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#POTS representation
cripplecharacters · 26 days
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hello! do you have any advice on writing disabled characters in historical setting? specifically characters, whose diagnosis hadn't been discovered yet (for example I have a character with pots but they live before 1982)
Hi,
I love historical fiction, and know this can be a little tricky, because of course disability of various kinds has always existed and conditions are real before they’re named.
But you have options!
The most important thing, I would say, is describing the aspects of the condition and your character’s feelings and behavior around it (how they manage it, what they notice about it). You can also describe other people’s responses to how they feel and act.
You should definitely describe how your character feels about their condition. Do they wish there were others like them to talk to, do they actually already have a community of people similar to them, or do they wish no one else has what they have? Do they wonder if anyone they know is like them, or think they must be alone? Maybe they feel like their condition not a big deal at all and just an inconvenience, or maybe they feel really hindered by it and it greatly upsets them, or maybe they’re somewhere in between and sometimes get really frustrated and sometimes they feel it’s just a thing that happens.
And of course the answers to all of these will be different depending on your time period—someone with POTS in 1795 will manage their symptoms differently than someone with POTS in 1968, and the same goes for all conditions. But for POTS specifically, without naming it:
For the symptoms you can describe your character noticing that whenever they stand or sit up they feel their heart race and they feel dizzy or faint. They might not know why, but they’ll know how their body reacts.
You can describe what they avoid doing because they’ve noticed it makes them feel worse—maybe they take showers that are less hot, or go out as little as possible when it’s very hot/humid out, or maybe they don’t drink alcohol or coffee. Maybe it’s bad enough they can’t do some sort of work that is expected of them at their home, or their job, or school.
You can describe what they do because it makes them feel better—maybe they drink a lot of water, maybe they buy socks a size smaller because they noticed it makes them feel a little better, maybe they always give themselves an extra half hour to get anything done so they can stand or sit up more slowly. Maybe they take over someone else’s specific work because they can manage that better and trade with them.
As to other character’s reactions, some characters may be positive and always offer your character their arm when they’re standing so they can worry less about fainting. Some might be pretty neutral and just ask them why they never go grab a beer with them. Some might be negative and roll their eyes whenever your character needs extra time or to sit down for a bit.
People with POTS and similar conditions will recognize themselves in your character’s actions and reactions, and it’s very possible that people who have friends or family or people they know with POTS or anything similar will think “oh that’s kind of like what John Doe has.” And even if they don’t, they’ll still have read a realistic and respectful story about someone with a disability.
This goes for any disability, not just POTS. Just swap out the symptoms and ways to manage it and characters’ reactions accordingly.
Something you can choose to do, but you don’t have to do, is add a note at some point (but probably either at the end or the beginning of the story) that your character has what today we would know as POTS.
For an example I’ve seen in real life (not POTS related but about disability in general), I read a book set in the early 20th century in an institution, The Degenerates by J. Albert Mann. Since it’s a different time period, characters are referred to by terms we don’t use anymore at all or not in the same way, and many characters have conditions that we know about today but were not known at all at that time. What the author did was describe the characters’ actions (and thoughts, if they were the POV character), as well as how others reacted to them. At the end there was an appendix describing what each character might have been diagnosed with today, if anything at all (since not all people ended up at asylums because of an actual condition and some were just poor or Othered in some other way).
Thank you for your thoughtful question! I feel like I rarely see characters in historical fiction who have basically any disabilities, but thank you for wanting to create some :)
Good luck!
— Mod Sparrow
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As a kid my family used to make fun of me for stuff that is apparently exclusively reserved for “old people” like rolling across the room in a rolly chair to grab something (instead of getting up and taking three steps) or sitting down at a table to do quick food prep like cut fruit or scramble an egg (instead of just standing at the counter for 90 seconds) TURNS OUT what they called laziness was just disability all along haha TURNS OUT I just needed a mobility aid yet here I am today still without one because they gaslit me into believing I was “just lazy” and it took me decades to finally understand that’s not true. haha who knew
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2outta3aintbad · 11 months
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Shoutout to anyone whose disability is invisible and/or never taken seriously.
