#potsawareness

[bluejayqueen]

After matching with a guy on a dating app, we had chatted for a little bit as we got to know each other. I finally decided to just tell him my chronic illness. Not going to details, but just tell him that I have a chronic illness just to rip the Band-Aid off. To my surprise being asked questions about my illness, which was fine. however, he asked the question “does it affect you every day life?“. And at this point I was already scared because I knew that once I answered this things were going to change so I said, “yes it does affect my everyday life.” he immediately unmatched me.Obviously I’m disappointed because my fears came true. I am learning to accept myself, I wonder will anyone else accept me? There has been a little piece of me in the back of my mind who is scared that no man will want me. I don’t need a man. I will be fine without one. But with all this isolation, I can’t help but fantasize about the idea of having someone who loves all of me. I don’t wanna be alone forever.

#chronically ill #potsawareness #chronic illness #pots syndrome #dysautonomia #chronic fatigue #chronic pain #ehlers danlos syndrome #autonomic dysfunction #postural orthostatic tachycardia syndrome

[panicismydefaultstate]

Just in case anyone else needed to hear this today-

Your health is not your fault. You didn’t do anything to “deserve” this. And you are right, it isn’t fair. You are allowed to feel upset, hurt, angry and jealous that your health, body or mind disables you.

It’s not fair, and that sucks. You are allowed to scream about that as much as you need to.

#chronic illness #chronic pain #chronically ill #i’m so done #disability #chronic fatigue #mental illness #fibromyalgia #ocd #disability activism #invisible disability #cripple punk #angry cripple #mini rant #ehlers danlos syndrome #hypermobile eds #pots syndrome #potsawareness #generalized anxiety disorder #it’s ok to not be okay #disability allyship #cripple life #it’s not fair

[justsomerandomgay]

abled people don’t seem to understand why i try to avoid getting a cold like it’s the plague, like mate im literally chronically ill, i don’t need another illness on top of it!

#cripple posting #crip punk #cripplepunk #queer cripple #crippunk #cripple shit #cripple life #cripple problems #angry cripple #cripple punk #my illness is chronic but this ass is iconic #the chronicles of illness #chronically ill #chronic illness #chronic pain #potsawareness #postural orthostatic tachycardia syndrome #potsie #fibromyalgia #fibro problems #fnd #functional neurological disorder #physically disabled #diability #physical disability #disabled #disability #disabilties

[helios-hawk]

i hate you breathlessness i hate you brain fog i hate you dizziness i hate you tremors i hate you joint pain i hate you fatigue i hate you racing heart

#text post #pots syndrome #potsie #potsawareness #chronically ill #chronic illness #fibromyalgia #fibro problems #cripple punk

[valcksys]

soooooo tired of people acting like my disability accommodations are a WANT and not a NEED

because it’s not a fucking want, I NEED these accommodations. Idc if they “inconvenience” you in some way. think about how inconvenienced I AM just by LIVING

#made by icarus #SO SO SO TIRED #did system #actually did #disabled #potsawareness #pots #IBS #ibs flare #neurodivergent #adhd #autistic #actually autistic #sorry (not sorry) that my disabilities are ‘too hard’ to ‘work around’ :)))) #deal with it.

[thecovenhouseco]

Slowly realizing that you may not be able to work anymore if you actually want to treat some of your disabilities feels like you’re being crushed like a hydraulic press. I’ve worked so hard, and I’m afraid that it was for nothing. So if you’re struggling with the same thing, I’m proud of you for all that you’ve done.

#disabilties #dissociative identity disorder #did osdd #did system #ehlers danlos life #ehlers danlos zebra #ehlers danlos problems #ehlers danlos awareness #hypermobile ehlers danlos #potsawareness #pots #mcas #the terrible trio #invisible illness #invisable disability #ugh why

[chronicallyillbookwyrm]

I’m so exhausted that I’m pre-exhausted for tomorrow.

#pots #potsie #pots syndrome #potsawareness #chronically ill

[kensies-chronically-ill]

Its a staying horizontal type of day

#potsawareness #chronically ill #postural orthostatic tachycardia syndrome #pots #chronic illness #disability #chronic fatigue #chronically ill memes #chronic pain #spoonie #disabled #pots syndrome

[no-im-not-a-robot-stop-asking]

Happy rare disease awareness Day!!!

Reminder that rare diseases have less studies done on them, less available treatment and the diagnostic process can be a hellish 10 years journey of fighting with doctors to be heard,

and diagnosis can also be sudden and/or traumatic experience!!

All my love to people with rare diseases!

#rare diseases awareness day #cripple punk #chronic illness #chronic pain #chronically ill #potsawareness #ehlers danlos syndrome

[consider-your-potatoes-mashed]

fuck I hate having POTS all I’ve been doing for the last half hour is lay down. Why the fuck is my heart racing and pounding???????

#disabled #disability #actually disabled #chronic illness #physical disability #chronic pain #hypermobility #pots #pots syndrome #mobility aid #potsawareness #potsie #why is pots like this #disautonomia #tachycardia #health #high heart rate #fuck this

[theriseofthesea]

Me, literally just existing:

My heart rate 📈📈📈📈

#actually disabled #potsie #chronic illness #disabled #asexual #the life of a potsie #potsawareness #pots syndrome #chronic disability #chronically fatigued #chronic illness memes

[bluejayqueen]

Is anyone else out here flaring up really bad because it's getting warmer out?

I'm out here fighting.

#chronically ill #potsawareness #chronic illness #pots syndrome #dysautonomia #chronic fatigue #chronic pain #ehlers danlos syndrome #autonomic dysfunction #postural orthostatic tachycardia syndrome

[helios-hawk]

too nauseous to eat, even more nauseous bc I don’t eat 😭 I am like that fucking guy with the boulder

#chronically ill #chronic illness #pots syndrome #potsawareness #potsie #fibromyalgia #fibro problems #text post #cymbalta #antidepressants #spoonie

[curlyhairwitchgf]

Like, even if you need to change your shirt or have a big bag

#cripple punk #chronic illness #spoonie #actually disabled #elhers danlos syndrome #heds #chronic pain #fibromyalgia #potsawareness #postural orthostatic tachycardia syndrome #rubie bangers

[faebobaggins]

casual dating with chronic illness feels impossible sometimes. having to explain why i can’t go out to dinner, go hiking, or even get in a stupid hot tub. i can’t go to farmers markets on the weekends or go to concerts and genuinely enjoy myself without worrying about passing out. “nice to meet you! i like to lay horizontally and if i stand for too long i’ll faint. want to sleep together?”

#chronic illness #chronic pain #spoonie #pots syndrome #potsie #ehlers danlos syndrome #hypermobile ehlers danlos #chronically ill #dating #potsawareness #chronic fatigue #post covid #long covid #postural orthostatic tachycardia syndrome