the funniest meltdown ive ever had was in college when i got so overstimulated that i could Not speak, including over text. one of my friends was trying to talk me through it but i was solely using emojis because they were easier than trying to come up with words so he started using primarily emojis as well just to make things feel balanced. this was not the Most effective strategy... until. he tried to ask me "you okay?" but the way he chose to do that was by sending "👉🏼👌🏼❓" and i was so shocked by suddenly being asked if i was dtf that i was like WHAT???? WHAT DID YOU JUST SAY TO ME?????????? and thus was verbal again
Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
Every week I watch Lou Wilson perform the most stunning, tender depiction of a teenage boy's struggle against compulsory heterosexuality, and he has no idea he's doing it.
I think some queer people struggle to realize not everyone is public with their identity like I've had remind my irl queer friends so many times not to tell people about my identity without my permission
"Oh I know them, they're cool with it."
Awesome I still didn't want you to tell them
"You don't need to be ashamed"
I'm not ashamed I just want you to ask me first
"They probably would have realized anyway"
Cool you couldnt possibly know plus its still not your place to tell them
Like I'm a private person and I don't want strangers to know personal stuff about me if I didn't tell them myself
It's not that I'm in the closet but I still would like to be in control of how I come out to people
Besides it hasn't always been safe for me to be out in the past
You have 90 minutes to complete. (original poem: r.a.)
In participation of the MCYT Recursive Exchange 2024 hosted by @mcytrecursive!
Inspired by know that all my love will be your breath (i will save you when your lights go out)
[text under cut]
1. Have you ever been in love?
(Please circle your answer.)
a. It's me and him
b. Our hearts beat in sync
c. Our lives intertwined
2. Do you understand what you’ve done?
(Please circle your answer.)
a. I couldn't do anything
b. I lost my balance
c. I doomed us both
3. It's been god knows how long since you felt phantom hands on your neck and there is no one in sight. If you were soul-bound to him and both of you died at the same time then why are you still waiting in the void?
Please answer clearly, in full sentences.
(Not a correct answer:I just wanted to see him one more time).
4. Define two (2):
Fate | The feeling of his forehead against yours
Curse | The moment you realise he isn't linked to you anymore
5. True or False:
i. It was your fault.
ii. You wish you had met him under different circumstances.
iii. You can’t regret a single moment that you had him.
iv. You would do it all over again if you could.
v. It ended long before either of you said anything.
he says i hate everyone except you and that is addictive and that is kind of romantic and beautiful because you're young and you're kind of a sarcastic asshole too and you don't like bad boys, per say, but you don't really like good ones either. and you like that you were the exception, it felt like winning.
except life is not a romance book, and he was kind of being honest. he doesn't learn to be nice to your friends. he only tolerates your family. you have to beg him to come with you to birthday parties, he complains the whole time. you want to go on a date but - people are often there, wherever you're going. he's just so angry. about everything, is the thing. in the romance book, doesn't he eventually soften? can't you teach him, through your own sense of whimsy and comfort?
at first - you know introverts often need smaller friend groups, and honestly, you're fine staying at home too. you like the small, tidy life you occupy. you're not going to punish him for his personality type.
except: he really does hate everyone but you. which means he doesn't get along with his therapist. which means he has no one to talk to except for you. which means you take care of him constantly, since he otherwise has no one. which means you sometimes have to apologize for him. which means he keeps you home from seeing your friends because he hates them. you're the single exception.
about a decade from this experience, you'll type into google: how to know if a relationship is codependent.
he wraps an arm around you. i hate everyone except you. these days, you're learning what he's actually confessing is i have very little practice being kind.