Shoutout to anyone who feels Too Disabled for general society but Not Disabled Enough to take up space in the community
Shoutout to anyone whose validity is often challenged when they enter "safe spaces" bc they don't meet society's expectations of disability
I'm sorry and hang in there. Your experiences are valid and your disability is real.
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thatchronicfeeling · 10 months
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I just listened to a book that has 1) swashbuckling 2) women with swords 3) a few queer characters 4) a protagonist with POTS!!!!!!!!!!!
Lille Lainoff’s One For All is lots of fun and has brilliant disability representation! It’s so rare and wonderful to come across this. 
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polywomp · 3 days
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Shopping with my trans daughter for her first dress!
My heart is filled with pride & joy as you find your wings.
You are beautiful!
🏳️‍⚧️🏳️‍🌈
Nails painted in trans colors by one of my lovely children.
Thankful for my wheelchair & an accessible shopping facility so I can share this experience with my child. Accessibility for the win!
My fellow Good Omens/ snake lovers fans may notice the ring 🐍 I got it on Etsy, so message if you want the link
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littlemissomega · 8 months
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Real talk time, y’all. 
Since I’ve joined the spicy writing community on Tumblr, I’ve felt all the posts set an unrealistic expectation for what sex is. Which is okay! I’m guilty of it too! This community is kinda about fantasizing, and no one wants to fantasize about mediocre sex! Especially if that’s all you’re getting in real life.
But it’s not just the actual physical sex that is polished to look perfect. It’s the character’s too. If you scroll through certain tags, 9 times out of 10, the reader is a healthy, bikini model. Which is not realistic.
I have POTS and endometriosis, and I have searched everywhere for content that includes people like me. Not even just smut, but fluff too! And… nothing. There is no representation for chronically ill people in our community, which is sad! I mean, I get it. I really do. No one wants to fantasize about being sick. But nearly 60% of Americans live with at least one chronic condition, so I can’t be the only one looking for this stuff! I want posts where the reader is having a flare up and their partner takes care of them! I want posts where the reader and their partner have figured out how to make sex feel good for both of them! I want posts with fainting spells, and low blood sugars, and migraines! I want to feel included in this community. If you dig far enough, there are some posts about diabetic readers, which is amazing, but not nearly enough! 
So what can we do about it, as chronically ill writers and readers? We start writing. We start requesting the representation we crave. We start expecting more representation instead of just sighing and scrolling to the next post about healthy Barbie screwing Ken (no shade towards Barbie, but…)
Now, I’m by no means saying we should start sexualizing being chronically ill, or having a autoimmunie disorder, but there’s a difference between sexualizing something and valudating it with our writing.
For all of these reasons, I’m going to start writing smut and fluff with chronically ill characters. I want to make others feel good and valid with what I write. I also just created a side blog where I will be diving into what it’s like living with POTS and endometriosis (@butyoudontlookdisabled).
I’m having a really bad flare up right now, so it may be a while before I post the content I’m talking about, but it’s coming luvs. Y’all keep being amazing and remember you are enough exactly the way you are 😘❤️
Disclaimer: the brain fog was real when I wrote this, so I apologize for any grammatical errors or whatnot
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I'm hoping to start reviewing books for the sake of neurodivergent people, queer people, and people with physical disabilities. Basically marginalized groups.a With that in mind, what are some things that you lovely peeps wish was included in book reviews and recommendations? Also if you are looking for books with a certain type of representation. Reblog and comment plsssss!! Love y'all 🫶
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spencerrscardigans · 17 days
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Doctors often tell patients, often chronically ill patients to stay off the social media that talks about their illnesses and to not look stuff up, and i can understand why this may be problematic but they also aren’t taking into consideration the positives and good things that can also occur from this.
