youngchronicpain

[youngchronicpain]

hello painsomnia my old friend...

😵‍💫

#babababa bababababa I wanna be sedated #chronic pain #I've accidentally woken up my partner like 4 times already while trying to get comfortable #and tbh I wish he was awake now so that I wasnt alone with my pain and brain #but he has had to go into work early multiple times this week so I know he needs rest #:( #all these meds in my system and yet still the body persists in this hellacious experience

[youngchronicpain]

My tailbone hurts so bad! It has been hurting since my trip to Chicago in February, I may have bruised it transferring. Or, at least, I hope that's all it is. I am going to have to see my doctor about it soon if it doesn't ease up. Now even lying in bed with my legs propped up on a wedge is uncomfortable for my tailbone when I try to shift. :(

#pain and pain and pain #new chronic pains are not my favorite #it has been a while since a new one that is so persistent and painful has popped up #so that's #not great #chronic pain

[youngchronicpain]

The prompt was to make art featuring a topic of the class... and luckily for me disability and sex was one of them. I only had a few minutes to make it before the deadline so tbh I'm pretty proud of it. I thought it was great. She gave me full points.

Just thinking about the fact that I turned in a photo of me using my wheelchair with the text "Disabled people have sex!" overlaid on it for an extra credit assignment in my human sexuality class this semester.

#I now have over a 98% in the class :))) #I wasn't sure I would get any points tbh #but I did!! #sex #hmmm #I should have said “some disabled people have sex!” but you knowwwwww #I was working at tops speeds and didn't think about it

[youngchronicpain]

Just thinking about the fact that I turned in a photo of me using my wheelchair with the text "Disabled people have sex!" overlaid on it for an extra credit assignment in my human sexuality class this semester.

#disabled #disability #aaaaaaa #I really loved this class #and the professor linked a Jessica Kellgren-Fozard video for the week on disability and sex #it made me so freaking happy #spoonie #wheelchair user

[youngchronicpain]

if the pain isn't my fault then why do I feel guilty?

(society has led you to believe you are a burden for needing help)

I want to love my body but some days I hate it

(your body is trying its best to keep you going, but I understand why you feel that way)

I want to pause everything, I don't want to feel like this anymore

(me too. maybe we could just sit together for awhile?)

#chronic pain #you are not alone #conversations #chronic illness

[youngchronicpain]

happy 4/20!!!

if you use cannabis to help your symptoms, that's rad!

if you don't use cannabis, that's rad!

access to medical cannabis has changed my life and I am so thankful that it is an option for me. but it isn't for everyone! and that's okay. :)

#bringing this post back :) #I did in fact need to use cannabis as soon as I woke up this morning #because we have a lot to do today and I physically could not move my body because I was in so much pain when I woke up #and it takes a lot more time for my other meds to kick in #and I have shit to do! #sooooooo #happy 4/20 my friends! #4/20

[youngchronicpain]

EMG test today ✌️😔

#zippity zappity! #neurology #emg #I've had one before but it wasn't bad #so hopefully this is similarly easy peasy #spoonie

[youngchronicpain]

I inquired about joining my local garden club today! I'm really proud of myself. They gave me the sign up paperwork and said they would be happy to have me. Most of the club appeared to be older women. They said I should come to the next meeting. And my boyfriend was wearing our "dirty garden hoe" t-shirt. (Imagine, if you will, a large man with long hair and a beard standing next to me in my powerchair wearing said shirt while I talked with the two women.) I'm so excited!!!

#oooo the knowledge!!! #and plants! #not chronic pain related #but I'm notorious for struggling with people things #so :)

[youngchronicpain]

physically? I'm suffering

emotionally? yea h fuck not great there either

and so

I MUST EAT A SWEET TREAT TONIGHT

#that's just how it works #chronic pain #I made a fruit dip earlier that is the chosen one for my dessert tonight #I'm going to eat it with my current favorite apples (pink ladies) #:)

[youngchronicpain]

I want a new cane!!!

#every so often i just Need to Change my main cane #and I'm feeling something that says it is now time #cane user #ambulatory wheelchair user #I will start looking once I've finished paying my taxes lmao

[youngchronicpain]

I have been so productive today! I sure hope tomorrow isn't awful as a negative consequence of using my body more than usual!!

#!!! #chronic pain #chronic fatigue #honestly #I am so happy with what I've gotten done #but what of the price! 🥲 #pacing is really important I'm just terrible at it

[youngchronicpain]

hello friends as you know I really struggle with um

Tasks

but I really love a little coffee drink in the morning

I have recently discovered homemade cold brew and I am so absolutely in love with the process.

I never used to be much of a cold coffee drinker, unless it was boiling hot outside, but I may be a convert.

All I have to do is coarsely grind whole coffee beans (around 7 seconds works well for me) put it into a jar with filtered water (we have a well so we are fine) cover it and put it in a dark spot for a day or two.

Then, I filter it with my regular drip coffee setup. (A little funnel from Amazon for 10 bucks with a filter over my coffee cup). It takes a minute or so for the coffee to drip through on its own, and boom!!! Coffee!!!

(I put it over ice with milk that I froth on top and maple syrup. So freaking good. If I want it to be a little sweet treat I make whipped cream and add my homemade fudge syrup. Mmmmm).

I've been making a new batch every couple of days because I've been experimenting with water amounts and time. But I believe it is 4 parts water to 1 part coffee. You can make a large batch, filter it, and keep it in the fridge for future use.

It is so good! And has cut down a lot on my morning stress since I make my partner and I coffee every morning.

Try it and let me know what you think!

#cold brew #definitely look up a recipe! #this is just my own experience #chronic pain #chronic illness #spoonie #tips

[youngchronicpain]

Pain sucks. I am pissed. But it is also fine and will be fine and life can be good anyway. You know?

#an excerpt from a post that went to the drafts folder lmao #chronic pain

[youngchronicpain]

Feeling SO MUCH PAIN but doing things I love at the same time is so funny. Like. I'm suffering. Everything is awful. But I am also having a great time!!! My meds are finally kicking in and I'm able to think a little and enjoy the things around me! Incredible! But also if I could I would carve pieces of my body away in an instant. I wouldn't even have to think about it. Gone.

#lmao #chronic pain

[youngchronicpain]

yesterday was a really long day. we left home at 1 am and made it to nyc around noon. we were able to check-in at the hotel early (check-in was originally at 4) and the accessible room they gave us had an unbelievable view. (we are almost on the top floor!) I just took that last pic from bed a few minutes ago. we looked for food and rested for at least an hour before venturing into the city in search of sustenance (artichoke basille pizza!!!) we mostly rested in the room for the rest of the day so I could study and let my body reach equilibrium. (besides a break to go get donuts... I needed brain food ok). I am excited to see what the next few days bring!

I feel sooooo bad right now but I am getting on a plane to nyc tomorrow morning!!

#travel #nyc #chronic pain

[youngchronicpain]

made it ✌️

I feel sooooo bad right now but I am getting on a plane to nyc tomorrow morning!!

#and only one gate agent was a jerk! #a miracle #wheelchair user #nyc #I am currently in a wheelchair accessible uber #🤠🤠

[youngchronicpain]

I feel sooooo bad right now but I am getting on a plane to nyc tomorrow morning!!

#we are packing and tbh #thank freaking heck for my partner because I feel like my bones are made of lead #and my cannabis and meds can only do so much for me at this point #but there's also So Much To Do #anywho aaaaaa here goes another adventure!!! #(we were just in chicago and then orlando i am such a tired bean) #((but still happy still happy))