You know I used to think "tumblr's absolute refusal to actually engage with the Trolley Problem in favor of insisting that there must be a third, morally pure option that doesn't require them to make a hard decision and anyone who asks them to make a binary choice is just a short-sighted idiot is really fucking annoying, but I guess it's not actually doing any harm".
Anyway that was before we asked tumblr at large to decide between "guy aiding a genocide but making progress elsewhere" and "guy who would actively and enthusiastically participate in a genocide and would also make everything else much, much worse for everyone elsewhere" and the response was that there must be a third, morally pure option that doesn't require them to make a hard decision and that anyone who asks them to make a binary choice is a short-sighted idiot.
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“Unfinished Painting” — Keith Haring
This painting was left intentionally incomplete. Haring began it when he was dying due to complications from AIDS, and knew he didn’t have much time left. The piece represents the incomplete lives of him and many others, lost to AIDS during the crisis.
“AIDS Memorial Quilt” — Multiple
This quilt is over 50 tons heavy, and one of, if not the, largest pieces of community folk art. Many people who died of AIDS did not receive funerals, due to social stigma and many funeral homes refusing to handle the deceased’s remains, so this was one of the only ways their lives could be celebrated. Each panel was created in recognition of someone who died due to AIDS, typically by that person’s loved ones.
“Untitled” (Portrait of Ross in L.A.) — Felix Gonzalez-Torres
This pile of candy weighs the same amount as Gonzalez-Torres’ partner, Ross Laycock, did. Ross Laycock had died due to AIDS-related complications earlier that same year. Visitors who see this piece are encouraged to take some of the candy. As they do so, the pile of candy weighs less and less, like how AIDS had deteriorated the body of Ross Laycock.
The SF Gay Men's Chorus
This photo was taken in 1993. The men in white are the surviving original members. Every man in black is standing in for an original member who lost their lives to AIDS.
“Electric Fan (Feel it Motherfuckers); Only Unclaimed Item from the Stephen Earabino Estate, 1997” — John Boskovich
After the death of his lover, Stephen Earabino, from AIDS, Boskovich discovered that his family had completely cleared his room, including Boskovich’s own possessions, save for this fan. An entire person, existence and relationship had been erased, just like so many lives during the AIDS crisis. Boskovich encased the fan in Plexiglass, but added cutouts so that its air may be felt by the viewer, almost like an exhalation. In a sense, restoring Earabino’s breath.
“Blue” — Derek Jarman
This was Jarman’s final feature film, released four months before his death from AIDS-related complications. These complications had left him visually impaired, able to only see in shades of blue. This film consists of a single shot of a saturated blue color, as the soundtrack to the film described Jarman’s life through narration, intercut with the adventures of Blue, a humanization of the color blue. The film's final moments consist of a set of repeated names: “John. Daniel. Howard. Graham. Terry. Paul". These are the names of former lovers and friends of Jarman who had died due to AIDS.
“Untitled” (Perfect Lovers) — Felix Gonzalez-Torres
Created by the same man who created the previous untitled piece, this piece was also inspired by his lover’s deterioration and death due to AIDS. This piece consists of two perfectly alike clocks. Over the course of time, one of the clocks will fall out of sync with the other.
In a letter written to his lover about the piece, before his lover’s passing, Gonzalez-Tourres wrote, “Don't be afraid of the clocks, they are our time, the time has been so generous to us. We imprinted time with the sweet taste of victory. We conquered fate by meeting at a certain time in a certain space. We are a product of the time, therefore we give back credit were it is due: time. We are synchronized, now forever. I love you.”
Please feel free to reblog with more additions
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sometimes i feel like people forget autism is a disability. and that’s not a bad thing! i’m all for disability acceptance, im proud of my disabilities. but i feel like we forget autism can hurt.
it hurts that i have to put more time and energy into socializing than others.
it hurts when i need to move so bad, usually cause im overwhelmed by either my surroundings or emotions, that i thrash and hurt myself.
it hurts that i cant be in places that are too loud or too bright, which on bad days can be as simple as a small, quiet noise or dim lights.
it hurts that i struggle to tell when im hungry, thirsty, tired, etc. so i can’t properly take care of myself. it doesn’t help my insomnia and i get very nauseas and get UTIs.
i 100% believe in autism acceptance. i don’t want a cure. but i also want us the acknowledge that it can hurt. it doesn’t mean my entire life will hurt, but some parts will. and i want a community where we can see both sides, see the hurt, and celebrate it anyway.
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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