POTS and other chronic illnesses are having a higher social media presence, and because of this it’s created quite a big stigma surrounding it, and people often think that these illnesses are just becoming a trend, but they don’t understand how helpful the representation is for so many people.
I do often see people in the comment section of these videos who will have one or two traits and immediately panic thinking they have these things and i can understand how that part isn’t great, but in some cases it actually is these posts online that help people get diagnoses and learn more about themselves.
I would not have been diagnosed with POTS and getting treatment if it weren’t for social media, and my doctors don’t know much about POTS so most of the tips and advice and treatment methods that i’ve found have been from social media, and i would not be where i am without it.
I struggled with dysautonomia for my entire life, and it had been established by my one doctor who actually knew about these conditions but he retired and the new doctors i was switched too don’t know much about my health conditions, so getting diagnoses and treatment has been a very slow process.
My dysautonomia is believed to have turned into POTS in early 2021 when i was 14 after i got covid, and for over a year i was struggling with debilitating symptoms and had no idea why. I was just starting high school, and i was getting sicker and sicker and it was causing quite the divide socially.
I had been diagnosed with fibromyalgia, and because of it i had already been limited in my physical activity, so i was just told that my POTS symptoms were because i was out of shape.
I tried to push myself to fix this, which only ended up making me feel worse. Sometime along the road of me trying to get more active, i got a fitbit.
I started using my watch to monitor my steps and sleep, and i noticed that my heart rate would shoot up to the 150s-170s when i was simply standing still, so i sat down, and my heart rate immediately dropped to the low 100s.
I thought that this may be a glitch with my watch, but was still concerned as i was aware that my heart rate should not get that high from just standing still, so i started googling. As a result of my search, the name Postural Orthostatic Tachycardia Syndrome came up. I did some reading, and noticed that a lot of the signs were pointing to me, especially with the already established dysautonomia.
I had already dealt with a lot of doctors telling me that i was just paranoid and a hypochondriac, and i knew that watches sometimes glitched or didn’t work correctly, so i went to my pharmacy and got a pulse ox, and did the same standing test and it did the exact same thing as my watch.
I took pictures of my heart rate and started recording it on the charts that my watch had, and brought it to my next doctors appointment, explained my symptoms and then mentioned that i had heard of the condition POTS, and that it seemed pretty similar to what i was going through. My doctor had my do a short standing test in the office, and i had a 70bpm increase in my heart rate.
My doctor agreed that it definitely looked like POTS and she said that i met the criteria for a diagnosis, but she said she didn’t know very much about the condition and had only briefly heard about it, so she referred me to a cardiologist in another city as that was the closest specialist to me, but they denied the referral and said that they weren’t taking patients with POTS, and they gave her a information sheet and gave her some tests to do to rule out anything else.
The tests came back, and again it all pointed to POTS, but my doctor was scarcely familiar with the condition, and wasn’t comfortable giving me an official diagnosis, so she gave me an informal diagnosis. When it came to treatments, she also wasn’t familiar with anything besides telling me to drink more water, exercise, and increase my sodium intake, and the only medication she was familiar to treat it with was propranolol, so she prescribed that, but it unfortunately didn’t help much, so i wasn’t left with much help or advice.
The things my doctor recommended weren’t enough, and because i didn’t have an official diagnosis or really any information at all from my doctors it was hard to get accommodations with school, and i wasn’t sure what else to do, so i did what doctors recommend against and went to google and social media.
It was then where i found so many people like me who i could finally relate to, and found so much information about my condition and tips and tricks to help manage it.
Because i finally knew more about how to manage my POTS, i started trying out more things and in the last year i have learnt more than i had in years of going to doctors, and i also finally had a community where i felt less alone.
I was able to advocate for myself, and two years later, this february i finally got in to see a cardiologist and now have a proper diagnosis, and he was able to provide some more insight and treatment options for me and i’m finally starting to notice some improvement and have a hopeful plan for the future.
In cases like these, social media representation of chronic illnesses is not always bad, and can in my opinion, actually save lives. If i had not had access to these communities and help, i genuinely can say that i would not be where i am at today, and i am forever grateful for the communities that have been created.
