicpain]

The reality that I'm still mostly bedbound is kinda something. If you look at my social media, it mostly shows my travels. But honestly, 90% of the time, I am stuck in bed.

I think it is worth noting that you see the highlight reel of most people's lives on social media, even disabled people.

You see the best angles, the most flattering of lights. Even the "real stuff" is curated. It is okay if you look really rough because you haven't been able to shower for days and days. And haven't been able to wash your hair for even longer.

Don't compare yourself to the filtered and edited lives of others! Especially if they have similar illnesses to you. You really don't know what is going on behind the screens.

#this has been a painsomnia psa!!!! #just thinkin about how little I'm probably going to be able to do while my boyfriend is on his trip #but that's okay!! #chronic pain #chronic illness #disability #spoonie

[disabilityhealth]

If someone tells you they are disabled, don’t disagree. Don’t argue. It’s not up to you, nor is their admission tragic or shameful in any way.

Believe them, support them, and respect them.

#ableism #disabled #disability #my text #psa #important #chronic illness #spoonie

[mandana-the-service-pup]

A friendly reminder to my chronically ill buddies: READ YOUR RX INSERTS!

I know you’ve been taking that Rx for years but every time you get a new medication or are having weird symptoms please look over your Rx inserts. It’s so easy to forget super vital pieces of information about a medication after you’ve been taking it. Like maybe your new symptoms are on the side effects list. Maybe you shouldn’t be taking that medication with food afterall. Maybe you are supposed to be monitoring certain blood tests regularly.

I know you’ve got a lot going on and brain fog on top of it but no body is going to look out for these things except for you 🫶

#chronic illness community #disabled community #disability blog #psa #disability awareness #medication #health changes #health flare #new medicine #rx #health care

[valoale]

Hi everyone, Vee here 🫶🏻

I’m sorry for disappearing for a month without a notice and I have worried some people with my absence, but I’m still here and I’m not going anywhere anytime soon

I just wanted to let you all know that I’m alive and haven’t gone anywhere, I just needed some space and time to deal with the very difficult situation I’m going through right now with my health, both mental and physical, and life has gotten too overwhelming. I’ll be okay once again eventually, I suppose.

My body is failing me and my mind is following it, and it’s been hard to cope.

I am also sorry to also disappoint you since I have no art to share nor have I any wips underway and I don’t know when will I get anything done or if at all. I’m experiencing a severe burnout and along the way I’ve lost the joy of creating. I do hope it’ll eventually find back to me, I don’t know when or if it will, but I hope it will.

I hope you all are doing well ❤️‍🩹

#you’re all in my thoughts #psa #vee talks #delete later #cw: chronic illness #cw: mental illness

[tuliosoap]

Reminder that your local library can be a great resource if you're chronically ill or in need of medical support and information.

My library offers mobility aids and has provided me with access to medical libraries and tons of online sources.

Even if your library is limited, you can often access your whole state's library catalog, and libraries in other counties by asking your library!

#tulisays #this has been a psa #chronically ill #chronic illness #hypermobile ehlers danlos #ehlers danlos syndrome #ehlers danlos #cane user #heds #mobility aid #mobility aids

[autistic-katara]

we know our limits better than u and r probably only telling u we cant do it bcz we’ve very much reached those limits and HAVE been pushing ourselves as much as we can 💕

#just a quick psa #someone send this meme to my mum she seriously needs to learn it- #like i’m not saying i’m too tired and feeling sick cause i dont rlly feel like doing it like babes i can barely speak and am abt to pass ou #disability #chronically ill #chronic fatigue #autism #meme #cw ableism #< tagging just in case

[gender-sexuality-happiness-rage]

Activated charcoal/ foods/drinks dyed black make many different kinds of medications/ HRT/ heart medications and others not work/ work as well too!

#lgbt #queer #important psa #psa #transgender #trans #gender #disabled #chronic illness #black #halloween #happy halloweeeeeeen #all hallows eve #spooky #spooky season #fall

[chronicallyuniconic]

PSA‼️ Epileptics/photosensitive/seizure fam⚡

There is a new advert from Disney+ and Hulu for 'Taylor Swifts Eras Tour', that has a lot of strobe lighting at about the 10 second mark (I can't verify cos they induce seizures maybe someone else can).

A YouTube search of the advert puts it at 31 seconds in length

Share to help your seizure friends❤️❤️❤️❤️

#actually epilepsy #tw epilepsy #psa #taylor swift #disney plus #hulu #strobe warning #epilepsy #chronic life #chronic illness #chronically ill #spoonie problems #seizure awareness

[spoonful-of-fibro]

PSA for my fellow employed spoonies in America:

You can get FMLA coverage for intermittent leave up to 12 weeks/year if you’ve been at your employer for a year. It doesn’t have to be consecutive like a parental leave or surgery recovery. It can cover you for WHATEVER TIME FRAMES YOU AND YOUR DOCTOR DECIDE.

Need a week off for every flare, and they happen 6 times a year? Yep, you can write that.

Need 3 days a month for all the various appointments/treatments you do? Yep, you can write that.

Need 1 day off a week because you just can’t do 40 hours? Yep, you can do that too.

Note: I am not a lawyer, and your employer doesn’t have to pay you for this time if you run out of sick/vacation time. But it helps protect your job from retaliation or unreasonable expectations.

Advocate for yourself. HR won’t do it for you. Find out what you qualify for, and get that shit in writing!!!

#chronic illness #fibromyalgia #fibro #chronic pain #invisible illness #spoonie #important psa #FMLA #fuck capitalism

[wormslikeme]

If you are still of school age this is for you:

IF YOU ARE SICK DO NOT FUCKING GO TO SCHOOL!

If you are a parent of a child that is of school age:

DONT FUCKING SEND YOUR KIDS TO SCHOOL IF THEY ARE SICK!

As a chronically ill person who is currently being forced to work in and around the clinic within my school I am begging you everyone to fucking stay home. You are not only doing yourself a disservice by coming to school while I’ll but you are also getting other people sick and that could be fucking dangerous for a lot of people!!! And if you are coming back after being sick wear a fucking mask (if you are able to)

Sincerely a very tired disabled guy who is tired of having to go a million miles to protect myself cause people don’t give two shits

#chronic illness #dysautonomia #pots #personal vent #important psa #school #sickness #viruses #stop sending your kids to school sick I stg #chronically ill #tourettes

[disabilityhealth]

PSA: when out in public, do not talk to a disabled stranger about their disability.

I don’t care if you’re curious. Die curious.

#biggest irritation #it happens about half of the time I leav the house and I’m tired #disabled #ableism #disability #psa #important #my text #chronic illness #spoonie #mobility device #wheelchair #wheelchair user