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musical-chick-13 · 1 year
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Okay, no, sorry, I’m still mad about this. “Be critical of the media you consume and examine why you react to it in the way that you do, support marginalized and stigmatized identities.” Yeah, until it’s about mental illness.
A woman (or even man, if he’s deemed over-emotional) makes music about suffering from mental illness and people just go, “What are they complaining about, that’s so immature, hashtag wangst.” (And then, sometimes, inexplicably, if the mentally ill woman gets better and writes happier music, they then talk about how artistically bankrupt she is now and that she should go back to hating herself.) People LOVE cis white pRoBLeMaTiC (straight) fictional men until they are realistically mentally ill, in which case they’re “whiny” and “insufferable” and deserve to die violently, apparently (or, if fandom is merciful, they’re ignored). (And then they celebrate when they DO inevitably get killed off.) “Do your duty and watch [thing I, mc13, personally find insufferable] For The (white) Gays because it has Gays.” Sure, will you watch c4 Pure, the ONLY show specifically about OCD, then? (No, the answer is no, it’s always no.)
I can’t get anyone to watch Doom Patrol. I couldn’t get people (in general-I did convince a few irl friends thank GOD) to watch Crazy Ex-Girlfriend. One of the most popular and acclaimed shows right now has a character with schizophrenia who was turned into the Big Bad Villain for no fucking reason. One of the most commonly-cited examples of Iconic™ queer media involves a mentally ill man being broken over and over and over again before The Ship™ can reasonably happen. DW introduced a major character who was at one point suffering from mental illness in her past, AND THEN ALL MENTION OF THIS WAS COMPLETELY DROPPED IN THE FUTURE, WITH NO BEARING ON ANYTHING TO THE POINT WHERE I FORGOT IT EVEN EXISTED??!?!? R*tched was a thing that existed despite the Sad Sympathetic Backstory treatment being IN DIRECT CONTRADICTION OF WHAT PURPOSE THIS CHARACTER SERVED IN One Flew Over the Cuckoo’s Nest. THEY GAVE. A SAD WOOBIE VILLAIN TREATMENT. TO THE /LITERAL PERSONIFICATION/ OF ABLEISM. THAT IS HER FUNCTION. TO EXIST AS A SYMBOL OF ALL THE WAYS SOCIETY OPPRESSES THE DISABLED AND MENTALLY ILL.
I am!!! Literally!!!!! The only one!!!!!!!!! Complaining about these things!!!!!!!!!!!!!!!! THE ONLY ONE!!!!!!!!!!!!!!!!!!!! No one else has said ANYTHING!!!!!!!!!!!!!!!!!!!!!!!!!!!! No one is talking about it!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I’m so tired!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
#*OBLIGATORY COMMENT ABOUT HOW REPRESENTATION/FICTIONAL DISABILITY IS NOT THE END ALL BE ALL OF ACTIVISM*#*OTHER OBLIGATORY COMMENT ABOUT HOW LIKING '''pRoBLeMaTiC''' CONTENT DOES NOT MAKE YOU A BAD PERSON OR A HORRIFYING ABLEIST*#THIS WAS JUST ME GETTING MAD IT'S NOT THAT DEEP#In the Vents#the real horror was the ableism we found along the way#like. in some of these cases yes I /KNOW/ it was not meant to come across like that!!! but y'all accept that as a valid type of media#criticism when it's about anything else!!!!!!!! just not this apparently????!?!!!!#I do not understand how there is such an ABYSMAL treatment of the subject of mental illness in fiction when this is the#memetic Mental Illness Website like genuinely I do not get it I am scaling my walls and banging pots and pans and growling like a rabid dog#IF YOU WANNA TALK ABOUT THE MESSAGE A STORY IS TELLING YOU GOTTA APPLY IT HERE TOO#I AM ALSO THE LAST PERSON TO SAY THAT YOU'VE GOTTA ADD A DISCLAIMER OF SOMETHING'S LAUNDRY LIST OF FLAWS BEFORE YOU TALK ABOUT IT#BUT JESUS FUCKING CHRIST YOU HAVE TO ACKNOWLEDGE ON SOME LEVEL EVEN IF IT'S JUST TO YOURSELF THAT THINGS HAVE FLAWS#YOU'VE GOTTA BE AWARE OF SHIT#WHEN WILL WE HAVE THE OUTCRY OVER BURY YOUR DISABLED THAT WE DO OVER BYG (WHICH IS ALSO BAD BTW)#I GUARANTEE YOU WE WON'T BE GETTING A SEPARATE FUCKING CON OVER FANDOM OUTCRY THAT'S FOR SURE#I'm making a rule: if you can prove to me that you've started cxgf after reading this and/or if you can prove to me#that you've watched pure (channel 4/hbo max-the one with charly clive) I'll write a fic for you#let's see if I get sniped for criticizing both the beloved sacred mads show AND the plane crash girls show#if I see ONE more comment about how either of those is a perfect show that Gets What All The People Want I will in fact spontaneously#combust.#(and before you @ me yes I have any and all permutations of show tags blocked I'm not just being mean to be mean)#my god remember what happened the last time I tried to talk about this a;lsdfkajs;ldfkj#good thing I turned off anonymous asks!!#this is not even getting into some of the SMALLER fandoms#like I do not ever want to think about the takes I saw for ctrlz EVER again
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spiritwarriorssonic · 3 months
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NEW GIRL INCOMING
I don't have a name for her, but here's what I've worked out:
She's a dragonfly, but she will get taller than most other insect mobians, the way the butterflies did.
She's 14.
She uses a wheelchair and has a medical bracelet because she has POTS, which makes the heartrate increase by at least 40 bpm when moving from lying down to standing, causing fainting and overall dizziness. She can't stand or walk for a long period of time.
She's in the 20% where it won't improve.
She's incredibly cheerful.
She has telepathy and the ability to sense the future through energy, gut feelings, and even dreams. Not to mention little visions when she does end up fainting.
I'll give you updates and let you know when she's finished and available for questions!
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The first few minutes of The Big Comfy Couch (S1E1; Pie In The Sky) is giving Loonette has POTS.
Edit: ED Warning, stop watching before she reads the Pie In The Sky story if ED/fatshaming culture will trigger you.
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'One For All'- Lainoff, Lillie
Disability Rep: POTS | Postural Orthostatic Tachycardia Syndrome
Genre: Historical Fiction, Retelling, Fantasy, Romance
Age: Young Adult
Setting: 17th Century France
Additional Rep: Lebsian SC, Demi-Bisexual SC, Asexual SC
For more information on summaries, content warnings and additional tropes, see here:
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So here's a good reason why representation matters...
I was feeling AWFUL at this moment, I thought I was going to faint or puke at any time. I was leaning against this table when I saw the girl in the middle photo... And she is also using forearm crutches just like me! Even though I felt terrible, I immediately perked up and was happy for the rest of my shopping experience because!! I saw someone like me!! As a Victoria's Secret model no less
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desdasiwrites · 3 months
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– Lillie Lainoff, One for All
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Sisterhood of the Stab Stab
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Both teenage asthmatic me and 20-year-old newly diagnosed with rheumatoid arthritis me desperately needed this book, and I am so, so grateful that 30-year-old me had the chance to read it so I can point kids and peers who might need this book as badly as I did toward it. This book has just stunningly well-done chronic illness (specifically POTs) representation, and some really excellent LGBTQ+ representation. It's also rare I get in on preorder goodies, but when I saw how beautiful these character cards were, I couldn't resist! Let's talk One for All.
The tagline for this book is a gender-bent retelling of The Three Musketeers, but honestly the chronic illness representation is what made this book so impactful for me. I'm not a POTsie, but I knew exactly how the crushing fatigue, the constant fight against your own body, and the cruel responses of people around you feel when you have hard physical limits.
Tania is a lovely character to follow and share a headspace with throughout the book. Her complex relationships with her parents, her peers, her musketeer mentor, and her fellow lady musketeers are nuanced and always interesting. As a former dancer (the RA didn't actually kill that activity for me, that was the pandemic), I also strongly identified with Tania's insistence on honing her skills in her chosen sport--fencing--to the fullest extent of her abilities, and accommodating the very real physical limitations her body has rather than pushing to try to be like fencers without POTs. The space that Tania and the other musketeers make to accommodate the POTs rather than trying to magically fix it, ignore it, or insist that Tania could somehow "overcome" it is absolutely incredible. I would love for that accommodation to be the norm rather than the vanishingly rare exception.
Tania is not the only kickass character, however. Our other three lady musketeers are full, round characters who grow with Tania even as they prove that they will never ever let her fall. Each of our girls has a clear character all her own, and they mesh with and bup up against each other's personalities in ways that were never not a treat to see.
Simply put, I adore this book and cannot say enough good things about it. I'm hopeful that we get more stories with Tania and the rest of the sisterhood of the stab stab.
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bylertruther · 1 year
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i can't explain it well bc my brain is fried after exams but i feel like there is Something there in the fact that whenever the byIer community talks abt how shipping byIer isn't inappropriate and that them kissing is completely normal and fine, people always, always, ALWAYS have to pipe up with "well yeah kissing is fine but [goes on to preach to the choir abt how nsfw byIer is bad]". like. why is that where your mind jumps. why is it that when one person says "mike and will kissing on screen like every other couple has been allowed to would be good and normal and expected, and writing fics where they kiss isn't inappropriate at all, and we should discuss why people think them kissing is any different and inherently dirty and Bad because therein lies the actual issue" some people gotta pipe up and prove that point exactly. like. do u get wht i mean? no one brings up "pr0shipping" or sex or any of that irrelevant shit whenever someone talks abt j4ncy or lvmax sharing a peck. so why do u bring that up here and now? why do you act like we're talking about anything else here and put words in our mouths? why do you feel Some Type Of Way as an lgbt person urself whenever someone else says that they'd like to see a couple tht looks like them express innocent physical affection the same way that everyone else in the show does? why do you suddenly start talking about cp when literally no one is fucking talking about that at all? like. hello. i can't be the only bitch that sees this i can't be the only person that goes 🤨❓❓❓whenever ppl start to needlessly steer the convo in tht direction like .......
#do i make sense i feel like my brain is a pot of noodles rn#but like. sorry 2 bring it up again LMAO but it just . i've been thinking abt it#it upsets me. i can't explain it right i don't have the words rn but#ppl be like 'i'm literally gay so this isn't me being homophobic' and then when we say something super innocent literally talking abt them#just being able to kiss at least once.....#they gotta pipe up with 'okay yeah they should kiss but no one should be thinking abt anything more than that etc etc' like#who the fuck is talking about that except for u rn.......#and why are you treating a gay kiss like it's a slippery slope.... why does the topic of a gay kiss suddenly make u think of cp............#it just Bothers me it Bothersssss Meeeeeeeeeeeeee#like yeah okay definitely have tht discourse if u want but why do you always wanna bring it up when we're talking about representation#why do you choose NOW to talk abt tht shit. do u not see the fucking issue there#u sound like every bigot thts like 'well we can't let them get married bc then they'll start marrying children and animals etc etc'#and the fact tht ur gay n have a pride flag in ur icon doesn't fucking excuse that or make it any less real#i just . am i the weird one here am i the drama is it just me am i screaming in an empty room rn Am I The Drama#IT'S LITERALLY JUST A KISS........ NO ONE IS TALKING ABT ANYTHING ELSE...... WHY ARE U TREATING US LIKE WE'RE ON#THIN ICE....... FOR A SIMPLE FUCKING KISS N EQUAL REPRESENTATION............ HELLOOOOOOOOO?#anyway .
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